Re: HEY YA'LL I AM NEW HERE

[Guest guest]

Ray

I sent some messages when this all came out about viruses and attachments

THEN HAD TOLD EVERYONE ABOUT A GREAT Antiviral program called avg but i have

heard no responses to any of my e-mails,, my name is jeanne and i am new

here but i guess no one wants to talk to me.. i have rsd and have had this

monster for 14 years.. started in the left wrist after a FALL on ice..today

i have rsd total body and organs too. i went to the dr today with legs so

swollen that it looks like elephantitis.. the dr. is very worried about this

and has suggested that i stay down.. well this is funny i have small

children 9 going on 30 -10 going on 90..

<<<<<<<<WITH LOVE TO ALL MY RSD FAMILY>>>>>

JEANNE,

MIKEY <<<THE BRATTINS>>>

SHAYLA

ICQ===== 4972389====MEMA

AOL IM================ MUMZY57

PALTALK===============ACHEIVA97

MY PHONE FOR ANYONE WHO WANTS JUST TO HEAR A FRIENDLY VOICE

RSD?

Really Special Day?

Rising Swirly Distance?

Red Sweet Donut?

Ridiculously Stupid Disease?

???

Taken from another e-mail..I love what RSD means, don't you?

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[Guest guest]

Jeanne,

Coping with small children while you are coping with any form of chronic

pain can be especially frustrating. I'm 52 and still have an almost 12 year

old daughter at home. The older children are married with kids of their

own. However, I am blessed this summer by having my son's three children

ages 2, 4, 10 with us as their mother is ill. I'm not up to this, but will

manage the best I can.

I don't have RSD, but understand from this list that it is a very difficult

and frustrating disease. I have Reactive Arthritis, a form of

spondyloarthropathy. Sister diseases are Ankylosing Spondylitis, Psoriatic

Arthritis, and Inflammatory Bowel Disease with arthritis. I also have

Fibromyalgia, Chronic Fatigue Syndrome, Sjogrens Syndrome and Raynauds

Phenomena. I have had Reactive Arthritis (also known as Reiters Syndrome)

since at least age 10. I'm 52 and only began to get help with the pain

through a pain clinic just less than two years ago. I have my next

appointment this Friday and expect changes in medications and doseages.

I must say that the pain medications do help make the pain tolerable, but as

most of us know, medication never gets rid of all the pain. Though the ReA

(Reactive Arthritis) is still as busy as ever, Fibromyalgia is predominant

now as far as pain is concerned. I can hardly stand to be touched by

anyone. Repetitive motions are excruciating.

I will not give in to the pain and still maintain our home, yard, and my

large wildflower, and perennial borders by myself. Exercise is important.

I'm sure you will enjoy the discussions on the list. Not every post is

responded to, especially during the summer when people are involved with

vacations, family, and outside activities. Hang in there. We often have

some very lively exchanges over some topics.

Ray in Virginia

moderator

[Guest guest]

Dear Jeanne,

No, no - it's not true that no one wants to talk to you. The problem (or at

least mine) was that I haven't been getting a lot of my mail, sometimes only 1

or 2 messages in 8 hrs (and I am in several groups - one for each

disease/illness/syndrome etc.) so didn't even know you had joined the group!

What does RSD stand for? I'm not familiar with that acronym.

I have Norton, which so far has been great, although it didn't tell me about the

Hahaha virus.

So I would love to hear about avg - and you.

Jo

Attachments to messages

> Several people recently have attempted to send attachments with posts to

the

> list. Attachments are removed by the server to prevent viruses from being

> distributed through the list to members. Please do not try to send

> attachments with your messages.

>

> If you wish others to visit a website you may send an URL, a website

> address. Example: www.disney.com

>

> If you receive a message asking you to look at an attachment, you will not

> be able to do so since there will be no attachment with the message when

it

> is sent through the list.

>

> This is explained in the list rules which you received when you signed up

> and which are regularly posted to the list monthly.

> Ray in Virginia

> moderator

>

>

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[Guest guest]

Thanks Ray In VA

I am glad to know someone is here , heheehe....I am a motor mouth an dlove

to talk to whom ever wants to talk..I also know the summer has people going

on vacations and treatments (those all year long) and just doing things for

themselves or with friends or family.. I pretty well have no outside family

here but one older daughter and she has her own life and most of the time I

am not part of that...

As you are aware with kids, you are busy all day long , doing house work and

then redoing house work, seems like this job never gets done...I say redone

because I get my home done and ready for the day and they bring in their

friends and come behind me and mess it up, they do that really good and

right on time too. " Its a never ending battle.

My legs have been swollen for a week and this is bascially the first time

this has happened and then stayed that way for so long..The dr. thought i

had a blood clot and so sent me in for a Doppler Ultrasoound to have it

checked it out but found nothing.. But in turn, told me i was a canidate

for blood clots.. so he wanted me to go home and sit with my legs up and

stay that way for a week.. this is course to me was a joke,, oh sure with

kids that age?? i can just see them running the house.. No Thank You..

hehehe

gee you mentioned about raynoids phenomanan i have this, mylofacial, ms,

rsd,fibro,hodgkins, and colegins disease,, there are others but i can't get

my mind to work..

i love my garden and go out there as much as i can.. the heat this year took

my little bitty garden already, but i will try this again next year.. the

only area in this duplex is directly in the sun and so things were burnt out

right away.. boohoo..

my front yard i have roses, and i put some border plants in Silver Mound..

which i think is beautiful ., i have my very own lemon tree i have growing

in my house.. this is my baby, cause i planted a lemon seed about yrs ago

and it frew.. it is about 4 ft high now and hates the outdoors...

i havemy brood of birds i raise, and pamper they besides my kids are the

light of my life. my cockatials give me kisses when i feed them and tell me

thank you.. they are so neat..

well i didn't mean to make this a book, so i will get back to the rest of

the mail.. nice meeting you and hope to get to know you more through the

days, months and years to come...

> Jeanne, Mike And Shayla.

> Our Feathered Family

> & Sammy Cocktails

> Angel & Simon Parakeets

> Prince &

> Princess Cassie Parakeets

> & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

> You can contact me on

> ICQ 4972389

> Paltalk Acheiva97

> Aim Mumzy57

> Msn Mumzy@...

Re: HEY YA'LL I AM NEW HERE

> Jeanne,

> Coping with small children while you are coping with any form of chronic

> pain can be especially frustrating. I'm 52 and still have an almost 12

year

> old daughter at home. The older children are married with kids of their

> own. However, I am blessed this summer by having my son's three children

> ages 2, 4, 10 with us as their mother is ill. I'm not up to this, but

will

> manage the best I can.

>

> I don't have RSD, but understand from this list that it is a very

difficult

> and frustrating disease. I have Reactive Arthritis, a form of

> spondyloarthropathy. Sister diseases are Ankylosing Spondylitis,

Psoriatic

> Arthritis, and Inflammatory Bowel Disease with arthritis. I also have

> Fibromyalgia, Chronic Fatigue Syndrome, Sjogrens Syndrome and Raynauds

> Phenomena. I have had Reactive Arthritis (also known as Reiters Syndrome)

> since at least age 10. I'm 52 and only began to get help with the pain

> through a pain clinic just less than two years ago. I have my next

> appointment this Friday and expect changes in medications and doseages.

>

> I must say that the pain medications do help make the pain tolerable, but

as

> most of us know, medication never gets rid of all the pain. Though the

ReA

> (Reactive Arthritis) is still as busy as ever, Fibromyalgia is predominant

> now as far as pain is concerned. I can hardly stand to be touched by

> anyone. Repetitive motions are excruciating.

>

> I will not give in to the pain and still maintain our home, yard, and my

> large wildflower, and perennial borders by myself. Exercise is important.

>

> I'm sure you will enjoy the discussions on the list. Not every post is

> responded to, especially during the summer when people are involved with

> vacations, family, and outside activities. Hang in there. We often have

> some very lively exchanges over some topics.

> Ray in Virginia

> moderator

>

>

>

> Know someone who could profit from our list? Send our direct sign-up URL:

http://www.yahoogroups.com/subscribe.cgi/chronic_pain or write us at:

chronic_pain-listowner

> Manage your subscription with several special email addresses:

> chronic_pain-owner - Sends email to the list owners

> chronic_pain-subscribe - Subscribe to the list through

email

> chronic_pain-unsubscribe - Unsubscribe from the list

> chronic_pain-normal - Switch your subscription to normal

> chronic_pain-digest@... - Switch your subscription to digest

>

>

>

>

[Guest guest]

Hi Jeanne,

Welcome to the group. I saw your original post and didn't get a chance to

respond until now. I can just imagine trying to rest and keep my legs up

and still try to keep the house in order! Yeah, right! I'm a househusband

now, and try my best to keep order in our part of the universe. Sometimes I

get close to success.

My post to Lin listed my ailments, for the most part, so I won't bore you

with repetition.

I've been able to keep up with my gardens, for the most part. we had almost

the entire yard rototilled and replaced the grass with flower beds and a

small garden -- tomatoes, peppers and strawberries. I just put the

strawberries in this year and last night picked the first ripe berry! I've

taken to going out to do my garden work around 5 am. Sure beats trying to

tolerate the heat and humidity.

I hope you find some helpful info here.

Hower

Central Pennsylvania

http://users.supernet.com/hower

[Guest guest]

hello im new too and i have two blown disk it has been comfimed by the doctor

and he also told me too not to bend and lift how are you suposed to do that

when you have a 3year old and a 6year old and a wife who has pulumenary lung

disfuction i am in constent pain with this do not worry i sill have hair on

my head well see ya

[Guest guest]

Hi (person with a name?)

I can understand your distress. But to answer your question,

instead of bending, put one knee on the floor to get down to & up from that

level. You also need to strengthen the columns of muscle along the sides of

your spine to partly compensate for the dismal disks. (I have hardly any

disks at all).

A good physical therapist or chronic pain victim or chiropractor

can tell you how to do this. So can various other medical specialties.

Just how good is your medical care?

There also could be a possibility that a fusion operation would

repair the damage. In fusion, some bone slivers are taken from your hip and

place between the affected vertebrea to return space & support. They

quickly fuse with your spine, creating strong support with a little loss of

flexibility; and generally stop/reduce pain.

Ken

At 12:10 AM 6/29/2001 -0400, niterydr1@... wisely said:

>hello im new too and i have two blown disk it has been comfimed by the doctor

>and he also told me too not to bend and lift how are you suposed to do that

>when you have a 3year old and a 6year old and a wife who has pulumenary lung

>disfuction i am in constent pain with this do not worry i sill have hair on

>my head well see ya

>

>

>

[Guest guest]

HI what is your name newbe? I am also a newbee and have only been here for

a few days.. Sounds like you have your hands full and i sympathize with

you .i can bend but cannot pick up kids i have an 10 yr old and a 9 yr old

and long to hole them the 11 yr old is wayyyyyyy to big (that is being a

nice mommy) ahd if i put him on my lap i would loose my legs the 9 yr old

isn't so small herself but much better than brother.,

they are alot of help to me when they want to be i have been suffering with

this for 14 yrs and it has been a job.. I remember raising my bio kids i m

57 and the kids i am raising now i adopted they were grand babies..i have

had them for 9 yrs now...

all i know is i miss doing things with them and they tell me sometimes that

they wish i was like i used to be before the rsd spread.. but that is long

gone now..

welcome to the group .. this is a great group.. all rsders are great.. god

put us here together cause i think he has a plan for us..

> Jeanne, Mike And Shayla.

> Our Feathered Family

> & Sammy Cocktails

> Angel & Simon Parakeets

> Prince &

> Princess Cassie Parakeets

> & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

> You can contact me on

> ICQ 4972389

> Paltalk Acheiva97

> Aim Mumzy57

> Msn Mumzy@...

Re: HEY YA'LL I AM NEW HERE

> hello im new too and i have two blown disk it has been comfimed by the

doctor

> and he also told me too not to bend and lift how are you suposed to do

that

> when you have a 3year old and a 6year old and a wife who has pulumenary

lung

> disfuction i am in constent pain with this do not worry i sill have hair

on

> my head well see ya

>

>

>

[Guest guest]

Heelo glad you are a member, and happy to met you, I

have gone through the same think you have, I have been

dealing with mine since 96 and still haveing chronic

pain, the first thing you need to do is get into a

pain clinic, it is very hard when two in the family is

sick, my husband has a bad heart and suffers daily he

was raped up into his ilness he did not have time for

mine he refuses to think of me as ill. so I had to be

strong for my self and if your wife supports you with

your pain great, you need to be supportive of each

other, and with both of you ill and 2 small children,

need to for sure see about a pain clinic, pain can

make you mean, it does me and you need to learn not to

let the children see it, if you need any support I am

here or any one in this group. Hang in there and I

will be saying a prayer for you and family, May God

Bless each of you.

Marilyn

(hopeful)

Glad you join, hang in there, it will take patients if

any thing. Are they talking surgery

--- niterydr1@... wrote:

> hello im new too and i have two blown disk it has

> been comfimed by the doctor

> and he also told me too not to bend and lift how

> are you suposed to do that

> when you have a 3year old and a 6year old and a wife

> who has pulumenary lung

> disfuction i am in constent pain with this do not

> worry i sill have hair on

> my head well see ya

>

>

> [Non-text portions of this message have been

> removed]

>

>

> Know someone who could profit from our list? Send

> our direct sign-up URL:

>

http://www.yahoogroups.com/subscribe.cgi/chronic_pain

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> addresses:

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> the list owners

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