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Re: Neuroleptics

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Janet and All-

To my knowledge, several drugs fall under the " neuroleptic " category.

Some are classified as anti-psychotic and some being anti-depressants.

From what I have learned, many of the anti-psychotics are the more

harmful drugs...being Zyprexa, Remeron, Haldol, Ativan..and the list

goes on. The opposing anti-depressants supposedly are better accepted

in the system...Zoloft, Prozac...and many others. Of course, with LBD,

each and every patient differs, so what may work with one may/may not

work for another. My opinion is though, these neuroleptics such as

anti-psychotics can have reverse effects, and at times irreversible

effects (this happened with my dad and Ativan). So just be wary, trust

your gut instinct, and if possible, opt for another choice.

Sandie

Des Moines, IA

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Sandie,

Where did you get the info on Remeron (mirtazapine)? My dad has been

taking this for sleep and depression. The info I've gathered doesn't

indicate it's in the Haldol/Zyprexa/Ativan category.

------ in Madison, WI

> Janet and All-

> To my knowledge, several drugs fall under the " neuroleptic "

category.

> Some are classified as anti-psychotic and some being anti-

depressants.

> From what I have learned, many of the anti-psychotics are the more

> harmful drugs...being Zyprexa, Remeron, Haldol, Ativan..and the list

> goes on. The opposing anti-depressants supposedly are better

accepted

> in the system...Zoloft, Prozac...and many others. Of course, with

LBD,

> each and every patient differs, so what may work with one may/may

not

> work for another. My opinion is though, these neuroleptics such as

> anti-psychotics can have reverse effects, and at times irreversible

> effects (this happened with my dad and Ativan). So just be wary,

trust

> your gut instinct, and if possible, opt for another choice.

> Sandie

> Des Moines, IA

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> Does Dystonia go along with LBD? Or, ALZ? What meds are given to

a Dystonia

> patient? Staying with meds -- what is given the LBD patient?

> I have never been comfortable with the ALZ diagnosis, and while in

the ALZ

> chat/board room a caregiver told me about LBD. I looked it up in

WebMD --

> the symptoms I was reading about were the same symptoms my dad was

struggling

> with. I have already contacted his NH staff and asked them to

look into LBD

> and if they are OK with it to get him off the tranqs. I also

Faxed info to

> them.

> I don't know if I'll be able to stay with you. I have a job that

is very

> stressful and will continue to be so for the foreseeable future.

I'm also

> looking at a knee replacement fairly soon. When I came home

yesterday after

> work I was dumbfounded to see 145 messages in my inbox. By then I

was so

> maxed out I could barely think. So, I deleted everything and went

to bed.

> Sorry about that -- I'm sure there were some really great messages.

> Anyway, I will close for now and maybe " check you out later!)

> Joni in Eugene, Oregon

>

> In a message dated 1/30/2003 8:03:31 PM Pacific Standard Time,

> sanclown@w... writes:

>

> > Dystonia:

> > Abnormal tonicity of muscle, characterized by prolonged,

repetitive

> > muscle contactions that may cause twisting or jerking movements

of the

> > body or a body part.

Hello, Joni. My name is Joy and my husband has LBD w/ Dystonia.

His mother also had Dystonia with MSA (Multiple System Atrophy)

which the Dr. now says if she were alive, he would change her dx to

LBD not MSA. Anyway, since in our situation, and his mom

first presented with Parkinson's which significantly affected his

muscles and then " branched out " into LBD 7 years later with

significant Dystonia in neck and back, I would say his and my MIL's

Dys. is more directly related to LBD...not AD. Other than the

Sinemet meds (levodopa/carbidopa combination) for muscle

flexibility, it was recently suggested he try the Botulinum

injections over a period of 3 mos. to see if that would relax the

muscle spasms. It is a temporary assist, if it works at all as each

person is so different, and the patient needs to be reinnoculated at

intervals. My MIL tried them but they did not improve her

condition. We haven't tried them.

I understand where you are coming from re " not being able to stay

with you " as I seem to do much lurking and little contributing.

Fulltime work also, teenager, LO, and right now am going to get a

phone call any day that my mother has passed away with Hospice care

in her upstate NY home. Have visited when she was alert for 10 days

and said our goodbyes...but " stressful " times also. Our 16 yr old

son was snowboarding last Thurs. p.m. @ local ski trails and managed

to break his wrist. Ya' know?! Numbness seems to take over

sometimes. If I learn of anything else re Dystonia, will let you

know. Joy in Cleveland where I actually managed to clean the inside

of my care today! 38 degrees!

>

>

>

>

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