RE: New here- Hello to everyone

[Guest guest]

Hi !! Welcome to the group! I am Sherri-38 yrs old,. work as a

Registered Nurse., Would love to correspond with you!!! feel free 2 emai me

@ yorkiegal2003@...., sherri

Stay strong and healthy

>From: " melgmom " <bmccboren@...>

>Reply-

>

>Subject: [ ] New here- Hello to everyone

>Date: Tue, 27 Dec 2005 18:32:19 -0000

>

>Hi there.

>

>My name is Melisa and I am 30 years old. I have had RA since I was

>about nineteen. I was in the Army when I was diagnosed, and didn't

>recieve proper treatment for two years after my diagnosis (I was

>stationed overseas). Since then I have been on just about

>everything there is. Right now I am taking Prednisone,

>Methotrexate, Sulfasalazine, Celebrex, Achiphex, Folic Acid,

>Gabapentin to sleep and Tramadol for pain in the day, I just had to

>stop taking Humira because of injection site reactions and lung

>complications.

>

>My typical experience is that medicine works

>for me for about six months to a year and then it either stops

>working or I develop a reaction to it. I have been on Remicade,

>Enbrel, and Humira and I am about to start a new drug called

>Rituximab. It is not FDA approved for use in RA yet, it is the

>final stages of the clinical trials. My doctor thought it would be

>approved before Orencia (Abadacept) but that didn't happen, so

>anyway, the VA approved me trying Rituximab since I have had bad

>luck with all the other TNF blockers. Rituximab suppresses B cells,

>so it is a different kind of immune system suppressant than anything

>out there. I don't know anyone else on it.

>

>Basically I don't know very many people at all.

>

>Anyway, right now I am in a huge flare. I don't think I have ever

>felt this bad for this long. I am so fatigued, and my energy level

>is so low. The pain and stiffness is intense and I am so CRABBY! I

>have two kids and a supportive husband, but sometimes I really feel

>like no one understands me. I look relatively healthy and I try

>really hard to not let people know how bad I am suffering. Which is

>counter-productive because no one really knows how hopeless I feel.

>

>Sorry this is so long...... It is hard to summarize all that is

>going on and all of the emotions involved. But just by reading some

>of the posts here I know that a lot of people feel the same way as

>me, so I am hoping that finally I have found people that understand.

>

>Thanks for reading.

>

>Melisa

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I am a 34 yr old mum of three, you have indeed found a great group of people,

I have only been in the group for two months and I have learnt so much info that

I didn't know and there is so much support....

Take care and look forward to your contact

melgmom <bmccboren@...> wrote:

Hi there.

My name is Melisa and I am 30 years old. I have had RA since I was

about nineteen. I was in the Army when I was diagnosed, and didn't

recieve proper treatment for two years after my diagnosis (I was

stationed overseas). Since then I have been on just about

everything there is. Right now I am taking Prednisone,

Methotrexate, Sulfasalazine, Celebrex, Achiphex, Folic Acid,

Gabapentin to sleep and Tramadol for pain in the day, I just had to

stop taking Humira because of injection site reactions and lung

complications.

My typical experience is that medicine works

for me for about six months to a year and then it either stops

working or I develop a reaction to it. I have been on Remicade,

Enbrel, and Humira and I am about to start a new drug called

Rituximab. It is not FDA approved for use in RA yet, it is the

final stages of the clinical trials. My doctor thought it would be

approved before Orencia (Abadacept) but that didn't happen, so

anyway, the VA approved me trying Rituximab since I have had bad

luck with all the other TNF blockers. Rituximab suppresses B cells,

so it is a different kind of immune system suppressant than anything

out there. I don't know anyone else on it.

Basically I don't know very many people at all.

Anyway, right now I am in a huge flare. I don't think I have ever

felt this bad for this long. I am so fatigued, and my energy level

is so low. The pain and stiffness is intense and I am so CRABBY! I

have two kids and a supportive husband, but sometimes I really feel

like no one understands me. I look relatively healthy and I try

really hard to not let people know how bad I am suffering. Which is

counter-productive because no one really knows how hopeless I feel.

Sorry this is so long...... It is hard to summarize all that is

going on and all of the emotions involved. But just by reading some

of the posts here I know that a lot of people feel the same way as

me, so I am hoping that finally I have found people that understand.

Thanks for reading.

Melisa

[Guest guest]

Yes, Melisa, you have found people that understand. Welcome to a

wonderful support group. Keep us informed about how you do on the

Rituximab, because I don't think we have anyone else on that. I hope it

is just the very thing you need! Sue

On Tuesday, December 27, 2005, at 01:32 PM, melgmom wrote:

> But just by reading some

> of the posts here I know that a lot of people feel the same way as

> me, so I am hoping that finally I have found people that understand.

[Guest guest]

Melisa,

Hi, welcome to the group. I am so sorry that you are

having such a bad time right now. I hope that you feel

better soon. You can come here to whine all you want.

Everyone understands. Take care.

Beth in AR

--- melgmom <bmccboren@...> wrote:

> Hi there.

>

> My name is Melisa and I am 30 years old. I have had

> RA since I was

> about nineteen. I was in the Army when I was

> diagnosed, and didn't

> recieve proper treatment for two years after my

> diagnosis (I was

> stationed overseas). Since then I have been on just

> about

> everything there is. Right now I am taking

> Prednisone,

> Methotrexate, Sulfasalazine, Celebrex, Achiphex,

> Folic Acid,

> Gabapentin to sleep and Tramadol for pain in the

> day, I just had to

> stop taking Humira because of injection site

> reactions and lung

> complications.

>

> My typical experience is that medicine works

> for me for about six months to a year and then it

> either stops

> working or I develop a reaction to it. I have been

> on Remicade,

> Enbrel, and Humira and I am about to start a new

> drug called

> Rituximab. It is not FDA approved for use in RA

> yet, it is the

> final stages of the clinical trials. My doctor

> thought it would be

> approved before Orencia (Abadacept) but that didn't

> happen, so

> anyway, the VA approved me trying Rituximab since I

> have had bad

> luck with all the other TNF blockers. Rituximab

> suppresses B cells,

> so it is a different kind of immune system

> suppressant than anything

> out there. I don't know anyone else on it.

>

> Basically I don't know very many people at all.

>

> Anyway, right now I am in a huge flare. I don't

> think I have ever

> felt this bad for this long. I am so fatigued, and

> my energy level

> is so low. The pain and stiffness is intense and I

> am so CRABBY! I

> have two kids and a supportive husband, but

> sometimes I really feel

> like no one understands me. I look relatively

> healthy and I try

> really hard to not let people know how bad I am

> suffering. Which is

> counter-productive because no one really knows how

> hopeless I feel.

>

> Sorry this is so long...... It is hard to summarize

> all that is

> going on and all of the emotions involved. But just

> by reading some

> of the posts here I know that a lot of people feel

> the same way as

> me, so I am hoping that finally I have found people

> that understand.

>

> Thanks for reading.

>

> Melisa

>

>

>

>

>

>

__________________________________

for Good - Make a difference this year.

http://brand./cybergivingweek2005/

[Guest guest]

In a message dated 12/30/2005 12:03:29 PM Central Standard Time,

mightybeth2001@... writes:

Sorry this is so long...... It is hard to summarize

> all that is

> going on and all of the emotions involved. But just

> by reading some

> of the posts here I know that a lot of people feel

> the same way as

> me, so I am hoping that finally I have found people

> that understand.

>

> Thanks for reading.

>

> Melisa

Melisa! WELCOME! I am a newby here as well. Good luck with the new

medication i hope it helps you longer than a year.