Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Welcome Linduhlu, This is a great group to be a part of, u will make many friends and find the support u need. I have had FMS and CFS since 98, I also have high B/p, hypothyroidism, I am now on the highest dose of med they make, I also was told I'm in the beginning stages of degenerative arthritis of the spine, and now I am under a hematologist, they think there might be a problem with my blood and talking of doing a bone marrow test, this does not sound like any fun to me. I'm also a walking drugstore. But hey I'm great for the shape I'm in LOL. I'm married to my soulmate of almost 29 yrs. We have 2 grown sons, 26 & 27 and a 3 yr old granddaughter. We live in Northwest ALA near the Tenn. and Miss. line. Hope to talk to u again. Everyone when they have a bad day shares or vents, then u will get back the support to see u thru another rough day. Welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 A BIG Welcome to all of the new people and am new myself. I have found this group to be very supportive and informative too. I live in the state of Nebraska, where finding pain relief and a pain management doc's are far to none. Thank goodness that I have been able to educate my doctor and that I took the time to write to my state reps, state medical boards and that they totally back me up in regards to treating pain adequately with opioids. I have spent a lot of time writing and voicing my concerns about what good pain management involves and that some people are starting to listen. I was a nurse prior to becoming totally disabled by pain and diagnosed with many painful conditions and worked in end-of-life care which I found totally rewarding. I apologize for not being able to write more lately and have been busy with my 3 children, a brother visiting from Hawaii and then the pain hit me really hard a few days this past week. Wow-pain can really control every aspect of ones life and find it really depressing at times. Take care All and wishing you all low pain. Big Hugs, Cher hi, i'm new to the list -- joined last night, but joined under my yahoo identity -- lindapoo_48 because i was waiting on my other new addy to become effective -- DoubleLRanch, anyway, i lost all the welcome messages. is it possible to receive them again. oops :)i'm linduh lu and i live in wisconsin. i'm 52, married and have 2 grown children (1 each) and 2 grandsons, along with a kitty, Klaus and a buff cocker spaniel puppy, Nikki Grace.i have fms, along with athritis and also, i just learned on thursday i have a condition i was born with where there is no disk between my last lumbar verterbra and the sacrum -- instead, it's totally fused together, and basically, this is where all my severe pain orginates.i'm glad to be on the list and hoping to get to know you all.linduh lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 what's an opioid? i have to totally agree with the last sentence below -- this past couple weeks, it's like i've been a completely different person because of pain -- it has taken control and made me into a witch. linduh lu Thank goodness that I have been able to educate my doctor and that I took the time to write to my state reps, state medical boards and that they totally back me up in regards to treating pain adequately with opioids. Wow-pain can really control every aspect of ones life and find it really depressing at times. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 hi katie, wow, you sure are burdened with a lot -- i'm so sorry for you. my kids are 32 and 28 and live in charlotte, nc. i'm here in nw wisconsin, so i don't seem much of them or my grandkids. i'm looking forward to meeting a lot of friends. i too, am also married to my soul mate -- going on 4 years now. he does NOT however, understand my pain. linduh lu (linda lou Welcome Linduhlu, This is a great group to be a part of, u will make many friends and find the support u need. I have had FMS and CFS since 98, I also have high B/p, hypothyroidism, I am now on the highest dose of med they make, I also was told I'm in the beginning stages of degenerative arthritis of the spine, and now I am under a hematologist, they think there might be a problem with my blood and talking of doing a bone marrow test, this does not sound like any fun to me. I'm also a walking drugstore. But hey I'm great for the shape I'm in LOL. I'm married to my soulmate of almost 29 yrs. We have 2 grown sons, 26 & 27 and a 3 yr old granddaughter. We live in Northwest ALA near the Tenn. and Miss. line. Hope to talk to u again. Everyone when they have a bad day shares or vents, then u will get back the support to see u thru another rough day. Welcome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 At 08:33 PM 4/28/01 -0500, you wrote: what's an opioid? Hi , Welcome to the list! Opioids are narcotic pain medicines ... things like Oxycontin, morphine, percocet. Some just have the narcotic component, like Oxycontin, and others are mixed with Tylenol. For me, these meds have been a life saver. I take Oxycontin, which is an extended release, and OxyIR, an immediate release, for breakthrough pain. My pain reached a point where other pain meds, even Tylenol w/codeine, made almost no difference. I have degenerative disk disease, FMS, osteoarthritis, spondylitis, peripheral neuropathy and sensorimotor polyneuropathy. The FMS can contribute to your " clumsiness " as well as the problem you have with your back. If you have a lot of pain there, and there is fusing and degeneration, there could be pressure on a nerve and easily affect your legs. I have a lot of trouble with that. Hower Central Pennsylvania http://users.supernet.com/hower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 I see that has given you a good description of the meaning of opioid so no need for me to go into that one but have to agree with you in regard to pain making us a completely different person and shouldn't have to be that way when there are adequate medications available for the treatment of pain. If Physicians would continue their medical education like the American Medical Association and other organizations have been advising, (Re: Pain management) there wouldn't be so much suffering in this world. I have found that *if* our physicians don't do this on their own, for whatever the reason, (CME) we must do it for them. There is a great amount of pain management educational resources (reputable information from good sources) available on the internet which we can print and take to our own Physicians and I have found that in my case, it does help. Wishing you relief from your pain, Cher aka crystal Re: new to list, hi! what's an opioid? i have to totally agree with the last sentence below -- this past couple weeks, it's like i've been a completely different person because of pain -- it has taken control and made me into a witch. linduh lu Thank goodness that I have been able to educate my doctor and that I took the time to write to my state reps, state medical boards and that they totally back me up in regards to treating pain adequately with opioids. Wow-pain can really control every aspect of ones life and find it really depressing at times. Know someone who could profit from our list? Send our direct sign-up URL: http://www.yahoogroups.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowner Manage your subscription with several special email addresses:chronic_pain-owner - Sends email to the list owners chronic_pain-subscribe - Subscribe to the list through email chronic_pain-unsubscribe - Unsubscribe from the list chronic_pain-normal - Switch your subscription to normal chronic_pain-digest@... - Switch your subscription to digest Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 you gave me a lot of good info here john, thanks. i'm also so sorry you suffer with so much. i am currently taking tylenol with codeine but it's not helping much. i cannot take celebrex, etc., because of my stomach. my doctor just told me thursday if the codeine stops helping, to let him know. thanks for these names, i'll mention them to him, when i call him. linda nw wisconsin Welcome to the list! Opioids are narcotic pain medicines ... things like Oxycontin, morphine, percocet. Some just have the narcotic component, like Oxycontin, and others are mixed with Tylenol. For me, these meds have been a life saver. I take Oxycontin, which is an extended release, and OxyIR, an immediate release, for breakthrough pain. My pain reached a point where other pain meds, even Tylenol w/codeine, made almost no difference. I have degenerative disk disease, FMS, osteoarthritis, spondylitis, peripheral neuropathy and sensorimotor polyneuropathy.The FMS can contribute to your "clumsiness" as well as the problem you have with your back. If you have a lot of pain there, and there is fusing and degeneration, there could be pressure on a nerve and easily affect your legs. I have a lot of trouble with that. HowerCentral Pennsylvania Quote Link to comment Share on other sites More sharing options...
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