Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 If you remember, a few weeks ago I got very upset because my rheumy, who I had been seeing for over a year, waffled about filling out disability forms for me. He said since I " sit behind a desk and think, " why couldn't I work, etc. He also said that he thought I could work part-time. Now I've started with a new rheumy and I really think I'm going to like him, but, as I expected, he thinks it's " premature " to discuss disability. He diagnosed me with RA (which I knew) AND Fibro, and he thinks that accounts for some of my fatigue. (I don't really have muscle pain, but I noticed a while ago that have all the other symptoms -- tender points, fatigue, poor sleep, irritable bowel, etc. At least now I have an excuse when I'm stupid!!) He put me on Humira and increased my methotrexate, and is hoping that I'll get better. I hope that I'll get better too, but I still don't see how I can continue to work. It was a struggle even before -- I'm a single mother with 3 fairly young kids, NO other family, kids' dad lives out of state and plays daddy when and if he feels like it. I work as a lawyer, which is stressful. But it all worked out somehow before I got sick. Now there are piles of stuff everywhere, we're living on convenience foods and cereal, and my kids basically have no parents -- they get fed and housed, but I have no idea what's going on in school, etc. because I just don't have the energy. I come home at night, make sure they eat something, and get into bed and issue orders from there (which are usually ignored). Something has to give. I've considered everything -- stop working and live off savings and credit cards for awhile (I'm fortunate in that I could do that for about a year, but then I'd have nothing), send the kids out of state to dad (it would kill me, and I'm not sure if he would even do it, but at least they would have ONE parent), sell the house and go on welfare and food stamps. These are all options, but I shouldn't HAVE to do this, I HAVE disability insurance, and I even have doctors who admit that I'm sick. Why don't they get it? Why don't they understand that I can't eat properly, exercise or get enough rest, and that's making me sicker? (I WANT to eat better, I crave salmon and green beans and salads, but I eat bags of cookies because I have no strength to cook.) Why don't they understand that stress and exhaustion makes me feel ten times worse? (When I have a few days off I feel like a new person.) How do I convince them? Quote Link to comment Share on other sites More sharing options...
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