Master of deception

[Guest guest]

Hi there and all...

Yep - you got it spot on ! LBD is the 'master of deception' as far as diseases

go. It is a shadow boxing match with every single day. You think you've turned a

corner and them WHAM!!! it smacks you right back in the face and you are left

reeling, wondering what on earth to do next!!!

ALSO - just don't ever forget.... the 'experts' have no more insight than us!!!

They are just as vulnerable to the vagaries of this evil disease as we are. They

offer advice and medication but please never forget that it is all 'hit and

miss' - they do what they can but I believe that above all else it is our 'gut'

knowledge gleaned from day to day coexistence with this ogre that is the best

indicator.

- I have lived through IDENTICAL days as you describe. Hold on in there.

You can phone me, so please do. I am not always about during the day but I'm a

home bird in the evenings. It is just typical - the continual flipping of the

coin - one day good, one day bad. PLEASE don't ever think that you somehow don't

contribute to the group enough!!!! that is not true! You mail when you can - we

all understand the demands on time. Some folks here dip in and out and it's

fantastic to hear from them but we all know that it's impossible to keep sat at

the computer! ( Unless your name is Sandie - how that angel manages to keep up

with everyone simply amazes me! I swear that girl don't sleep!!!)

Your posts have suddenly reminded me of symptoms I had forgotten. How could I

forget??!!! My dad had the dripping nose. He also developed a weak cough. This

started about 3 weeks before he died. He too was continually trying to clear his

throat but it was a feeble type of cough.

He also had bouts of chronic pain in his lower ribs. Some days he could barely

move - he would cry out in agony just getting out of bed. He had a couple of

x-rays but nothing showed up. What puzzled everyone was the way these agonising

pains came and went. And his personality fluctuated too. Some days he was like a

stranger to me - that was really hard.

I can empathise with you Martha -the watching and waiting is soooo bad.

Yet I often remember how I begged for dad to be set free of this evil by a quick

and peaceful death - then when he did die I begged for him not to!!! I guess

that is only normal. Good job God understands.

Keep posting and we'll keep praying!

Must go - got the plumber coming. Our heating has failed - the boiler's bust!

So.... add it to the list. My dad's car I inherited has broken down, my oven has

broken and yesterday my sink tap (faucet?) bust too!

Yes that's me - the opposite of the Midas touch - I'm the touch of catastrophe.

You name it, I can look at it and put it out of action. Hey - maybe I should be

sent out to the Gulf? Just one look from me and it would all be over!

Hope this computer is safe in my hands!!!

But hey, I looked out on the cold frosty morning this morning and my little

Blue-tits and Sparrows were at the feeder, they were chirping in the misty

sunlight. Dawn followed night as it ever does. A new day began in much the same

way as it ever has and ever will. I was breathing, walking, talking with my

kids, sharing grumps and smiles... and I felt blessed. Cold .... but blessed!

Talk to you later

Much love

Sally xxx