Question

[Guest guest]

Jayn

Remember, LBD is a neurodegenerative disease...meaning progression.

Unfortunately, the end result is the same. Some times it comes quickly,

some times it takes time. But the progression is still there. Feel

fortunate that your sister has leveled off, and cherish the time you

have with her.

Love-

Sandie

[Guest guest]

Jayn: There is wide variation in when (and if) the various symptoms

of LBD surface in an individual patient (i.e., typically visual

hallucinations happen earlier in the course of LBD, but not always).

There are no hard and fast rules. -Russ

Re: QUESTION

I have the same question that Donna has, when does all the things

happen that

I have been reading from different post happen? My sister has been

the same

except short term memory for a long time. It is ok with me if she

never gets

all that other stuff I am reading about, but if the disease is

consistent I

guess the other things will come. Right?

Jayn

[Guest guest]

My Mom had had a diagnosis of probable LBD for about three years. One

of the most troubleing aspects has been, word loss, concentration,

paranoia and upermost of all has been the hallucinations--they have

never been quiest since the begining of all this--in fact Mom may have

been having them for as much a 5 yrs now( according to and Aunt that

Mom had confided in when they first began). Mom has gone through

times of paranoia, had it disappear, times of slurred speech and had

it disappear, cramps of the hands and feet and had it disappear--all

of the above coming and going at will--- Mom is no longer able to

dress herself without problems, ie wrong side out, button errors,

sleeves missplaced etc. She has no since of direction--she is here

this weekend, has a bladder infections, and has asked for direction

to the bathroom at least a million times --Mom is unable to help in

the kitchen except with the direction of complete supervision--she

will pour coffee down the stove elements, etc. Mom has not driven

for at least 4 yrs, and she gets lost in her own home, so is never

allowed to go out doors without someone overseeing her outing. She

still eats when reminded, likes goodies, --and would be lost without

someone with her at all times. We are very close to NH admission and

that will come when we no longer are able to have caring caregivers

that come to her home each day--it is tough and there is no getting

around it. I still feel very lucky that Mom does as well as she does.

I forgot to mention that there have been some falls, and a broken

wrist--no hospital stays. Our Neuroligist says that Hospital stays

are often the end of one being able to remain at home. I hope this

has helped someone out there to know how it has progressed in our

situation. AT NO TIME IS THIS EASY ON ANYONE--PATIENT OR FAMILY-

Joanne in OREGON

[Guest guest]

Hi ,

Don't know how this will be received but...

Maybe if you tell your mum before you collect her that you have a

very important appointment (something she knows is important to you)

at a particular time and you will have to take her back to the PCH

that same evening....??? see what she thinks...let it be her

decision whether she comes to your home or not. I could imagine that

it is probably not that simple but maybe worth a try...??

Just a suggestion...

Best of luck

Kind Regards

Emma

Melbourne Australia

> Hello All, I have a situation that I am not sure how to handle. I

> have been bringing my Mother home to my house on Sundays. Now the

> last time I brought her here she said that she thought I was

bringing

> her home for good. She got very angry with me when I took her back

to

> the PCH.(personal care home). I would like to bring her here for

> Easter Sunday but I am afraid that she will think it is for good

> again. I tried to tell her that her visits were only for the day

but

> she refuses to listen. I don't want to leave her out because I am

> all she has. I also don't want to deal with breaking her heart

again

> by taking her back to the PCH again.

>

> Any advise on what I could do?

>

> Thanks

> karen

[Guest guest]

ine:

I found two! This website - www.turnonyourinnerlight.com

And I also found this:

" The outer world touches me not. I am in charge of my own being. I

guard my inner world for it is there that I create. I do whatever I

need to do to keep my inner world peaceful. My inner peace is

essential for my health and well-being. I go within and find that

space where all is quiet and serene. I may see it as a peaceful,

deep, quiet pool surrounded by green grass and tall, silent trees. I

may feel it as white, billowy clouds upon which to lay and be

caressed. I may hear it as flowing, delightful music soothing my

senses. However, I choose to experience my inner space, I find

peace. At this center of peace I am. I am the pureness and stillness

of the center of my creative process. In peace I create. In peace I

live and move and experience life. Because I keep myself centered in

inner peace, I have peace in my outer world. Though others may have

discord and chaos, it touches me not for I declare peace for myself.

Though there may be madness all around me, I am calm and peaceful.

The Universe is one of great order and peacefulness, and I reflect

this in my every moment of life. The stars and the planets do not

need to be worried or fearful in order to maintain their heavenly

orbits. Nor does chaotic thinking contribute to my peaceful

existence in life. I choose to express peacefulness, for I am peace.

And so it is. "

" It is safe to look within. Each time you look deeper into yourself,

you are going to find incredibly beautiful treasures within you. "

Copyright 1990. " Heart Thoughts " (book) Written by Louise L. Hay,

published by Hay House Inc.

For more info on this and other Louise Hay products:

call or www.hayhouse.com

Hope this helps,

Andie

question

A while ago there was an usual exerpt taken from a different book

than we usually use. I really liked it and wanted to get the book

for can't find the email now. Anyone have a clue what I am talking

about? Something about inner peace. ine

[Guest guest]

Thanks so much!!! ine

[Guest guest]

Good morning, ! I'll take a stab at this since there probably aren't that many group members up at this hour!

Armour is a natural desiccated porcine (pig!) thyroid product. Because

it's made from the actual gland, it contains all the hormones that your

own thyroid should be making (T4, T3, T2 and T1) and in approximately

the same proportions.

The synthetics are just that, synthetic. And they are either a T4

(synthroid, Levoxyl, etc) or T3 (Cytomel). I don't think there are any

combo synthetics, and I don't think there is any synthetic T2 and T1

(they're naturally present in much smaller quantities that the T4 and

T3 anyway).

It seems like the mainstream treatment for most doctors is to prescribe

just a synthetic T4. This is the hormone most pushed by the big

pharmacy companies (this is another can of worms and I'm not opening

it!!). Ideally your body can convert T4 to T3, but if our bodies were

taking care of thyroid issues properly we wouldn't be here, would we!?

Some people do just fine on the synthetics, and others don't. Some want

natural over synthetic as a personal choice, others don't care. Some

people have problems with binders and fillers in the pills, which can

be an issue with both synthetics and naturals.

The main criteria you should use in judging a hormone is if it makes

you feel better and clears up your symptoms. If it doesn't you need to

either change the dose or try another one. That's why a good doctor is

so important - and it takes time and patience in most cases. You

probably won't get it right the first time.

Just to show my credentials (or lack thereof!!) - I'm on T3 only

myself, since April. I would have gone back to the doc weeks ago for a

change of some sort, but got tangled up in nodules and surgery, so I'm

in limbo hormonally until all that's cleared up. My personal preference

would be Armour or another natural product, but I went with the doc's

recommendation to start.

Hope that helps!

Betsy

I've noticed on this group-site. Alot of people prefer Armour as a thyroid med. Whatmakes that a better choice for thyroid treatment? Is it real and most other choices aresynthetic? In about 2 weeks (after some more test results), my endo said she is going

to put me on several meds and I thought I could maybe get a heads up and havesome input as to my treatment and what meds would be best for me. Anysuggestions?rebecca

[Guest guest]

Let me add one correction. Porcine thyroid does have at least trace amounts of all thyroid hormones including calcitonin and parathyroid hormone.

The T4:T3 ratio of porcine thyroid is about 4:1. Human is about 10:1. Much of the T3 and almost all of the T1 and T2 is produced by peripheral deiodination in tissues other than the thyroid gland.

Armour remains a good replacement hormone for those of us who do not convert enough T4 to T3 to survive on synthetic levothyroxine alone. Some of us add a small amount of levothyroxine to our Armour to get a more favorable T4:T3 ratio. A few folks add synthetic T3, usually those with a history of exposure to insecticides, solvents and other environmental toxins.

Armour is cheaper and more readily available than Cytomel (synthetic T3) or Thyrolar (synthetic T3 +T4). Armour smells bad. Solution. I take mine with coffee and do not smell it.

The sad truth is that most docs Rx only one thyroid medication protocol for all of their thyroid patients unless there is a compelling reason to do otherwise. Patient preference is generally not considered to be a compelling reason. The bottom line is that if you have a preference, choose a doc who prescribes your chosen protocol.

Some folks do better on Armour than they do on synthetic. Others do better on Armour. What you may need is highly individual. Betsy wrote:

Good morning, ! I'll take a stab at this since there probably aren't that many group members up at this hour! :)Armour is a natural desiccated porcine (pig!) thyroid product. Because it's made from the actual gland, it contains all the hormones that your own thyroid should be making (T4, T3, T2 and T1) and in approximately the same proportions.The synthetics are just that, synthetic. And they are either a T4 (synthroid, Levoxyl, etc) or T3 (Cytomel). I don't think there are any combo synthetics, and I don't think there is any synthetic T2 and T1 (they're naturally present in much smaller quantities that the T4 and T3 anyway).It seems like the mainstream treatment for most doctors is to prescribe just a synthetic T4. This is the hormone most pushed by the big pharmacy companies (this is another can of worms and I'm not opening it!!). Ideally

your body can convert T4 to T3, but if our bodies were taking care of thyroid issues properly we wouldn't be here, would we!?Some people do just fine on the synthetics, and others don't. Some want natural over synthetic as a personal choice, others don't care. Some people have problems with binders and fillers in the pills, which can be an issue with both synthetics and naturals.The main criteria you should use in judging a hormone is if it makes you feel better and clears up your symptoms. If it doesn't you need to either change the dose or try another one. That's why a good doctor is so important - and it takes time and patience in most cases. You probably won't get it right the first time.Just to show my credentials (or lack thereof!!) - I'm on T3 only myself, since April. I would have gone back to the doc weeks ago for a change of some sort, but got tangled up in nodules and surgery, so I'm in limbo hormonally until all that's cleared up. My personal

preference would be Armour or another natural product, but I went with the doc's recommendation to start.Hope that helps!Betsy

I've noticed on this group-site. Alot of people prefer Armour as a thyroid med. Whatmakes that a better choice for thyroid treatment? Is it real and most other choices aresynthetic? In about 2 weeks (after some more test results), my endo said she is going to put me on several meds and I thought I could maybe get a heads up and havesome input as to my treatment and what meds would be best for me. Anysuggestions?rebecca__________________________________________________

[Guest guest]

It makes me nervous that your endo said "several meds." Unless those meds are thyroid and bio-equivalent sex and adrenal hormones and maybe iron or other nutritional supplements, she may be treating symptoms individually, failing to realize how many of our problems are specifically caused by hypothyroidism and other endocrine problems.

We have all had docs push antidepressants, statin drugs, sleeping pills, proton pump inhibitors, appetite depressants, horse pi$$ hormones, and even amphetamines at us, rather than giving us adequate amounts of both T3 and T4. rlkrug wrote:

I've noticed on this group-site. Alot of people prefer Armour as a thyroid med. What makes that a better choice for thyroid treatment? Is it real and most other choices are synthetic? In about 2 weeks (after some more test results), my endo said she is going to put me on several meds and I thought I could maybe get a heads up and have some input as to my treatment and what meds would be best for me. Any suggestions?rebecca

Discover Yahoo! Use Yahoo! to plan a weekend, have fun online more. Check it out!

[Guest guest]

The tricky thing is that it can take months to figure

out that one hormone isn't working as well as another

might. You can't just take a low dosage of any of the

hormones and make an informed decision. That's where

the time factor comes in. It's a real pain in the

a**, but it's true.

Courtenay.

>

> The main criteria you should use in judging a

> hormone is if it makes you

> feel better and clears up your symptoms. If it

> doesn't you need to either

> change the dose or try another one. That's why a

> good doctor is so important

> - and it takes time and patience in most cases. You

> probably won't get it

> right the first time.

>

>

[Guest guest]

Betsy:

Awesome job! I just wanted to add that there is such a thing as a

synthetic T4/T3 combo. I forget what it's called though.

Shomon was on it at one time -- I don't know about now. Sure bugs

me I can't think of the name of it. Oh yeah, Thyrolar I believe? I

hope this brain fog doesn't haunt me forever!

)

> The synthetics are just that, synthetic. And they are either a T4

> (synthroid, Levoxyl, etc) or T3 (Cytomel). I don't think there are

any combo

> synthetics, and I don't think there is any synthetic T2 and T1

(they're

> naturally present in much smaller quantities that the T4 and T3

anyway).

>

[Guest guest]

Thanks, , for both the " attaboy " and the additional information. I

may have an answer to your question about TT and thyca and RAI after

all my appointments tomorrow!

Betsy:Awesome job! I just wanted to add that there is such a thing as asynthetic T4/T3 combo. I forget what it's called though. Shomon was on it at one time -- I don't know about now. Sure bugs

me I can't think of the name of it. Oh yeah, Thyrolar I believe? Ihope this brain fog doesn't haunt me forever!)

[Guest guest]

well, it's lookin' like I also have PCOS, like I thught all along. So we're

treatin' a whole

bunch of stuff.

> I've noticed on this group-site. Alot of people prefer Armour as a thyroid

med.

What

> makes that a better choice for thyroid treatment? Is it real and most other

choices

are

> synthetic? In about 2 weeks (after some more test results), my endo said she

is

going

> to put me on several meds and I thought I could maybe get a heads up and have

> some input as to my treatment and what meds would be best for me. Any

> suggestions?

>

> rebecca

>

> ---------------------------------

> Discover Yahoo!

> Use Yahoo! to plan a weekend, have fun online & more. Check it out!

[Guest guest]

:

I am sorry to hear you have PCOS. Have you read any of Dr. Lee's

books about natural progesterone cream? I just had to ask. So much

safer than synthetic progestins or birth control pills and he claims

it helps with PCOS too. Let me know if you would like more

information about his books, okay? The cream has helped me

immensely and I have had chronic pelvic pain, fibroid tumors, and

other female problems for many years. Hang in there, okay? There's

also a website which deals with natural alternatives to synthetic

hormone treatment, if you are interested.

> well, it's lookin' like I also have PCOS, like I thught all along.

So we're treatin' a whole

> bunch of stuff.

>

[Guest guest]

What does that cream help with??? I don't really have any discomfort... I just

have the

weight gain, belly bloating, acne (which is now under control). It's funny that

I went to

an endo just thinking I had PCOS, then they find all this thyroid stuff too.

Sometimes,

it makes ya wish you didn't go.

rebecca

> > well, it's lookin' like I also have PCOS, like I thught all along.

> So we're treatin' a whole

> > bunch of stuff.

> >

[Guest guest]

I think it is a good idea to do so. generally your insurance will not pay for the meter and strips without a diabetes diagnosis. I bought my own meter a year before I was diagnosed and did not file an insurabce claim, because I did not want the diabetes diagnosis on my records prematurely. You can ask if they will pay with a hypoglycemia diagnosis.rlkrug wrote:

Is it common for a pre-diabetic to use a meter, even though they are not full diabetic?

Yahoo! Sports Rekindle the Rivalries. Sign up for Fantasy Football

[Guest guest]

No you are not crazy. Check out the " files " on the left and go to the

doc list. Find one near you. Don't involve boyfriend until you feel

well. Be prepared for him to tell you that you are crazy. As someone

in another forum says, " normal is a setting on the dryer. "

> You have about a 50% chance of shrinking small nodules on a

suppressive dose of thyroid medication. I

t is my personal (not medical) opinion that more of them could be

shrunk if docs were not so afraid of suppressing the TSH. Most of them

go for minimum suppression instead of dosing to tolerance. Large

nodules rarely, if ever, shrink.

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina relief effort.

>

>

[Guest guest]

I've never done that before myself. I wish I knew how to help you.

yvonne wrote:

Hi all,

I have a question:

Lately when I run outside, I get an icy cold feeling in my throat. It's aweful. I have a feeling it's related to being asthmatic. Usually this time of year I'm inside on the treadmill and don't experience this feeling.

Does anyone else get that cold feeling in their throat? If so, what do you do to get rid of it or ease the symptoms of it?

Thanks in advance.

Find your next car at Yahoo! Canada Autos God bless you!

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

well I bought a running face mask hahaha - I'm going to try that to see if it helps. Funny thing is - it isn't THAT cold out yet so I don't know why I get such a cold feeling in my throat when I'm running.

Bill and Canter wrote:

I've never done that before myself. I wish I knew how to help you.

yvonne wrote:

Hi all,

I have a question:

Lately when I run outside, I get an icy cold feeling in my throat. It's aweful. I have a feeling it's related to being asthmatic. Usually this time of year I'm inside on the treadmill and don't experience this feeling.

Does anyone else get that cold feeling in their throat? If so, what do you do to get rid of it or ease the symptoms of it?

Thanks in advance.

Find your next car at Yahoo! Canada Autos God bless you!

Yahoo! FareChase - Search multiple travel sites in one click. __________________________________________________

[Guest guest]

I use a scarf in winter myself. It's not too bad here yet either. We've had a couple chilly days and nights but not too bad. It could be just the way the air hits your throat when you breathe.

wrote:

well I bought a running face mask hahaha - I'm going to try that to see if it helps. Funny thing is - it isn't THAT cold out yet so I don't know why I get such a cold feeling in my throat when I'm running.

Bill and Canter wrote:

I've never done that before myself. I wish I knew how to help you.

yvonne wrote:

Hi all,

I have a question:

Lately when I run outside, I get an icy cold feeling in my throat. It's aweful. I have a feeling it's related to being asthmatic. Usually this time of year I'm inside on the treadmill and don't experience this feeling.

Does anyone else get that cold feeling in their throat? If so, what do you do to get rid of it or ease the symptoms of it?

Thanks in advance.

Find your next car at Yahoo! Canada Autos God bless you!

Yahoo! FareChase - Search multiple travel sites in one click.

__________________________________________________

[Guest guest]

yeah that's true - in which case - how do you fix that???? hahahaha

Bill and Canter wrote:

I use a scarf in winter myself. It's not too bad here yet either. We've had a couple chilly days and nights but not too bad. It could be just the way the air hits your throat when you breathe.

__________________________________________________

[Guest guest]

I wish I knew. When my asthma acts up in winter, my throat sometimes burns and tickles when I breathe. Then I start coughing hard. The cold air also burns my lungs so I try to breathe through my nose. It's hard when I'm stopped up and when I'm walking fast. I can't run at all because of the bad knee and my back. When you run you breathe through your mouth more, right? The cooler air is dry and cold and that could be what causes both of us to have problems with it.

yvonne wrote:

yeah that's true - in which case - how do you fix that???? hahahaha

Bill and Canter wrote:

I use a scarf in winter myself. It's not too bad here yet either. We've had a couple chilly days and nights but not too bad. It could be just the way the air hits your throat when you breathe.

__________________________________________________

[Guest guest]

Yeah I think so. It started this fall. I got sick, went to the dr. was prescribed anti-biotics and prednisone. Got better, went back to my running and WHAM - now I have that icy cold feeling in my throat when I run. Coincidence???

I don't know - but I'll try the running mask and see if that makes a difference for me. Don't know If I'll get to run tonight before the trick or treaters are out though.

Bill and Canter wrote:

I wish I knew. When my asthma acts up in winter, my throat sometimes burns and tickles when I breathe. Then I start coughing hard. The cold air also burns my lungs so I try to breathe through my nose. It's hard when I'm stopped up and when I'm walking fast. I can't run at all because of the bad knee and my back. When you run you breathe through your mouth more, right? The cooler air is dry and cold and that could be what causes both of us to have problems with it.

yvonne wrote:

yeah that's true - in which case - how do you fix that???? hahahaha

Bill and Canter wrote:

I use a scarf in winter myself. It's not too bad here yet either. We've had a couple chilly days and nights but not too bad. It could be just the way the air hits your throat when you breathe.

__________________________________________________

[Guest guest]

STUPID WINTER...lol...I first started having asthma symptoms my freshman

year...IN THE WINTER TIME. I could barely breathe. the only thing that kept

me from being rushed to the ER was my albeuterol inhaler!

--- Bill and Canter wrote:

> I wish I knew. When my asthma acts up in winter, my throat sometimes burns

> and tickles when I breathe. Then I start coughing hard. The cold air also

> burns my lungs so I try to breathe through my nose. It's hard when I'm

> stopped up and when I'm walking fast. I can't run at all because of the bad

> knee and my back. When you run you breathe through your mouth more, right?

> The cooler air is dry and cold and that could be what causes both of us to

> have problems with it.

>

>

> yvonne wrote:

> yeah that's true - in which case - how do you fix that???? hahahaha

>

>

>

> Bill and Canter wrote:

> I use a scarf in winter myself. It's not too bad here yet either. We've had a

> couple chilly days and nights but not too bad. It could be just the way the

> air hits your throat when you breathe.

>

>

>

>

> __________________________________________________

>

[Guest guest]

Is

it just me?

Once again, I have just been notified

that one of my patients was admitted with “non-Q wave MI”. Presented in the ER

with complaints of “lightheadedness”. No CP, no SOA. Is obese, diabetic, hypertensive and hyperlipidemic, but does not smoke and is compliant with

her meds, all her numbers good except weight. Is 65 yoa.

In the ER, EKG normal

(exactly the same as previous) CK, CKMB and troponin

all normal X3. VS normal, patient

with no complaints. But

cardiology was called ANYWAY and proclaimed this to be a ‘NonQ wave MI) They then did a stress echo

(normal) a cardiolyte (normal) and a cath (normal). Then they discharge her on a

betablocker and Aggrenox and

tell her she needs monthly follow up at their office, yearly cardiolyte and Q6 month Echo.

Am I crazy, or is there something wrong with

this picture? Is

there some diagnostic criteria for MI that I don’t know about?

Perplexed,

Annie