Re: Does Texas have any services?????????????????????//

[Guest guest]

This link will take you to State of the States for developmental disabilities.

It's a wonderul look into what each state spends annually on developmental

disabilities and services. You can even request a copy of it and they will mail

it to you.

http://www.cu.edu/Institute/stateofthestates/

Another great link is: http://www.ucp.org/medicaid/

This will give you the top ten list and top ten worst list of states that

provide medicaid services. Guess what? Texas is DEAD LAST!

So, if you have the time, you can compare these two links and then get a

pretty good idea as to which states provide more services.

I understand your frustration, I spend a lot of my time thinking about which

state I plan on moving to and which one will best benefit my son and his future.

Hang in There and Good Luck,

Shaun Ipock

ten_miles_from_hell wrote:

I'm sooooo frustrated with the state of Texas.( I could scream!!!!)

My son receives NO services. He's on the 12 year list. Is there

anything else out there? I cannot believe it takes that long to get

any services. How can the state of Texas get away with providing no

services.????

He needed temporary residental placement. There were NO beds available

in all of Texas.

Is there any state out there that provides services, with out a 12

year wait????? I'm ready to move, take a drastic pay & life style cut.

Help. Pam

Texas Autism Advocacy

www.TexasAutismAdvocacy.org

Texas Disability Network

Calendar of Events

www.TexasAutismAdvocacy.org

[Guest guest]

i totally understand and i guess i can say that it's worse when your

in a small rural town like mine..but i went to my local MHMR... &

they actually requested info from both my children & i already did

an intake..by the end of the week they will do an assessment on him

then i will get my services...

they did provide resources ..but they were dead ends since i do not

live in a major city...

Again im sorry to hear of your frustration i feel exactly like you do

Marci

>

> I'm sooooo frustrated with the state of Texas.( I could scream!!!!)

> My son receives NO services. He's on the 12 year list. Is there

> anything else out there? I cannot believe it takes that long to

get

> any services. How can the state of Texas get away with providing

no

> services.????

> He needed temporary residental placement. There were NO beds

available

> in all of Texas.

> Is there any state out there that provides services, with out a 12

> year wait????? I'm ready to move, take a drastic pay & life style

cut.

> Help. Pam

>

[Guest guest]

Yes thanks for sending this. Now, find out who your state senator

and representative is and start calling their office.

http://www.capitol.state.tx.us/fyi/fyi.htm

Take your son to see them. Leave him at their office for 30 minutes (at a

parent

meeting in Houston about 15 years ago a group of parents did this to

MHMR officials to get them to not cut their respite. It worked.)

Contact Adelaide Horn, the Commissioner for DADS (Department for Aging and

Disabled)

adelaide.horn@...

http://www.dads.state.tx.us/news_info/executives/dads_org.pdf

http://www.dads.state.tx.us/homepage/horn_commissioner.html

There will be no change in Texas until every legislator and every buearocrat

can put a personal face on this situation called autism.

If there is every going to be any change it's going to have to be

bottom up (parents pushing) and top down (legislators leading)

because most buearocratic service providers in the middle are quite happy

with

themselves doing as little as possible (not the Fort Bend Texana folks--they

truly are working really hard for as many people as they can and DADS is

responding by auditing their program and telling them they spend TOO MUCH on

services!!!). It's an education to go to some of these board meetings and

here themselves pat themselves on the back for what a good job they are

doing.

Oh, that's something else, find out when your local MHMR monthly board

meeting

is and start showing up. If you can't find child care, take your son.

These are public meetings and members of the public are usually allowed time

to speak. Usually, no one shows up.

Hang in there and channel your frustration at the people who can make the

policy changes that will help you. Be the squeaky wheel!!! Good luck.

S.

Does Texas have any

services?????????????????????//

I'm sooooo frustrated with the state of Texas.( I could scream!!!!)

My son receives NO services. He's on the 12 year list. Is there

anything else out there? I cannot believe it takes that long to get

any services. How can the state of Texas get away with providing no

services.????

He needed temporary residental placement. There were NO beds available

in all of Texas.

Is there any state out there that provides services, with out a 12

year wait????? I'm ready to move, take a drastic pay & life style cut.

Help. Pam

Texas Autism Advocacy

www.TexasAutismAdvocacy.org

Texas Disability Network

Calendar of Events

www.TexasAutismAdvocacy.org

[Guest guest]

How old is your son? Tammy

Does Texas have any

services?????????????????????//

I'm sooooo frustrated with the state of Texas.( I could scream!!!!)

My son receives NO services. He's on the 12 year list. Is there

anything else out there? I cannot believe it takes that long to get

any services. How can the state of Texas get away with providing no

services.????

He needed temporary residental placement. There were NO beds available

in all of Texas.

Is there any state out there that provides services, with out a 12

year wait????? I'm ready to move, take a drastic pay & life style cut.

Help. Pam

Texas Autism Advocacy

www.TexasAutismAdvocacy.org

Texas Disability Network

Calendar of Events

www.TexasAutismAdvocacy.org

[Guest guest]

Thank you so much for sending this. I have my first transition meeting for

my son this month. This just very sad a scary. Tammy

Re: Does Texas have any

services?????????????????????//

This link will take you to State of the States for developmental

disabilities. It's a wonderul look into what each state spends annually on

developmental disabilities and services. You can even request a copy of it

and they will mail it to you.

http://www.cu.edu/Institute/stateofthestates/

Another great link is: http://www.ucp.org/medicaid/

This will give you the top ten list and top ten worst list of states

that provide medicaid services. Guess what? Texas is DEAD LAST!

So, if you have the time, you can compare these two links and then get a

pretty good idea as to which states provide more services.

I understand your frustration, I spend a lot of my time thinking about

which state I plan on moving to and which one will best benefit my son and

his future.

Hang in There and Good Luck,

Shaun Ipock

ten_miles_from_hell wrote:

I'm sooooo frustrated with the state of Texas.( I could scream!!!!)

My son receives NO services. He's on the 12 year list. Is there

anything else out there? I cannot believe it takes that long to get

any services. How can the state of Texas get away with providing no

services.????

He needed temporary residental placement. There were NO beds available

in all of Texas.

Is there any state out there that provides services, with out a 12

year wait????? I'm ready to move, take a drastic pay & life style cut.

Help. Pam

Texas Autism Advocacy

www.TexasAutismAdvocacy.org

Texas Disability Network

Calendar of Events

www.TexasAutismAdvocacy.org

[Guest guest]

Hello to all parents,

I am an educator in a small Texas town and I am just

as frustrated as you all are. I have over 200 hours of

autism training and a master's degree in special

education and my hands are tied. I have never been so

disappointed in an education system as I have been in

Texas. I spent 12 years in New Mexico and they are far

more advanced in the education of special needs

children than Texas ever will be. I will be starting

my own consulting business hopefully in the next few

months, so I provide the help and education for

children with autism and developmental disabilities

and their parents. I am so sorry that Texas is at the

bottom of the list when it comes to serving children

with special needs. I will pray for you all.

Valarie

--- Tammy Doyle wrote:

> How old is your son? Tammy

> Does Texas have

> any

> services?????????????????????//

>

>

> I'm sooooo frustrated with the state of Texas.( I

> could scream!!!!)

> My son receives NO services. He's on the 12 year

> list. Is there

> anything else out there? I cannot believe it takes

> that long to get

> any services. How can the state of Texas get away

> with providing no

> services.????

> He needed temporary residental placement. There

> were NO beds available

> in all of Texas.

> Is there any state out there that provides

> services, with out a 12

> year wait????? I'm ready to move, take a drastic

> pay & life style cut.

> Help. Pam

>

>

>

>

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

>

>

>

>

[Guest guest]

If I left my son. They ( the state, police and or CPS) would charge

me with abandment. I couldn't even leave him when he was in the

hospital. One partent had to be with him at all times. We had to

move in, but the hospital provided NOT food, breaks or drinks for

the parent(s).

>

> Yes thanks for sending this. Now, find out who your state senator

> and representative is and start calling their office.

> http://www.capitol.state.tx.us/fyi/fyi.htm

>

> Take your son to see them. Leave him at their office for 30

minutes (at a

> parent

> meeting in Houston about 15 years ago a group of parents did this

to

> MHMR officials to get them to not cut their respite. It worked.)

>

> Contact Adelaide Horn, the Commissioner for DADS (Department for

Aging and

> Disabled)

> adelaide.horn@...

> http://www.dads.state.tx.us/news_info/executives/dads_org.pdf

> http://www.dads.state.tx.us/homepage/horn_commissioner.html

>

> There will be no change in Texas until every legislator and every

buearocrat

> can put a personal face on this situation called autism.

>

> If there is every going to be any change it's going to have to be

> bottom up (parents pushing) and top down (legislators leading)

> because most buearocratic service providers in the middle are

quite happy

> with

> themselves doing as little as possible (not the Fort Bend Texana

folks--they

> truly are working really hard for as many people as they can and

DADS is

> responding by auditing their program and telling them they spend

TOO MUCH on

> services!!!). It's an education to go to some of these board

meetings and

> here themselves pat themselves on the back for what a good job

they are

> doing.

>

> Oh, that's something else, find out when your local MHMR monthly

board

> meeting

> is and start showing up. If you can't find child care, take your

son.

> These are public meetings and members of the public are usually

allowed time

> to speak. Usually, no one shows up.

>

> Hang in there and channel your frustration at the people who can

make the

> policy changes that will help you. Be the squeaky wheel!!! Good

luck.

> S.

>

> Does Texas have any

> services?????????????????????//

>

>

> I'm sooooo frustrated with the state of Texas.( I could scream!!!!)

> My son receives NO services. He's on the 12 year list. Is there

> anything else out there? I cannot believe it takes that long to get

> any services. How can the state of Texas get away with providing no

> services.????

> He needed temporary residental placement. There were NO beds

available

> in all of Texas.

> Is there any state out there that provides services, with out a 12

> year wait????? I'm ready to move, take a drastic pay & life style

cut.

> Help. Pam

>

>

>

>

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

>

[Guest guest]

I know this will not serve as immediate relief to you, but I am

involved in a suit against the state over the lack of medicaid waiver

programs. You can find information about the suit by doing a google

search of my name. It is coming down to crunch time and so far it

looks promising. The state has tried to have the suit dismissed and

they've failed. They've filed an appeal and I'm going to Austin to

be deposed next Thursday.

It is my understanding that by April there should be a ruling and it

looks very promising for us (the families). We're hoping they are

ordered to allocate enough funding to remove waiting lists.

In the meanwhile the only immediate funding that may be available to

you, may have to come from In-home and family support through your

local MHMR or MRA depending on what region you live in. This will

provide you with 2500, there may be a co-pay depending on your income

level that will be deducted from the 2500 and it will be disburse

depending on your expenditure. This fund does cover Behavior

Therapy, home modification, safety equipment, respite and other

supports. Your local MHMR representative should be able to tell you

if they have any funding left for the fiscal year and how to apply.

Be very persistent and let them know about all the waiting lists your

son is on.

If you have any questions feel free to e-mail privately.

Sincerely,

Arzu Forough

On Mar 17, 2006, at 4:53 PM, Texas-Autism-Advocacy

wrote:

> " ten_miles_from_hell "

> Subject: Re: Does Texas have any services?????????????????????//

>

> If I left my son. They ( the state, police and or CPS) would charge

> me with abandment. I couldn't even leave him when he was in the

> hospital. One partent had to be with him at all times. We had to

> move in, but the hospital provided NOT food, breaks or drinks for

> the parent(s).

>

>

>>

>> Yes thanks for sending this. Now, find out who your state senator

>> and representative is and start calling their office.

>> http://www.capitol.state.tx.us/fyi/fyi.htm