I'm a newby going crazy!!! Please help and give advice

December 16, 2005

Hi! My name is le. I've been really sick for the last 6 years

now, I'm 21 and the first time i passed out i was 15. I've been in

and out of the hospital constantly. Brief history: MVP, Postural

orthostatic tachycardia syndrome, Endometriosis, hysterectomy @ 19.

I have migraines, pleuirsy and basically all the symptoms of Lupus

to the T.

I just got of the hospital for a 3 day stay. My whole body is

swollen and in pain. I know for sure that i have fibromyalgia what

i don;t know is if i have the lupus. All the symptoms are there,

but it's not showing in my blood. From my understanding, that's a

normal thing. My PCP doesn;t want to say that i have it even though

he strongly believes that i do. He sd he wants the specialtists to

say so. He knows if he says that i have lupus it will change

everything even my insurance. i'm presently under my mom's

insurance but that will end soon. So the doc said he wants me to see

a rheumy. the one he has referred me to, i saw in the hospital and

she said that i do have lupus. do you think i do or don't? what else

could it be? And basically i'm being treated for it. I am taking

decadron 4mg 2xs per day and oxycontin 80 mg 2xs/day. I also have to

take phenegran.

I cannot stand up for more that a couple minute with swelling and

being thrown into an immense level of pain. My left hand has been

swollen for over a week more than twice the size. I am extremely

fatigued and weak. I can;t even open a soda can. I feel so

useless. It's really starting to take a toll on my emotional and

physically being.

my doc has cld me a phenomenon. What could be going on.? I have

the malar rash on my face. I'm loosing my hair. i get fevers

freqently i don;t know why. the painful, swelling joints, fatigue

everything. what's your opinion? Any advice as to what i should do

now? any suggestions on what i can do about the fibromyalgia? Do

you have any questions for me to help with the picture? i REALLY

NEED SOMEONE TO TALK TO MOSTLY. I'm going stir crazy. I can;t really

get off the couch b/c it hurts so bad. Oh yeah, my legs tingle at

times. like pens and needles xs 1000. My legs have given out on me

a good # of times too. I mean seriously no feeling, i've fallen down

the stairs numerously.

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