Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Well, many of you are familar with my on-going saga and My update is something out of a horror movie, I received a letter today from the Dept. of Health in another state entitled " Confidential Disease Report " , which goes on to state that I am Sjogren's +, Hepatitis B & C+. After going into a state of shock b4 comprehending anything I was reading - I finally was reassured that it must just be from my antibodies to the Hep B series. Upon further examination on another supplemental form it states Hep C AB Reactive method unknown or something of that nature and Anti-HBs is positive, HBsAg is negative, Anti-HBc is negative, IgM Anti-HBc is negative indicating only antibodies to Hep B via Hep B vaccination. The Hep C AB is a new one on me. As you may recll I tested positive b4 for SSB and had called and inquired about my blood test results back in August. I then went to my doc here and went over the results faxed and was told all was a- ok, I then upon further evaulation of the fax Went Back in to my doc to inform him what I noticed about the SSB, etc... to be told all was well even after supposidly conversing with the testing doctor on my previous visit. I have been told for years that I am hysterical and that I have the RF+ and that is normal but I can't get rid of it. I then called back to Wyoming to be told all my lab values were fine by the Lab staff, The Nurse and some other gal all on seperate occasions and therefore assumed all was well except for the +SSB even after being told that means nothing!!!!!!! I have been in counseling to document all of this and that I am and have been sick and that I am not being taken seriously and they are convinced that I'm delusional and paranoid. I am hysterical especially at this very moment as my mother just died and I amounted to nothing and now I am faced with losing my father by way of the fact that I must have Hep C as he is the retired State Epidemologist of Infectious Disease here in the state that I am currently living and isn't that just a fine kettle of fish! After I gained some sense of self composure I called my Doc's office here to make an appointment and when asked why I felt I needed an appointment I lost it and informed the gal that I had been in on several occasions about the blood test result amoung other things and that I needed to be tested right away and she couldn't get me in until Monday which should just go great with my borderline thinking of good/bad, black/white, not knowing isn't part of something I am able to cope too well with. I asked to see someone else and I either have to see my doc or his assistant, she asked why I thought I needed to be tested? I then told her that I just got a letter from another state informing me that I have an infectious disease and so I better at the very least comply with the CDC rules. In my wildest dreams I would of never come up with hepatitis, I seen it under RF+ related testing and never imagined to look as it wasn't a possibility. Now it is more than a possibility - it is a reality. I'm sorry that I am so long winded and that I have asked so many queations about so many other illnesses taking away from so many here. I'm so embarrassed, scared, confused and a bit angry too, I suppose. Anyhow, I am sorry for all the time spent questioning about unrelated stuff and I thank everyone for all the kind words, the support, the research, etc... You all are such an exemplary group of individuals! I always felt at ease with all of you and the compassion and empathy have been my life line for months now. I don't know if Sjogren's is associated with Hepatitis or what. I doubt I will learn much from the doc. I don't know if I have any illnesses that would classify me to remain in this group? Sorry for venting yet again. Thanks for listening and thanks for all that you do! Love ya guys! If anyone has any words of wisdom or advice...PLEASE " bring it willy " as the saying goes! I wish well to all! As always take care and God Bless! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2005 Report Share Posted December 18, 2005 > > Well, many of you are familar with my on-going saga and My update is > something out of a horror movie, I received a letter today from the > Dept. of Health in another state entitled " Confidential Disease > Report " , which goes on to state that I am Sjogren's +, Hepatitis B & > C+. After going into a state of shock b4 comprehending anything I was > reading - I finally was reassured that it must just be from my > antibodies to the Hep B series. Upon further examination on another > supplemental form it states Hep C AB Reactive method unknown or > something of that nature and Anti-HBs is positive, HBsAg is negative, > Anti-HBc is negative, IgM Anti-HBc is negative indicating only > antibodies to Hep B via Hep B vaccination. The Hep C AB is a new one > on me. As you may recll I tested positive b4 for SSB and had called > and inquired about my blood test results back in August. I then went > to my doc here and went over the results faxed and was told all was a- > ok, I then upon further evaulation of the fax Went Back in to my doc > to inform him what I noticed about the SSB, etc... to be told all was > well even after supposidly conversing with the testing doctor on my > previous visit. I have been told for years that I am hysterical and > that I have the RF+ and that is normal but I can't get rid of it. I > then called back to Wyoming to be told all my lab values were fine by > the Lab staff, The Nurse and some other gal all on seperate occasions > and therefore assumed all was well except for the +SSB even after > being told that means nothing!!!!!!! I have been in counseling to > document all of this and that I am and have been sick and that I am > not being taken seriously and they are convinced that I'm delusional > and paranoid. I am hysterical especially at this very moment as my > mother just died and I amounted to nothing and now I am faced with > losing my father by way of the fact that I must have Hep C as he is > the retired State Epidemologist of Infectious Disease here in the > state that I am currently living and isn't that just a fine kettle of > fish! After I gained some sense of self composure I called my Doc's > office here to make an appointment and when asked why I felt I needed > an appointment I lost it and informed the gal that I had been in on > several occasions about the blood test result amoung other things and > that I needed to be tested right away and she couldn't get me in > until Monday which should just go great with my borderline thinking > of good/bad, black/white, not knowing isn't part of something I am > able to cope too well with. I asked to see someone else and I either > have to see my doc or his assistant, she asked why I thought I needed > to be tested? I then told her that I just got a letter from another > state informing me that I have an infectious disease and so I better > at the very least comply with the CDC rules. In my wildest dreams I > would of never come up with hepatitis, I seen it under RF+ related > testing and never imagined to look as it wasn't a possibility. Now > it is more than a possibility - it is a reality. I'm sorry that I am > so long winded and that I have asked so many queations about so many > other illnesses taking away from so many here. I'm so embarrassed, > scared, confused and a bit angry too, I suppose. Anyhow, I am sorry > for all the time spent questioning about unrelated stuff and I thank > everyone for all the kind words, the support, the research, etc... > You all are such an exemplary group of individuals! I always felt at > ease with all of you and the compassion and empathy have been my life > line for months now. I don't know if Sjogren's is associated with > Hepatitis or what. I doubt I will learn much from the doc. I don't > know if I have any illnesses that would classify me to remain in this > group? Sorry for venting yet again. Thanks for listening and thanks > for all that you do! Love ya guys! If anyone has any words of > wisdom or advice...PLEASE " bring it willy " as the saying goes! I > wish well to all! As always take care and God Bless! Kim > Quote Link to comment Share on other sites More sharing options...
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