Re: New to the group! 10 year old son with severe autism

[Guest guest]

Zurama,

My son is 8 and he was crying and pounding

his foot into the floor so hard I thought he would break his foot. He would

also let out a bloodcurdling scream that would stop my heart. I tried to figure

out what it was. I took him to the dentist for the first time to check for cavities

that was negative. Yeast came to mind, and I begged my DAN for Diflucan. After

2 two week rounds of 80mg/day, the screaming and foot pounding stopped. He also

slept thru the night. After being off of Diflucan for two months, the waking

after 5-6 hours came back, not the screaming, at that point. I begged again for

Diflucan, and after one two week course, he was sleeping better. Please, please

get your reg doc to get your child some Diflucan. I have now switched DAN

doctors, and have more Diflucan on board, 100 mg/day, in conjunction with

Valtrex. After doing so much Diflucan since this summer, I was shocked to see

how much yeast is having an effect on my son with the Valtrex. At least that is

what I think is happening. He is in a lot of pain. I can hear his stomach

churning and rumbling all the time. My son’s HHV-6 was 320, otherwise I

don’t know if I could go through this. But, maybe this has been his

problem all along. I have tried everything you listed, too. Your son is in real

pain. Probably a sharp, sudden pain and he can’t tell you. Does he giggle

a lot? My son would giggle for hours when he would wake at night.

Get some info about Diflucan. Here in Wisconsin, we have a

Medicaid system for disabled children. The Diflucan and Valtrex are free after

it makes up my insurance difference. Otherwise Diflucan is $10 for two weeks,

and Valtrex is $180/month for 1000mg/day. I know everyone has different insurance,

but I thought I would give you an idea. I never used my Medicaid card for

anything until last month when we started Valtrex. Also, I think the diet is working

better with the Diflucan. Hopefully, someone else in CA can give you more info

on their system. Use it!

Becky

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Christel King

Sent: Friday, November 16, 2007

6:27 PM

To: mb12 valtrex

Subject: Re: Re: New

to the group! 10 year old son with severe autism

nope find a new dr. can anyone out

there recommend one to her? our DAN is in KS< but there is a flying

program you could go see him for like 30 dollars to get there and then he does

cash discounts and payment plans with no interest, we had out of state insurance

as well and that was how we did it. he was great to work with. we

paid like 10-50 dollars a month

Re:

New to the group! 10 year old son with severe autism

He has medi-cal, but I can't get our current doctor to

do anything for

him.

How do I start convincing him? Should I get Him a Book maybe.......

>

>

>

>

> > That's where the problem is. I can't afford the

> > Doctor and the

> > supplements so I Just try to do everything

> > myself and opted for the

> > supplements. At 400.00 an hour or two is just

> > not reachable for me.

>

>

> I understand the financial issue. I've no opted

> for alot of the tests, so I can afford

> supplements/special foods.

>

> Having said that, does your child receive SSI?

> Even if you make too much money to get money from

> SSI, qualifying should give your child a Medicaid

> card.

>

> There are also waiver programs that will give

> your child a medical card, if they meet the

> requirements, regardless of what you make.

>

> Last, you can always look for a local doctor and

> try to educate him or her.

>

> Kim

>

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

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9:52 AM

[Guest guest]

Dear Zurama,

First, please know as a mother, I feel your pain and can relate to

that feeling of " hell on earth " and the never-ending desire to help

your child. I will try to make this brief- because you must be

overloaded with information. Since your son is in obvious digestive

distress, as are most kids on the spectrum, and you are not working

with a DAN doctor, here is what you should do now which does not

require a DAN doctor to begin.

NUMBER ONE: Never give up- autism IS treatable

NUMBER TWO: Buy the book " Breaking the Vicious Cycle " by Elaine

Gottschall. It details the Specific Carbohydrate Diet (SCD)

I have just started this diet with my son after having him on the

gluten-free/casein-free diet for 3 1/2 yrs and working with a DAN

doctor for one year. I wish I started this diet 3 years ago.

By the way- I looked at your website and loved your paintings. I

noticed one of young green coconuts. You can make a wonderful

probiotic drink for your son from young green coconuts. Go to

www.bodyecologydiet.com for more details on that. I still think the

SCD diet would greatly benefit your son. The Body Ecology Diet might

be a good second choice diet to try. In the meantime, you can make

the probiotic coconut juice to complement the SCD diet.

-

[Guest guest]

What your describing sounds just like Mickie especially the screaming

in pain, with a really high pitch cry, that breads my heart, and yeah

he does make noises with his voice when he wakes up in the middle of

the night that's of course if he is not screaming.

As far as pounding he will pound his head sometimes, but he seems to

do it when is frustrated.

I don't have a lot of faith in his doctor. He is on vacation now and I

have an appointment next week, but with a P.A. I will try then to ask

for this medications. I really need a doctor who actually gives a crap

So your son's pain is gone then? Poor little guy. Is he none verbal

like Mickie?

What about Oral Nizoral? is Diflucan from the same family?

Zurama

> >

> >

> >

> >

> > > That's where the problem is. I can't afford the

> > > Doctor and the

> > > supplements so I Just try to do everything

> > > myself and opted for the

> > > supplements. At 400.00 an hour or two is just

> > > not reachable for me.

> >

> >

> > I understand the financial issue. I've no opted

> > for alot of the tests, so I can afford

> > supplements/special foods.

> >

> > Having said that, does your child receive SSI?

> > Even if you make too much money to get money from

> > SSI, qualifying should give your child a Medicaid

> > card.

> >

> > There are also waiver programs that will give

> > your child a medical card, if they meet the

> > requirements, regardless of what you make.

> >

> > Last, you can always look for a local doctor and

> > try to educate him or her.

> >

> > Kim

> >

> >

> >

> __________________________________________________________

> > Never miss a thing. Make Yahoo your home page.

> > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs

> >

>

>

> _____

>

> size=2 width= " 100% " align=center>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date:

11/16/2007

> 9:52 AM

>

[Guest guest]

I'm a little overloaded by I don't mind at all, keep it coming!

The book you are suggesting is just about the only book I haven't

ordered. I have about 6 books coming in the mail. Some from ebay and

some from amazon.com. I was able to find all of them at a used price,

so I'm really happy about that.

It's not for everybody, but for the GFCF diet was a the best thing I

ever did for him. It's been four years now.

I am taking your advice literally. I have never been able to think of

autism as anything, but treatable! I don't think I could face another

day If I didn't believe that.

Thank for the complement.....Paining has kept me from loosing it all

these years.

I had never heard of this coconut juice.

Zurama

>

> Dear Zurama,

>

> First, please know as a mother, I feel your pain and can relate to

> that feeling of " hell on earth " and the never-ending desire to help

> your child. I will try to make this brief- because you must be

> overloaded with information. Since your son is in obvious digestive

> distress, as are most kids on the spectrum, and you are not working

> with a DAN doctor, here is what you should do now which does not

> require a DAN doctor to begin.

>

> NUMBER ONE: Never give up- autism IS treatable

>

> NUMBER TWO: Buy the book " Breaking the Vicious Cycle " by Elaine

> Gottschall. It details the Specific Carbohydrate Diet (SCD)

>

> I have just started this diet with my son after having him on the

> gluten-free/casein-free diet for 3 1/2 yrs and working with a DAN

> doctor for one year. I wish I started this diet 3 years ago.

>

> By the way- I looked at your website and loved your paintings. I

> noticed one of young green coconuts. You can make a wonderful

> probiotic drink for your son from young green coconuts. Go to

> www.bodyecologydiet.com for more details on that. I still think the

> SCD diet would greatly benefit your son. The Body Ecology Diet might

> be a good second choice diet to try. In the meantime, you can make

> the probiotic coconut juice to complement the SCD diet.

>

> -

>

[Guest guest]

He is acctually not a pediatrician, but I went to him, because I heard

that 25% of his patients were autistic adults. He has been a complete

disappointment. I think I would be wasting my time. Now days I only go

to him when I need to get a paper signed or something.

I just started him on Threelac, but I'm not sure on the dosage. it

just says to give him one package a day. Any ideas on that?

Zurama

> Also, there are viral issues you might be able to address with OLE

and an

> antifungal rotation. Good luck,

>

>

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ] On

> Behalf Of Zurama

> Sent: Friday, November 16, 2007 6:24 PM

> To: mb12 valtrex

> Subject: Re: New to the group! 10 year old son with severe

> autism

>

>

>

> He has medi-cal, but I can't get our current doctor to do anything for

> him.

> How do I start convincing him? Should I get Him a Book maybe.......

>

>

> >

> >

> >

> >

> > > That's where the problem is. I can't afford the

> > > Doctor and the

> > > supplements so I Just try to do everything

> > > myself and opted for the

> > > supplements. At 400.00 an hour or two is just

> > > not reachable for me.

> >

> >

> > I understand the financial issue. I've no opted

> > for alot of the tests, so I can afford

> > supplements/special foods.

> >

> > Having said that, does your child receive SSI?

> > Even if you make too much money to get money from

> > SSI, qualifying should give your child a Medicaid

> > card.

> >

> > There are also waiver programs that will give

> > your child a medical card, if they meet the

> > requirements, regardless of what you make.

> >

> > Last, you can always look for a local doctor and

> > try to educate him or her.

> >

> > Kim

> >

> >

> >

> __________________________________________________________

> > Never miss a thing. Make Yahoo your home page.

> > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs

> >

>

[Guest guest]

> My son is 8 and he was crying and pounding his

> foot into the floor so hard I

> thought he would break his foot. He would also

> let out a bloodcurdling

> scream that would stop my heart. I tried to

> figure out what it was. I took

> him to the dentist for the first time to check

> for cavities that was

> negative. Yeast came to mind, and I begged my

> DAN for Diflucan. After 2 two

> week rounds of 80mg/day, the screaming and foot

> pounding stopped. He also

> slept thru the night.

I was just thinking how horrible this disorder

must be for our children. Even those with HFA

aren't great communicators. Imagine how

frustrating it must be to be in constant pain and

not have the ability to tell someone.

We had night waking for several hours, as well as

chronic constipation. This all resolved itself

with the change to GFCF. With each supplement

thereafter, he continued to improve.

Glutathione and the MB12 nasal spray has done

wonders in helping him process language and

communicate.

Kim

________________________________________________________________________________\

____

Get easy, one-click access to your favorites.

Make Yahoo! your homepage.

http://www.yahoo.com/r/hs

[Guest guest]

I just re-read this post...the key phrase for me is still ...sithout

a prescription. PLEASE read Stan's paper on the TACA site...we just

got our RXs for Matt's antifungals, virals, and his antibiotic for a

comprehensive attack on his autism injuries...total bill just over

$100 as insurance covers the RXs. This in addition to some

nutritional support and the SCD minus casein is our plan...if you

have not considered interventions with RX meds, perhaps now it is

time that you did...at least have an open mind and read Stan's

theories. Di

> > Hello everyone:

> >

> > I am knew to this group. I think fate sent me here.

> >

> > I was searching for autism videos on youtube and I ran into one

about

> > a little boy name Ethan and his recovery and I was just amazed.

I

> > remember thinking, how I wished I could find out more about how

this

> > little got better and how much I wished that transformation

could

> > happen to my Mickie. That night as I'm looking through the

Generation

> > Rescue website I see Ethan again and I found the information

about his

> > dad Stan Kurtz and the rest is history.

> >

> > I am mom to 5 kids, the youngest of who was diagnosed with

severe

> > autism at 22 months. This was 8 years ago and there was not as

much

> > information as there is today and if there was I didn't find it.

> >

> > Mickie is 10 now and still none-verbal, and in dippers. Can't

> > chew-food has to be blended, has dark circles under his eyes,

he is

> > lead, cadmium and Aluminum toxic. Needles to say his quality of

life

> > is poor.

> >

> > If his not crying of melting down he is stimming till his face

is raw

> > and that is on a good day. I don't have the heart to tell him

to stop,

> > since that is the happiest he ever looks.

> >

> > I have done a lot of Biomedical interventions-pretty much

everything I

> > can do without a prescription I've done.

> >

> > Improve diet

> > Food allergies

> > GFCG Diet-this stopped the chronic diahrrea

> > Vitamin/mineral supplementation

> > Essential Fatty Acids

> > Pribiotics- from local health food store, but I just ordered

Threelac

> > and Culturelle from kirkmans.

> > Digestive enzymes for the last five years- from local health

food

> > store-without it gets diahrrea.

> > Amino Acids

> > Melatonin-still wakes up in the middle of the night. Sleeps

sitting up.

> > Chelation-when he was five for 4 months and in the last five

years

> > for a fews weeds at the time every few months-I always ended up

> > stopping, because of his Gut problems. I know now I should have

kept

> > going and just worked through the problems.

> > HBOT-Had one treatment and I noticed no stiming of any kind for

the

> > whole rest of the day. Not willing to do 40 treatments in a row-

don't

> > have the money and 15% do get worse-I don't want to find out if

he'll

> > fall in that 15%. I rather take it slow.

> >

> > I hope to learn from this group how to keep helping my little

boy get

> > better and better every day.

> >

> > Sincerely,

> >

> > Zurama

> > autismtookmickie@

> > www.zurama.com

> >

> >

> >

> >

> >

> > ---------------------------------

> > Get easy, one-click access to your favorites. Make Yahoo! your

> homepage.

> >

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date:

11/16/2007 9:52 AM

>

[Guest guest]

medical may cover a GI visit to determine acid reflux issues...do not

chelate a child with an injured gut and severe gut issues....it is a

good thing that you did nto pursue that at this time...that can

resume later, if necessary...but look at medical intervention through

a DAN first with RXs...

> > > Hello everyone:

> > >

> > > I am knew to this group. I think fate sent me here.

> > >

> > > I was searching for autism videos on youtube and I ran into

one

> about

> > > a little boy name Ethan and his recovery and I was just

amazed. I

> > > remember thinking, how I wished I could find out more about

how this

> > > little got better and how much I wished that transformation

could

> > > happen to my Mickie. That night as I'm looking through the

> Generation

> > > Rescue website I see Ethan again and I found the information

> about his

> > > dad Stan Kurtz and the rest is history.

> > >

> > > I am mom to 5 kids, the youngest of who was diagnosed with

severe

> > > autism at 22 months. This was 8 years ago and there was not

as much

> > > information as there is today and if there was I didn't find

it.

> > >

> > > Mickie is 10 now and still none-verbal, and in dippers. Can't

> > > chew-food has to be blended, has dark circles under his eyes,

he is

> > > lead, cadmium and Aluminum toxic. Needles to say his quality

of life

> > > is poor.

> > >

> > > If his not crying of melting down he is stimming till his face

> is raw

> > > and that is on a good day. I don't have the heart to tell him

to

> stop,

> > > since that is the happiest he ever looks.

> > >

> > > I have done a lot of Biomedical interventions-pretty much

> everything I

> > > can do without a prescription I've done.

> > >

> > > Improve diet

> > > Food allergies

> > > GFCG Diet-this stopped the chronic diahrrea

> > > Vitamin/mineral supplementation

> > > Essential Fatty Acids

> > > Pribiotics- from local health food store, but I just ordered

> Threelac

> > > and Culturelle from kirkmans.

> > > Digestive enzymes for the last five years- from local health

food

> > > store-without it gets diahrrea.

> > > Amino Acids

> > > Melatonin-still wakes up in the middle of the night. Sleeps

> sitting up.

> > > Chelation-when he was five for 4 months and in the last five

years

> > > for a fews weeds at the time every few months-I always ended

up

> > > stopping, because of his Gut problems. I know now I should

have kept

> > > going and just worked through the problems.

> > > HBOT-Had one treatment and I noticed no stiming of any kind

for the

> > > whole rest of the day. Not willing to do 40 treatments in a

> row-don't

> > > have the money and 15% do get worse-I don't want to find out

if

> he'll

> > > fall in that 15%. I rather take it slow.

> > >

> > > I hope to learn from this group how to keep helping my little

> boy get

> > > better and better every day.

> > >

> > > Sincerely,

> > >

> > > Zurama

> > > autismtookmickie@

> > > www.zurama.com

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Get easy, one-click access to your favorites. Make Yahoo! your

> > homepage.

> > >

> >

> >

> >

> >

> >

> >

> >

> --------------------------------------------------------------------

----------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release

Date:

> 11/16/2007 9:52 AM

> >

>

[Guest guest]

I do have an open mind and I'm very open to RXs. I have done pretty

much everything else I could without prescription and even though it

has helped, it just not enough. I know that. He has medi-cal so I need

just find a gastro doctor-perhaps the one that told me to keep hi away

from milk 4 years ago. Hopefully I can take him to a DAN doctor soon...

Zuraam

> > > Hello everyone:

> > >

> > > I am knew to this group. I think fate sent me here.

> > >

> > > I was searching for autism videos on youtube and I ran into one

> about

> > > a little boy name Ethan and his recovery and I was just amazed.

> I

> > > remember thinking, how I wished I could find out more about how

> this

> > > little got better and how much I wished that transformation

> could

> > > happen to my Mickie. That night as I'm looking through the

> Generation

> > > Rescue website I see Ethan again and I found the information

> about his

> > > dad Stan Kurtz and the rest is history.

> > >

> > > I am mom to 5 kids, the youngest of who was diagnosed with

> severe

> > > autism at 22 months. This was 8 years ago and there was not as

> much

> > > information as there is today and if there was I didn't find it.

> > >

> > > Mickie is 10 now and still none-verbal, and in dippers. Can't

> > > chew-food has to be blended, has dark circles under his eyes,

> he is

> > > lead, cadmium and Aluminum toxic. Needles to say his quality of

> life

> > > is poor.

> > >

> > > If his not crying of melting down he is stimming till his face

> is raw

> > > and that is on a good day. I don't have the heart to tell him

> to stop,

> > > since that is the happiest he ever looks.

> > >

> > > I have done a lot of Biomedical interventions-pretty much

> everything I

> > > can do without a prescription I've done.

> > >

> > > Improve diet

> > > Food allergies

> > > GFCG Diet-this stopped the chronic diahrrea

> > > Vitamin/mineral supplementation

> > > Essential Fatty Acids

> > > Pribiotics- from local health food store, but I just ordered

> Threelac

> > > and Culturelle from kirkmans.

> > > Digestive enzymes for the last five years- from local health

> food

> > > store-without it gets diahrrea.

> > > Amino Acids

> > > Melatonin-still wakes up in the middle of the night. Sleeps

> sitting up.

> > > Chelation-when he was five for 4 months and in the last five

> years

> > > for a fews weeds at the time every few months-I always ended up

> > > stopping, because of his Gut problems. I know now I should have

> kept

> > > going and just worked through the problems.

> > > HBOT-Had one treatment and I noticed no stiming of any kind for

> the

> > > whole rest of the day. Not willing to do 40 treatments in a row-

> don't

> > > have the money and 15% do get worse-I don't want to find out if

> he'll

> > > fall in that 15%. I rather take it slow.

> > >

> > > I hope to learn from this group how to keep helping my little

> boy get

> > > better and better every day.

> > >

> > > Sincerely,

> > >

> > > Zurama

> > > autismtookmickie@

> > > www.zurama.com

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Get easy, one-click access to your favorites. Make Yahoo! your

> > homepage.

> > >

> >

> >

> >

> >

> >

> >

> > --------------------------------------------------------------------

> ----------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date:

> 11/16/2007 9:52 AM

> >

>

[Guest guest]

Medicaid only pays for her Pt therapist, and some medications. They do not pay for anything they call experimental. The experiment is done it works pay for it now!!! That's my idea. Also don't say our children have autism they are toxin poisoned. No SSI. I just gave up everything. Sold all my worldly possessions even (no more junk to collect dust) We live in the minium house you could get. Our payments are a lot less than anything else.I Clean houses. Nobody will hire a nutty 55 year old woman that looks 90. My daughter told me that she use to invent worlds in her head and that she could hear my voice but could not answer me. She use to be real spacey for long periods of time. MRI and catscan should nothing both were normal. Also kids with a lot of fears of bugs, heights. She use to see things ten times bigger than we do. She comments all the time how small bugs are now.

She said they use to be huge. Her hearing was very sensitive and now its just fine. Stores use to bother her really bad. She'd go through the store screaming. She was afraid big trucks were going to run over us (I still am!!). There are not as close. She can see trees and houses and the ocean. She can see people and distinquish one from the other. She knows what has helped her and once to continue. She doesn't go off the diet at all. The journey is not over. Will it ever be? We hope so someday so that we can enjoy time together. Time to have fun. I'd better go these aren't getting any shorter. God bless you and be with you. (I also ask everyone I meet to pray for my child. Put her on their prayer list at their church) I pray for each child every night that not another one is injured. May God lead and guide you.

-------------- Original message --------------

> That's where the problem is. I can't afford the> Doctor and the> supplements so I Just try to do everything> myself and opted for the> supplements. At 400.00 an hour or two is just> not reachable for me. I understand the financial issue. I've no optedfor alot of the tests, so I can affordsupplements/special foods. Having said that, does your child receive SSI? Even if you make too much money to get money fromSSI, qualifying should give your child a Medicaidcard.There are also waiver programs that will giveyour child a medical card, if they meet therequirements, regardless of what you make.Last, you can always look for a local doctor andtry to educate him or her.Kim__________________________________________________________Never miss a thing. Make Yahoo your home page. http://w

ww.yahoo.com/r/hs

[Guest guest]

Thank you again for sharing, it’s

very important to hear what are children were thinking while they are in their

worlds. Or too toxic to focus. Have you thought about sharing this

story for ’s book? I really think your daughter could help a

lot of people just with her story. I am about to make an appointment with

an eye Dr. that specializes in Autism and there visual peripheral issues.

Hoping that my son will be able to see things more normally with prism

lenses. Again great stuff!! -

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of AngelinaKennedy@...

Sent: Saturday, November 17, 2007

5:39 AM

To: mb12 valtrex

Subject: Re: Re: New

to the group! 10 year old son with severe autism

Medicaid only pays for her Pt therapist, and some medications.

They do not pay for anything they call experimental. The experiment is

done it works pay for it now!!! That's my idea. Also don't say our

children have autism they are toxin poisoned. No SSI. I just gave

up everything. Sold all my worldly possessions even (no more junk to

collect dust) We live in the minium house you could get. Our

payments are a lot less than anything else.I Clean houses. Nobody

will hire a nutty 55 year old woman that looks 90. My daughter told me

that she use to invent worlds in her head and that she could hear my voice but

could not answer me. She use to be real spacey for long periods of

time. MRI and catscan should nothing both were normal. Also kids

with a lot of fears of bugs, heights. She use to see things ten times

bigger than we do. She comments all the time how small bugs are

now. She said they use to be huge. Her hearing was very sensitive

and now its just fine. Stores use to bother her really bad. She'd

go through the store screaming. She was afraid big trucks were going to

run over us (I still am!!). There are not as close. She can see

trees and houses and the ocean. She can see people and distinquish one

from the other. She knows what has helped her and once to continue.

She doesn't go off the diet at all. The journey is not over. Will

it ever be? We hope so someday so that we can enjoy time together. Time

to have fun. I'd better go these aren't getting any shorter. God

bless you and be with you. (I also ask everyone I meet to pray for my

child. Put her on their prayer list at their church) I pray for

each child every night that not another one is injured. May God lead and

guide you.

Never miss a thing. Make Yahoo your home page.

http://w ww.yahoo.com/r/hs

[Guest guest]

We have what some people call an “autism

pedi” in town.  He is absolutely terrible if you ask me.  He yells at

parents trying the Gf/Cf tells them wasting money etc,   Most parents I know in

the area who haven’t ever even considered biomed go to him.  He scares

the crap out of parents, extremely closed minded.  I wouldn’t go to him

if you paid me!  But even a pedi like that can refer you for GI.  2 parents I

know who go to this Dr. have convinced him to give them referrals to a GI. 

Both ended up with real GI issues.  So it’s definitely worth a try.. 

Good luck,

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Zurama

Sent: Friday, November 16, 2007

11:08 PM

To: mb12 valtrex

Subject: Re: New to

the group! 10 year old son with severe autism

He is acctually not a pediatrician, but I went to him,

because I heard

that 25% of his patients were autistic adults. He has been a complete

disappointment. I think I would be wasting my time. Now days I only go

to him when I need to get a paper signed or something.

I just started him on Threelac, but I'm not sure on the dosage. it

just says to give him one package a day. Any ideas on that?

Zurama

> Also, there are viral issues you might be able to address with OLE

and an

> antifungal rotation. Good luck,

>

>

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ]

On

> Behalf Of Zurama

> Sent: Friday, November 16, 2007 6:24 PM

> To: mb12 valtrex

> Subject: Re: New to the group! 10 year old son with severe

> autism

>

>

>

> He has medi-cal, but I can't get our current doctor to do anything for

> him.

> How do I start convincing him? Should I get Him a Book maybe.......

>

>

> >

> >

> >

> >

> > > That's where the problem is. I can't afford the

> > > Doctor and the

> > > supplements so I Just try to do everything

> > > myself and opted for the

> > > supplements. At 400.00 an hour or two is just

> > > not reachable for me.

> >

> >

> > I understand the financial issue. I've no opted

> > for alot of the tests, so I can afford

> > supplements/special foods.

> >

> > Having said that, does your child receive SSI?

> > Even if you make too much money to get money from

> > SSI, qualifying should give your child a Medicaid

> > card.

> >

> > There are also waiver programs that will give

> > your child a medical card, if they meet the

> > requirements, regardless of what you make.

> >

> > Last, you can always look for a local doctor and

> > try to educate him or her.

> >

> > Kim

> >

> >

> >

> __________________________________________________________

> > Never miss a thing. Make Yahoo your home page.

> > http://www.yahoo. <http://www.yahoo.com/r/hs>

com/r/hs

> >

>

[Guest guest]

Zurma

Try to get him on a good diet if you havent already. SCD is really a great

diet to start. You need to start slow and work your way up with him. A good

diet is really the way. All the other things you do for him will work better

for him.

Go to the peacanbread.com for a place to start.

Re: New to the group! 10 year old son with severe

>> autism

>>

>>

>>

>> He has medi-cal, but I can't get our current doctor to do anything for

>> him.

>> How do I start convincing him? Should I get Him a Book maybe.......

>>

>>

>> >

>> >

>> >

>> >

>> > > That's where the problem is. I can't afford the

>> > > Doctor and the

>> > > supplements so I Just try to do everything

>> > > myself and opted for the

>> > > supplements. At 400.00 an hour or two is just

>> > > not reachable for me.

>> >

>> >

>> > I understand the financial issue. I've no opted

>> > for alot of the tests, so I can afford

>> > supplements/special foods.

>> >

>> > Having said that, does your child receive SSI?

>> > Even if you make too much money to get money from

>> > SSI, qualifying should give your child a Medicaid

>> > card.

>> >

>> > There are also waiver programs that will give

>> > your child a medical card, if they meet the

>> > requirements, regardless of what you make.

>> >

>> > Last, you can always look for a local doctor and

>> > try to educate him or her.

>> >

>> > Kim

>> >

>> >

>> >

>> __________________________________________________________

>> > Never miss a thing. Make Yahoo your home page.

>> > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs

>> >

>>

>

>

>

>

>

>

[Guest guest]

Zurama, I too thought we couldn't afford a DAN doctor so for years (our son is 15) we have done our own thing and at 15 years old our son is no better so a couple of months ago, we made a choice to do all that we could to help this kid once and for all. We can't afford it but we found the money in places we didn't look before. Even if it means not paying a bill or two elsewhere for a while. I can take a few ugly bill collectors to save my son. We went to a DAN Thursday. It costs us $600.00 out of pocket but all the lab work is paid by insurance. For once we feel like a doctor is in charge of our son's health and recovery that has the same goal as us. It's a great feeling. I don't feel like we are stabbing in the dark anymore. Please go to a DAN doctor and stop spending money on things that you are not sure of. Get all the testing you need to see what your child needs and doesn't need. Sell something, borrow $$, ask your local autism chapter for a loan. I

read from someone about certain dr's that let you pay monthly. Go for it so you don't wake up when he's 15 and these things are still going on. Bless you in your efforts, Alice

Get easy, one-click access to your favorites. Make Yahoo! your homepage.

[Guest guest]

yikes....sounds like the ped we saw a few years back....are you in VA??Chap 'n Ali wrote: We have what some people call an “autism pedi” in town. He is absolutely terrible if you ask me. He yells at parents trying the Gf/Cf tells them wasting money etc, Most parents I know in the area who haven’t ever even considered biomed go to him. He scares the crap

out of parents, extremely closed minded. I wouldn’t go to him if you paid me! But even a pedi like that can refer you for GI. 2 parents I know who go to this Dr. have convinced him to give them referrals to a GI. Both ended up with real GI issues. So it’s definitely worth a try.. Good luck, From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ZuramaSent: Friday, November 16, 2007 11:08 PMTo: mb12 valtrex Subject: Re: New to the group! 10 year old son with severe autism He is acctually not a pediatrician, but I went to him, because I heardthat 25% of his patients were autistic adults. He has been a completedisappointment. I think I would be wasting my time. Now days I

only goto him when I need to get a paper signed or something.I just started him on Threelac, but I'm not sure on the dosage. itjust says to give him one package a day. Any ideas on that?Zurama> Also, there are viral issues you might be able to address with OLEand an> antifungal rotation. Good luck, > > > > _____ > > From: mb12 valtrex [mailto:mb12 valtrex ] On> Behalf Of Zurama> Sent: Friday, November 16, 2007 6:24 PM> To: mb12 valtrex > Subject: Re: New to the group! 10 year old son with severe> autism> > > > He has medi-cal, but I can't get our current doctor to do anything

for> him. > How do I start convincing him? Should I get Him a Book maybe.......> > > >> > > > > > > > > That's where the problem is. I can't afford the> > > Doctor and the> > > supplements so I Just try to do everything> > > myself and opted for the> > > supplements. At 400.00 an hour or two is just> > > not reachable for me. > > > > > > I understand the financial issue. I've no opted> > for alot of the tests, so I can afford> > supplements/special foods. > > > > Having said that, does your child receive SSI? > > Even if you make too much money to get money from> > SSI, qualifying should

give your child a Medicaid> > card.> > > > There are also waiver programs that will give> > your child a medical card, if they meet the> > requirements, regardless of what you make.> > > > Last, you can always look for a local doctor and> > try to educate him or her.> > > > Kim> > > > > > > __________________________________________________________> > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs> >>

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

No, I’m in Mass but these kinds of

pedis are everywhere. Saying they are experts in Autism but really they just

have patients that have autism and they no nothing about whole body. I almost

went to this guy just for the development side before I knew what an ass he

was. My instincts told me to go in a different direction. So glad I did.

-

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of angie carter

Sent: Saturday, November 17, 2007

11:35 AM

To: mb12 valtrex

Subject: RE: Re: New

to the group! 10 year old son with severe autism

yikes....sounds

like the ped we saw a few years back....are you in VA??

Chap 'n Ali

<chapnalliverizon (DOT) net> wrote:

We have what some people call an

“autism pedi” in town. He is absolutely terrible if you ask

me. He yells at parents trying the Gf/Cf tells them wasting money etc,

Most parents I know in the area who haven’t ever even

considered biomed go to him. He scares the crap out of parents, extremely

closed minded. I wouldn’t go to him if you paid me! But even

a pedi like that can refer you for GI. 2 parents I know who go to this

Dr. have convinced him to give them referrals to a GI. Both ended up with

real GI issues. So it’s definitely worth a try.. Good luck,

>

Never miss a thing. Make Yahoo

your homepage.

[Guest guest]

Christel, may I know what is the name of your DAN in KS? My son is 15yo, 130lb, viral kid; a non-responder stubborn kid now under homeopathic remedies. Do you think your DAN can help my son?Tom Accetta wrote: Zurama, My son is 8 and he was crying and pounding his foot into the floor so hard I thought he would break his foot. He would also let out a bloodcurdling scream that would stop my heart. I tried to figure out what it was. I took him to the dentist for the first time to check for cavities that was negative. Yeast came to mind, and I begged my DAN for Diflucan. After 2 two week rounds of 80mg/day, the screaming and foot pounding stopped. He also slept thru the night. After being off of Diflucan for two months, the waking after 5-6 hours came back, not the screaming, at that point. I begged again for Diflucan, and after one two week course, he was sleeping better. Please, please get your reg doc to get your child some Diflucan. I have now switched DAN doctors, and have more Diflucan on board, 100 mg/day, in conjunction with

Valtrex. After doing so much Diflucan since this summer, I was shocked to see how much yeast is having an effect on my son with the Valtrex. At least that is what I think is happening. He is in a lot of pain. I can hear his stomach churning and rumbling all the time. My son’s HHV-6 was 320, otherwise I don’t know if I could go through this. But, maybe this has been his problem all along. I have tried everything you listed, too. Your son is in real pain. Probably a sharp, sudden pain and he can’t tell you. Does he giggle a lot? My son would giggle for hours when he would wake at night. Get some info about Diflucan. Here in Wisconsin, we have a Medicaid system

for disabled children. The Diflucan and Valtrex are free after it makes up my insurance difference. Otherwise Diflucan is $10 for two weeks, and Valtrex is $180/month for 1000mg/day. I know everyone has different insurance, but I thought I would give you an idea. I never used my Medicaid card for anything until last month when we started Valtrex. Also, I think the diet is working better with the Diflucan. Hopefully, someone else in CA can give you more info on their system. Use it! Becky From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Christel KingSent: Friday, November 16, 2007 6:27 PMTo: mb12 valtrex Subject: Re: Re: New to the group! 10 year old son with severe autism nope find a new dr. can anyone out there recommend one to her? our DAN is in KS< but there is a flying program you could go see him for like 30 dollars to get there and then he does cash discounts and payment plans with no interest, we had out of state insurance as well and that was how we did it. he was great to work with. we paid like 10-50 dollars a month Re: New to the group! 10 year old son with severe autism He has medi-cal, but I can't get our current doctor to do anything forhim. How do I start convincing him? Should I get Him a Book maybe.......>> > > > > That's where the problem is. I can't afford the> > Doctor and the> > supplements so I Just try to do everything> > myself and opted for the> > supplements. At 400.00 an hour or two is just> > not reachable

for me. > > > I understand the financial issue. I've no opted> for alot of the tests, so I can afford> supplements/special foods. > > Having said that, does your child receive SSI? > Even if you make too much money to get money from> SSI, qualifying should give your child a Medicaid> card.> > There are also waiver programs that will give> your child a medical card, if they meet the> requirements, regardless of what you make.> > Last, you can always look for a local doctor and> try to educate him or her.> > Kim> > > __________________________________________________________> Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs> size=2 width="100%" align=center> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date: 11/16/2007 9:52 AM

Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how.

[Guest guest]

Sorry I am so late here, today. My son

actually pooped in his bed last night. Massive explosive poop. This has never

happened before. He has been toilet trained for 3 years. He is eight. We are in

the 4th week of Valtrex and Diflucan. He’s not eating anything

today at all, and just went again at 1:30pm. Does this sound familiar to

anyone? He was constipated for two weeks, and had mag citrate on Wed. But that

couldn’t still be in his system 3 days later, could it? Help!

Zurama,

Back to your son. Diflucan’s generic

name is fluconazole. It comes in an oral suspension that is very easy to put

into a juice. It has 2 strengths: 10mg/ml or 40mg/ml. The strength that

everyone is talking about on the site is the 40mg/ml. so when someone says they

are giving their child 100 mg/day of Diflucan; it’s a small dose of only

2 ml. Your son wouldn’t even taste it in juice, especially when you

divide it up into 1 ml at a time. The dose you can get from any pharmacy but is

only good for two weeks. They mix at the pharmacy, just enough for two weeks. I

can only get the 35 ml bottle, one at a time form united Health Care, so I have

to get it refilled every ten days or so. Its cousin is Nystatin, but it is too

weak to really help our kids. Don’t get talked into Nystatin.

Yes, my son’s pain is gone. Well, it

was until I started Valtrex, but that should only be temporary. He is

non-verbal, but can type single words on the computer, many, and many without

prompts. He has a great memory and intelligence up there. I started getting him

to type after watching the documentary, “Autism is a World”. It is

about a girl/woman named Susie who didn’t start typing until she was 14.

Before that, everyone thought her intelligence was at a two year old level. Now

she is in college. Still mostly non-verbal, but brilliant with writing. No

biomeds that I know of. For 6 months, my son turned off the computer tower. Finally,

one day, he sat down and started typing words: Sony, DVD, Home Video, Buzz

Lightyear, Children’s Television Workshop, and more. We turned that into

identification programs to see how much he knew, and we were very happy. But he

has plateued and then I looked into immune support (IVIG), Valtrex, and more Diflucan.

I really think that our kids yeast just gets worse as they get older, and your

son will only get worse until you get him anti-fungals (Diflucan). My son only

did one stool test to find out he had yeast 2 years ago. I haven’t had a

test since, but I can ID his yeast problems, now. My son’s DAN said the

two biggest problems facing our kids are lead and yeast. I didn’t even know

what gastro-intestinal yeast was until 2 years ago. With Diflucan, your son

will need regular blood draws to check his liver. Do you have regular

insurance? If you do, get the order written up for you on a prescription pad,

and take it to your local Children’s Hospital. I have had many, many done

the there over the years, and never, ever got a bill. Those hospitals are

always in network. Most doctors will charge you more lab fees, etc when it’s

done in their office. The last testing my son had for IVIG was almost $5000,

and United Health Care paid it all. I was thrilled. By the way, if you think

your son won’t tolerate a blood draw, use numbing cream. I never thought

my son would tolerate that, but he doesn’t feel a thing with the numbing

cream. If you need info on that, let me know.  

Sorry this is so long, but these are all

things that I wish I knew 2 years ago. I hope it can help. I know I have more

info if you need it. Let me know. I would tell you to read every single post in

this group. It is such a great and free education. Thanks everyone!

Becky

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Zurama

Sent: Friday, November 16, 2007

9:39 PM

To: mb12 valtrex

Subject: Re: New to

the group! 10 year old son with severe autism

What your describing sounds just like Mickie

especially the screaming

in pain, with a really high pitch cry, that breads my heart, and yeah

he does make noises with his voice when he wakes up in the middle of

the night that's of course if he is not screaming.

As far as pounding he will pound his head sometimes, but he seems to

do it when is frustrated.

I don't have a lot of faith in his doctor. He is on vacation now and I

have an appointment next week, but with a P.A. I will try then to ask

for this medications. I really need a doctor who actually gives a crap

So your son's pain is gone then? Poor little guy. Is he none verbal

like Mickie?

What about Oral Nizoral? is Diflucan from the same family?

Zurama

> >

> >

> >

> >

> > > That's where the problem is. I can't afford the

> > > Doctor and the

> > > supplements so I Just try to do everything

> > > myself and opted for the

> > > supplements. At 400.00 an hour or two is just

> > > not reachable for me.

> >

> >

> > I understand the financial issue. I've no opted

> > for alot of the tests, so I can afford

> > supplements/special foods.

> >

> > Having said that, does your child receive SSI?

> > Even if you make too much money to get money from

> > SSI, qualifying should give your child a Medicaid

> > card.

> >

> > There are also waiver programs that will give

> > your child a medical card, if they meet the

> > requirements, regardless of what you make.

> >

> > Last, you can always look for a local doctor and

> > try to educate him or her.

> >

> > Kim

> >

> >

> >

> __________________________________________________________

> > Never miss a thing. Make Yahoo your home page.

> > http://www.yahoo. <http://www.yahoo.com/r/hs>

com/r/hs

> >

>

>

> _____

>

> size=2 width= " 100% " align=center>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date:

11/16/2007

> 9:52 AM

>

[Guest guest]

Thank Becky:

I'm going to try to get that blood test order next Wednesday, when I

take him to the doctor.

In the meantime I have the list of DAN doctors narrowed down to three.

Mitra Tabassina D.P.M, West, SEars, M.D., FAAP.

Anyone familiar with them. I'm aiming for Valtrax and Nizoral.

I just started him on Grape seed extract, Threelac.

I need a DOC.

Zurama

> > >

> > >

> > >

> > >

> > > > That's where the problem is. I can't afford the

> > > > Doctor and the

> > > > supplements so I Just try to do everything

> > > > myself and opted for the

> > > > supplements. At 400.00 an hour or two is just

> > > > not reachable for me.

> > >

> > >

> > > I understand the financial issue. I've no opted

> > > for alot of the tests, so I can afford

> > > supplements/special foods.

> > >

> > > Having said that, does your child receive SSI?

> > > Even if you make too much money to get money from

> > > SSI, qualifying should give your child a Medicaid

> > > card.

> > >

> > > There are also waiver programs that will give

> > > your child a medical card, if they meet the

> > > requirements, regardless of what you make.

> > >

> > > Last, you can always look for a local doctor and

> > > try to educate him or her.

> > >

> > > Kim

> > >

> > >

> > >

> > __________________________________________________________

> > > Never miss a thing. Make Yahoo your home page.

> > > http://www.yahoo. <http://www.yahoo. <http://www.yahoo.com/r/hs>

> com/r/hs> com/r/hs

> > >

> >

> >

> > _____

> >

> > size=2 width= " 100% " align=center>

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date:

> 11/16/2007

> > 9:52 AM

> >

>

[Guest guest]

Good for you...I'm glad I did too!! There are so many parents who think I'm nuts when I tell them what we are doing. It's sad!! Well, best of luck to you!! AngieChap 'n Ali wrote: No, I’m in Mass but these kinds of pedis are

everywhere. Saying they are experts in Autism but really they just have patients that have autism and they no nothing about whole body. I almost went to this guy just for the development side before I knew what an ass he was. My instincts told me to go in a different direction. So glad I did. - From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of angie carterSent: Saturday, November 17, 2007 11:35 AMTo: mb12 valtrex Subject: RE: Re: New to the group! 10 year old son with severe autism yikes....sounds like the ped we saw a few years back....are you in VA??Chap 'n Ali <chapnalliverizon (DOT) net> wrote: We have what some people call an “autism pedi” in town. He is absolutely terrible if you ask me. He yells at parents trying the Gf/Cf tells them wasting money etc, Most parents I know in the area who haven’t ever even considered biomed go to him. He scares the crap out of parents, extremely closed minded. I wouldn’t go to him if you paid me! But even a pedi like that can refer you for GI. 2 parents I know who go to this Dr. have convinced him to give them referrals to a GI. Both ended up with real GI issues. So it’s definitely worth a try.. Good luck, > Never miss a thing. Make Yahoo your homepage.

Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now.

[Guest guest]

many homeopathic remedies have lactose and alcohol in it which may have gluten issues in it. I believe dr brown in KS said they can be made with out them however when we chatted with him., our DAN is named Baptist

Re: New to the group! 10 year old son with severe autism

He has medi-cal, but I can't get our current doctor to do anything forhim. How do I start convincing him? Should I get Him a Book maybe.......>> > > > > That's where the problem is. I can't afford the> > Doctor and the> > supplements so I Just try to do everything> > myself and opted for the> > supplements. At 400.00 an hour or two is just> > not reachable for me. > > > I understand the financial issue. I've no opted> for alot of the tests, so I can afford> supplements/special foods. > > Having said that, does your child receive SSI? > Even if you make too much money to get money from> SSI, qualifying should give your child a Medicaid> card.> > There are also waiver programs that will give> your child a medical card, if they meet the> requirements, regardless of what you make.> > Last, you can always look for a local doctor and> try to educate him or her.> > Kim> > > __________________________________________________________> Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs>

size=2 width="100%" align=center>

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date: 11/16/2007 9:52 AM

Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how.

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[Guest guest]

sounds like die off, common

RE: Re: New to the group! 10 year old son with severe autism

Sorry I am so late here, today. My son actually pooped in his bed last night. Massive explosive poop. This has never happened before. He has been toilet trained for 3 years. He is eight. We are in the 4th week of Valtrex and Diflucan. He’s not eating anything today at all, and just went again at 1:30pm. Does this sound familiar to anyone? He was constipated for two weeks, and had mag citrate on Wed. But that couldn’t still be in his system 3 days later, could it? Help!

Zurama,

Back to your son. Diflucan’s generic name is fluconazole. It comes in an oral suspension that is very easy to put into a juice. It has 2 strengths: 10mg/ml or 40mg/ml. The strength that everyone is talking about on the site is the 40mg/ml. so when someone says they are giving their child 100 mg/day of Diflucan; it’s a small dose of only 2 ml. Your son wouldn’t even taste it in juice, especially when you divide it up into 1 ml at a time. The dose you can get from any pharmacy but is only good for two weeks. They mix at the pharmacy, just enough for two weeks. I can only get the 35 ml bottle, one at a time form united Health Care, so I have to get it refilled every ten days or so. Its cousin is Nystatin, but it is too weak to really help our kids. Don’t get talked into Nystatin.

Yes, my son’s pain is gone. Well, it was until I started Valtrex, but that should only be temporary. He is non-verbal, but can type single words on the computer, many, and many without prompts. He has a great memory and intelligence up there. I started getting him to type after watching the documentary, “Autism is a World”. It is about a girl/woman named Susie who didn’t start typing until she was 14. Before that, everyone thought her intelligence was at a two year old level. Now she is in college. Still mostly non-verbal, but brilliant with writing. No biomeds that I know of. For 6 months, my son turned off the computer tower. Finally, one day, he sat down and started typing words: Sony, DVD, Home Video, Buzz Lightyear, Children’s Television Workshop, and more. We turned that into identification programs to see how much he knew, and we were very happy. But he has plateued and then I looked into immune support (IVIG), Valtrex, and more Diflucan. I really think that our kids yeast just gets worse as they get older, and your son will only get worse until you get him anti-fungals (Diflucan). My son only did one stool test to find out he had yeast 2 years ago. I haven’t had a test since, but I can ID his yeast problems, now. My son’s DAN said the two biggest problems facing our kids are lead and yeast. I didn’t even know what gastro-intestinal yeast was until 2 years ago. With Diflucan, your son will need regular blood draws to check his liver. Do you have regular insurance? If you do, get the order written up for you on a prescription pad, and take it to your local Children’s Hospital. I have had many, many done the there over the years, and never, ever got a bill. Those hospitals are always in network. Most doctors will charge you more lab fees, etc when it’s done in their office. The last testing my son had for IVIG was almost $5000, and United Health Care paid it all. I was thrilled. By the way, if you think your son won’t tolerate a blood draw, use numbing cream. I never thought my son would tolerate that, but he doesn’t feel a thing with the numbing cream. If you need info on that, let me know.

Sorry this is so long, but these are all things that I wish I knew 2 years ago. I hope it can help. I know I have more info if you need it. Let me know. I would tell you to read every single post in this group. It is such a great and free education. Thanks everyone!

Becky

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ZuramaSent: Friday, November 16, 2007 9:39 PMTo: mb12 valtrex Subject: Re: New to the group! 10 year old son with severe autism

What your describing sounds just like Mickie especially the screamingin pain, with a really high pitch cry, that breads my heart, and yeahhe does make noises with his voice when he wakes up in the middle ofthe night that's of course if he is not screaming.As far as pounding he will pound his head sometimes, but he seems todo it when is frustrated.I don't have a lot of faith in his doctor. He is on vacation now and Ihave an appointment next week, but with a P.A. I will try then to askfor this medications. I really need a doctor who actually gives a crap So your son's pain is gone then? Poor little guy. Is he none verballike Mickie?What about Oral Nizoral? is Diflucan from the same family?Zurama> >> > > > > > > > > That's where the problem is. I can't afford the> > > Doctor and the> > > supplements so I Just try to do everything> > > myself and opted for the> > > supplements. At 400.00 an hour or two is just> > > not reachable for me. > > > > > > I understand the financial issue. I've no opted> > for alot of the tests, so I can afford> > supplements/special foods. > > > > Having said that, does your child receive SSI? > > Even if you make too much money to get money from> > SSI, qualifying should give your child a Medicaid> > card.> > > > There are also waiver programs that will give> > your child a medical card, if they meet the> > requirements, regardless of what you make.> > > > Last, you can always look for a local doctor and> > try to educate him or her.> > > > Kim> > > > > > > __________________________________________________________> > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs> >> > > _____ > > size=2 width="100%" align=center> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date:11/16/2007> 9:52 AM>

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.34/1134 - Release Date: 11/16/2007 9:52 AM

[Guest guest]

Dr. Boch (the book author, the doc who was on Montel, etc.) is

in Rhinebeck, NY, not far from Massachusetts. Just want to put it out

there for anyone who may benefit.

Darlene

> No, I'm in Mass but these kinds of pedis are everywhere. Saying

they are

> experts in Autism but really they just have patients that have

autism and

> they no nothing about whole body. I almost went to this guy just

for the

> development side before I knew what an ass he was. My instincts

told me to

> go in a different direction. So glad I did.

>

> -

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ] On

> Behalf Of angie carter

> Sent: Saturday, November 17, 2007 11:35 AM

> To: mb12 valtrex

> Subject: RE: Re: New to the group! 10 year old son

with severe

> autism

>

>

>

> yikes....sounds like the ped we saw a few years back....are you in VA??

[Guest guest]

Hi...save all your resources for the RIGHT GI, don;t waste time or

money on anyone except Krigsman or one of a very small handful of

others who can really help - WILL help I should say - a child with

the extreme GI issues yours displays...that is the type of assistance

you need most, and it can be covered on insurance...you need

Krigsman, IMO - or someone like him- even more than a DAN at this

time. A Dr like Krigsman can give you the RXs nec to bring some

relief to your child...with the type of acid reflux and inflamation

in his gut that his symptoms indicate eating, supps, all of it is

simply agony...put all your energies into Krigsman or someone else

who will get him on anti inflamatory and acid reflux relief....you

will see the biggest changes from that route...all treatments are a

bad idea on a seriously injured gut - that is the consensus of the

experts with the best track record for helping our kids.

>

> Hi Zurama,

>

>

>

> Has your child been scoped by a GI doctor? It sounds like he may

have, at

> the very least, some acid reflux issues. The crying and sleeping

sitting up

> scream acid reflux. Our son was scoped years ago and Dr. Hart

found scar

> tissue in his esophagus where he had literally burned for years and

was

> unable to tell us. He got relief after two doses of Prevacid. Are

you

> currently working with a DAN! doc?

>

>

>

> Pamela

>

> " Courage is doing what you're afraid to do. There can be no

courage unless

> you're scared. "

>

> Eddie Rickenbacker, top US fighter ace, WWI

>

>

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ] On

> Behalf Of Zurama

> Sent: Friday, November 16, 2007 12:33 PM

> To: mb12 valtrex

> Subject: New to the group! 10 year old son with

severe autism

>

>

>

> Hello everyone:

>

> I am knew to this group. I think fate sent me here.

>

> I was searching for autism videos on youtube and I ran into one

about

> a little boy name Ethan and his recovery and I was just amazed. I

> remember thinking, how I wished I could find out more about how this

> little got better and how much I wished that transformation could

> happen to my Mickie. That night as I'm looking through the

Generation

> Rescue website I see Ethan again and I found the information about

his

> dad Stan Kurtz and the rest is history.

>

> I am mom to 5 kids, the youngest of who was diagnosed with severe

> autism at 22 months. This was 8 years ago and there was not as much

> information as there is today and if there was I didn't find it.

>

> Mickie is 10 now and still none-verbal, and in dippers. Can't

> chew-food has to be blended, has dark circles under his eyes, he is

> lead, cadmium and Aluminum toxic. Needles to say his quality of life

> is poor.

>

> If his not crying of melting down he is stimming till his face is

raw

> and that is on a good day. I don't have the heart to tell him to

stop,

> since that is the happiest he ever looks.

>

> I have done a lot of Biomedical interventions-pretty much

everything I

> can do without a prescription I've done.

>

> Improve diet

> Food allergies

> GFCG Diet-this stopped the chronic diahrrea

> Vitamin/mineral supplementation

> Essential Fatty Acids

> Pribiotics- from local health food store, but I just ordered

Threelac

> and Culturelle from kirkmans.

> Digestive enzymes for the last five years- from local health food

> store-without it gets diahrrea.

> Amino Acids

> Melatonin-still wakes up in the middle of the night. Sleeps sitting

up.

> Chelation-when he was five for 4 months and in the last five years

> for a fews weeds at the time every few months-I always ended up

> stopping, because of his Gut problems. I know now I should have kept

> going and just worked through the problems.

> HBOT-Had one treatment and I noticed no stiming of any kind for the

> whole rest of the day. Not willing to do 40 treatments in a row-

don't

> have the money and 15% do get worse-I don't want to find out if

he'll

> fall in that 15%. I rather take it slow.

>

> I hope to learn from this group how to keep helping my little boy

get

> better and better every day.

>

> Sincerely,

>

> Zurama

> autismtookmickie@ <mailto:autismtookmickie%40gmail.com> gmail.com

> www.zurama.com

>

[Guest guest]

Try printing out Dr. Krigsman's " Gastrointestinal Pathology in ASD; Description

and

Treatment " and bringing it to your doctor along with the Jepson book, which also

has GI

info. http://thoughtfulhouse.org/0405-conf-akrigsman.htm

Chris

http://thoughtfulhouse.org/0405-conf-akrigsman.htm--- In

mb12 valtrex , " Chap 'n Ali " wrote:

>

> Absolutely give him " Changing the Course of Autism " By Jepson, MD. I

> bought it for my pedi a couple of months ago. I'm hoping next time I see

> him he'll have read it. But on another note since your son has such gut

> issues wont he refer you to at least a GI doc? If a child has GI issues no

> matter what their diagnosis a competent pedi should listen to your concerns

> and refer you to a GI.

>

>

>

> You had a pretty good list going of supps and stuff. But I didn't see any

> antibacterial or antifungal in particular. I saw the probios but maybe

> something more specific for bacteria and Candida. I just saw someone post a

> really nice looking new fungus protocal from Brainchild. Maybe you could

> take a look at it. It actually made me go out and buy the cell food.

> http://www.brainchildnutritionals.com/PDF/Candida.pdf

>

>

>

> Also, there are viral issues you might be able to address with OLE and an

> antifungal rotation. Good luck,