Re: Very Sick On Prednisone Dose To Help Newly Diagnosed MS

[Guest guest]

, I'm so sorry about your new diagnosis. But then, if you have it,

it's better to know that you have it. Wow! That's a lot of prednisone.

No wonder you are vibrating from head to toe. I guess your last day to

take it will be Christmas Eve, if I'm calculating correctly. I hope it

helps your symptoms. You will be in my thoughts and prayers. Keep us

updated about how you're doing with that massive dose of prednisone. I

would advise you to not eat any carbs during those 10 days, because

that much prednisone will surely send your blood sugar skyrocketing.

Did they mention anything about that? Sue

On Thursday, December 15, 2005, at 09:39 PM, ltlmisscrankypants wrote:

> Well, today was day 1 with 25 of the 50 mg tablets to swallow 30

> minutes after Gravol and after I'd eaten a substantial breakfast. I've

> had a Gastric Bypass, so this wasn't easy to do. It took 2 hours of

> finding and making room for the fluid, food and pills.

>

> I don't know what to say other than I just don't feel right. I am

> edgy,

> can't sit still, and I am just vibrating from head to toe. I feel

> like my

> head is going to explode from the massive headache I have.

[Guest guest]

Sue:

I know all about the weight gain. I gained about 40 dollars when they first

put me on Prednisone (tapered dose), for my RA in mid-January of this

year. I think I should just get my jaws wired shut now, and get the

Prednisone through injection.

I will try and avoid the carbs....but they aren't just calling my name, they

are SCREAMING for me in the evening and the middle of the night. Time

to stock up on low-cal foods like salsa, raw veggies, etc....

Thanks for the reply!

[Guest guest]

,

Gift certificates are a wonderful Christmas present. Easy for us and

appreciated by the receiver. I can't imagine

being on the dose of prednisone that you're on. It's not surprising

that you're sick. Ulceration of your stomach

is a concern at this dose. Here' some articles I've found:

Prednisone use in Multiple Sclerosis:

http://www.nationalmssociety.org/Meds-Prednisone.asp

Steriods for multiple sclerosis and optic neuritis: a meta-analysis

of randomized controlled clinical trials

http://tinyurl.com/7tcaj

Optic Neuritis Treatment and Predictions for Multiple Sclerosis

http://www.loftusmd.com/Articles/MS/opticneuritis.html

The FDA/manufacturer's guidelines for the prescription of prednisone:

Multiple Sclerosis

In the treatment of acute exacerbations of multiple sclerosis daily

doses of 200 mg of prednisolone for a week followed by 80 mg every

other day for 1 month have been shown to be effective. (Dosage range

is the same for prednisone and prednisolone.)

http://www.druginfonet.com/deltason.htm#DOSAGE%20AND%20ADMINISTRATION

a

On Dec 15, 2005, at 9:39 PM, ltlmisscrankypants wrote:

> Hi everyone.

>

> I hope you are all well and ready for the busy holiday season

> that's just

> around the corner. I am done my shopping, or as close to it as I am

> going to get! There will be some gift certificates this year, but

> that way

> people can purchase what they want.

>

> It's been a rough year for me, waking up with RA on January 11th with

> no real prior symptoms, just totally immobile and ended up in the ER.

> Teeth started crumbling, dry mouth/eyes and was then also diagnosed

> with Sjogren's in June. And as if that wasn't enough, I have been

> in and

> out of hospital for almost 2 months now with what has now been

> diagnosed as Multiple Sclerosis.

>

> I am dealing with it all well, just really focusing on making

> Christmas

> very special for my boys. I started med therapy for the MS yesterday,

> and it's a 10 day course of Prednisone. I am shocked at the amount,

> and the pharmacist called the doc to make sure, but I take 1250mg of

> Prednisone one day, skip a day, take 1250mg again, skip another day

> and so on for a 10 day period.

>

> Well, today was day 1 with 25 of the 50 mg tablets to swallow 30

> minutes after Gravol and after I'd eaten a substantial breakfast.

> I've

> had a Gastric Bypass, so this wasn't easy to do. It took 2 hours of

> finding and making room for the fluid, food and pills.

>

> I don't know what to say other than I just don't feel right. I am

> edgy,

> can't sit still, and I am just vibrating from head to toe. I feel

> like my

> head is going to explode from the massive headache I have.

>

> They had hoped the Prednisone with bring back my vision which I have

> lost and restore feeling to the left side of my body. The Neurologist

> said it would help with the RA symptoms as well.

>

> Anyone else been on this high of a dose, and feel so out of sorts???

>

> Happy Holidays everyone,

>

>

>

>

>

>

>

>

[Guest guest]

,

Has your doctor mentioned steroid injections in your eye? I know it

sounds awful, but I have 2 family members that

have had it done and both say it was painless and it was effective.

My mother couldn't take steroids by mouth and

nothing was effective for her. She was loosing her vision. They gave

her a steroid injection in her eye and it worked. My BIL was on

high dose prednisone for ocular inflammation and joint pain and

besides the fact that it didn't work, he gained

an enormous amount of weight and it caused bone damage in his hip. He

tried the steroid injection in his eye and it worked.

MS is a different disease than what either of my family member have,

so this may not be an option for you but

I just wanted to tell you in case it was mentioned that both say it

sounded gross but was painless.

Unfortunately I have to go out and finish my shopping. I hope my feet

can handle the lines. When I get back I'm going

to do some more research. Saving your vision is a priority but with

your gastric bypass you have to be careful.

a

[Guest guest]

,

Be careful on high doses of prednisone with your pouch. You Can get side

effects from the prednisone. I have problems from oral pills and from

injections. I have to take Nexium or something like that when on prednisone

and any

NSAID.

The nerves and shakines is normal. I had that on low doses of prednisone.

Beware though cause prednisone make me pyschotic!!!

Is it possible to crush the tablets and hide them in apple sauce or protein

pudding? That might make it easier to take with limited stomach space. I

think The amount of pills is a lot even for someone with a normal stomach.

Toni

In a message dated 12/16/2005 6:07:37 A.M. Central Standard Time,

writes:

Date: Fri, 16 Dec 2005 02:39:52 -0000

From: " ltlmisscrankypants " <ltlmisscrankypants@...>

Subject: Very Sick On Prednisone Dose To Help Newly Diagnosed MS

Hi everyone.

I hope you are all well and ready for the busy holiday season that's just

around the corner. I am done my shopping, or as close to it as I am

going to get! There will be some gift certificates this year, but that way

people can purchase what they want.

It's been a rough year for me, waking up with RA on January 11th with

no real prior symptoms, just totally immobile and ended up in the ER.

Teeth started crumbling, dry mouth/eyes and was then also diagnosed

with Sjogren's in June. And as if that wasn't enough, I have been in and

out of hospital for almost 2 months now with what has now been

diagnosed as Multiple Sclerosis.

I am dealing with it all well, just really focusing on making Christmas

very special for my boys. I started med therapy for the MS yesterday,

and it's a 10 day course of Prednisone. I am shocked at the amount,

and the pharmacist called the doc to make sure, but I take 1250mg of

Prednisone one day, skip a day, take 1250mg again, skip another day

and so on for a 10 day period.

Well, today was day 1 with 25 of the 50 mg tablets to swallow 30

minutes after Gravol and after I'd eaten a substantial breakfast. I've

had a Gastric Bypass, so this wasn't easy to do. It took 2 hours of

finding and making room for the fluid, food and pills.

I don't know what to say other than I just don't feel right. I am edgy,

can't sit still, and I am just vibrating from head to toe. I feel like my

head is going to explode from the massive headache I have.

They had hoped the Prednisone with bring back my vision which I have

lost and restore feeling to the left side of my body. The Neurologist

said it would help with the RA symptoms as well.

Anyone else been on this high of a dose, and feel so out of sorts???

Happy Holidays everyone,