Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Tess! My response is a little delayed because I've been on vacation, but I wanted to say that I think you have come up with the best phrase ever to describe what's going on with me and lots of the other folks in this group. Autoimmune potpourri!!!! brilliant! I love it. Boy it feels good to be back online and hearing from people who know exactly what I'm going through and can hit the nail on the head like that. My trip went very well. My family was supportive without being patronizing and for that I'm grateful. I overdid it, of course, and now my hips are killing me. After the long drive, it feels like someone was using my hinder for a punching bag while I was asleep and I've been creeping around the house. I have no regrets, though. My pain will settle down after a while and I'll have to toss back a few extra pain pills, but the memories I have of the trip will last longer. Welcome to the new friends who joined in the last week or so. You will love these people! laura Grammi B <grammi_love@...> wrote: Hi Jen...I was in my late 20's when I was dx'd with sero-negative lupus and mixed connective tissue disease. In my thirties I was dx'd with chronic fatigue syndrome, then fibromyalgia. In my forties I was dx'd with rheumatoid arthritis, psoriatic arthritis and sjogren's syndrome. I, too, am not sure " what " exactly I have...I call it " autoimmune potpourri " though my doctors are settled on Ra, PsA, FMS and Sjogren's. My children were very small when I was first dx'd. All this to say I do understand your situation, and I am glad you are here to receive all the good blessings from this great groups of fellow survivors. Hugs... Tess in Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Tess! My response is a little delayed because I've been on vacation, but I wanted to say that I think you have come up with the best phrase ever to describe what's going on with me and lots of the other folks in this group. Autoimmune potpourri!!!! brilliant! I love it. Boy it feels good to be back online and hearing from people who know exactly what I'm going through and can hit the nail on the head like that. My trip went very well. My family was supportive without being patronizing and for that I'm grateful. I overdid it, of course, and now my hips are killing me. After the long drive, it feels like someone was using my hinder for a punching bag while I was asleep and I've been creeping around the house. I have no regrets, though. My pain will settle down after a while and I'll have to toss back a few extra pain pills, but the memories I have of the trip will last longer. Welcome to the new friends who joined in the last week or so. You will love these people! laura Grammi B <grammi_love@...> wrote: Hi Jen...I was in my late 20's when I was dx'd with sero-negative lupus and mixed connective tissue disease. In my thirties I was dx'd with chronic fatigue syndrome, then fibromyalgia. In my forties I was dx'd with rheumatoid arthritis, psoriatic arthritis and sjogren's syndrome. I, too, am not sure " what " exactly I have...I call it " autoimmune potpourri " though my doctors are settled on Ra, PsA, FMS and Sjogren's. My children were very small when I was first dx'd. All this to say I do understand your situation, and I am glad you are here to receive all the good blessings from this great groups of fellow survivors. Hugs... Tess in Oregon Quote Link to comment Share on other sites More sharing options...
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