RE;EVERYTHING

[Guest guest]

HI ITS LYNN,

I HAVE BEEN READING ALL YOUR POSTS--SO MANY QUESTIONS ECT....MEDS/DIAGNOSIS...I

DONT KNOW WHAT I HAVE TO CONTRIBUTE OTHER THAN TO TELL YOU THAT I FEEL SOME

OF YOU ARE NOT BE TREATED OR DIAGNOSED CORRECTLY AND THAT SOME OF THESE

DOCS ARE IDIOT!!!!

IT IS GOOD FOR ME TO SEE THE SIMULARITY OF ALL OF US SO I DO NOT FEEL LIKE I AM

COMPLETELY LOOSING MY MIND.

I TOO HAVE A FAMILY HYSTORY OF SEVERAL DIFFERENT KINDS OF ARTHRITIS AND

AUTOIMMUNE DISEASES AS WELL AS SOME WITH THYROID. MY BROTHER IS SOOOOOO BAD

HE HAS BEEN SICK SINCE HE WAS 25 AND IS NOW 50-THEY CHANGE HIS DIAGNOSIS

FREQUENTLY-ANKYLOSING SPONDYLITIS-PSORIATIC -ECT...REALLY THEY STILL DO NOT

KNOW WHAT HE REALLY HAS -HE TEST NEGATIVE FOR RA,YOU SHOULD SEE HIS HANDS

FUSED SHUT AND HIS TOES AND HIS SWOLLEN SPINAL AREA ECTT.......I AM ASSUMING I

HAVE WHAT EVER HE HAS-HE HAS GIVEN UP THE FIGHT BUT I AM CONTINUING FOR BOTH

OF US.

I HAVE LIKE 7 DIFFERENT DIAGNOSIS-I HAVE HAD EVERY TEST KNOWN TO MANKIND-SOME

HORRIBLE-AND TAKEN EVERY MED OUT THERE THAT IS AN NSAID AND DMARD.....STILL

THEY HAVE NEVER PUT ME ON MTX,ARAVA.ENBRIL ECT......I KNOW THERE ARE LOTS OF

SIDE EFFECTS BUT I WOULD TAKE JUST ABOUT ANYTHING IF I COULD HAVE SOME QUALITY

OF LIFE HERE.I HOPE MY TRIP TO BRINGHAMS WILL BE A GOOD MOVE.

IT SOUNDS LIKE SOME OF YOU ARE TRYING TO QUESS AT WHAT YOU HAVE AND ARE NOT

SEEING DOCS ECT.....EVEN IF THEY ARE IDIOTS YOU DO NEED SPECIFIC BLOOD WORK

DONE...AND ANY DOC WHO DOESNT KNOW WHAT SJOGRENS IS OR WHAT LABS TO DO YOU

SHOULD STOP SEEING IMMEDIATELY...IT IS A HARD STUGGLE WHEN YOU ARE TRYING TO

DEAL WITH ALL THE PAIN AND FIGHTING THE DOCS AS WELL.

I HAVE LEARNED SO MUCH FROM ALL OF YOU AND FROM MY OWN INTERNET STUDIES IN

THE PAST FEW MONTHS-AND IT SEEMS AS BOLD AS THE NOSE ON MY FACE WHAT I HAVE-

LETS SEE WHAT THEY SAY IN BOSTON.I THINK I AND SEVERAL OF YOU HAVE BEEN

UNDETREATED--SOME OF YOU SOUND LIKE YOU ARE ON WAY TO MANY MEDICATIONS---

IT IS SO HARD FOR ALL OF US TO GET GOOD TREATMENT,

I WAS A NURSE FOR 20 YEARS AND I NEVER REALIZED HOW HORRIBLE THESE DISEASES

ARE.WELL I WORKED ON A SURGICAL FLOOR SO THEY WOULD JUST CUT OUT WHATEVER

WAS WRONG WITH SOMEONE HAHA.

I FEEL QUILTY NOW THAT I DID NOT PAY ENOUGH ATTENTION TO MY OWN BROTHER ALL

THESE YEARS-BECAUSE NOW I KNOW WHAT HE HAS BEEN GOING THROUGH.I PRAY THAT

GOD WILL GIVE HIM AND I THE STRENGHT TO DEAL WITH THIS. MY SON IS SO UPSET BY

THE SIGHT OF US BOTH HE DOESNT WANT TO HAVE CHILDREN BECAUSE HE IS AFRAID TO

PASS IT ON....

I DONT WRITE OFTEN TO THIS POST BUT I READ IT 2 TIMES A DAY-AND I SEND YOU ALL A

CARD EVERYDAY-WELL JUST ABOUT EVERYONE WHOSE ADDRESS I HAVE....I QUESS ALL WE

CAN DO IS PRAY FOR EACH OTHER AND BE THERE FOR SUPPORT...SEVERAL OF YOU I HAVE

BECOME VERY CLOSE TO AND ITS GOOD TO KNOW YOU ARE THERE BECAUSE IF YOU DONT

HAVE THESE THINGS OTHERS DO NOT UNDERSTAND AND YOU DONT WANT TO LAY IT ON

YOUR FRIENDS AND FAMILT TOO MUCH--ITS ENOUGH FOR THEM JUST TO SEE US SICK--

AND THEY ALL REACT DIFFERENTLY BECAUSE THEY JUST DO NOT KNOW HOW TO DEAL

WITH US---SO WE HAVE OUR OWN FAMILY HERE THANK GOD....LYNN8953