RE: weather and pain

[Guest guest]

Hi , yes, for the longest time, the weather has also affected me too.

Hot/humid to cold/humid cause pain flareups quite often. I feel like a

human barometer.

Rhonda

weather and pain

hi! does the change in weather esp. damp/humid and/or rain bring on more

intense body pain and mental fog to ya's? It does to me. The

Neurologists I see will not prescribe any kind of pain meds.,I'm to take

ib's or tylanol, do yoga and aqua therapy and of course desent diet.

Does anyone else have celliac (spg) disease too? Thanks

[Guest guest]

Hi, I'm new here-- just been lurking for a few days. I'm from central Illinois

where we have had rain, wind, tornados, damp, cold, weather for a few weeks

(seems like forever). My arthritis is killing me!! My hands are so sore I can

hardly use them. Been taking Aleeve, but it doesn't seem to touch it in this

weather. I have Vicodin which helps the most, but don't want to get to cozy

with it!! I just need some DRY, WARM, sunshine!! Mitzi

RE: weather and pain

Hi , yes, for the longest time, the weather has also affected me too.

Hot/humid to cold/humid cause pain flareups quite often. I feel like a

human barometer.

Rhonda

[Guest guest]

HI Ladies and Gents...

Yes, weather does effect me. Especially when the pressure goes down. I have

been in horrable pain the last 3 days and each day that I think it can't get

worse it does. Nothing seems to work, meds, relaxers, or bio-feedbk. It

could be spring but I really don't know any more...

Rhonda Huffman wrote:

Hi , yes, for the longest time, the weather has also affected me too.

Hot/humid to cold/humid cause pain flareups quite often. I feel like a

human barometer.

Rhonda

[Guest guest]

Hi Virginia! I go to an alternative doctor. He's

intergrative so he works first with alternative and

then does convetional if he needs too at last resort.

Have you tried a doctor like that. Also are you

taking lots of vitamins? How is your thyroid.

Conventionals told me mine was fine but when I went

back to my alternative he found out it was low and I'm

on a natural thyroid medication. Conventionals don't

get it somehow with these diseases so I went

alternative and he's helping me a lot right now. Lynn

--- Virginia Dempsey wrote:

> HI Ladies and Gents...

>

> Yes, weather does effect me. Especially when the

> pressure goes down. I have been in horrable pain

> the last 3 days and each day that I think it can't

> get worse it does. Nothing seems to work, meds,

> relaxers, or bio-feedbk. It could be spring but

> I really don't know any more...

>

> Rhonda Huffman wrote:

> Hi , yes, for the longest time, the weather

> has also affected me too.

> Hot/humid to cold/humid cause pain flareups quite

> often. I feel like a

> human barometer.

>

> Rhonda

[Guest guest]

Hi Mitzi: Besides arthritis do you also have CFS and

Fibromyalgia? If so get to a doctor who's

alternative. One who is intergrative is best - they

do alternative and use conventional as a last resort.

They could also help you a lot with your arthritis.

Lynn

--- ellemac114@... wrote:

> Hi, I'm new here-- just been lurking for a few

> days. I'm from central Illinois where we have had

> rain, wind, tornados, damp, cold, weather for a few

> weeks (seems like forever). My arthritis is killing

> me!! My hands are so sore I can hardly use them.

> Been taking Aleeve, but it doesn't seem to touch it

> in this weather. I have Vicodin which helps the

> most, but don't want to get to cozy with it!! I

> just need some DRY, WARM, sunshine!! Mitzi

[Guest guest]

Hi Lynn,

I see a Chiropractor and he helps me out with my alternative ways. The last

time I had my thyroid I was told it was fine. I do take tons of vitamins. I

am aware that we all have to take vitamins to help us along. The only thing is

that I find like my meds that they help for a bit and then they stop. I will

be seeing my CFS doctor in NYC on Friday. I really can't wait. I know she

will want me to come in more often to coem in for vitamin drips, and if that is

what I have to do I will. It just takes a lot out of my to get to NYC. Hubby

would take off if I asked to take me but I know it is a busy time for him right

now.

I appreciate you getting back to me, I will have my doctor do another Thyroid,

and have my EBV and HHV-6 cked also. The VA does most of the blood work for me

but they dont' do it all. Thanks again, for all your ideas...

Ginny

lynn paulino wrote:

Hi Virginia! I go to an alternative doctor. He's

intergrative so he works first with alternative and

then does convetional if he needs too at last resort.

Have you tried a doctor like that. Also are you

taking lots of vitamins?

[Guest guest]

-----Original Message-----

From: CFAlliance [mailto:CFAlliance ]On

Behalf Of lynn paulino

How is your thyroid.

Conventionals told me mine was fine but when I went

back to my alternative he found out it was low and I'm

on a natural thyroid medication.

Hi Lynn

I'd be interested to know what your natural thyroid medication is.

Alison

God bless

Give food to the hungry every day with a simple click, at no cost to you.

Visit http://www.thehungersite.com today!

[Guest guest]

Hi Alison! I hope you feel better! My natural

thyroid medication is called NatureThroid. You could

look it up on the web to get info on it. It is

helping me. I'm feeling a little stronger. Lynn

--- Alison wrote:

>

> Hi Lynn

>

> I'd be interested to know what your natural thyroid

> medication is.

>

> Alison

>

> God bless

[Guest guest]

Hi Virginia! Good luck with the doctor and your

welcome! Also, if she helps you let me know her name

because I live in the next state - New Jersey. My

alternative is doing the best he can for me. I do

feel a little better. Also, vitimins seem to always

help me. He said that CFS and Fibromyalgia is curable

in a lot of patients. Lynn

--- Virginia Dempsey wrote:

> Hi Lynn,

>

> I see a Chiropractor and he helps me out with my

> alternative ways. The last time I had my thyroid I

> was told it was fine. I do take tons of

> vitamins. I am aware that we all have to take

> vitamins to help us along. The only thing is that I

> find like my meds that they help for a bit and then

> they stop. I will be seeing my CFS doctor in NYC

> on Friday. I really can't wait. I know she will

> want me to come in more often to coem in for vitamin

> drips, and if that is what I have to do I will. It

> just takes a lot out of my to get to NYC. Hubby

> would take off if I asked to take me but I know it

> is a busy time for him right now.

[Guest guest]

-----Original Message-----

From: CFAlliance [mailto:CFAlliance ]On

Behalf Of lynn paulino

Hi Alison! I hope you feel better! My natural

thyroid medication is called NatureThroid. You could

look it up on the web to get info on it. It is

helping me. I'm feeling a little stronger. Lynn

Thanks Lynn. I've looked it up on the internet and am pleased to see it's

available in the UK (where I live) by prescription, if I ever need it!

Alison

God bless

[Guest guest]

Hi Lynn,

Where in Jersey are you?, as I am in Jersey also. small world. Do you

belong to NJCFSA? I just got back from the doctor and she will be running a

bunch of test. Did get the vit.push as well. Going to try to get in once a

month to see her for the drip. We sat down and discussed alot of things that I

am experincing. She wants to change a few meds and I will have to see if the

VA has them first. I'm hoping that they do. It would help out my pocket book

alot. Well, the ride in and back knocked me for a loop so i'm going to rest.

Have a great weekend...

(((Soft Hugs)))

Ginny

lynn paulino wrote:

Hi Virginia! Good luck with the doctor and your

welcome! Also, if she helps you let me know her name

because I live in the next state - New Jersey. My

alternative is doing the best he can for me. I do

feel a little better. Also, vitimins seem to always

help me. He said that CFS and Fibromyalgia is curable

in a lot of patients. Lynn

[Guest guest]

Hi Virginia! I live in Toms River and I know what you

mean when you say you have to rest. I can't work

full-time because of this stupid thing so I work

part-time in a supermarket. I am covered by benefits

because we are unionized. They cut our hours back but

it won't last forever so I'll just rest up some. No I

don't belong to NJCFSA. What does that stand for.

Where in New Jersey do you live? Lynn

--- Virginia Dempsey wrote:

> Hi Lynn,

>

> Where in Jersey are you?, as I am in Jersey also.

> small world. Do you belong to NJCFSA? I just got

> back from the doctor and she will be running a bunch

> of test. Did get the vit.push as well. Going to

> try to get in once a month to see her for the drip.

> We sat down and discussed alot of things that I am

> experincing. She wants to change a few meds and I

> will have to see if the VA has them first. I'm

> hoping that they do. It would help out my pocket

> book alot. Well, the ride in and back knocked me

> for a loop so i'm going to rest. Have a great

> weekend...

>

> (((Soft Hugs)))

> Ginny

[Guest guest]

I take a natural thyroid called Armour thyroid. I have been taking it

for 11 years. It has helped me.

[Guest guest]

That's great ! Mine seems to be helping too.

But yeah I still get sick. Lynn

--- wrote:

> I take a natural thyroid called Armour thyroid. I

> have been taking it

> for 11 years. It has helped me.

>

[Guest guest]

Hi Lynn,

No I don't work... the CFS and FMS is too bad. i'm in Watchung, I know

where Toms River is. It is far for me... Glad you can work part time and have

your medical covered..... NJCFSA is New Jersey Chronic Fatigue Syndrome Assoc.

I have not belonged for year. Buth they do have conferences in Jersey....

Well need to shut down a bit. I am toally wipped out right now...

Have a good day..

Ginny

lynn paulino wrote:

Hi Virginia! I live in Toms River and I know what you

mean when you say you have to rest. I can't work

full-time because of this stupid thing so I work

part-time in a supermarket. I am covered by benefits

because we are unionized. They cut our hours back but

it won't last forever so I'll just rest up some. No I

don't belong to NJCFSA. What does that stand for.

Where in New Jersey do you live? Lynn

[Guest guest]

Hi Ginny! NJCFSA - that sounds like something I would

like to join. I'm so sorry you can't work. I'm going

to see my alternative tomorrow. I was off the past 2

days and am off tomorrow so I'm resting up. It helps

somewhat but then as soon as I get in the car and

drive up the block I'm pooped again! Are you able to

get any medical coverage? Lynn

--- Virginia Dempsey wrote:

> Hi Lynn,

>

> No I don't work... the CFS and FMS is too bad.

> i'm in Watchung, I know where Toms River is. It is

> far for me... Glad you can work part time and have

> your medical covered..... NJCFSA is New Jersey

> Chronic Fatigue Syndrome Assoc. I have not

> belonged for year. Buth they do have conferences in

> Jersey....

> Well need to shut down a bit. I am toally wipped

> out right now...

>

> Have a good day..

>

> Ginny

[Guest guest]

Lynn,

Being I was service connected I do get most of my meds thru the VA but if it

is not on thier list either I have to do without or spend the $$$.

I'ms ure you will like NJCFSA... they all are vol. and suffer with CFS and

FMS. There are still some of the original people that I served with. Money

is tight right now otherwise I would join again...

Enjoy your sunny day...

Ginny

lynn paulino wrote:

Hi Ginny! NJCFSA - that sounds like something I would

like to join. I'm so sorry you can't work. I'm going

to see my alternative tomorrow. I was off the past 2

days and am off tomorrow so I'm resting up. It helps

somewhat but then as soon as I get in the car and

drive up the block I'm pooped again! Are you able to

get any medical coverage? Lynn

[Guest guest]

Hi Ginny! Money is tight for me too. The cut our

hours at work. If my boss does it again next week I'm

going to talk to her about at least giving me 5 more

hours. I'm working 20 1/2 hours this week and I

worked 20 last week. The weeks before that were fine.

How are you feeling these days. Lynn

--- Virginia Dempsey wrote:

> Lynn,

> Being I was service connected I do get most of my

> meds thru the VA but if it is not on thier list

> either I have to do without or spend the $$$.

> I'ms ure you will like NJCFSA... they all are vol.

> and suffer with CFS and FMS. There are still some

> of the original people that I served with. Money

> is tight right now otherwise I would join again...

>

> Enjoy your sunny day...

>

> Ginny

[Guest guest]

HI Lynn,

What type of work do you do? I don't recall if you told me or not. I have

heavy brain fog today. I'm not getting any sleep and that is killing me. I'm

sorry to hear that they are cutting yoru hours back. Can you afford that, do

you have help? I'm hoping things will turn around for you....

Still waiting for the Va to contact me about the meds. If I don't hear by

today, I will call Monday..

You have a good weekend...

Ginny

lynn paulino wrote:

Hi Ginny! Money is tight for me too. The cut our

hours at work. If my boss does it again next week I'm

going to talk to her about at least giving me 5 more

hours. I'm working 20 1/2 hours this week and I

worked 20 last week. The weeks before that were fine.

How are you feeling these days. Lynn

[Guest guest]

Hi Ginny! My boss gave me my hours back again! Thank

goodness. They just do that because of their budget

and then it bounces back. I am a cashier at Stop and

Shop Supermarket. It's a part time job and I have all

benefits including medical, dental, life insurance,

pension, etc. I just got a raise. The money isn't

all that great but with this illness it's impossible

to work full time. My alternative cut my thyroid pill

in half for now and told me to stay on the

iodine/potassium supplement taking 1 pill 3 times

daily. I have to see him on May 24th again. It's

monthly visits. He's doing everything in his power to

try and help me out. How have you been feeling? Are

you ok? Being that you live in New Jersey and you

sound really nice if you want my phone # I have no

problem giving it to you. Maybe if we talk on the

phone it will be comforting for both of us. Also, how

old are you? I'll be 57 in August but I look 10 years

younger. Take care of your self and you have a nice

weekend too. I have off on Sunday and will be resting

in bed a good part of the day. And yes, I have

someone to talk to at home. My mom lives with me.

God Bless and rest up. Lynn

--- Virginia Dempsey wrote:

> HI Lynn,

> What type of work do you do? I don't recall if

> you told me or not. I have heavy brain fog today.

> I'm not getting any sleep and that is killing me.

> I'm sorry to hear that they are cutting yoru hours

> back. Can you afford that, do you have help? I'm

> hoping things will turn around for you....

[Guest guest]

Hi Lynn,

That is great news to hear that your boss gave you your hours back....I'm sure

that relieves a lot of stress..weall nedour ins and pension....and that is great

that you got a raise...

Funny you should ask how I am. I had a chrash this weekend. Sat was bad and

Sunday was wipe out.. Today I feel a bit better. but I will be resting the rest

of the week and seeing may chiropractor and Biofeed back doctor. Hopeing they

can help me. If I can drive. I was going to do out and get some food today

but I won't get behind the wheel when I feel this way..

We are right around the same age I am 54 and dont' look my age even if I feel

ike a hundred 110 today. That would be great to talk give us both someone to

talk to who understand what we are going thru. I have my husband and he is

great....

Glad you have your Mom to talk to . My mom really doesn't understand the

illness nor believes in it...

I would rather not post my phone number here. Write me at

Combattboots@... and i'll give you the number or you can give it to me....

Stay well my friend...

Ginny

lynn paulino wrote:

Hi Ginny! My boss gave me my hours back again! Thank

goodness. They just do that because of their budget

and then it bounces back. I am a cashier at Stop and

Shop Supermarket. It's a part time job and I have all

benefits including medical, dental, life insurance,

pension, etc. I just got a raise. The money isn't

all that great but with this illness it's impossible

to work full time. My alternative cut my thyroid pill

in half for now and told me to stay on the

iodine/potassium supplement taking 1 pill 3 times

daily. I have to see him on May 24th again. It's

monthly visits.

[Guest guest]

Hi Ginny! I crashed yesturday and stayed in bed all

day and I'm crashing again now. I have a bad burning

sore throat and my body burns from the Fibro. Your

mom just dosen't understand. But it's a real illness

and boy do we suffer. I would give anything to get

better. I will e-mail my number to you personally.

Lynn

Feel Better

--- Virginia Dempsey wrote:

> Hi Lynn,

>

> That is great news to hear that your boss gave you

> your hours back....I'm sure that relieves a lot of

> stress..weall nedour ins and pension....and that is

> great that you got a raise...