(No subject)

[Guest guest]

sorry too busy for this. mc

[Guest guest]

Fw: (no subject)

----- Original Message -----From: Ladyislate@...Sent: Saturday, March 03, 2001 7:34 PMTo: Bosss316@...Subject: (no subject)Let's see if you send this back> > > >> > > >One day, when I was a freshman in high school, I saw a kid from my> > > >class> > > >was walking home from school. His name was . It looked like he> > > >was> > > >carrying all of his books. I thought to myself, "Why would anyone> > > >bring home> > > >all his books on a Friday? He must really be a nerd." I had quite a> > > >weekend> > > >planned (parties and a football game with my friends tomorrow> > > >afternoon), so> > > >I shrugged my shoulders and went on. As I was walking, I saw a bunch> > > >of kids> > > >running toward him. They ran at him, knocking all his books out of> > > >his arms> > > >and tripping him so he landed in the dirt. His glasses went flying,> > > >and I> > > >saw> > > >them land in the grass about ten feet from him. He looked up and I> > > >saw this> > > >terrible sadness in his eyes. My heart went out to him. So, I jogged> > > >over to> > > >him and as he crawled around looking for his glasses, and I saw a> > > >tear in> > > >his> > > >eye. As I handed him his glasses, I said, "Those guys are jerks. They> > > >really> > > >should get lives."> > > >> > > >He looked at me and said, "Hey thanks!" There was a big smile on his> > > >face. It was one of those smiles that showed real> > > >gratitude.> > > >> > > >I helped him pick up his books, and asked him where he lived. As it> > > >turned out, he lived near me, so I asked him why I had> > > >never seen him before. He said he had gone to private school before> > > >now.> > > >I would have never hung out with a private school kid before. We> > > >talked all> > > >the way home, and I carried some of his books. He turned out to be a> > > >pretty> > > >cool kid. I asked him if he wanted to play a little football with my> > > >friends.> > > >He said yes. We hung out all weekend and the more I got to know ,> > > >the> > > >more I> > > >liked him, and my friends thought the same of him.> > > >> > > >Monday morning came, and there was with the huge stack of books> > > >again. I stopped him and said, "Boy, you are gonna really build some> > > >serious> > > >muscles with this pile of books everyday!"> > > >> > > >He just laughed and handed me half the books.> > > >> > > >Over the next four years, and I became best friends. When we> > > >were> > > >seniors, we began to think about college. > > > >decided on town, and I was going to Duke. I knew that we would> > > >always be friends, that the miles would never be a problem. He was> > > >going to> > > >be a doctor, and I was going for business on a football scholarship.> > > >> > > > was valedictorian of our class. I teased him all the time about> > > >being a nerd. He had to prepare a speech for graduation. I was so> > > >glad it> > > >wasn't me having to get up there and speak. Graduation day, I saw> > > >. He> > > >looked great. He was one of those guys that really found himself> > > >during high> > > >school. He filled out and actually looked good in glasses. He had> > > >more dates> > > >than I had and all the girls loved him. Boy, sometimes I was jealous.> > > >> > > >Today was one of those days. I could see that he was nervous about> > > >his> > > >speech. So, I smacked him on the back and said, "Hey, big guy, you'll> > > >be> > > >great!"> > > >> > > >He looked at me with one of those looks (the really grateful one) and> > > >smiled. "Thanks," he said.> > > >> > > >As he started his speech, he cleared his throat, and began.> > > >"Graduation> > > >is a time to thank those who helped you make it through those tough> > > >years.> > > >Your parents, your teachers, your siblings, maybe a coach...but> > > >mostly your> > > >friends. I am here to tell all of you that being a friend to someone> > > >is the> > > >best gift you can give them. I am going to tell you a story."> > > >> > > >I just looked at my friend with disbelief as he told the story of the> > > >first day we met. He had planned to kill himself over the weekend. He> > > >talked> > > >of how he had cleaned out his locker so his Mom wouldn't have to do> > > >it later> > > >and was carrying his stuff home. He looked hard at me and gave me a> > > >little> > > >smile. "Thankfully, I was saved. My friend saved me from doing the> > > >unspeakable."> > > >> > > >I heard the gasp go through the crowd as this handsome, popular boy> > > >told> > > >us all about his weakest moment. I saw his Mom and dad looking at me> > > >and> > > >smiling that same grateful smile. Not until that moment did I realize> > > >it's> > > >depth.> > > >> > > >Never underestimate the power of your actions. With one small gesture> > > >you> > > >can change a person's life. For better or for worse. God puts us all> > > >in each> > > >other's lives to impact one another in some way. Look for God in> > > >others.> > > >> > > >You now have two choices, you can:> > > >> > > >1) Pass this on to your friends or> > > >2) Delete it and act like it didn't touch your heart.> > > >> > > >As you can see, I took choice number 1. "Friends are angels who lift> > > >us> > > >to our feet when our wings have trouble remembering how to fly."> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >> > > >Eleanor Roosevelt wrote:> > > >> > > >Many people will walk in and out of your life,> > > >But only true friends will leave footprints in your heart.> > > >To handle yourself, use your head;> > > >To handle others, use your heart.> > > >Anger is only one letter short of danger.> > > >If someone betrays you once, it is his fault;> > > >If he betrays you twice, it is your fault> > > >Great minds discuss ideas;> > > >Average minds discuss events;> > > >Small minds discuss people.> > > >He who loses money, loses much;> > > >He, who loses a friend, loses much more;> > > >He, who loses faith, loses all.> > > >Beautiful young people are accidents of nature,> > > >But beautiful old people are works of art.> > > >Learn from the mistakes of others.> > > >You can't live long enough to make them all yourself.> > > >Friends, you and me....You brought another friend....> > > >And then there were 3. We started our group....> > > >Our circle of friends....And like that circle....> > > >There is no beginning or end..Yesterday is history.> > > >Tomorrow is mystery. Today is a gift.> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >Send> > > >this to everyone you consider a FRIEND. If it comes back to you, then> > > >you'll> > > >know you have a circle of friends.> > > >> > > >WHEN YOU RECEIVE THIS LETTER, YOU'RE REQUESTED TO SEND IT TO AT LEAST> > > >10> > > >PEOPLE, INCLUDING THE PERSON WHO SENT IT TO YOU.> > > >> > >> > > _________________________________________________________________<br clear=all><hr>Get your FREE download of MSN Explorer at <a href="http://explorer.msn.com">http://explorer.msn.com</a><br></p>

[Guest guest]

Tammy here is your letter back... It was very interesting... Thanks, )

Fw: (no subject)

----- Original Message -----From: Ladyislate@...Sent: Saturday, March 03, 2001 7:34 PMTo: Bosss316@...Subject: (no subject)Let's see if you send this back> > > >> > > >One day, when I was a freshman in high school, I saw a kid from my> > > >class> > > >was walking home from school. His name was . It looked like he> > > >was> > > >carrying all of his books. I thought to myself, "Why would anyone> > > >bring home> > > >all his books on a Friday? He must really be a nerd." I had quite a> > > >weekend> > > >planned (parties and a football game with my friends tomorrow> > > >afternoon), so> > > >I shrugged my shoulders and went on. As I was walking, I saw a bunch> > > >of kids> > > >running toward him. They ran at him, knocking all his books out of> > > >his arms> > > >and tripping him so he landed in the dirt. His glasses went flying,> > > >and I> > > >saw> > > >them land in the grass about ten feet from him. He looked up and I> > > >saw this> > > >terrible sadness in his eyes. My heart went out to him. So, I jogged> > > >over to> > > >him and as he crawled around looking for his glasses, and I saw a> > > >tear in> > > >his> > > >eye. As I handed him his glasses, I said, "Those guys are jerks. They> > > >really> > > >should get lives."> > > >> > > >He looked at me and said, "Hey thanks!" There was a big smile on his> > > >face. It was one of those smiles that showed real> > > >gratitude.> > > >> > > >I helped him pick up his books, and asked him where he lived. As it> > > >turned out, he lived near me, so I asked him why I had> > > >never seen him before. He said he had gone to private school before> > > >now.> > > >I would have never hung out with a private school kid before. We> > > >talked all> > > >the way home, and I carried some of his books. He turned out to be a> > > >pretty> > > >cool kid. I asked him if he wanted to play a little football with my> > > >friends.> > > >He said yes. We hung out all weekend and the more I got to know ,> > > >the> > > >more I> > > >liked him, and my friends thought the same of him.> > > >> > > >Monday morning came, and there was with the huge stack of books> > > >again. I stopped him and said, "Boy, you are gonna really build some> > > >serious> > > >muscles with this pile of books everyday!"> > > >> > > >He just laughed and handed me half the books.> > > >> > > >Over the next four years, and I became best friends. When we> > > >were> > > >seniors, we began to think about college. > > > >decided on town, and I was going to Duke. I knew that we would> > > >always be friends, that the miles would never be a problem. He was> > > >going to> > > >be a doctor, and I was going for business on a football scholarship.> > > >> > > > was valedictorian of our class. I teased him all the time about> > > >being a nerd. He had to prepare a speech for graduation. I was so> > > >glad it> > > >wasn't me having to get up there and speak. Graduation day, I saw> > > >. He> > > >looked great. He was one of those guys that really found himself> > > >during high> > > >school. He filled out and actually looked good in glasses. He had> > > >more dates> > > >than I had and all the girls loved him. Boy, sometimes I was jealous.> > > >> > > >Today was one of those days. I could see that he was nervous about> > > >his> > > >speech. So, I smacked him on the back and said, "Hey, big guy, you'll> > > >be> > > >great!"> > > >> > > >He looked at me with one of those looks (the really grateful one) and> > > >smiled. "Thanks," he said.> > > >> > > >As he started his speech, he cleared his throat, and began.> > > >"Graduation> > > >is a time to thank those who helped you make it through those tough> > > >years.> > > >Your parents, your teachers, your siblings, maybe a coach...but> > > >mostly your> > > >friends. I am here to tell all of you that being a friend to someone> > > >is the> > > >best gift you can give them. I am going to tell you a story."> > > >> > > >I just looked at my friend with disbelief as he told the story of the> > > >first day we met. He had planned to kill himself over the weekend. He> > > >talked> > > >of how he had cleaned out his locker so his Mom wouldn't have to do> > > >it later> > > >and was carrying his stuff home. He looked hard at me and gave me a> > > >little> > > >smile. "Thankfully, I was saved. My friend saved me from doing the> > > >unspeakable."> > > >> > > >I heard the gasp go through the crowd as this handsome, popular boy> > > >told> > > >us all about his weakest moment. I saw his Mom and dad looking at me> > > >and> > > >smiling that same grateful smile. Not until that moment did I realize> > > >it's> > > >depth.> > > >> > > >Never underestimate the power of your actions. With one small gesture> > > >you> > > >can change a person's life. For better or for worse. God puts us all> > > >in each> > > >other's lives to impact one another in some way. Look for God in> > > >others.> > > >> > > >You now have two choices, you can:> > > >> > > >1) Pass this on to your friends or> > > >2) Delete it and act like it didn't touch your heart.> > > >> > > >As you can see, I took choice number 1. "Friends are angels who lift> > > >us> > > >to our feet when our wings have trouble remembering how to fly."> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >> > > >Eleanor Roosevelt wrote:> > > >> > > >Many people will walk in and out of your life,> > > >But only true friends will leave footprints in your heart.> > > >To handle yourself, use your head;> > > >To handle others, use your heart.> > > >Anger is only one letter short of danger.> > > >If someone betrays you once, it is his fault;> > > >If he betrays you twice, it is your fault> > > >Great minds discuss ideas;> > > >Average minds discuss events;> > > >Small minds discuss people.> > > >He who loses money, loses much;> > > >He, who loses a friend, loses much more;> > > >He, who loses faith, loses all.> > > >Beautiful young people are accidents of nature,> > > >But beautiful old people are works of art.> > > >Learn from the mistakes of others.> > > >You can't live long enough to make them all yourself.> > > >Friends, you and me....You brought another friend....> > > >And then there were 3. We started our group....> > > >Our circle of friends....And like that circle....> > > >There is no beginning or end..Yesterday is history.> > > >Tomorrow is mystery. Today is a gift.> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >Send> > > >this to everyone you consider a FRIEND. If it comes back to you, then> > > >you'll> > > >know you have a circle of friends.> > > >> > > >WHEN YOU RECEIVE THIS LETTER, YOU'RE REQUESTED TO SEND IT TO AT LEAST> > > >10> > > >PEOPLE, INCLUDING THE PERSON WHO SENT IT TO YOU.> > > >> > >> > > _________________________________________________________________<br clear=all><hr>Get your FREE download of MSN Explorer at <a href="http://explorer.msn.com">http://explorer.msn.com</a><br></p>Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroupsManage your subscription with several special email addresses:chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest

[Guest guest]

Hi ,

I too am looking for a chat room. After my computer crashed I lost all of my "favorites" and so, all my chat rooms. They were all chronic pain chats. I love this group and have been with this list for a few years. but I don't post often. Some times I need to "talk"

to someone instead of waiting for a return post. Let me know if you find any O.K.?

Krag52

Kathleen in California

[Guest guest]

Arthritis About.com Chat ChatSpace - FIBROHUGS Monitored Chat - Our Entire Site Listing http://fibrohugs.com/site_map.html check these out Krag, after months of going into them and chatting to myself, I found these two.

cheers, Sara

[Guest guest]

Jayn

Welcome to the LBD group. Thank you for sharing details about your

family and your sister. Is she taking any medications? Sounds like she

is still able to do a lot for herself. Keep in mind that with LBD there

can be so many fluctuations that often it seems that nothing is wrong or

possible that you have imagine something. Keep posting, ask questions,

or just vent!!

Nice you are here, and you are added to my ever so growing prayer list.

Sandie

Des Moines, IA - my dad passed away at the age of 65 Sept. 20, 2002

[Guest guest]

Sounds like he's getting into the beer whilst your mum

is working during the day, and cannot sneak any on weekends

while she's home.

Sbogue9@... wrote:

> I have a question, totally unrelated to anything else tonight.

>

> My dad has had to be taken to the toilet now for the last 2 years. During

> the week, he has to be taken a couple of times a day(because he asks to go),

> sometimes mum has to come home from work to take him(Thank God she works not

> too far away). I think I've said this before, but I'm only next door, but it

> is the one thing I cannot, couldn't and will not do is take him to the

> toilet,( I just can't handle it).

>

> But my question is, dad goes to bed at night at about 10.00pm. He is taken

> to the toilet every night before he goed to bed. Most times mum does not go

> to bed until about 12 midnight, she checks on him before she goes, takes him

> to the toilet again

> if needs be, goes to bed and sleeps for a couple of hours.

>

> She usually wakes up again about 2 or 3, checks on him again. Sometimes,

> he's asleep, but 9 times out of 10 dad has peed on the floor. So she gets

> up, puts newspapers down (I'm sure a lot of you know the story), goes back to

> bed and leaves things to the morning. Come morning, dad's probably done the

> same again.

>

> But, even though dad doesn't know what day of the week it is, come the week

> end, he can go from 9 am in the morning until about 6 pm in the evening

> without even asking for the toilet(on Saturday) , come Sunday it's the same.

>

> Has anyone else experienced this problem?

>

> Siobhan.

>

> P.S I do know there probably is no answer to this problem as far as dad is

> concerned, but how do I try and convince mum of this. Don't get me wrong,

> she is not in denial, she just has soooo many other things to deal with, she

> just gets " het up " as to how to deal with everything. I've told her time and

> again, she worries about things she cannot help, she takes on too many

> things, but her idea of " coping " is to try and carry on as normal!

>

> Sorry for raving for so long

>

> Siobhan

>

> P P S. If it helps anybody, I gave up smoking on Wednesday, and it is

> killing me!!!!!

>

>

>

[Guest guest]

Wonderful seeing you in here. Any more thoughts on the boat? We are

frozen with snow here in Iowa...even below 0 temps...brrrrr.

Take care, and you are in my prayers.

Sandie

[Guest guest]

Just got a roomie to help with the rent

and slip fee, signing up for a deisel maintanance

class at the local community college

so I can do repairs at sea, if needed...

Still working up my nerve for the next step, purchase.

The one good thing about (used) boats is they

all get cheaper every day. :_)

My father (the (formerly) primary care giver) is living

with me at the moment. Trying to talk him

into staying here in San Diego for the winter, he's

resisting. Work is slow for me at this time, so we are having

fun, savoring freedom, old times and drinking red wine

to keep the blood pressure down. Survivors

syndrom is real. Best to be around as many

people as possible and stay involved with

what ever pleased you before this happened

to us all.

V/R Pat

PS: Here's a story my Father's grandson did for him as a

school project at the U of A:

http://www.library.arizona.edu/images/eng102/boneyard/colonel_saunders.html

and

http://dizzy.library.arizona.edu/images/eng102/boneyard/last_flight.html

sanclown@... wrote:

>

> Wonderful seeing you in here. Any more thoughts on the boat? We are

> frozen with snow here in Iowa...even below 0 temps...brrrrr.

> Take care, and you are in my prayers.

> Sandie

>

>

>

[Guest guest]

Siobhin,

Maybe Mom should consider " Depends " with his shorts over them. That

might take care of the night time?

Donna

[Guest guest]

Sounds like life is treating you well, and you have priorities set.

What wonderful memories you are building with your dad. As you have

figured out, life is too short not to cherish and savor the moment. I

am proud of you. Thank you for sharing the story of your dad...what an

accomplished man. You must feel honored.

Stick with the classes, stay strong and focused, and your dream will

come true. As for Iowa, the snow is blowing...sparkling in the

sunshine. One of the many reasons I love Iowa.

Please keep in touch. You remain in my prayers!! :-))

Take Care!

Sandie

Des Moines, IA

[Guest guest]

It seems she wants to be happy again

and there is the only place she can be happy!!!!!!!!!!!!!!!! The only

thing about that is she wanted to move to an apartment she had lived

in before when she was there.

Jayn ... I struggle with the same thing your sister does. I want to

go back to my house in Hartville Ohio where I was happy. I moved from

there 15 years ago .. and my children were all young and we swam every

day in the summer, grew things in the garden and canned and froze our

bounty. We bicycled and played games at the table. I wasn't 40

yet. Well, perhaps that's not exactly the way it happened but that's

what I remember. But I DO want to go back there.

When I read your e-mail I was reminded of another thing my dad used to

say with frequency. " How did I get here? Last year I was cutting

down a tree in the back yard. " (Here wasn't necessarily my house, or

Illinois where he now lived ... just " in this state " ) He didn't say

more than that .. he didn't HAVE to. There is no way he could lift a

saw let alone haul logs like he had done a mere summer ago.

For my granddaughter's birthday (her second) I made her some " ruby "

slippers. I kept wanting to put them on an click them together three

times and say, " there's no place like home ... there's no place like

home " ... but I was afraid I would have a nervous breakdown if I

opened my eyes and everything was still the same. So I just kept

hugging people. And looking at them. And really SEEING them. And

trying so hard to stay in the moment. Because it was all that I had.

I also know that when I get past this hard part ... I will have the

good memories and I will know that however imperfect it was, I did

everything I could to let my dad know that I loved him. But I

couldn't take him back to that happy place that was his home.

Kathie/Chicago

> I truly know we will all be better people from having walked the LBD

road of caregivers, but is sure can wear one down. God loves us all

[Amen!]

>

> Jayn in South Ga where the tempture has been 70 today.

>

>

>

[Guest guest]

Jayn

I am so glad you opened your question to the group. There are so many

types of people here, different ages, genders, walks of life...yet we

all are here for one common reason. We care about what happens to our

loved ones, and we are caregivers.

Personally, I would have to agree with your family members and the

neurologist. I do remember you saying the neuro has little (or no)

knowledge of LBD. I would also say it is time to seek out someone who

might have some knowledge, and at that time, get a letter stating your

sisters diagnosis, in writing on the drs. letter head.

Stay strong, and do know the care for an LBD person seems like it is

more than 24/7. I think for safety reasons, your sister is better off

where she is now.

My prayers are with you.

Sandie-

in Iowa where we ended up with 3-4 inches of snow, and now the wind has

really picked up, expecting a lot of drifting.

[Guest guest]

I have considered selling her house and building a room on our house

and hire someone to help with her here, just don't know if I am up to

doing that 24-7. Or today a mobil home would do fine in our yard. The

feed back I am getting from family members and her neurologist is not

to even consider moving her again. I would like to have some input

from anyone who may have had the same or simular problem.

Jayne,

INCOMING...INCOMING...MY INPUT IS NOOOOO. How's that for yelling from

the roof tops. I had great remodeling plans when we decided my Dad

(84) would live with us after he was given 30 days notice (for

wandering off) at the assisted living facility. They said he needed a

locked facility so we brought him home. Every single plan I had

would have been wrong. It's been six months and what I thought would

have worked would have been a waste of money. The separation of space

is not what's important. Turns out what is the most important thing

is to have releif when you need it and from what I've heard about

hiring help, it's no picnic. And the problem with help is that you

have different people you have to train continually. Even the

turnover at NHs is hard on LBD LOs, so unless you can get someone who

you know will be around, I wouldn't try it.

We happen to have the ideal situation for at home care but it

consists of not having to work, no children at home, great family

support, my brother comes at a moments notice for days at a time, a

very supportive husband, and my Dad is responding to medication

wonderfully. Nothing could be better. (Boy that sure sounds

different from my first post to this group.)

The other problem is you could go to all this expense and two weeks

later you might have to move her to a NH. LBD is too unpredictable

for long term plans. You do the best you can with each day knowing

tomorrow may bring a whole new program.

Well if my doom and gloom comments don't dissuade you, and you feel

there is no other right answer for you or your sister...mmm...let me

know and I'll try again. Just kidding...if you feel it's the right

thing to do and you get support from the family...go for it.

Stay well,

Jan

in sunny 67 degree Sacramento, CA

[Guest guest]

Jayn,

My husband and I offered to have my parents sell their house and build a

smaller house on our property, we have 1/2 acre here and they said no. They

just didn't quite get it that we were not trying to steal their home away.

If they did then Medi-Cal would have paid for 4 hours help a day. They would

have been next to us. If only they would have done it while mom wasn't so

bad. Anyway if you have money or resourses to build on a room and can afford

help and if you have siblings and other family members that wouldnt mind

being short on their inhearitance then I would say go for it. Although

having them IN you own home can also be hard. My mom is totally incontinent

and not to sound crude but the smell lingers a long time no matter how clean

you are. I do daycare inside my home so that made it twice as difficult.

Good luck, Shirley

>From: jja52538@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: (no subject)

>Date: Mon, 10 Feb 2003 11:06:41 EST

>

>Well it seems I have read at least 200 posts and now am afraid more than

>ever!!!!!!!!!!!!!!

>I had just about convinced myself my sister was better where she was and

>later a NH but now I am really unsure which way to go.

>She is now ok to live alone but with someone coming in and giving her meds,

>bringing her food etc. I know from your post that will end one day and she

>will have need for lots more care. So I am saying ok where do I go from

>here????

>Her finances are such we could sell her house and build a room and bath on

>to

>ours and have help come in, that is what my heart says is the right thing.

>That way I know she will be taken care of and I will have more control over

>what meds she gets and etc.

>On the other hand I have read post that make me wonder if that is the right

>thing to do.

>I have a horror of NH anyway and to read what some of you have gone thru

>just

>makes me believe that the NH is not the answer.

>I am open for any suggestions, your past or present situtation with NH. I

>just can't see that is the answer to the problem here.

>She is ok for a time where she is and I know I will have to make a decision

>sooner or later just praying it will be the right one.

>Thanks for allowing all the stuff that is ahead of me to now become part of

>your day!!!

>It breaks my heart to read all the post that seemly have no answers. Right

>today I do have a choice.

>Just keep praying for me and others and I will do the same;

>

>Your sister in Christ

>Jayn in S GA where the sun is shinning and the temp is about 60???

>

>

>

[Guest guest]

Jayn,

I had my Mom live with me for 3 years. If the MD at the hospital hadn't

messed her up, she would have probably been with me for the rest of her

life. And if I had had help, it really wasn't to bad. It certainly

wasn't as bad as a nh that didn't take care of her. And she went to a

day care program by herself on our Senior bus. She did go to my

daughter's house at night if I had to work. And if it had been bad at

the end, Hospice would have helped here at home. It was only after the

Hospital MD put her on an overload of drugs and she was wheel chair

bound that I was forced to put her in a nh. I have a very small house

and shower is down a flight of stairs.

Just another perspective.

Donna

[Guest guest]

Jo

There is a caringspouse group like that of the caregivers group. I have

been told, and it makes sense that there are different feelings and

emotions involved with caring for a spouse as opposed to caring for a

mother or father. Many of the caringspouse members were members here,

and they have amazing insight, strength, knowledge and support.

Best of luck and stay strong.

Sandie

Des Moines, IA

[Guest guest]

Deborah

Did you say your mom has a neurologist she is seeing? Even a

geriatrician, or a neuropsychologist. Anyone specializing in dementia

and that knows there are many types of dementia would be helpful. Keep

us posted!

Sandie

Des Moines, IA

[Guest guest]

In a message dated 3/22/2003 3:53:28 PM Pacific Standard Time,

Sbogue9@... writes:

> Siobhan

Hi Siobhan -- will you please write out your name for me -- the way it's

supposed to sound when spoken correctly. My imagination has pronounced it

all sorts of ways -- even using an Irish brogue -- but I don't think any of

them are correct!

Joni

[Guest guest]

Joni

The closest I can get (and I consulted with my hubby) is Shivon!!

I haven't replied to you personally before but I have read a lot of your

posts and there is many a day that you put a smile on my face!

Hugs and good wishes from Ireland

Siobhan(Shivon!!!!)

[Guest guest]

From: jja52538@...

When it is something that we all can benefit from then send to the group, if

a personel reply then send it to the individual. I am always afraid if I

don't read each one I may miss something that I would

need to know.

I have actually felt the same way many times, then I go and do it myself and

feel guilty. I think your right, OUCH! sorry.

Probably not a bad idea especially if a new person comes in they may be

confused by the personal things and not want to join. But then again if it

is regarding LBD then we should go ahead and post because we all may need to

know these things at one time. Just maybe keep the personal stuff to

ourselves, LMSHO, OUCH! Shirley

_________________________________________________________________

[Guest guest]

In a message dated 3/28/2003 9:53:20 PM Pacific Standard Time,

shirley0914@... writes:

> From: jja52538@...

> When it is something that we all can benefit from then send to the group,

> if

> a personel reply then send it to the individual. I am always afraid if I

> don't read each one I may miss something that I would

> need to know.

>

;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;

I don't know about anyone else in this group but I feel a certain amount of

" personal " responses should be allowed. If this site was totally " clinical " I

would have bailed a long time ago. As it is I get to laugh once in a while --

I may not know what's going on but the banter back and forth a couple of

times does my heart good.

I have learned more in five months than I could ever have learned in a

lifetime on my own. For that I will be forever grateful.

If it is decided that there will be no personal messages, no jokes, nothing

but LBD day in and day out then please tell me now. I live with LBD day in

and day out -- I look forward to visiting this site just to get my head back

on straight.

Shirley, you've got nothing to apologize for. For as much hurt as you have

been through it's amazing to me that you still find it within yourself to

reach out to those of us with hearts that cry out and die a little every day.

Joni

[Guest guest]

In a message dated 3/29/2003 7:41:25 AM Pacific Standard Time, jancea@...

writes:

> Do some of you

> actually have these come to your mail box as e-mail?

YO! Jan -- I thought that's where everyone got these messages. Is there

another way?

Joni

[Guest guest]

Jayn,

So glad to hear from you! Your post brought up some feelings that I

must address. When I first joined this group about a month ago, I had no

idea what to expect. To be honest, for a while I felt like such an outsider,

isolated in my little corner of the US. My brother is eight years older than

I, so you might say I was an only child. Mom was a worker, not much of a

socialite, and even less of a conversationist. We moved often when I was

young. She was married 3 times.

Nothing was ever constant and I learned to be very flexible and resilient.

What I did not learn was how to bond with other women.

First coming to this group, I felt uncomfortable when there was joking

and quick messages back and forth with no reference to LBD. I was having a

hard time placing people with names and mostly felt " left out " of the

conversation. Now I am starting to connect the stories and names. This is

beginning to feel like a family, something I belong to. With that family

comes ups and downs, silliness and sadness.

There are many LBDCaregivers in the Southeast, one my favorite places,

the home of my Native American Heritage, the Choctaw, Creek, and Cherokee.

The thing I like best about this group is that I have family all over the

world, and I plan to visit some of them. You are part of this family and as

in all families, your comfort is important to me. I am overwhelmed much of

the time now that I am working. So many in my life do not have a clue what I

deal with a home with my mom. I look forward to coming home and connecting

with those who know exactly the battle I am facing, and that gives me

comfort. I feel their love and prayers and hugs. I feel blessed to have

been guided here.

I am just getting the hang of what is personal vs group info. Please

bear with me as I have never been on one of these site before and I was never

really up on etiquette. But I'm working on it. Please let us know how

things are going for you, good or bad. What we can't do alone, we can do

together.

Holding you in my heart today,

Betty

[Guest guest]

Hmmm, what did I miss here. Joni, as far as I know nothing is

changing so DON'T YOU GO ANYWHERE!

I guess we all use different methods to read messages. Do some of you

actually have these come to your mail box as e-mail? That must be

awfully overwhelming. I just hit the " Messages " link on the left side

than hit " Expand Messages " and start scrolling. It's so fast that

way, except of course on some when the " word wrap " doesn't work. Then

the sentences are about two feet off my screen so I have to go

sideways.

And as far as answering someone's " personal " message...there are no

private personal messages here. We may direct a message to one

individual but they are for everyone because if one person is asking

a question or having a problem...there are probably 10 more out there

with the same concerns. I figure if it's a really private message

the sender can e-mail the member directly.

And Sally, what you are experiencing about selling your Dad's house

IS LBD stuff. We greive both during and after their battle with LBD

and your contribution to this group is so invaluable for those going

through the end stages that I certainly hope you feel free to get

support for the stage you are going through.

Ka-thud. That's the sound of me jumping off my soap box.

Hugs

Jan

Sacramento CA

> In a message dated 3/28/2003 9:53:20 PM Pacific Standard Time,

> shirley0914@h... writes:

>

> > From: jja52538@a...

> > When it is something that we all can benefit from then send to

the group,

> > if

> > a personel reply then send it to the individual. I am always

afraid if I

> > don't read each one I may miss something that I would

> > need to know.

> >

> ;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;;

;;;;;;;;;;

>

>

> I don't know about anyone else in this group but I feel a certain

amount of

> " personal " responses should be allowed. If this site was

totally " clinical " I

> would have bailed a long time ago. As it is I get to laugh once in

a while --

> I may not know what's going on but the banter back and forth a

couple of

> times does my heart good.

> I have learned more in five months than I could ever have learned

in a

> lifetime on my own. For that I will be forever grateful.

> If it is decided that there will be no personal messages, no jokes,

nothing

> but LBD day in and day out then please tell me now. I live with LBD

day in

> and day out -- I look forward to visiting this site just to get my

head back

> on straight.

> Shirley, you've got nothing to apologize for. For as much hurt as

you have

> been through it's amazing to me that you still find it within

yourself to

> reach out to those of us with hearts that cry out and die a little

every day.

>

> Joni

>

>

>