What are your thoughts.

[Guest guest]

OK I know you're not professionals or doctors or any such thing. I am only

wondering about your thoughts on something. This is really all very new to me. I

am only now learning about fibro. I have a friend who has shared some

information with me today. It turns out he actually dated a woman who has this.

Between what he has sent me and a little of what I read here so far I am

beginning to wonder. I have a child who is special needs. He spent the first

three years of his life in the hospital. His disorder is undiagnosed but it is

neuromuscular. Also I know the doctors have mentioned allot of times that his

neurons misfire causing some of his aliments. Knowing this I am starting to

wonder if maybe just maybe he has some form of this but on a more sever level.

He has had doctors from all over the world scratching their heads over

everything that is wrong with him for seven years now. They have not come across

any other case any where in the world like his. Knowing what is going wrong with

me even if I am unsure of the diagnosis I cannot help but wonder if his doctors

are looking still in the wrong place. What are your thoughts on this if you

don't mind my asking? If you want more information on what is wrong then please

let me know. If there is anything people learn about me over time it is that I

talk about my Korben all the time. The doctors said that he would not

survive.... They expected his death years ago but he is going strong and believe

it or not.... getting better. I just cannot help right now but wonder.