A more serious note

[Guest guest]

Hi All,

This must be a record! Two reasonably good days in a row.

Replies

Dianne Hayter - I live in a small town near Glasgow in Scotland. I

have had ME for 4 years now with no real improvement. Did you know

that there are several Smallgroups on Yahoo dealing with ME and one

in particular dealing with Arthritis + ME. I am a member there.

Judy McKee - The problem is with the UK NHS (National Health System)

which operates to its own petty rules. My GP referred me in April. An

exchange of letters between the chair suppliers and my consultant

recently took from July 2 to September 17 before the case file went

to the supervising Dr. at the chair place. I am still awaiting a

decision (September 26). This is not untypical.

General - Does anyone know if there is such a thing as a pain control

clinic in the UK? I have been unable to find anything so far. It all

seems to be in little compartments with no one person (even the GP)

seeming to be capable of looking at ALL my conditions and coming up

with some overall care. Even the Orthopods are specialists - I see

one for my shoulders, another for my hips, a third for my knees etc.

etc.

Sorry about the moan but there are times when I have to get some

things off my chest and doing so to an understanding group helps.

Back soon (I hope)

Sandy

[Guest guest]

Hi Sandy,

I just wanted to chime in because I used to talk to a friend

online from England. Is Codeine over the counter there? That is one

option anyway. I am not sure what dosage available/or if the doctors

recommend it for you or not, if that would be useful but remember

that my friend had mentioned that. He also had mentioned the horribly

long waiting lists. I wrote to him to ask if he had any suggestions

for you, waiting to hear back from him. He lives in the Sherwood

Forrest area of England (I forget the name of the town!) but he would

understand the issues you face in the UK better than I would so I

consulted him. I will get back to you if I hear anything from him,

take care,

> Hi All,

> This must be a record! Two reasonably good days in a row.

>

> Replies

> Dianne Hayter - I live in a small town near Glasgow in Scotland. I

> have had ME for 4 years now with no real improvement. Did you know

> that there are several Smallgroups on Yahoo dealing with ME and one

> in particular dealing with Arthritis + ME. I am a member there.

>

> Judy McKee - The problem is with the UK NHS (National Health

System)

> which operates to its own petty rules. My GP referred me in April.

An

> exchange of letters between the chair suppliers and my consultant

> recently took from July 2 to September 17 before the case file went

> to the supervising Dr. at the chair place. I am still awaiting a

> decision (September 26). This is not untypical.

>

> General - Does anyone know if there is such a thing as a pain

control

> clinic in the UK? I have been unable to find anything so far. It

all

> seems to be in little compartments with no one person (even the GP)

> seeming to be capable of looking at ALL my conditions and coming up

> with some overall care. Even the Orthopods are specialists - I see

> one for my shoulders, another for my hips, a third for my knees

etc.

> etc.

> Sorry about the moan but there are times when I have to get some

> things off my chest and doing so to an understanding group helps.

>

> Back soon (I hope)

> Sandy

[Guest guest]

Dear ,

I hope you get some relief very soon. I am able to get Morphine here in

Canada and eases my pain considerably.

I thought it was interesting you mentioning a friend in England. The city is

Nottingham. I was born there.

TerryM

[Guest guest]

Thank you, Terry very much for the sentiments!

My wonderful friend is someone I spoke to online for over a

year and recently we have not been in as much contact but we still

talk here and there. I actually met him over the internet, he allowed

me to call him COLLECT in England from Pennsylvania USA! I was very

fortunate to find someone such as him at the time because I was in

great need of someone to talk to at that who truly understood. My

family is not an outlet for me.

I have a wonderful boyfriend who is really my only support other

than this group, but he is not in chronic pain and so does not

understand in depth the extent of the problems we face and the

emotions that go along with it and often feels helpless and tired of

this (don't we all). was injured in a 'lorry' (sp?), a truck

accident and I met him on a message board. He helped my boyfriend too

by being an understanding third party.

As soon as the attack happened he sent his condolences immediately

on behalf of he and all his friends there. We are lucky to have other

countries on our side. England seems wonderful, I have a very good

impression of the place and I swore we would go over to visit him but

that won't happen until i win the lotto (the comparison to american

dollar not the greatest and probably will not get much better in the

coming times)because well, I'm a bit poor currently! I can't think if

it is Nottingham or not,an outlying area I believe, I have his

address someplace. Thanks for writing Terry : ) Take good care,

> Dear ,

> I hope you get some relief very soon. I am able to get Morphine

here in

> Canada and eases my pain considerably.

> I thought it was interesting you mentioning a friend in England.

The city is

> Nottingham. I was born there.

> TerryM

[Guest guest]

I have had ME for 4 years now with no real improvement.

I must be stupid or in a brain fog today but I can't for the life of me

figure out what ME is...help me here folks.

I live in a small town near Glasgow in Scotland

I would love to hear about where you live or see pictures even....

- The problem is with the UK NHS (National Health System) which operates to

its own petty rules

Rules don't help much when we're hurting, does it? Hey it's okay to get

things off your chest here. I certainly do my share of moaning and

groaning...hope you are having another good day...Judy M.

[Guest guest]

me is myalgic encephalomyelitis, or cfids chronic fatigue immune dysfunction

syndrome. never call it cfs chronic fatigue syndrome- people seay " oh yes, i'm

tired too. me affects the neuroendocrine systems, causes an imbalance, and

leaves you with a feeling of permanent flu. you can develop fm

fiibromyalgia(60% of us do, that's pain in the muscle, similar to arthritis

which is pain in the bones. lovely on a rainy, damp day like todfay, which is

probably why your so foggy. in england they call it me, canada cfids. angel

RE: A more serious note

I have had ME for 4 years now with no real improvement.

I must be stupid or in a brain fog today but I can't for the life of me

figure out what ME is...help me here folks.

I live in a small town near Glasgow in Scotland

I would love to hear about where you live or see pictures even....

- The problem is with the UK NHS (National Health System) which operates to

its own petty rules

Rules don't help much when we're hurting, does it? Hey it's okay to get

things off your chest here. I certainly do my share of moaning and

groaning...hope you are having another good day...Judy M.