Re: finally doing better - Merv

[Guest guest]

Hi Merv:

Thanks for sharing your experience with the new

medication. I have never heard of Neoral - is it pill

or injectable? I am currently on Enbrel,

Methotrexate, Mobic, and Ultracet, and this seems to

be working pretty well for me. It's great when

something actually seems to be helping after so many

disappointments. Stories of hope are always welcome.

Also, thanks for letting me know of your experience

with muscle and body pain along with the RA. I have

been definately dx with FM, but sometimes between the

it and the RA, I can't tell which one happens to be

giving me more trouble.

Kathe in CA

--- Merv Punnett <merv_punnett@...> wrote:

> Dear freinds,

> I haven't written anyone in 10 months, forgive me

> all. I have been on methotrexate since my diagnosis

> of

> rheumatoid 2 1/2 years ago. With that, I've tried

> many

> things including:humira,embrel,arava, and now

> neoral.

> Like you I have suffered greatly. However, for the

> first time in all this time, I feel as though

> something is working {neoral}. I pray that I never

> return to that deep hole of severe swelling and pain

> that I lived in. It's wonderful to feel half

> normal,lol.

> I tell all of you this because I want you to have

> hope. It can get better. Idon't know for how long,

> but

> I'm hoping it's forever,lol.

> I've read many of the e-mail posted and I want

> Kathe

> to know that I have throughout my rheumy

> experiences,

> have had consistent and severe muscle swelling and

> pain along with those in the joints, and yes it

> circulates throughout the body. Many of the meds

> also

> cause or increase muscle pain. Like many diseases,

> rheumatoid has many faces. I hope this answers your

> questions. But you ,and all who read this, please

> don't give up hope. Good (at least better days) will

> come.

>

> Merv

>

>

>

> __________________________________________

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>

>

>

>

Kathe in CA

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