Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 That sticks. TSH means nothing! There is at least one article on Shoman's website about TSH no being the real thing to look at. I would start there if I were you. My last TSH was 0.05. I was still hypo. I am now at three grains and starting to feel human again. I was adrenal support too. I've had to work on the ferritin also, it was 10, now 40. We just ran my B12, it was in the basement so after 2 weeks of high dose (5000mg) of SUBLINGUAL B12, I am starting to feel better. My temps are starting to rise too. I'd start tracking you symptoms and temps. I'd go armed with that and the articles from 's website the next time you go in. Sorry your starting to have trouble with this Doctor. I pray that you and others can get him on track. Kate At 02:55 PM 6/30/2005, you wrote: >I just got my latest bloodwork back, and I'm feeling discouraged. > >TSH .1 >ft3 3.2 (2.3-4.2) >ft4 1.4 (.73-1.95) > >The reason I'm discouraged is I still feel like hell, but Dr. Ozan >thinks these labs look great. He acknowledges my ft4 is just over the >halfway mark and my ft3 is still right below the halfway mark, but >stated he really feels the TSH is more important, and at .1, its as low >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour >right now, and he said he'll go ahead and let me increase to 2 grains >and see if I feel better, but that will be the max, and if my TSH goes >any lower, he'll want me to back off the Armour. (I actually increased >to 2 grains last week after my labs were done, and as usual, felt good >for 2 days, then crashed again and feel like crap!) > >He says my labs look good enough to him, and he feels if I still feel >bad, it must not be thyroid. My a.m. cortisol was at the very top of >the lab range and he put me on a cortisol blocker, and this a.m. >cortisol was the same level, so he said to stop the cortisol blocker, >as it's not helping, but he doesn't think I have adrenal problems, >either. > >He started me on bio-cream about 6 weeks ago, and said I should feel >better after about 2 weeks on that, but no dice. Now I'm not even sure >I should still be using that! > >I told him SOMETHING isn't right if I still feel like complete hell, >and he just sidestepped the question...I could be overreacting because >it was a telephone conversation, but I started hearing that tone of >voice...you know, the one docs use when they think nothing is wrong >with you and you're just a big whiner! > >Anyway, someone recently asked how Ozan feels about suppressed >TSH...guess now we know! > >So what now??? > >Niki > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 Kate, are you on a prescription B12 or OTC? A couple of months he did give me a B12 shot, and I felt great for about 2 days, then crashed again. He gave me an rx for monthly B12 injections (I work at a clinic so cheaper for me to get them and have the injections done at work than pay for an office visit), but as it only seemed to last a couple of days, I haven't had another one. It seems everything we try makes me feel alot better for 2 days, then I hit bottom again. My ferritin was good...it was something like 145. I'm afraid it's time to move on...one comment he made today keeps sticking in my head...that he really looks at the TSH, and he knows sometimes it must be suppressed, but he doesn't like to see it get below 1, and when it gets close to zero, like mine, it indicates there's plenty of thyroid hormone in my system...he concluded that sentence by saying the TSH level is the most important and tells more about what's going on with the thyroid. I bit my tongue...I do need him to keep writing my rx until I find someone else! My mama always told me, " don't burn your bridges! " Niki > >I just got my latest bloodwork back, and I'm feeling discouraged. > > > >TSH .1 > >ft3 3.2 (2.3-4.2) > >ft4 1.4 (.73-1.95) > > > >The reason I'm discouraged is I still feel like hell, but Dr. Ozan > >thinks these labs look great. He acknowledges my ft4 is just over the > >halfway mark and my ft3 is still right below the halfway mark, but > >stated he really feels the TSH is more important, and at .1, its as low > >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour > >right now, and he said he'll go ahead and let me increase to 2 grains > >and see if I feel better, but that will be the max, and if my TSH goes > >any lower, he'll want me to back off the Armour. (I actually increased > >to 2 grains last week after my labs were done, and as usual, felt good > >for 2 days, then crashed again and feel like crap!) > > > >He says my labs look good enough to him, and he feels if I still feel > >bad, it must not be thyroid. My a.m. cortisol was at the very top of > >the lab range and he put me on a cortisol blocker, and this a.m. > >cortisol was the same level, so he said to stop the cortisol blocker, > >as it's not helping, but he doesn't think I have adrenal problems, > >either. > > > >He started me on bio-cream about 6 weeks ago, and said I should feel > >better after about 2 weeks on that, but no dice. Now I'm not even sure > >I should still be using that! > > > >I told him SOMETHING isn't right if I still feel like complete hell, > >and he just sidestepped the question...I could be overreacting because > >it was a telephone conversation, but I started hearing that tone of > >voice...you know, the one docs use when they think nothing is wrong > >with you and you're just a big whiner! > > > >Anyway, someone recently asked how Ozan feels about suppressed > >TSH...guess now we know! > > > >So what now??? > > > >Niki > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 My doctor gave me the option of shots. After some reading I opted to try the OTC sublingual B12. Several studies show that it is just as effect as the shot. I get mine at Wal-Mart, taste like cherry. 2500mcg twice a day. I wish I had that kind of ferritin! Have you had anything other than the one cortisol test done? How about the salvia test? I don't want to bad mouth him, I know several on this list use him...but I am getting leery of him. I used Iscort, I've weaned off again...I'll soon see if it was too soon. I was never at the max, but used up to 6 tabs a day(max is 8). Kate At 03:43 PM 6/30/2005, you wrote: >Kate, are you on a prescription B12 or OTC? A couple of months he >did give me a B12 shot, and I felt great for about 2 days, then >crashed again. He gave me an rx for monthly B12 injections (I work >at a clinic so cheaper for me to get them and have the injections >done at work than pay for an office visit), but as it only seemed to >last a couple of days, I haven't had another one. > >It seems everything we try makes me feel alot better for 2 days, then >I hit bottom again. > >My ferritin was good...it was something like 145. > >I'm afraid it's time to move on...one comment he made today keeps >sticking in my head...that he really looks at the TSH, and he knows >sometimes it must be suppressed, but he doesn't like to see it get >below 1, and when it gets close to zero, like mine, it indicates >there's plenty of thyroid hormone in my system...he concluded that >sentence by saying the TSH level is the most important and tells more >about what's going on with the thyroid. > >I bit my tongue...I do need him to keep writing my rx until I find >someone else! My mama always told me, " don't burn your bridges! " > >Niki > > > > > >I just got my latest bloodwork back, and I'm feeling discouraged. > > > > > >TSH .1 > > >ft3 3.2 (2.3-4.2) > > >ft4 1.4 (.73-1.95) > > > > > >The reason I'm discouraged is I still feel like hell, but Dr. Ozan > > >thinks these labs look great. He acknowledges my ft4 is just over >the > > >halfway mark and my ft3 is still right below the halfway mark, but > > >stated he really feels the TSH is more important, and at .1, its >as low > > >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains >Armour > > >right now, and he said he'll go ahead and let me increase to 2 >grains > > >and see if I feel better, but that will be the max, and if my TSH >goes > > >any lower, he'll want me to back off the Armour. (I actually >increased > > >to 2 grains last week after my labs were done, and as usual, felt >good > > >for 2 days, then crashed again and feel like crap!) > > > > > >He says my labs look good enough to him, and he feels if I still >feel > > >bad, it must not be thyroid. My a.m. cortisol was at the very top >of > > >the lab range and he put me on a cortisol blocker, and this a.m. > > >cortisol was the same level, so he said to stop the cortisol >blocker, > > >as it's not helping, but he doesn't think I have adrenal problems, > > >either. > > > > > >He started me on bio-cream about 6 weeks ago, and said I should >feel > > >better after about 2 weeks on that, but no dice. Now I'm not even >sure > > >I should still be using that! > > > > > >I told him SOMETHING isn't right if I still feel like complete >hell, > > >and he just sidestepped the question...I could be overreacting >because > > >it was a telephone conversation, but I started hearing that tone of > > >voice...you know, the one docs use when they think nothing is wrong > > >with you and you're just a big whiner! > > > > > >Anyway, someone recently asked how Ozan feels about suppressed > > >TSH...guess now we know! > > > > > >So what now??? > > > > > >Niki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 I had the one cortisol test, and then a followup of the same test last week. He seems pretty sure I'm not having adrenal problems, but I keep reading that when you initially feel better on a thyroid increase, then crash in a few days, it's an indication of adrenal issues. That's how I've reacted to every single armour increase. > > > >I just got my latest bloodwork back, and I'm feeling discouraged. > > > > > > > >TSH .1 > > > >ft3 3.2 (2.3-4.2) > > > >ft4 1.4 (.73-1.95) > > > > > > > >The reason I'm discouraged is I still feel like hell, but Dr. Ozan > > > >thinks these labs look great. He acknowledges my ft4 is just over > >the > > > >halfway mark and my ft3 is still right below the halfway mark, but > > > >stated he really feels the TSH is more important, and at .1, its > >as low > > > >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains > >Armour > > > >right now, and he said he'll go ahead and let me increase to 2 > >grains > > > >and see if I feel better, but that will be the max, and if my TSH > >goes > > > >any lower, he'll want me to back off the Armour. (I actually > >increased > > > >to 2 grains last week after my labs were done, and as usual, felt > >good > > > >for 2 days, then crashed again and feel like crap!) > > > > > > > >He says my labs look good enough to him, and he feels if I still > >feel > > > >bad, it must not be thyroid. My a.m. cortisol was at the very top > >of > > > >the lab range and he put me on a cortisol blocker, and this a.m. > > > >cortisol was the same level, so he said to stop the cortisol > >blocker, > > > >as it's not helping, but he doesn't think I have adrenal problems, > > > >either. > > > > > > > >He started me on bio-cream about 6 weeks ago, and said I should > >feel > > > >better after about 2 weeks on that, but no dice. Now I'm not even > >sure > > > >I should still be using that! > > > > > > > >I told him SOMETHING isn't right if I still feel like complete > >hell, > > > >and he just sidestepped the question...I could be overreacting > >because > > > >it was a telephone conversation, but I started hearing that tone of > > > >voice...you know, the one docs use when they think nothing is wrong > > > >with you and you're just a big whiner! > > > > > > > >Anyway, someone recently asked how Ozan feels about suppressed > > > >TSH...guess now we know! > > > > > > > >So what now??? > > > > > > > >Niki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 This is what I was afraid of. Ozan is a TSH-worshipper. . . .like 95% of the doctors on our list! Sometimes you can prevail with these guys just by being insistent that you feel like cr*p on the lower dose, and will sign some kind of "hold blameless" statement with which he can cover his tender hindquarters, should the TSBME come calling. . . . If not, email me privately, and I will give you the names of the few docs who do not worship the Holy TSH. . . . Niki wrote: I just got my latest bloodwork back, and I'm feeling discouraged.TSH .1ft3 3.2 (2.3-4.2)ft4 1.4 (.73-1.95)The reason I'm discouraged is I still feel like hell, but Dr. Ozan thinks these labs look great. He acknowledges my ft4 is just over the halfway mark and my ft3 is still right below the halfway mark, but stated he really feels the TSH is more important, and at .1, its as low as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour right now, and he said he'll go ahead and let me increase to 2 grains and see if I feel better, but that will be the max, and if my TSH goes any lower, he'll want me to back off the Armour. (I actually increased to 2 grains last week after my labs were done, and as usual, felt good for 2 days, then crashed again and feel like crap!)He says my labs look good enough to him, and he feels if I still feel bad, it must not be thyroid. My a.m. cortisol was at the very top of the lab range and he put me on a cortisol blocker, and this a.m. cortisol was the same level, so he said to stop the cortisol blocker, as it's not helping, but he doesn't think I have adrenal problems, either.He started me on bio-cream about 6 weeks ago, and said I should feel better after about 2 weeks on that, but no dice. Now I'm not even sure I should still be using that!I told him SOMETHING isn't right if I still feel like complete hell, and he just sidestepped the question...I could be overreacting because it was a telephone conversation, but I started hearing that tone of voice...you know, the one docs use when they think nothing is wrong with you and you're just a big whiner!Anyway, someone recently asked how Ozan feels about suppressed TSH...guess now we know!So what now???Niki__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 That can be adrenal fatigue.... what other symptoms are you having? Have you read the Adrenal Fatigue:21st Century Stress Syndrome? At 04:05 PM 6/30/2005, you wrote: >I had the one cortisol test, and then a followup of the same test >last week. He seems pretty sure I'm not having adrenal problems, but >I keep reading that when you initially feel better on a thyroid >increase, then crash in a few days, it's an indication of adrenal >issues. That's how I've reacted to every single armour increase. > > > > > > >I just got my latest bloodwork back, and I'm feeling >discouraged. > > > > > > > > > >TSH .1 > > > > >ft3 3.2 (2.3-4.2) > > > > >ft4 1.4 (.73-1.95) > > > > > > > > > >The reason I'm discouraged is I still feel like hell, but Dr. >Ozan > > > > >thinks these labs look great. He acknowledges my ft4 is just >over > > >the > > > > >halfway mark and my ft3 is still right below the halfway mark, >but > > > > >stated he really feels the TSH is more important, and at .1, >its > > >as low > > > > >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains > > >Armour > > > > >right now, and he said he'll go ahead and let me increase to 2 > > >grains > > > > >and see if I feel better, but that will be the max, and if my >TSH > > >goes > > > > >any lower, he'll want me to back off the Armour. (I actually > > >increased > > > > >to 2 grains last week after my labs were done, and as usual, >felt > > >good > > > > >for 2 days, then crashed again and feel like crap!) > > > > > > > > > >He says my labs look good enough to him, and he feels if I >still > > >feel > > > > >bad, it must not be thyroid. My a.m. cortisol was at the very >top > > >of > > > > >the lab range and he put me on a cortisol blocker, and this >a.m. > > > > >cortisol was the same level, so he said to stop the cortisol > > >blocker, > > > > >as it's not helping, but he doesn't think I have adrenal >problems, > > > > >either. > > > > > > > > > >He started me on bio-cream about 6 weeks ago, and said I should > > >feel > > > > >better after about 2 weeks on that, but no dice. Now I'm not >even > > >sure > > > > >I should still be using that! > > > > > > > > > >I told him SOMETHING isn't right if I still feel like complete > > >hell, > > > > >and he just sidestepped the question...I could be overreacting > > >because > > > > >it was a telephone conversation, but I started hearing that >tone of > > > > >voice...you know, the one docs use when they think nothing is >wrong > > > > >with you and you're just a big whiner! > > > > > > > > > >Anyway, someone recently asked how Ozan feels about suppressed > > > > >TSH...guess now we know! > > > > > > > > > >So what now??? > > > > > > > > > >Niki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 I’ve read DHEA should also be checked when addressing adrenals… And not regular DHEA – what’s the other DHEA test called? My morning cortisol used to be high – but cortisol varies so – hard to catch it! My DHEA is consistently LOW! Below normal. Most doc’s blow it off. Oy. (yeah, yeah – I’ll introduce myself later J) Re: New Result This is what I was afraid of. Ozan is a TSH-worshipper. . . ..like 95% of the doctors on our list! Sometimes you can prevail with these guys just by being insistent that you feel like cr*p on the lower dose, and will sign some kind of " hold blameless " statement with which he can cover his tender hindquarters, should the TSBME come calling. . . . If not, email me privately, and I will give you the names of the few docs who do not worship the Holy TSH. . . . Niki wrote: I just got my latest bloodwork back, and I'm feeling discouraged. TSH .1 ft3 3.2 (2.3-4.2) ft4 1.4 (.73-1.95) The reason I'm discouraged is I still feel like hell, but Dr. Ozan thinks these labs look great. He acknowledges my ft4 is just over the halfway mark and my ft3 is still right below the halfway mark, but stated he really feels the TSH is more important, and at .1, its as low as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour right now, and he said he'll go ahead and let me increase to 2 grains and see if I feel better, but that will be the max, and if my TSH goes any lower, he'll want me to back off the Armour. (I actually increased to 2 grains last week after my labs were done, and as usual, felt good for 2 days, then crashed again and feel like crap!) He says my labs look good enough to him, and he feels if I still feel bad, it must not be thyroid. My a.m. cortisol was at the very top of the lab range and he put me on a cortisol blocker, and this a.m. cortisol was the same level, so he said to stop the cortisol blocker, as it's not helping, but he doesn't think I have adrenal problems, either. He started me on bio-cream about 6 weeks ago, and said I should feel better after about 2 weeks on that, but no dice. Now I'm not even sure I should still be using that! I told him SOMETHING isn't right if I still feel like complete hell, and he just sidestepped the question...I could be overreacting because it was a telephone conversation, but I started hearing that tone of voice...you know, the one docs use when they think nothing is wrong with you and you're just a big whiner! Anyway, someone recently asked how Ozan feels about suppressed TSH...guess now we know! So what now??? Niki __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 DHEA-S Kate At 04:20 PM 6/30/2005, you wrote: >I’ve read DHEA should also be checked when addressing adrenals… >And not regular DHEA – what’s the other DHEA test called? > >My morning cortisol used to be high – but cortisol varies so – hard to >catch it! >My DHEA is consistently LOW! Below normal. >Most doc’s blow it off. > >Oy. > >(yeah, yeah – I’ll introduce myself later J) > > > > Re: New Result > >This is what I was afraid of. Ozan is a TSH-worshipper. . . .like 95% of >the doctors on our list! Sometimes you can prevail with these guys just by >being insistent that you feel like cr*p on the lower dose, and will sign >some kind of " hold blameless " statement with which he can cover his tender >hindquarters, should the TSBME come calling. . . . > >If not, email me privately, and I will give you the names of the few docs >who do not worship the Holy TSH. . . . > >Niki wrote: >I just got my latest bloodwork back, and I'm feeling discouraged. > >TSH .1 >ft3 3.2 (2.3-4.2) >ft4 1.4 (.73-1.95) > >The reason I'm discouraged is I still feel like hell, but Dr. Ozan >thinks these labs look great. He acknowledges my ft4 is just over the >halfway mark and my ft3 is still right below the halfway mark, but stated >he really feels the TSH is more important, and at .1, its as low >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour >right now, and he said he'll go ahead and let me increase to 2 grains >and see if I feel better, but that will be the max, and if my TSH goes >any lower, he'll want me to back off the Armour. (I actually increased >to 2 grains last week after my labs were done, and as usual, felt good >for 2 days, then crashed again and feel like crap!) > >He says my labs look good enough to him, and he feels if I still feel bad, >it must not be thyroid. My a.m. cortisol was at the very top of >the lab range and he put me on a cortisol blocker, and this a.m. >cortisol was the same level, so he said to stop the cortisol blocker, >as it's not helping, but he doesn't think I have adrenal problems, >either. > >He started me on bio-cream about 6 weeks ago, and said I should feel >better after about 2 weeks on that, but no dice. Now I'm not even sure >I should still be using that! > >I told him SOMETHING isn't right if I still feel like complete hell, >and he just sidestepped the question...I could be overreacting because >it was a telephone conversation, but I started hearing that tone of >voice...you know, the one docs use when they think nothing is wrong >with you and you're just a big whiner! > >Anyway, someone recently asked how Ozan feels about suppressed >TSH...guess now we know! > >So what now??? > >Niki > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 I haven't read too much on adrenal fatigue...mainly just what I've seen posted on the boards, and a few articles that were linked from there. I need to go back and print a list of symptoms and review them again. > > > > > >I just got my latest bloodwork back, and I'm feeling > >discouraged. > > > > > > > > > > > >TSH .1 > > > > > >ft3 3.2 (2.3-4.2) > > > > > >ft4 1.4 (.73-1.95) > > > > > > > > > > > >The reason I'm discouraged is I still feel like hell, but Dr. > >Ozan > > > > > >thinks these labs look great. He acknowledges my ft4 is just > >over > > > >the > > > > > >halfway mark and my ft3 is still right below the halfway mark, > >but > > > > > >stated he really feels the TSH is more important, and at .1, > >its > > > >as low > > > > > >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains > > > >Armour > > > > > >right now, and he said he'll go ahead and let me increase to 2 > > > >grains > > > > > >and see if I feel better, but that will be the max, and if my > >TSH > > > >goes > > > > > >any lower, he'll want me to back off the Armour. (I actually > > > >increased > > > > > >to 2 grains last week after my labs were done, and as usual, > >felt > > > >good > > > > > >for 2 days, then crashed again and feel like crap!) > > > > > > > > > > > >He says my labs look good enough to him, and he feels if I > >still > > > >feel > > > > > >bad, it must not be thyroid. My a.m. cortisol was at the very > >top > > > >of > > > > > >the lab range and he put me on a cortisol blocker, and this > >a.m. > > > > > >cortisol was the same level, so he said to stop the cortisol > > > >blocker, > > > > > >as it's not helping, but he doesn't think I have adrenal > >problems, > > > > > >either. > > > > > > > > > > > >He started me on bio-cream about 6 weeks ago, and said I should > > > >feel > > > > > >better after about 2 weeks on that, but no dice. Now I'm not > >even > > > >sure > > > > > >I should still be using that! > > > > > > > > > > > >I told him SOMETHING isn't right if I still feel like complete > > > >hell, > > > > > >and he just sidestepped the question...I could be overreacting > > > >because > > > > > >it was a telephone conversation, but I started hearing that > >tone of > > > > > >voice...you know, the one docs use when they think nothing is > >wrong > > > > > >with you and you're just a big whiner! > > > > > > > > > > > >Anyway, someone recently asked how Ozan feels about suppressed > > > > > >TSH...guess now we know! > > > > > > > > > > > >So what now??? > > > > > > > > > > > >Niki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Hi, Meredith, My DHEAs was somewhat low, and he has me on a bio-cream with progesterone, testosterone and dhea. I've been on using it about 6 weeks and see no difference in how I feel, but not sure when I should see a difference. > > I just got my latest bloodwork back, and I'm feeling discouraged. > > TSH .1 > ft3 3.2 (2.3-4.2) > ft4 1.4 (.73-1.95) > > The reason I'm discouraged is I still feel like hell, but Dr. Ozan > thinks these labs look great. He acknowledges my ft4 is just over the > halfway mark and my ft3 is still right below the halfway mark, but stated he > really feels the TSH is more important, and at .1, its as low > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour > right now, and he said he'll go ahead and let me increase to 2 grains > and see if I feel better, but that will be the max, and if my TSH goes > any lower, he'll want me to back off the Armour. (I actually increased > to 2 grains last week after my labs were done, and as usual, felt good > for 2 days, then crashed again and feel like crap!) > > He says my labs look good enough to him, and he feels if I still feel bad, > it must not be thyroid. My a.m. cortisol was at the very top of > the lab range and he put me on a cortisol blocker, and this a.m. > cortisol was the same level, so he said to stop the cortisol blocker, > as it's not helping, but he doesn't think I have adrenal problems, > either. > > He started me on bio-cream about 6 weeks ago, and said I should feel > better after about 2 weeks on that, but no dice. Now I'm not even sure > I should still be using that! > > I told him SOMETHING isn't right if I still feel like complete hell, > and he just sidestepped the question...I could be overreacting because > it was a telephone conversation, but I started hearing that tone of > voice...you know, the one docs use when they think nothing is wrong > with you and you're just a big whiner! > > Anyway, someone recently asked how Ozan feels about suppressed > TSH...guess now we know! > > So what now??? > > Niki > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Adrenal Fatigue:21st Century Stress Syndrome is a really good book. At 05:08 PM 6/30/2005, you wrote: >I haven't read too much on adrenal fatigue...mainly just what I've >seen posted on the boards, and a few articles that were linked from >there. I need to go back and print a list of symptoms and review >them again. > > > > > > > > >I just got my latest bloodwork back, and I'm feeling > > >discouraged. > > > > > > > > > > > > > >TSH .1 > > > > > > >ft3 3.2 (2.3-4.2) > > > > > > >ft4 1.4 (.73-1.95) > > > > > > > > > > > > > >The reason I'm discouraged is I still feel like hell, but >Dr. > > >Ozan > > > > > > >thinks these labs look great. He acknowledges my ft4 is >just > > >over > > > > >the > > > > > > >halfway mark and my ft3 is still right below the halfway >mark, > > >but > > > > > > >stated he really feels the TSH is more important, and >at .1, > > >its > > > > >as low > > > > > > >as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 >grains > > > > >Armour > > > > > > >right now, and he said he'll go ahead and let me increase >to 2 > > > > >grains > > > > > > >and see if I feel better, but that will be the max, and >if my > > >TSH > > > > >goes > > > > > > >any lower, he'll want me to back off the Armour. (I >actually > > > > >increased > > > > > > >to 2 grains last week after my labs were done, and as >usual, > > >felt > > > > >good > > > > > > >for 2 days, then crashed again and feel like crap!) > > > > > > > > > > > > > >He says my labs look good enough to him, and he feels if I > > >still > > > > >feel > > > > > > >bad, it must not be thyroid. My a.m. cortisol was at the >very > > >top > > > > >of > > > > > > >the lab range and he put me on a cortisol blocker, and >this > > >a.m. > > > > > > >cortisol was the same level, so he said to stop the >cortisol > > > > >blocker, > > > > > > >as it's not helping, but he doesn't think I have adrenal > > >problems, > > > > > > >either. > > > > > > > > > > > > > >He started me on bio-cream about 6 weeks ago, and said I >should > > > > >feel > > > > > > >better after about 2 weeks on that, but no dice. Now I'm >not > > >even > > > > >sure > > > > > > >I should still be using that! > > > > > > > > > > > > > >I told him SOMETHING isn't right if I still feel like >complete > > > > >hell, > > > > > > >and he just sidestepped the question...I could be >overreacting > > > > >because > > > > > > >it was a telephone conversation, but I started hearing >that > > >tone of > > > > > > >voice...you know, the one docs use when they think >nothing is > > >wrong > > > > > > >with you and you're just a big whiner! > > > > > > > > > > > > > >Anyway, someone recently asked how Ozan feels about >suppressed > > > > > > >TSH...guess now we know! > > > > > > > > > > > > > >So what now??? > > > > > > > > > > > > > >Niki > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 I had the same problem, except that it would happen on day two of my Armour increase. Also, any stress at all would leave me fatigued. In addition, you know how you have that reserve energy for emergencies? I no longer had that reserve. When I got tired, it meant that I had to go to bed within a twenty minute time frame. I had no back-up energy for emergencies or what not. And, lo and behold, my DHEA levels were through the floor. Courtenay. --- Niki wrote: --------------------------------- I had the one cortisol test, and then a followup of the same test last week. He seems pretty sure I'm not having adrenal problems, but I keep reading that when you initially feel better on a thyroid increase, then crash in a few days, it's an indication of adrenal issues. That's how I've reacted to every single armour increase. > >Kate, are you on a prescription B12 or OTC? A couple of months he > >did give me a B12 shot, and I felt great for about 2 days, then > >crashed again. He gave me an rx for monthly B12 injections (I work > >at a clinic so cheaper for me to get them and have the injections > >done at work than pay for an office visit), but as it only seemed to > >last a couple of days, I haven't had another one. > > > >It seems everything we try makes me feel alot better for 2 days, then > >I hit bottom again. > > > >My ferritin was good...it was something like 145. > > > >I'm afraid it's time to move on...one comment he made today keeps > >sticking in my head...that he really looks at the TSH, and he knows > >sometimes it must be suppressed, but he doesn't like to see it get > >below 1, and when it gets close to zero, like mine, it indicates > >there's plenty of thyroid hormone in my system...he concluded that > >sentence by saying the TSH level is the most important and tells more > >about what's going on with the thyroid. > > > >I bit my tongue...I do need him to keep writing my rx until I find > >someone else! My mama always told me, " don't burn your bridges! " > > > >Niki > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 My endo only checked DHEAs at my insistence. When it was below normal limits, he said I could take OTC DHEA, but he wasn’t recommending it (was not to be liable!). [i am on 10mg so far and no difference yet.] He also said as a side comment, it’s not that low. [it’s consistently below normal limits, so not a fluke.] I’m in my 30’s – it should not be that low! He also lowered my thyroid meds before xmas – which led me to ‘crash’ again. Started running again and felt like I had the flu all the time – body couldn’t take it. Have to find someone else in Austin. Re: New Result Hi, Meredith, My DHEAs was somewhat low, and he has me on a bio-cream with progesterone, testosterone and dhea. I've been on using it about 6 weeks and see no difference in how I feel, but not sure when I should see a difference. > > I just got my latest bloodwork back, and I'm feeling discouraged. > > TSH .1 > ft3 3.2 (2.3-4.2) > ft4 1.4 (.73-1.95) > > The reason I'm discouraged is I still feel like hell, but Dr. Ozan > thinks these labs look great. He acknowledges my ft4 is just over the > halfway mark and my ft3 is still right below the halfway mark, but stated he > really feels the TSH is more important, and at .1, its as low > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour > right now, and he said he'll go ahead and let me increase to 2 grains > and see if I feel better, but that will be the max, and if my TSH goes > any lower, he'll want me to back off the Armour. (I actually increased > to 2 grains last week after my labs were done, and as usual, felt good > for 2 days, then crashed again and feel like crap!) > > He says my labs look good enough to him, and he feels if I still feel bad, > it must not be thyroid. My a.m. cortisol was at the very top of > the lab range and he put me on a cortisol blocker, and this a.m. > cortisol was the same level, so he said to stop the cortisol blocker, > as it's not helping, but he doesn't think I have adrenal problems, > either. > > He started me on bio-cream about 6 weeks ago, and said I should feel > better after about 2 weeks on that, but no dice. Now I'm not even sure > I should still be using that! > > I told him SOMETHING isn't right if I still feel like complete hell, > and he just sidestepped the question...I could be overreacting because > it was a telephone conversation, but I started hearing that tone of > voice...you know, the one docs use when they think nothing is wrong > with you and you're just a big whiner! > > Anyway, someone recently asked how Ozan feels about suppressed > TSH...guess now we know! > > So what now??? > > Niki > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Courtenay, I also have the problem with stress...I can feel myself go downhill when I'm stressed. I just want to stay in bed, but I can't rest. The bio-cream has a small amount of DHEA. He said it was a little low. My lab for DHEAs was 192 (35-430). I'm not familiar enough with it to know what really warrants " low " . Niki > > >Kate, are you on a prescription B12 or OTC? A > couple of months he > > >did give me a B12 shot, and I felt great for about > 2 days, then > > >crashed again. He gave me an rx for monthly B12 > injections (I work > > >at a clinic so cheaper for me to get them and have > the injections > > >done at work than pay for an office visit), but as > it only seemed > to > > >last a couple of days, I haven't had another one. > > > > > >It seems everything we try makes me feel alot > better for 2 days, > then > > >I hit bottom again. > > > > > >My ferritin was good...it was something like 145. > > > > > >I'm afraid it's time to move on...one comment he > made today keeps > > >sticking in my head...that he really looks at the > TSH, and he knows > > >sometimes it must be suppressed, but he doesn't > like to see it get > > >below 1, and when it gets close to zero, like mine, > it indicates > > >there's plenty of thyroid hormone in my system...he > concluded that > > >sentence by saying the TSH level is the most > important and tells > more > > >about what's going on with the thyroid. > > > > > >I bit my tongue...I do need him to keep writing my > rx until I find > > >someone else! My mama always told me, " don't burn > your bridges! " > > > > > >Niki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Niki, I'm sorry to hear all this. We weren't sure about Dr. Ozan but now we kind of are. All this talk about how much they want to see you feeling better and how fast the attitude changes when they've gone as far as they are comfortable with! Why is he afraid to let your TSH go below .1? Did he state a reason? That's just crazy. And he has to realize that those are just the blood test results. Like emphasizes, those levels are a picture of what is going on in your blood. It doesn't tell you what is going on at the cell/tissue level, where that hormone is really needed. I would suggest taking the 2mg Armour for as long as you can and see if that helps. With me, I kept having those back slides -- I know exactly what you are talking about, they are so depressing after feeling so good -- I didn't have a long period of feeling good until I got up to 2 1/2 mg. Of course we are all different and I felt good for weeks but eventually had a bit of a back slide. Too much stress right now too and this heat is horrid! Sorry I digress! I just wanted to encourage you to not get discouraged. Go with the 2 mg for awhile and go back and see what he says. If he still won't treat you until your symptoms are good, can you see Dr. Launius in ville? Hang in there! > I just got my latest bloodwork back, and I'm feeling discouraged. > > TSH .1 > ft3 3.2 (2.3-4.2) > ft4 1.4 (.73-1.95) > > The reason I'm discouraged is I still feel like hell, but Dr. Ozan > thinks these labs look great. He acknowledges my ft4 is just over the > halfway mark and my ft3 is still right below the halfway mark, but > stated he really feels the TSH is more important, and at .1, its as low > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains Armour > right now, and he said he'll go ahead and let me increase to 2 grains > and see if I feel better, but that will be the max, and if my TSH goes > any lower, he'll want me to back off the Armour. (I actually increased > to 2 grains last week after my labs were done, and as usual, felt good > for 2 days, then crashed again and feel like crap!) > > He says my labs look good enough to him, and he feels if I still feel > bad, it must not be thyroid. My a.m. cortisol was at the very top of > the lab range and he put me on a cortisol blocker, and this a.m. > cortisol was the same level, so he said to stop the cortisol blocker, > as it's not helping, but he doesn't think I have adrenal problems, > either. > > He started me on bio-cream about 6 weeks ago, and said I should feel > better after about 2 weeks on that, but no dice. Now I'm not even sure > I should still be using that! > > I told him SOMETHING isn't right if I still feel like complete hell, > and he just sidestepped the question...I could be overreacting because > it was a telephone conversation, but I started hearing that tone of > voice...you know, the one docs use when they think nothing is wrong > with you and you're just a big whiner! > > Anyway, someone recently asked how Ozan feels about suppressed > TSH...guess now we know! > > So what now??? > > Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 , his exact words were, " when your TSH is at almost zero, that means you have plenty of thyroid hormone in your body, so if you're still not feeling well, it must not be your thyroid. " I did ask him if there could be a problem with me utilizing the thyroid hormone at the cellular level...he laughed at me and said, " no, I really doubt that! " The tone was, " you just stick to being a lowly accountant and let me be the doctor here! " > > I just got my latest bloodwork back, and I'm feeling discouraged. > > > > TSH .1 > > ft3 3.2 (2.3-4.2) > > ft4 1.4 (.73-1.95) > > > > The reason I'm discouraged is I still feel like hell, but Dr. Ozan > > thinks these labs look great. He acknowledges my ft4 is just over > the > > halfway mark and my ft3 is still right below the halfway mark, but > > stated he really feels the TSH is more important, and at .1, its as > low > > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains > Armour > > right now, and he said he'll go ahead and let me increase to 2 > grains > > and see if I feel better, but that will be the max, and if my TSH > goes > > any lower, he'll want me to back off the Armour. (I actually > increased > > to 2 grains last week after my labs were done, and as usual, felt > good > > for 2 days, then crashed again and feel like crap!) > > > > He says my labs look good enough to him, and he feels if I still > feel > > bad, it must not be thyroid. My a.m. cortisol was at the very top > of > > the lab range and he put me on a cortisol blocker, and this a.m. > > cortisol was the same level, so he said to stop the cortisol > blocker, > > as it's not helping, but he doesn't think I have adrenal problems, > > either. > > > > He started me on bio-cream about 6 weeks ago, and said I should > feel > > better after about 2 weeks on that, but no dice. Now I'm not even > sure > > I should still be using that! > > > > I told him SOMETHING isn't right if I still feel like complete > hell, > > and he just sidestepped the question...I could be overreacting > because > > it was a telephone conversation, but I started hearing that tone of > > voice...you know, the one docs use when they think nothing is wrong > > with you and you're just a big whiner! > > > > Anyway, someone recently asked how Ozan feels about suppressed > > TSH...guess now we know! > > > > So what now??? > > > > Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Hi, Niki: Just curious, why do you want your TSH so close to " 0 " ? I'm just asking because, for myself, if I go too below 1 or too close to 2, I become symptomatic. I thought that a very low TSH was indicated for thyroid cancer or certain antibodies (? I can't get a handle on all this scientific stuff myself.) I was at 0.3 not to long ago and he said that was fine with Ft4 of 1.5 but I asked for a decrease in my meds because I was told (by another doctor long ago) to keep my TSH where it had always been before TD, which averaged 1.5 for as far back as I could obtain past labs. I got the decrease, but I think I should have left things where they were because now I feel undermedicated again. I'm due for more labs to figure this out. I had been hyperthyroid to the point of serious catastrophe before I had finally been diagnosed and had RAI. So I guess I tend to get a little nervous when I see my TSH drop too much lower than 1 with my Ft4 edging up to the high end. I do look at TSH more for myself because it has been, for me, the best indicator. On the other hand, Ozan was looking more at my Ft4. I keep the Free T's in mind, but they don't change consistently with the TSH. In other words, my TSH can go from one end of the range to another and my Free T's will not vary that much. I only know how I feel and compare that to the TSH, and this has been a pretty consistent guage for me. I have found, also, that even when all my levels are good, when my I get overwhelmed with stressors, like my son going to jail or my Dad killing himself, or even final exams or moving, I develop the same symptoms that I have always associated with being either hyper- or hypo-thyroid. I'm not defending Ozan or questioning your judgement. I am seriously confused by all this thyroid stuff and wonder why what works for one does not work for another. You could probably put 10 women in a room with the exact same labs and same disease, but everyone would be in a different place. I suspect female hormones and environmental factors are what makes us all so different. I hope the stresses from your move pass soon. Been there, done that a couple of years ago. Had me in bed for a week once it was all over. God Bless! Janet > > > I just got my latest bloodwork back, and I'm feeling discouraged. > > > > > > TSH .1 > > > ft3 3.2 (2.3-4.2) > > > ft4 1.4 (.73-1.95) > > > > > > The reason I'm discouraged is I still feel like hell, but Dr. > Ozan > > > thinks these labs look great. He acknowledges my ft4 is just > over > > the > > > halfway mark and my ft3 is still right below the halfway mark, > but > > > stated he really feels the TSH is more important, and at .1, its > as > > low > > > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains > > Armour > > > right now, and he said he'll go ahead and let me increase to 2 > > grains > > > and see if I feel better, but that will be the max, and if my > TSH > > goes > > > any lower, he'll want me to back off the Armour. (I actually > > increased > > > to 2 grains last week after my labs were done, and as usual, > felt > > good > > > for 2 days, then crashed again and feel like crap!) > > > > > > He says my labs look good enough to him, and he feels if I still > > feel > > > bad, it must not be thyroid. My a.m. cortisol was at the very > top > > of > > > the lab range and he put me on a cortisol blocker, and this a.m. > > > cortisol was the same level, so he said to stop the cortisol > > blocker, > > > as it's not helping, but he doesn't think I have adrenal > problems, > > > either. > > > > > > He started me on bio-cream about 6 weeks ago, and said I should > > feel > > > better after about 2 weeks on that, but no dice. Now I'm not > even > > sure > > > I should still be using that! > > > > > > I told him SOMETHING isn't right if I still feel like complete > > hell, > > > and he just sidestepped the question...I could be overreacting > > because > > > it was a telephone conversation, but I started hearing that tone > of > > > voice...you know, the one docs use when they think nothing is > wrong > > > with you and you're just a big whiner! > > > > > > Anyway, someone recently asked how Ozan feels about suppressed > > > TSH...guess now we know! > > > > > > So what now??? > > > > > > Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Janet, I'm not trying to get my TSH so low, it was already at 0.9 when I got so sick, and my ft's were at the bottom. It just keeps going lower as we raise the ft's. My ft's are still right around the halfway range, and I still don't feel well at all (ft3 is right below halfway, ft4 is just above). Everything I'm finding says Hashi's patients feel better with the TSH suppressed, sometimes extremely low, and the ft's in the high end of the normal range. I just know I'm not feeling much better now than I was before I was medicated, so I want to try getting the ft's higher to see if that helps. Seriously, the only improvement I've seen is my eyebrows are starting to grow back a little (but my hair is still falling out in handfuls!) What I can't live with is he seems to think I should just accept feeling this way, and hope it will get better someday. I've spent over 5 yrs doing that, and I just got sicker. I just can't waste any more time waiting and hoping. > > > > I just got my latest bloodwork back, and I'm feeling > discouraged. > > > > > > > > TSH .1 > > > > ft3 3.2 (2.3-4.2) > > > > ft4 1.4 (.73-1.95) > > > > > > > > The reason I'm discouraged is I still feel like hell, but Dr. > > Ozan > > > > thinks these labs look great. He acknowledges my ft4 is just > > over > > > the > > > > halfway mark and my ft3 is still right below the halfway mark, > > but > > > > stated he really feels the TSH is more important, and at .1, > its > > as > > > low > > > > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 grains > > > Armour > > > > right now, and he said he'll go ahead and let me increase to 2 > > > grains > > > > and see if I feel better, but that will be the max, and if my > > TSH > > > goes > > > > any lower, he'll want me to back off the Armour. (I actually > > > increased > > > > to 2 grains last week after my labs were done, and as usual, > > felt > > > good > > > > for 2 days, then crashed again and feel like crap!) > > > > > > > > He says my labs look good enough to him, and he feels if I > still > > > feel > > > > bad, it must not be thyroid. My a.m. cortisol was at the very > > top > > > of > > > > the lab range and he put me on a cortisol blocker, and this > a.m. > > > > cortisol was the same level, so he said to stop the cortisol > > > blocker, > > > > as it's not helping, but he doesn't think I have adrenal > > problems, > > > > either. > > > > > > > > He started me on bio-cream about 6 weeks ago, and said I > should > > > feel > > > > better after about 2 weeks on that, but no dice. Now I'm not > > even > > > sure > > > > I should still be using that! > > > > > > > > I told him SOMETHING isn't right if I still feel like complete > > > hell, > > > > and he just sidestepped the question...I could be overreacting > > > because > > > > it was a telephone conversation, but I started hearing that > tone > > of > > > > voice...you know, the one docs use when they think nothing is > > wrong > > > > with you and you're just a big whiner! > > > > > > > > Anyway, someone recently asked how Ozan feels about suppressed > > > > TSH...guess now we know! > > > > > > > > So what now??? > > > > > > > > Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Niki: You should definately not accept feeling so bad. It's also been a 5 year trip for me and this darn perimenopause makes things worse. I'll go along thinking I've finally beat this thing and become active again and think I can take on the world, and then suddenly I feel like I've been hit by a truck. I've been tested for rhuemitoid arthritis, lupus, blah, blah, blah, and everything is negative. No thyroid antibodies at this time. Just total female hormonal imbalance with it's resulting thyroid imbalance. I'm still trying to get my thyroid levels balanced after 7 years on birth control pills which I discontinued in December. I was on an upswing, made adjustments, now I'm on a downswing again (I think). I just faxed him yesterday with some GYN test results and added that I was feeling like I'd hit a wall for no apparant reason. I asked him if there was anything he hadn't checked out that would relate to this and to add any appropriate labs he might deem necessary when he sends me my lab req this week. Be interesting to see what he orders. I think that in your case and mine we stump doctors and they're not used to that. He had told me a few weeks ago that my situation is very complicated, but I didn't get the impression that he was giving up on me. I could tell though that he was at a loss for that moment. I still feel optimistic that I can work with him, or vice versa. I'm really sorry you're not having the same experience with him. janet > > > > > I just got my latest bloodwork back, and I'm feeling > > discouraged. > > > > > > > > > > TSH .1 > > > > > ft3 3.2 (2.3-4.2) > > > > > ft4 1.4 (.73-1.95) > > > > > > > > > > The reason I'm discouraged is I still feel like hell, but > Dr. > > > Ozan > > > > > thinks these labs look great. He acknowledges my ft4 is > just > > > over > > > > the > > > > > halfway mark and my ft3 is still right below the halfway > mark, > > > but > > > > > stated he really feels the TSH is more important, and at .1, > > its > > > as > > > > low > > > > > as he's comfortable with(I'm Hashi's/hypo). I'm on 1.5 > grains > > > > Armour > > > > > right now, and he said he'll go ahead and let me increase to > 2 > > > > grains > > > > > and see if I feel better, but that will be the max, and if > my > > > TSH > > > > goes > > > > > any lower, he'll want me to back off the Armour. (I > actually > > > > increased > > > > > to 2 grains last week after my labs were done, and as usual, > > > felt > > > > good > > > > > for 2 days, then crashed again and feel like crap!) > > > > > > > > > > He says my labs look good enough to him, and he feels if I > > still > > > > feel > > > > > bad, it must not be thyroid. My a.m. cortisol was at the > very > > > top > > > > of > > > > > the lab range and he put me on a cortisol blocker, and this > > a.m. > > > > > cortisol was the same level, so he said to stop the cortisol > > > > blocker, > > > > > as it's not helping, but he doesn't think I have adrenal > > > problems, > > > > > either. > > > > > > > > > > He started me on bio-cream about 6 weeks ago, and said I > > should > > > > feel > > > > > better after about 2 weeks on that, but no dice. Now I'm > not > > > even > > > > sure > > > > > I should still be using that! > > > > > > > > > > I told him SOMETHING isn't right if I still feel like > complete > > > > hell, > > > > > and he just sidestepped the question...I could be > overreacting > > > > because > > > > > it was a telephone conversation, but I started hearing that > > tone > > > of > > > > > voice...you know, the one docs use when they think nothing > is > > > wrong > > > > > with you and you're just a big whiner! > > > > > > > > > > Anyway, someone recently asked how Ozan feels about > suppressed > > > > > TSH...guess now we know! > > > > > > > > > > So what now??? > > > > > > > > > > Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 I have had good results with Dr. Ozan as well. At least he seems to hear me, unlike so many others. I just know I am going to have to advocate for myself on this issue. no matter who the doctor is. Dr. Ozan has seemed to be the most responsive so far. He is not ignorant of thyroid issues and is willing to try some different things. I told him I was not liking the levoxyl and he upped my armour. so that was good news. I'll let you know how it goes. steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 I'm with you, Niki, we don't have to settle for feeling crappy. Not when there are so many people out there really being helped and feeling better. Usually, if the patient is on Armour, seems like they are almost always saying that it wasn't until they got up to 3 grains or more until they felt good. Please know that I am not trying to say that everyone should be on 3 grains because I know better than that, it just seems like I read that over and over again. Oh, for the good old days when they went by symptoms amd basal temps! If you have Hashi's you probably won't feel good unless your TSH is suppressed and maybe not even then. My last two Free T3 tests were over the top and my TSH was way suppressed. My Free T4 is still low though. I don't agree with what Ozan said. Just because your TSH is suppressed doesn't mean you have what your body needs in thyroid hormone. It just means there's enough hormone to make the pituitary gland happy. Who cares if your pituitary gland is happy if you still feel cruddy? Yeesh. Can't blame you for being sick and tired of this. Is there any way you can see Dr. in Lubbock? I know I mentioned Launius before and I'm sure he's terrific but I don't know if he deals with the autoimmune antibody aspect the way that Dr. does. Argh, I am so disappointed in Ozan! I bet a lot of people are. Do you think he would be willing to work with you if you have documentation about the Free T4 and Free T3 being in the top of the ranges and the TSH suppressed and etc.? Although he's starting to sound a bit arrogant. I had an endo tell me when I was feeling near my worst, " Of course you feel sick, you have a DISEASE! " Like " Duh, you ignorant woman! " Hang in there Niki! PS Good luck with your move. Get as much rest as you can and try to stay cool! > Janet, I'm not trying to get my TSH so low, it was already at 0.9 > when I got so sick, and my ft's were at the bottom. It just keeps > going lower as we raise the ft's. My ft's are still right around > the halfway range, and I still don't feel well at all (ft3 is right > below halfway, ft4 is just above). Everything I'm finding says > Hashi's patients feel better with the TSH suppressed, sometimes > extremely low, and the ft's in the high end of the normal range. I > just know I'm not feeling much better now than I was before I was > medicated, so I want to try getting the ft's higher to see if that > helps. Seriously, the only improvement I've seen is my eyebrows are > starting to grow back a little (but my hair is still falling out in > handfuls!) > > What I can't live with is he seems to think I should just accept > feeling this way, and hope it will get better someday. I've spent > over 5 yrs doing that, and I just got sicker. I just can't waste > any more time waiting and hoping. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Well, depending on your age, that could be quite low. With mine, my DHEA was 860, I think. And that was equivalent to the DHEA level of a 90 year old woman. DHEA for 30 year old women, like myself, is around 3000. I'm only on a teensy dose of DHEA. I will be doubling my dose in the next four weeks, after I finish my Armour increases. Even on that teensy dose for three months, my DHEA came up from 860 to 1300 and something. So, maybe your teensy dose will help. I really hope so. Best-- Courtenay. --- Niki wrote: --------------------------------- Courtenay, I also have the problem with stress...I can feel myself go downhill when I'm stressed. I just want to stay in bed, but I can't rest. The bio-cream has a small amount of DHEA. He said it was a little low. My lab for DHEAs was 192 (35-430). I'm not familiar enough with it to know what really warrants " low " . Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 Courtenay, I'm 42. I'm not sure how that falls into the whole scope of things as far as normal DHEA levels. One more little " kink " in all of this that I'm hoping will make a difference...I've been on depo-provera for about 8 yrs. When I saw him in April, I was prepared to stop the injections, but he didn't see a reason to stop, and advised me to continue. I had another injection mid April, then in May he decided I must be meno since I wasn't feeling better on the Armour and started the bio-cream and told me to stop the depo. My shot doesn't run out until mid July now, and I know, after so many years, it may take months for it to completely leave my system. Although he's done sex hormone labs, I'm still not sure how they could give an accurate picture while I'm still on depo. That's one I'm just going to have to wait out, I guess. > > > --------------------------------- > Courtenay, I also have the problem with stress...I can > feel myself > go downhill when I'm stressed. I just want to stay in > bed, but I > can't rest. > > The bio-cream has a small amount of DHEA. He said it > was a little > low. My lab for DHEAs was 192 (35-430). I'm not > familiar enough > with it to know what really warrants " low " . > > Niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 I only knew a couple of people who tried depo, and they didn't like the way it made them feel, and didn't do it again. So, I've got nothing in that area. I hope that you have an okay transition from the depo, though, all things considered. Given what I've seen of your labs, I know your DHEA is low, but I'm not sure what the normal numbers are for someone who is your age range. It shouldn't be that much different than my own, I guess. All I've discovered is that with most hormones, the best thing to do is start on teensy dosages, and give it at least two months or so to see if there are any differences before making any new changes in dosage. I have a book on DHEA case studies that my doctor recommended and I have read, but I'm going to have to comb my shelves to find it, if you're interested. Sometimes you take a hormone or have a hormone increase and you feel the difference right away (good or bad), and sometimes you don't really feel the benefits or deficits of what your taking for at least eight weeks. That's the really hard part about all of this stuff. I hope you feel better soon! Courtenay. --- Niki wrote: --------------------------------- Courtenay, I'm 42. I'm not sure how that falls into the whole scope of things as far as normal DHEA levels. One more little " kink " in all of this that I'm hoping will make a difference...I've been on depo-provera for about 8 yrs. When I saw him in April, I was prepared to stop the injections, but he didn't see a reason to stop, and advised me to continue. I had another injection mid April, then in May he decided I must be meno since I wasn't feeling better on the Armour and started the bio-cream and told me to stop the depo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Janet I know I'm answering this several days late, but, I must say that what you have experienced sounds much more like adrenal fatigue, waxing and waning, to me. " Stress " and " in bed for a week " are very key words in this scenario. Forgive me, my memory isn't working right, but have you had testing for this. Wish I could. Re: New Result > Hi, Niki: > > Just curious, why do you want your TSH so close to " 0 " ? I'm just > asking because, for myself, if I go too below 1 or too close to 2, I > become symptomatic. I thought that a very low TSH was indicated for > thyroid cancer or certain antibodies (? I can't get a handle on all > this scientific stuff myself.) > > I was at 0.3 not to long ago and he said that was fine with Ft4 > of 1.5 but I asked for a decrease in my meds because I was told (by > another doctor long ago) to keep my TSH where it had always been > before TD, which averaged 1.5 for as far back as I could obtain past > labs. I got the decrease, but I think I should have left things > where they were because now I feel undermedicated again. I'm due > for more labs to figure this out. > > I had been hyperthyroid to the point of serious catastrophe before I > had finally been diagnosed and had RAI. So I guess I tend to get a > little nervous when I see my TSH drop too much lower than 1 with my > Ft4 edging up to the high end. > > I do look at TSH more for myself because it has been, for me, the > best indicator. On the other hand, Ozan was looking more at my Ft4. > I keep the Free T's in mind, but they don't change consistently with > the TSH. In other words, my TSH can go from one end of the range to > another and my Free T's will not vary that much. I only know how I > feel and compare that to the TSH, and this has been a pretty > consistent guage for me. > > I have found, also, that even when all my levels are good, when my I > get overwhelmed with stressors, like my son going to jail or my Dad > killing himself, or even final exams or moving, I develop the same > symptoms that I have always associated with being either hyper- or > hypo-thyroid. > > I'm not defending Ozan or questioning your judgement. I am > seriously confused by all this thyroid stuff and wonder why what > works for one does not work for another. You could probably put 10 > women in a room with the exact same labs and same disease, but > everyone would be in a different place. I suspect female hormones > and environmental factors are what makes us all so different. > > I hope the stresses from your move pass soon. Been there, done that > a couple of years ago. Had me in bed for a week once it was all > over. > > God Bless! > Janet Quote Link to comment Share on other sites More sharing options...
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