Re: Fibromyalgia /CFS..auto immune???

[Guest guest]

However, my pain clinic doctor said that wasn't necessarily true. You can't say

that fibro is

your one and only diagnosis if you have several autoimmune diseases...

I have tested positive for autoimmune now they just have to figure out which one

has anyone ever

had this happen? I do have many symptoms of Fibro and CFS but as I understand it

they would not

make this test come out positive so they are doing further tests for lupus and

the such.

Stella/IL

Chronic Pain ~HUGS~

http://groups.yahoo.com/group/Hugs-N-Pain

__________________________________________________

[Guest guest]

I have many other problems like the classic malar rash and have to wear

sunblock, hat and sunglasses when i go outside. It is much easier staying

inside. I also have asthma, hypertension, OA of the spine, GERD, chronic

sinusitis, essential tremors, major depression and who knows what else is

lerking behind the flesh

Hi Pam

yes it sounds like you are in the same mess i sure would like to know whats

causing this pain ..

I have High bllod pressure and disabetes they in fact think maybe my liver

test was elevated

because my sugar test was elevated,,but that still doesnt answer this pain and

the auto immune

positive and sed rate also elevated my symptoms are very close to fibro.CFS and

i have about 13

of the fibro trigger points but i guess that wouldnt make the tests come out

this way unless i

have more then one thing going on..

Stella

Chronic Pain ~HUGS~

http://groups.yahoo.com/group/Hugs-N-Pain

__________________________________________________

[Guest guest]

Stella, I hope that you don't mind me jumping in here, but what kind of pain do you have? I have Peripheral Neuropathy a few Diabetics get it, it is a serious complication. But I am not Diabetic but I know a few ladies that are.. A couple of them have PN but only numbness and weakness in their arms and legs.. Then there are some that have Sensory Polyneuropathy ( like me ) With Sensory PN you feel pain such as extreme cold in feet and hands, numbness, stinging, tingling, stabbing, electric shocks and real bad aching pain in your legs. Then there is the burning pain and cramps. The symptoms usually start with the feet, but not always. I have Sensory Polyneuropathy and was diagnosed with it three years ago. If you have any symptoms such as these especially if your feet and toes start to tingling that is a warning sign that it could be PN. If you do you need to go and see a Neurologist as some GP don't really know about PN, but the Neurologist should. Good Luck, )

From: Stella Kata

To: chronic_pain

Sent: Monday, April 16, 2001 4:45 PM

Subject: Re: Fibromyalgia /CFS..auto immune???

I have many other problems like the classic malar rash and have to wearsunblock, hat and sunglasses when i go outside. It is much easier stayinginside. I also have asthma, hypertension, OA of the spine, GERD, chronicsinusitis, essential tremors, major depression and who knows what else islerking behind the fleshHi Pamyes it sounds like you are in the same mess i sure would like to know whats causing this pain ..I have High bllod pressure and disabetes they in fact think maybe my liver test was elevatedbecause my sugar test was elevated,,but that still doesnt answer this pain and the auto immunepositive and sed rate also elevated my symptoms are very close to fibro.CFS and i have about 13of the fibro trigger points but i guess that wouldnt make the tests come out this way unless ihave more then one thing going on..StellaChronic Pain ~HUGS~ http://groups.yahoo.com/group/Hugs-N-Pain__________________________________________________

[Guest guest]

Windy

what can cause you to get

PN?

xoxoox

mel

> Stella, I hope that you don't mind me jumping in here, but what

kind of pain do you have? I have Peripheral Neuropathy a few

Diabetics get it, it is a serious complication. But I am not

Diabetic but I know a few ladies that are.. A couple of them have PN

but only numbness and weakness in their arms and legs.. Then there

are some that have Sensory Polyneuropathy ( like me ) With Sensory PN

you feel pain such as extreme cold in feet and hands, numbness,

stinging, tingling, stabbing, electric shocks and real bad aching

pain in your legs. Then there is the burning pain and cramps. The

symptoms usually start with the feet, but not always. I have Sensory

Polyneuropathy and was diagnosed with it three years ago. If you have

any symptoms such as these especially if your feet and toes start to

tingling that is a warning sign that it could be PN. If you do you

need to go and see a Neurologist as some GP don't really know about

PN, but the Neurologist should. Good Luck, )

>

> From: Stella Kata

> To: chronic_pain@y...

> Sent: Monday, April 16, 2001 4:45 PM

> Subject: Re: Fibromyalgia /CFS..auto immune???

>

>

> I have many other problems like the classic malar rash and have

to wear

> sunblock, hat and sunglasses when i go outside. It is much

easier staying

> inside. I also have asthma, hypertension, OA of the spine, GERD,

chronic

> sinusitis, essential tremors, major depression and who knows what

else is

> lerking behind the flesh

>

>

> Hi Pam

> yes it sounds like you are in the same mess i sure would like to

know whats causing this pain ..

> I have High bllod pressure and disabetes they in fact think

maybe my liver test was elevated

> because my sugar test was elevated,,but that still doesnt answer

this pain and the auto immune

> positive and sed rate also elevated my symptoms are very close

to fibro.CFS and i have about 13

> of the fibro trigger points but i guess that wouldnt make the

tests come out this way unless i

> have more then one thing going on..

> Stella

> Chronic Pain ~HUGS~

> http://groups.yahoo.com/group/Hugs-N-Pain

>

> __________________________________________________

>

[Guest guest]

Hi Mel, My neuro thinks the PN was caused from when I had Breast Cancer back in 91, I have been cancer free for 10 years now...My Oncologist says no to the Cancer theory saying I would have started with the symptoms longer than three years ago...I tend to agree with him although I did have aching legs and the Old Oncologist would say it was not the Tamoxifin that was causing it, so apparently it is a Mystery

,

From: mel

To: chronic_pain

Sent: Tuesday, April 17, 2001 12:41 AM

Subject: Re: Fibromyalgia /CFS..auto immune???

Windywhat can cause you to get PN?xoxooxmel> Stella, I hope that you don't mind me jumping in here, but what kind of pain do you have? I have Peripheral Neuropathy a few Diabetics get it, it is a serious complication. But I am not Diabetic but I know a few ladies that are.. A couple of them have PN but only numbness and weakness in their arms and legs.. Then there are some that have Sensory Polyneuropathy ( like me ) With Sensory PN you feel pain such as extreme cold in feet and hands, numbness, stinging, tingling, stabbing, electric shocks and real bad aching pain in your legs. Then there is the burning pain and cramps. The symptoms usually start with the feet, but not always. I have Sensory Polyneuropathy and was diagnosed with it three years ago. If you have any symptoms such as these especially if your feet and toes start to tingling that is a warning sign that it could be PN. If you do you need to go and see a Neurologist as some GP don't really know about PN, but the Neurologist should. Good Luck, ) > > From: Stella Kata > To: chronic_pain@y... > Sent: Monday, April 16, 2001 4:45 PM> Subject: Re: Fibromyalgia /CFS..auto immune???> > > I have many other problems like the classic malar rash and have to wear> sunblock, hat and sunglasses when i go outside. It is much easier staying> inside. I also have asthma, hypertension, OA of the spine, GERD, chronic> sinusitis, essential tremors, major depression and who knows what else is> lerking behind the flesh> > > Hi Pam> yes it sounds like you are in the same mess i sure would like to know whats causing this pain ..> I have High bllod pressure and disabetes they in fact think maybe my liver test was elevated> because my sugar test was elevated,,but that still doesnt answer this pain and the auto immune> positive and sed rate also elevated my symptoms are very close to fibro.CFS and i have about 13> of the fibro trigger points but i guess that wouldnt make the tests come out this way unless i> have more then one thing going on..> Stella> Chronic Pain ~HUGS~ > http://groups.yahoo.com/group/Hugs-N-Pain> > __________________________________________________>

[Guest guest]

Hi, haven't submitted for a while. Does anyone have

any info on Tethered Cord Syndrome. It is a tethering

of the spinal cord due to being born with Spina

Bifida. I am going in for my third operation May 4,

and would like to hear from those who have had repeat

operations of this type and the success of the

operation. All research so far indicates a very low

success rate and actually making things worse.

Thanks,

Mike

--- wendy schmidt wrote:

> Hi Mel, My neuro thinks the PN was caused from when

> I had Breast Cancer back in 91, I have been cancer

> free for 10 years now...My Oncologist says no to the

> Cancer theory saying I would have started with the

> symptoms longer than three years ago...I tend to

> agree with him although I did have aching legs and

> the Old Oncologist would say it was not the

> Tamoxifin that was causing it, so apparently it is a

> Mystery

>

> ,

> From: mel

> To: chronic_pain

> Sent: Tuesday, April 17, 2001 12:41 AM

> Subject: Re: Fibromyalgia

> /CFS..auto immune???

>

>

> Windy

> what can cause you to get

> PN?

>

> xoxoox

> mel

>

>

> > Stella, I hope that you don't mind me jumping in

> here, but what

> kind of pain do you have? I have Peripheral

> Neuropathy a few

> Diabetics get it, it is a serious complication.

> But I am not

> Diabetic but I know a few ladies that are.. A

> couple of them have PN

> but only numbness and weakness in their arms and

> legs.. Then there

> are some that have Sensory Polyneuropathy ( like

> me ) With Sensory PN

> you feel pain such as extreme cold in feet and

> hands, numbness,

> stinging, tingling, stabbing, electric shocks and

> real bad aching

> pain in your legs. Then there is the burning pain

> and cramps. The

> symptoms usually start with the feet, but not

> always. I have Sensory

> Polyneuropathy and was diagnosed with it three

> years ago. If you have

> any symptoms such as these especially if your feet

> and toes start to

> tingling that is a warning sign that it could be

> PN. If you do you

> need to go and see a Neurologist as some GP don't

> really know about

> PN, but the Neurologist should. Good Luck,

> )

> >

> > From: Stella Kata

> > To: chronic_pain@y...

> > Sent: Monday, April 16, 2001 4:45 PM

> > Subject: Re: Fibromyalgia

> /CFS..auto immune???

> >

> >

> > I have many other problems like the classic

> malar rash and have

> to wear

> > sunblock, hat and sunglasses when i go

> outside. It is much

> easier staying

> > inside. I also have asthma, hypertension, OA

> of the spine, GERD,

> chronic

> > sinusitis, essential tremors, major depression

> and who knows what

> else is

> > lerking behind the flesh

> >

> >

> > Hi Pam

> > yes it sounds like you are in the same mess i

> sure would like to

> know whats causing this pain ..

> > I have High bllod pressure and disabetes

> they in fact think

> maybe my liver test was elevated

> > because my sugar test was elevated,,but that

> still doesnt answer

> this pain and the auto immune

> > positive and sed rate also elevated my

> symptoms are very close

> to fibro.CFS and i have about 13

> > of the fibro trigger points but i guess that

> wouldnt make the

> tests come out this way unless i

> > have more then one thing going on..

> > Stella

> > Chronic Pain ~HUGS~

> > http://groups.yahoo.com/group/Hugs-N-Pain

> >

> >

> __________________________________________________

> >