Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Hi, I am a new member of this group, thank goodness for Yahoo. I am my mother and fathers caregiver along with my sister and we are 90% sure what we thought was MSA is LBD. My father is the one with the disease, and my mother is his primary caregiver. I feel that I will start out being more of a taker in this group than a contributor; I am sorry for that. My first question is.. Has anyone had problems with getting their loved one to take the medicine? My father is on midodrine for his orthostatic hypotension which he is OK with, but we are trying to give him seraquel for the hallucinations and delusions. We are partially succeeding but not with out a lot of grief.(literally) My father has never been one to want to take medicine and he claims (at times) that the seraquel is killing him. He thinks that my Mom, my sister, and I are all against him. Currently my Mom is giving him a 1/2 pill in the evenings. The hallucinations are delusions are still there but he appears a little bit calmer. If anyone can commisserate please do. I'll be checking back with the group during the day. If I can help with the public awareness drive let me know. Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Tami I want to welcome you to the group. So sorry we have to meet under these circumstances, yet I am so happy you found this caregiving group. You had a question with meds...my dad would refuse meds at times and during those times there was absolutely NO way to get him to take them, unless I was the one giving them. So, since he was in a nursing home, and I wasn't always there I suggested crushing the pills and putting them in a small serving of ice cream, pudding, mashed potatoes, something soft and definately a smaller portion. Often the pills were crushed and put in a bite of applesauce, but my dad was on to that one, and still wouldn't take the bit. One of the nurses (male nurse that often I wanted to deck) decided to put the crushed pills over dads whole meal...well, now, when dad didn't eat much...my question to this nurse was " Exactly which meds did my dad get in him? " Duh! So, I emphasize the fact that it should be a smaller portion of food. It is fairly easy to mask the meds, with a little creativity. How old is your dad? Also, may I ask where do you live? There are soooo many midwesterners that I guess I am taking an impromptu survey. I will add you to my prayer list and I wish you the best of luck. Thank you for sharing your story, and for jumping right in with some questions!! Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Tami, In my father's (age 62) case, problems taking meds are more attributed to confusion. He'll say, " I know I took that one last night. " Even though we knew he hadn't. There were also times when we found pills on the floor. Still not sure if he accidentally dropped them out of his mouth, or purposely. -------- of Madison, WI > Hi, > I am a new member of this group, thank goodness for Yahoo. I am my > mother and fathers caregiver along with my sister and we are 90% > sure what we thought was MSA is LBD. My father is the one with the > disease, and my mother is his primary caregiver. I feel that I will > start out being more of a taker in this group than a contributor; I > am sorry for that. My first question is.. Has anyone had problems > with getting their loved one to take the medicine? My father is on > midodrine for his orthostatic hypotension which he is OK with, but > we are trying to give him seraquel for the hallucinations and > delusions. We are partially succeeding but not with out a lot of > grief.(literally) My father has never been one to want to take > medicine and he claims (at times) that the seraquel is killing him. > He thinks that my Mom, my sister, and I are all against him. > Currently my Mom is giving him a 1/2 pill in the evenings. The > hallucinations are delusions are still there but he appears a little > bit calmer. > If anyone can commisserate please do. I'll be checking back with > the group during the day. > > If I can help with the public awareness drive let me know. > > Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Tami, My mom did the same thing. That is when I became more involved in her care. She would yell at dad and accuse him of trying to drug her or make her sleep so he wouldn't have to care for her. Once she got on a regular schedule taking her meds she ajusted better. As far as the drugs being on the floor. My mom couldnt see good, it tends to effect their visual perception. There short term memory is also affected. I'm sure your dad is just confused and can sometimes not tell if the pill went in the mouth or hand. I saw mom do it first hand. You just have to make sure someone is there and reassures him that it is under control. Shirley > " >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: Re: Good morning >Date: Tue, 28 Jan 2003 19:50:56 -0000 > >Tami, > >In my father's (age 62) case, problems taking meds are more >attributed to confusion. He'll say, " I know I took that one last >night. " Even though we knew he hadn't. There were also times when >we found pills on the floor. Still not sure if he accidentally >dropped them out of his mouth, or purposely. > >-------- of Madison, WI > > > > > Hi, > > I am a new member of this group, thank goodness for Yahoo. I am my > > mother and fathers caregiver along with my sister and we are 90% > > sure what we thought was MSA is LBD. My father is the one with the > > disease, and my mother is his primary caregiver. I feel that I >will > > start out being more of a taker in this group than a contributor; I > > am sorry for that. My first question is.. Has anyone had problems > > with getting their loved one to take the medicine? My father is on > > midodrine for his orthostatic hypotension which he is OK with, but > > we are trying to give him seraquel for the hallucinations and > > delusions. We are partially succeeding but not with out a lot of > > grief.(literally) My father has never been one to want to take > > medicine and he claims (at times) that the seraquel is killing >him. > > He thinks that my Mom, my sister, and I are all against him. > > Currently my Mom is giving him a 1/2 pill in the evenings. The > > hallucinations are delusions are still there but he appears a >little > > bit calmer. > > If anyone can commisserate please do. I'll be checking back with > > the group during the day. > > > > If I can help with the public awareness drive let me know. > > > > Tami > _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 what really erks me is sometimes I will see the nurse leave the pill with my mom and walk out. In a cense this is ok because my mom hates having someone stare at her and make her hurry up. She also likes to take her sleeping pill at her own convience and not have to be told it's time to go to sleep. I know they leave because they don't want to wait around and because mom sounds so normal. But I also know that it is not proper procedure to not physically see that the pill is taken. Shirley > >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: Re: Re: Good morning >Date: Tue, 28 Jan 2003 12:18:49 -0800 > >Tami, >My mom did the same thing. That is when I became more involved in her care. >She would yell at dad and accuse him of trying to drug her or make her >sleep >so he wouldn't have to care for her. Once she got on a regular schedule >taking her meds she ajusted better. As far as the drugs being on the floor. >My mom couldnt see good, it tends to effect their visual perception. There >short term memory is also affected. I'm sure your dad is just confused and >can sometimes not tell if the pill went in the mouth or hand. I saw mom do >it first hand. You just have to make sure someone is there and reassures >him >that it is under control. Shirley > > > > > > > > " > >Reply-To: LBDcaregivers > >To: LBDcaregivers > >Subject: Re: Good morning > >Date: Tue, 28 Jan 2003 19:50:56 -0000 > > > >Tami, > > > >In my father's (age 62) case, problems taking meds are more > >attributed to confusion. He'll say, " I know I took that one last > >night. " Even though we knew he hadn't. There were also times when > >we found pills on the floor. Still not sure if he accidentally > >dropped them out of his mouth, or purposely. > > > >-------- of Madison, WI > > > > > > > > > Hi, > > > I am a new member of this group, thank goodness for Yahoo. I am my > > > mother and fathers caregiver along with my sister and we are 90% > > > sure what we thought was MSA is LBD. My father is the one with the > > > disease, and my mother is his primary caregiver. I feel that I > >will > > > start out being more of a taker in this group than a contributor; I > > > am sorry for that. My first question is.. Has anyone had problems > > > with getting their loved one to take the medicine? My father is on > > > midodrine for his orthostatic hypotension which he is OK with, but > > > we are trying to give him seraquel for the hallucinations and > > > delusions. We are partially succeeding but not with out a lot of > > > grief.(literally) My father has never been one to want to take > > > medicine and he claims (at times) that the seraquel is killing > >him. > > > He thinks that my Mom, my sister, and I are all against him. > > > Currently my Mom is giving him a 1/2 pill in the evenings. The > > > hallucinations are delusions are still there but he appears a > >little > > > bit calmer. > > > If anyone can commisserate please do. I'll be checking back with > > > the group during the day. > > > > > > If I can help with the public awareness drive let me know. > > > > > > Tami > > > > >_________________________________________________________________ >Help STOP SPAM with the new MSN 8 and get 2 months FREE* >http://join.msn.com/?page=features/junkmail > _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Shirley, I can totally relate to this, while my granda was in hospital recently with these catatonic states the nurses would come in and just leaves his meds. Because these states leave him drowsy his swallowing wasn't that great, but they assumed that because he could say yes I want dinner or I need to go to the bathroom,that he was mentally ok. They had listened to the consultant tell us that because of these states his swallowing reflex would go and he was at a higher risk of aspiration pneumonia. Sometimes they just beggar belief! ..xx Re: Good morning > >Date: Tue, 28 Jan 2003 19:50:56 -0000 > > > >Tami, > > > >In my father's (age 62) case, problems taking meds are more > >attributed to confusion. He'll say, " I know I took that one last > >night. " Even though we knew he hadn't. There were also times when > >we found pills on the floor. Still not sure if he accidentally > >dropped them out of his mouth, or purposely. > > > >-------- of Madison, WI > > > > > > > > > Hi, > > > I am a new member of this group, thank goodness for Yahoo. I am my > > > mother and fathers caregiver along with my sister and we are 90% > > > sure what we thought was MSA is LBD. My father is the one with the > > > disease, and my mother is his primary caregiver. I feel that I > >will > > > start out being more of a taker in this group than a contributor; I > > > am sorry for that. My first question is.. Has anyone had problems > > > with getting their loved one to take the medicine? My father is on > > > midodrine for his orthostatic hypotension which he is OK with, but > > > we are trying to give him seraquel for the hallucinations and > > > delusions. We are partially succeeding but not with out a lot of > > > grief.(literally) My father has never been one to want to take > > > medicine and he claims (at times) that the seraquel is killing > >him. > > > He thinks that my Mom, my sister, and I are all against him. > > > Currently my Mom is giving him a 1/2 pill in the evenings. The > > > hallucinations are delusions are still there but he appears a > >little > > > bit calmer. > > > If anyone can commisserate please do. I'll be checking back with > > > the group during the day. > > > > > > If I can help with the public awareness drive let me know. > > > > > > Tami > > > > >_________________________________________________________________ >Help STOP SPAM with the new MSN 8 and get 2 months FREE* >http://join.msn.com/?page=features/junkmail > _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 In a message dated 1/28/2003 8:33:31 AM Eastern Standard Time, ridgway@... writes: > My father has never been one to want to take > medicine and he claims (at times) that the seraquel is killing him. > He thinks that my Mom, my sister, and I are all against him. Hi, Tami. This sounds a bit paranoid. I would describe your Dad's behavior and his comments to the doctor who prescribed the Seroquel. When my husband balks at taking his meds, he is often wondering who has been messing around with his meds (paranoid ideation). I usually back off from trying to get him to take them and change the subject. All of my husband's pills are crushed and mixed in applesauce before being fed him. After a few minutes, when I make a second gentle attempt to feed him his meds, he is usually compliant. The point is, I try appear laid back, and try to avoid showing anger and impatience to him. Bertha, (husband's PD dates from 1983, dx LBD, 1997) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2003 Report Share Posted January 30, 2003 Bertha I am always THRILLED to see your name on a post. I realize this last post was not directed toward me, and that I invited myself into your conversation...sorry, I just couldn't help myself. How is your hubby doing? I assume he is still at home, taking in your wonderful and warm care. I know that whatever comes your way you will handle with such dignity!! I continually keep you in my prayers. Please tell the others (Mai-Liis, Cheryl, Barb, Marilyn, Lula (?), Imelda) and anyone that I missed, that might remember me " Hello " from me, and that I still keep them in my prayers and thoughts. Hugging you with my heart Bertha! Sandie in Des Moines, where it is January and raining...hmmmmmm Quote Link to comment Share on other sites More sharing options...
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