RE: Re: Questions about Methotrexate

[Guest guest]

I want to thank everyone who replied to my question about Methotrexate.

Your insight has been very helpful. A lot of you mentioned folic acid

and yes my neuro has me on that medication. I'm taking 1 mcg. daily.

If the nausea doesn't let up soon I may ask for the injection. You all

seem to be a very caring group and I want to thank you again for

sharing.

Larry A. Brown

[ ] Re: Questions about Methotrexate

Methotrexate severely depletes the body of folic acid.

Rheumatologists usually prescribe folic acid to go along with MTX--at

least 1 mg/day. If you're not taking folic acid along with the MTX it

would certainly explain the problems you're having. If you are taking

folic, you may need a higher dose. I struggled with fatigue at 1 mg

and my rheumy upped my dose to 2-3/day. She said some of her patients

take 5 mg./day.

Sierra

--- In , " Larry Brown " <lbrown85@a...>

wrote:

>

> Hello everyone. I do not suffer from RA but I have Myasthenia

> Gravis. My Neuro has me on Mestinon for double vision and drooping

> eyes. I can't find very much about Methotrexate on the Myasthenia

> Group so my Neuro told me to monitor this site. I hope you don't

mind.

>

> My main question is about the side effects of the medication. I am

on

> my 4th week and will be taking 6 tablets this Sunday and that will

> remain my dose. I felt so bad this past Monday (nausea, diarrhea

and

> absolute fatigue)on 5 tablets that it makes me wonder if I want to

> continue. How long can I expect to have the side effects? Do they

> last all week or just the day after the medication? After I'm on

this

> for a while will the side effects deminish? The nurse at my

Neuro's

> office is on methotrexate and she told me to stick with it. I've

read

> the literature but I would like to hear from you real folks that

take

> the medication.

>

> Any help will be appreciated.

>

> Thank You

>

> Larry

>

[Guest guest]

I have been taking mine at bedtime ever since someone told me about it. What a

great tip this is, now I sleep and don't know if I feel sick or not. What is

the reason for the water?

Hugs

June

----- Original Message -----

From: snowdrift52003

I don't recall if anyone mentioned that taking MTX at bedtime (with a

snack) is a good idea because you can sleep through some of the side

effects. Works for me. I keep water at my bedside and drink it during

the night hours. Lots of water the next day, too.

Sierra

> >

> > Hello everyone. I do not suffer from RA but I have Myasthenia

> > Gravis. My Neuro has me on Mestinon for double vision and

drooping

> > eyes. I can't find very much about Methotrexate on the

Myasthenia

> > Group so my Neuro told me to monitor this site. I hope you don't

> mind.

> >

> > My main question is about the side effects of the medication. I

am

> on

> > my 4th week and will be taking 6 tablets this Sunday and that

will

> > remain my dose. I felt so bad this past Monday (nausea, diarrhea

> and

> > absolute fatigue)on 5 tablets that it makes me wonder if I want

to

> > continue. How long can I expect to have the side effects? Do

they

> > last all week or just the day after the medication? After I'm on

> this

> > for a while will the side effects deminish? The nurse at my

> Neuro's

> > office is on methotrexate and she told me to stick with it. I've

> read

> > the literature but I would like to hear from you real folks that

> take

> > the medication.

> >

> > Any help will be appreciated.

> >

> > Thank You

> >

> > Larry

> >

>

>

>

>

>

>

>

[Guest guest]

Yes Sierra, I'm on 1 mg daily. I get my metric's backwards sometimes.

Thanks

Larry

[ ] Re: Questions about Methotrexate

Hi Larry,

I'm assuming you meant 1 mg and not 1 mcg of folic. Yes?

Sierra

> >

> > Hello everyone. I do not suffer from RA but I have Myasthenia

> > Gravis. My Neuro has me on Mestinon for double vision and

drooping

> > eyes. I can't find very much about Methotrexate on the

Myasthenia

> > Group so my Neuro told me to monitor this site. I hope you don't

> mind.

> >

> > My main question is about the side effects of the medication. I

am

> on

> > my 4th week and will be taking 6 tablets this Sunday and that

will

> > remain my dose. I felt so bad this past Monday (nausea, diarrhea

> and

> > absolute fatigue)on 5 tablets that it makes me wonder if I want

to

> > continue. How long can I expect to have the side effects? Do

they

> > last all week or just the day after the medication? After I'm on

> this

> > for a while will the side effects deminish? The nurse at my

> Neuro's

> > office is on methotrexate and she told me to stick with it. I've

> read

> > the literature but I would like to hear from you real folks that

> take

> > the medication.

> >

> > Any help will be appreciated.

> >

> > Thank You

> >

> > Larry

> >

>

>

>

>

>

>

>