Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Fiona, God bless you and your dad. I wish I had some magic words for you. Unfortunately, I don't know much about your dads injury, but I've just been inquiring with another member about the morphine pump. Evidently it is a device that is surgically implanted, and allows the morphine to take a much more efficient route to the pain.Obviously, I'm still very much in the learning process. I was just told to type in " Medtronic " , to get more info. on this device....A few things I do know more about...the constipation. I already had IBS before my injury. When I was put on so many narcotics, my colon gave out completely. Three quarters of it was removed last year. Prior to having the colon resectioning, the Only way for me to have a BM was Sennacot, plus 1 to 4 oranges, each night. If it doesn't work the next morning, it WILL work on the following morning......Also, the depression thing. It is difficult enough to have to live in debilitating pain, but the immense losses that come with it, (work, social, home, car..etc.) it is a relentless cycle. I hope your Dad is already talking to some one about his depression. If so maybe an anti-depressant would help. You and he probably are already up on that. Any type of hobby or skills where he can use his mind and creativity when he feels okay will help him tremendously as well. I found that if there's any way I can create something to look forward too, that helps a great deal too. This group helps! Cheesy as it sounds, to know " your not alone " is a comfort. Any little thing you can do to let him know that he is still a worth wild person, and not just a body taking up space. It is very hard to keep up any type of self esteem, and it all leads to being very depressed......Well I don't want to sound like a know-it-all. Your letter sent me back to a familiar place. I hope he will feels better soon. You too!!!! Good luck to you both. You are a good daughter. Lynnzee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Has he been to a pain specialist or pain clinic? I have an implanted Medtronic (the brand) Morphine pump. It's a constant flow of medicine into the spine. It is not systemic meaning, it doesn't go to my head only to the pain in my legs. 18 months ago I couldn't walk, after 4 months of rehab after the pump was put in, I can walk again. It's a simple procedure and a 1 night stay. They can do a trial as well to see if it works for him. Has he had any spinal blocks? that helps to in a more immediate way. Kathy Goldenkranz 2260 Redwood Dr. Aptos, CA 95003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Hi Fiona, I can sympathize with your dad. I had a lumbar fusion in 1973, was doing pretty good for close to 10 years and have since gone downhill and am now on disability. First thing: Does your dad go to a pain clinic or a pain doctor along with GP? If not, ask for a referral. There are a lot of options that can be looked at, and I've found that a GP just is not equipped to deal with all of it. A pain doc or clinic specializes in just this type of thing. I see a GP, rheumatologist, a pain clinic and occasionally a neurologist. They all have their place in overall treatment. I had a spinal column stimulator implanted in 1995. I had used a TENS before that, with poor to fair results. The SCS helps a lot more. A morphine pump might be another alternative. Go to http://www.medtronic.com for info on both. Best of luck to both you and your dad. Hower Central Pennsylvania http://users.supernet.com/hower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Bev, You have probably punished yourself plenty for something that " was " Think about what is. That is all you need to think about. Not what if, Just what is. If your husband has issue with you that is his business to tell, why would you give him an issue, let him have his own! I will say that as a partner of a marriage that did not work, I knew something was not right between us when my husband had affairs. I thought it was " too much work. " (Since he had affairs for most of our marriage). If our marriage was on track.I would not have wanted something to take that from me. I would not have wanted to know about his past, why? Still, I do not want to know about his past. If you are asking for advice? I say stay in your business. Your marriage NOW is your business. Married couples should never keep things from each other..is that true? NO! of course not! Perhaps when you had this fling your husband could tell things were different, perhaps this fling gave you back your marriage.oh I can have a ton of stories but those are MINE to have about you. Naw.I say, allow your husband to have his stories about the marriage. If he brings it up and asks, then you can decide what you want to do THEN. " Yes, sweetie, I thought I was missing something, I found that I had it all along with you. Thank you for listening to me. " I am certain that he has at some time in your marriage thought he was " missing something " it if happens in your head what is the difference..just a different " evidence " for guilt.STORY! Let it go. Allow him his stories and you keep yours. He doesn't need yours to complicate his! Now, is now. You have love in your marriage! Rejoice! How marvelous. Were you bad? LOL no, you were just fine. Let it go!!!! Oh please let it go and love your husband! April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 " The truth is only hard if you are afraid of losing something. " Byron Please Help! I'm dying inside. My glimmer of hope was seeing Loving What Is in a bookshop last week, but I've read and reread it and now I'm just confused. What if you are not angry at anyone but yourself? Can anyone explain how to deal with this, or does The Work only " work " on your feelings towards others? I can't forgive myself for sleeping with my husband's friend 4 years ago. I love my husband more than life itself and feel I can't hide this from him anymore, but if I tell him I feel I will have to kill myself rather than see him hurt. Can anyone out there help me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 I know where you are. I had an encounter with a woman while I was engaged to the woman I loved deeply. It has taken me a long time to forgive myself. In answer to your question - yes, the Work is really all about you and your thoughts about your experiences. You can start by verifying the truth of all your statements in the posting. Starting with the first: " You are dying inside " - is that true? Then follow what says in her book " Loving What Is " . Blessings to you - you are seeking the perfection you already are. > " The truth is only hard if you are afraid of losing something. " Byron > > > Please Help! > > > I'm dying inside. My glimmer of hope was seeing Loving What Is in a > bookshop last week, but I've read and reread it and now I'm just > confused. What if you are not angry at anyone but yourself? Can > anyone explain how to deal with this, or does The Work only " work " on > your feelings towards others? > > I can't forgive myself for sleeping with my husband's friend 4 years > ago. I love my husband more than life itself and feel I can't hide > this from him anymore, but if I tell him I feel I will have to kill > myself rather than see him hurt. Can anyone out there help me? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Dear Bev, This is pretty long. You may want to print it out and take your time with it. I understand you're difficulty in utilizing the worksheet for this issue. I'd like to suggest a way to write this out because of something you wrote that is coming " through " to me. Perhaps looking at the physical/sexual attraction between you and the other man could be a place. > I can't forgive myself for sleeping with my husband's friend 4 years ago. You should not have been sexually involved with a man other than your husband? Is it true? (This is where you write a few good reasons that come to you - like " yes, I'm a married woman " ) Can you absolutely know that you should never have had sex with another man? Now, go inside and find it. To help you - ask yourself " what is the reality, did I sleep with another man? " This is for you to find truth, however the words come to you. Again, if you had to answer yes or no for all time, can you absolutely know that you should not have had sex with the other man? Note to remember: This is an inquiry, not a test. The process will bring you to see beliefs you carry. There are no right or wrong answers. Now, how do you react when you think the thought " I should have never slept with the other man? " What are the feelings, how do you treat yourself (in your mind), how do you act around your husband? Also, how many times did you sleep with him? Once I gather from your statement, but even if it was 10 times, how many times in your mind have you gone back to that? Once a day maybe for 4 years? That's 4 times 365 days - you've slept with him in your head? Which is causing you more suffering, the actual act you did or the times you've thought about it in your head? Can you see one good reason to drop the thought? And, no one is asking you to drop the thought, it is just part internal questionning here. Just one good reason - one of the answers to the above may be a painful experience for you and I would see that as a good reason. Now, who or what are you when you let go of the thought " I should never have slept with that man? " Go inside and feel it, just for a few moments if possible find the place inside that never knew about that thought. Sometimes this part of the questionning takes practice - but it's like pretending for a moment. And, look at your husband in your mind when you can drop the thought, how are you with him, how do you feel with him looking at you when you let go of that thought? Maybe you are now beginning to see that The Work is about understanding what beliefs do to our thinking. Turn-arounds: Usually TA's are like: What is the opposite of " I should never have slept with that man? " or " My thinking should never be in bed with that man again? " or (your own words now). Turn- arounds can be so freeing. I think calls them your prescription for healing, or something like that. I know I love to play with the turn-arounds, it sort of pokes holes in the original thought and all that pressure just drains out easily and gently. Light bulb moments for the heart. You wrote: I love my husband more than life itself and feel I can't hide this from him anymore, but if I tell him I feel I will have to kill myself rather than see him hurt. If after doing the above inquiry this statement still has alot of charge for you - I suggest this to write about: I should tell my husband about it? and/or - I have to hurt my husband to relieve my suffering? That sounds like something that may be coming from an original reason why you chose to sleep with his friend. Are you angry at your husband about something? If so you may feel that is clearer to you and it would be good to write on him next. Welcome to The Work, you could be opening the door to your own freedom. If you need more help, feel free to email me directly, if that is better for you. I do hope this is helpful and you are soooo not alone in the belief about fidelity. It's universal and it's my Work too. I encourage you to bring back your work to the LWI board. We love to give feedback! Love and peace, L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Dear bev Doing the work on it, is the best you can do. Free yourself and then you know what to do, and then your story is coming from a loving place. Rather than from pain. And that is also good, Can telling your story, make your husband quitting with or spoiling his relation to his friend? Is that something you can predict? than perhaps you could ask him first: " I have made love, once, to a man, four years ago, .................................................... space for your feelings and his feelings ................................................... and do you want to know more in detail " ? With love, Michiel > I'm dying inside. My glimmer of hope was seeing Loving What Is in a > bookshop last week, but I've read and reread it and now I'm just > confused. What if you are not angry at anyone but yourself? Can > anyone explain how to deal with this, or does The Work only " work " on > your feelings towards others? > > I can't forgive myself for sleeping with my husband's friend 4 years > ago. I love my husband more than life itself and feel I can't hide > this from him anymore, but if I tell him I feel I will have to kill > myself rather than see him hurt. Can anyone out there help me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Dear Bev, > " feel I can't hide this from him anymore " . Maybe you're right. Maybe that's what you're being called to do. And I understand that it's terrifying. I don't know if it's possible to have a true, loving, intimate relationship if there is something you feel you have to hide from that person. I have experienced both sides of this dilemma and I can only say that great good came out of a 'baring of souls'. I never regret that husbands told me about affairs. It was a great release from feelings of guilt for them which ultimately kept them separate from me and it was a wonderful gift for me despite the pain - I did a lot of growing up, lots of insights and understanding came around the nature of sexuality, how sex is not love, how I'm not special, how it's my job to love me, not their job and responsibility. I think being honest with someone is the most loving thing you can do for them and for yourself. Holding on to this is killing you as you say - can it be worse if you tell him? You're afraid it'll be devastating for him. You might be right but you can't know what it'll mean to him and to your relationship in the long term. Take care and good healing with this. Love, Margaret I'm dying inside. My glimmer of hope was seeing Loving What Is in a > bookshop last week, but I've read and reread it and now I'm just > confused. What if you are not angry at anyone but yourself? Can > anyone explain how to deal with this, or does The Work only " work " on > your feelings towards others? > > I can't forgive myself for sleeping with my husband's friend 4 years > ago. I love my husband more than life itself and feel I can't hide > this from him anymore, but if I tell him I feel I will have to kill > myself rather than see him hurt. Can anyone out there help me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Hi, My 5 year old severely autistic son just underwent dental surgery yesterday morning. This is his second time. He has 4 stainless caps. He loves to eat rocks, which tear his teeth up. We try to stop him, but even with a full-time aide at school, he is too quick. He has undergone anesthesia 3 times. 2 for dental surgery and 1 for a broken arm. He came out unscathed all 3 times. You would never have known anything happened to him. He is non-verbal and was just as happy as before. When the teeth hurt, it makes them miserable. He is much happier with healthier teeth. They did all of Kiernan's fillings, his caps, and his flouride treatment. It took about an hour and 1/2 total time. I hope this helps with any worries you have. Jeanette Please help! Rushed our son to the dentist last Thursday with a toothache, and due to his autism, they say he will have to be put under anesthesia in order to do what needs to be done to his teeth. These are baby teeth, and the cost of this is going to be expensive. I'm scared about putting him under. I fear he could regress or worse. I am also wondering about the safety of a stainless steel cap. I need input from parents who have had similar dental issues with their child who has autism. I would also like to get a second opinion. I would like to hear from parents in the Dallas area. What dentist do you use for your child who has autism. I like the dentist we went to very well. They were very caring and patient with Ethan. The dentist is a mercury free, pediatric dentist. The anesthesiologist along with the work is going to cost around $2400! If we're lucky insurance may cover half, but we don't even have half, so I don't know what we're going to do. Both my parents and my husbands's parents never did anything about our baby teeth when we were kids. However, Ethan was in pain, and the dentist says this is a tooth he should keep for a while. If we pull it, we run the risk of his other teeth spreading out. He fixed it temporarily, but that won't last and it will start hurting again. I can't believe an anesthesiologist costs 600 an hour! I cna't believe how expensive dentalwork has become. As with all of you, I'm sure, we want to do right by our kids, but that seems an awaful lot of money to spend on teeth that will fall out within three years. I was hoping to scrape up enough money o get Ethan in to see Dr. Krigsman some time this year. I'm terrified of the anesthesia part of it. Please, any advice would be appreciated. Thanks, Haven Texas Autism Advocacy www.TexasAutismAdvocacy.org Texas Disability Network Calendar of Events www.TexasAutismAdvocacy.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 We go to the dental clinic at Children's Medical Center in Dallas. They are absolute pros at working with Adam. If you will take documentation (testing evaluation, etc) you can get services through the Grottoes grant, which is a form of the Masonic Lodge. They pay for dental services for developmentaly delayed kids. We have been going for every six months for the last two years and never paid a dime. . They have a financial person you can talk to that should be able to get you hooked up. They had been prescribing Adam a valium to take one hour before his appointment to help with anxiety but his last appointment he went with no medication and they were wonderful working with him and he did super! Holly Don't tell God how big your storm is. Tell the storm how big your God is. > > Rushed our son to the dentist last Thursday with a toothache, and > due to his autism, they say he will have to be put under anesthesia > in order to do what needs to be done to his teeth. These are baby > teeth, and the cost of this is going to be expensive. > > I'm scared about putting him under. I fear he could regress or > worse. I am also wondering about the safety of a stainless steel > cap. I need input from parents who have had similar dental issues > with their child who has autism. > > I would also like to get a second opinion. I would like to hear > from parents in the Dallas area. What dentist do you use for your > child who has autism. > > I like the dentist we went to very well. They were very caring and > patient with Ethan. The dentist is a mercury free, pediatric > dentist. > > The anesthesiologist along with the work is going to cost around > $2400! If we're lucky insurance may cover half, but we don't even > have half, so I don't know what we're going to do. Both my parents > and my husbands's parents never did anything about our baby teeth > when we were kids. However, Ethan was in pain, and the dentist says > this is a tooth he should keep for a while. If we pull it, we run > the risk of his other teeth spreading out. He fixed it temporarily, > but that won't last and it will start hurting again. > > I can't believe an anesthesiologist costs 600 an hour! I cna't > believe how expensive dentalwork has become. As with all of you, > I'm sure, we want to do right by our kids, but that seems an awaful > lot of money to spend on teeth that will fall out within three years. > > I was hoping to scrape up enough money o get Ethan in to see Dr. > Krigsman some time this year. > > I'm terrified of the anesthesia part of it. Please, any advice > would be appreciated. > > Thanks, > > Haven > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 My jason has been under twice for fillings the second time the denist argude with me about putting him under but he did it anyway then he said he was glad we did it that a way cause he found more and was about to fix it with out a squirmy kid he saw stuff he didn't in the examine. Leigh Mom26children@... wrote: Hi, My 5 year old severely autistic son just underwent dental surgery yesterday morning. This is his second time. He has 4 stainless caps. He loves to eat rocks, which tear his teeth up. We try to stop him, but even with a full-time aide at school, he is too quick. He has undergone anesthesia 3 times. 2 for dental surgery and 1 for a broken arm. He came out unscathed all 3 times. You would never have known anything happened to him. He is non-verbal and was just as happy as before. When the teeth hurt, it makes them miserable. He is much happier with healthier teeth. They did all of Kiernan's fillings, his caps, and his flouride treatment. It took about an hour and 1/2 total time. I hope this helps with any worries you have. Jeanette Please help! Rushed our son to the dentist last Thursday with a toothache, and due to his autism, they say he will have to be put under anesthesia in order to do what needs to be done to his teeth. These are baby teeth, and the cost of this is going to be expensive. I'm scared about putting him under. I fear he could regress or worse. I am also wondering about the safety of a stainless steel cap. I need input from parents who have had similar dental issues with their child who has autism. I would also like to get a second opinion. I would like to hear from parents in the Dallas area. What dentist do you use for your child who has autism. I like the dentist we went to very well. They were very caring and patient with Ethan. The dentist is a mercury free, pediatric dentist. The anesthesiologist along with the work is going to cost around $2400! If we're lucky insurance may cover half, but we don't even have half, so I don't know what we're going to do. Both my parents and my husbands's parents never did anything about our baby teeth when we were kids. However, Ethan was in pain, and the dentist says this is a tooth he should keep for a while. If we pull it, we run the risk of his other teeth spreading out. He fixed it temporarily, but that won't last and it will start hurting again. I can't believe an anesthesiologist costs 600 an hour! I cna't believe how expensive dentalwork has become. As with all of you, I'm sure, we want to do right by our kids, but that seems an awaful lot of money to spend on teeth that will fall out within three years. I was hoping to scrape up enough money o get Ethan in to see Dr. Krigsman some time this year. I'm terrified of the anesthesia part of it. Please, any advice would be appreciated. Thanks, Haven Texas Autism Advocacy www.TexasAutismAdvocacy.org Texas Disability Network Calendar of Events www.TexasAutismAdvocacy.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 We too have been to the dental clinic at Children's. I wish we had discovered it sooner. My son has been under anesthesia for dental work three times now (only once at Children's). He also went under one other time strictly to have two teeth pulled by an oral surgeon (they were stubborn baby teeth that were not coming out). Our experience at Children's was great and we too are covered under the Grottoes grant. This is great since the other times, we had to fight to get our insurance to cover it!!! The anesthesia part has been fine. I was really nervous the first time, but each time has been easier. For a lot of our kids, that is the only way to have the work done. My son has not had any problems and bounces right back pretty quickly. The only caution I have is this. When we had the two teeth pulled, they gave him anesthesia and also novacaine for numbing of the area. Well the anesthesia wore off quicker than the novacaine and my son scraped all the skin off his top lip trying to understand/deal with the numbness and then getting feeling back!!!! It was pretty nasty looking for a few days. This last time, I asked the dentist not to numb his mouth. Tanner has a pretty high tolerance for pain and I knew he would be okay with tylenol afterward. The dentist agreed with me and Tanner did great afterwards. They pulled 6 baby teeth and he didn't seem to have too much discomfort. Also, he had two steel crowns for about 3 years and did fine with them. Even though he couldn't have starburts and skittles - which were probably the reason for the crowns in the first place!!!! Good luck! Beth mom to Tanner, age 10 > > > > Rushed our son to the dentist last Thursday with a toothache, and > > due to his autism, they say he will have to be put under > anesthesia > > in order to do what needs to be done to his teeth. These are baby > > teeth, and the cost of this is going to be expensive. > > > > I'm scared about putting him under. I fear he could regress or > > worse. I am also wondering about the safety of a stainless steel > > cap. I need input from parents who have had similar dental issues > > with their child who has autism. > > > > I would also like to get a second opinion. I would like to hear > > from parents in the Dallas area. What dentist do you use for your > > child who has autism. > > > > I like the dentist we went to very well. They were very caring > and > > patient with Ethan. The dentist is a mercury free, pediatric > > dentist. > > > > The anesthesiologist along with the work is going to cost around > > $2400! If we're lucky insurance may cover half, but we don't even > > have half, so I don't know what we're going to do. Both my > parents > > and my husbands's parents never did anything about our baby teeth > > when we were kids. However, Ethan was in pain, and the dentist > says > > this is a tooth he should keep for a while. If we pull it, we run > > the risk of his other teeth spreading out. He fixed it > temporarily, > > but that won't last and it will start hurting again. > > > > I can't believe an anesthesiologist costs 600 an hour! I cna't > > believe how expensive dentalwork has become. As with all of you, > > I'm sure, we want to do right by our kids, but that seems an > awaful > > lot of money to spend on teeth that will fall out within three > years. > > > > I was hoping to scrape up enough money o get Ethan in to see Dr. > > Krigsman some time this year. > > > > I'm terrified of the anesthesia part of it. Please, any advice > > would be appreciated. > > > > Thanks, > > > > Haven > > > Quote Link to comment Share on other sites More sharing options...
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