Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Maya, Stick with your doctor's directions. We can give you suggestions, but we are not doctors and you should not do anything that your doctor has not approved. I also have Reiters Syndrome, aka Reactive Arthritis, along with Sjogrens Syndrome, Raynauds Phenomena, Fibro, and chronic fatigue syndrome. I've had the HLA-B27 negative Reiters since childhood. I do not take NSAIDs as they did not seem to be stopping the progression of the disease or it's pain and being over 50 the chance of damage to my liver/kidneys was too great to continue with them after having been on them for 25 years. I take oxycontin 10 mg. q. 12 hrs., Darvon 100 (100 mg. darvon + 650 tylenol) q. 6 hrs with 2 at bedtime for the final dose; ultram 100 mg. three times a day; Flexeril, aka cyclobenzaprene, 20 mg. three times a day, plus 30 mg. at bedtime. I have Klonopin for anxiety attacks when the pain soars. The combination of medications means that I can take lower doses of oxycontin over a longer period of time. The oxycontin was the last medication added to my pain-relief " cocktail. " The oxycontin is the only thing that controls the pain in my feet, my left knee, left hip/pelvis, left chest wall, and left shoulder. My best time is in the mornings, or within one hour after taking the oxycontin. Fatigue is a great problem, especially when the pain soars. Talk with your doctor about your concerns for detoxing, i.e., titrating down, from your current level of medication. Quote Link to comment Share on other sites More sharing options...
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