Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Martha we applaud your efforts to make a difference for your child and everyone else's --- no matter how old or young that child is! Believe me - folks in Austin know about the adults with autism as well as adults with disabilities in general. I know that I make sure of that in every meeting I go to in Austin and in just about every letter to my Senator or Representative - I mention that it does not get any better when these " children " become " adults. " What happens after 21, continued learning, continued education, transportation to get there, supported employment, housing when I'm no longer alive (EGADS) - etc.... It will just take ALL of us writing and calling and making a difference in that respect. Or at least making known our concerns. What they do about it in Austin is not so much in our control -- but making our concerns known - often - IS in our control. And actually - we do have alot of control. We just need to unite it. They work for us - we vote them in or vote them out. If we each got our circle (family, friends, therapists, etc) to all write in and share concerns - etc... That's alot of numbers..... Anyway... And also - those of you now on CLASS and are having trouble with agencies, providers, paperwork -- you need to let DADS know those concerns too! This is the time the departments are making their " agenda's " for the upcoming session. Get those letters to them! Sincerely, Guppy mmoyer wrote: You all can ask for special help through the schools but we with adults have few resources. M. Guppy - What we do for ourselves lasts only a moment; but what we do for others ~ lasts a lifetime... Don't tell God how big your storm is, tell the storm how big your God is! Listowner & Facilitator of: www.TexasAutismAdvocacy.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 I never knew there are a lot of parents/caretakers out there with Adults with Autism... I just so frustrated and starting to realize that my oldest son will be with me indefinitely. I always dream that someday I can actually be able to time alone on a vacation..Ha.ha. I am trying to be sarcastic but everyday, it seems like I have more challenges in front of me.. Pretty soon, my younger who is 16 with Asperger Syndrome/with ADD/with anxiety attacks who cannot stay away from his home and his space in his room will be turning 18 soon. Both of them has a rigid schedule that creates such turmoil if any sudden change may occur without proper notice. I guess, more than anything, I am tired and burned out, too. I am just wooried that Autistic Adults are not being served accordingly. This is a very scary problem we are facing. Like alot of parents, I have used most of my resouces to help both of my sons, alone. Elaine mmoyer wrote: You all can ask for special help through the schools but we with adults have few resources. Trish is just about burned out with the lack of help she is getting from HCS. I am working as hard as I can to find help for adults but I am running into few resources for them. And, I am just about burned out trying to help MY son. I got a call a few days ago from another parent who has quietly been fostering her child and the 45 year old " child " just had a massive bowel impaction. The doctors in the hospital didn't have a clue about how to deal with someone with autism. I hope that young man doesn't end up with paralyzed bowels just like my son. I am beginning to see the pattern...if you all can't solve the toileting issue for your children then this horrible bowel thing progresses. Every adult with autism that I know has bowel issues! I don't think you can really solve toileting issues...it is scary to think about! We are just now realizing how big this bowel thing is... I have spent my life trying to care for my son, now age 32, with autism. Due to his violence at the age of 13 the state created the perspective payment program which turned into HCS when the state put those PPP funds into a matching fund program so more HCS slots could be created. I don't get a cent to help support my son's needs so I am putting out money to get someone to come once a week and do something with him for one hour in the dayhab. I am told that when she comes that all of the disabled of that section crowd around her because they are eager for attention and want to learn and contribute. You don't think there are many adults out there but you all are WRONG. There are hundreds of unserved adults just in this area. In the past special ed made sure that parents never knew each other. I can remember going to an open house and being told to go home because all the teachers of the disabled were helping out with the normal children in THEIR open house. Can you imagine how I felt then? Well, it is not much different for lots of us out there. There's the Asperger girl who can't work because she needs support. A bright girl but no one will help her get the support she needs. Ticket to Work is a JOKE! How many of you with adults know people with autism or asperger who have worked out successfully with Ticket to Work? I have tried to create a yahoo site for those serving adults with autism but adults are a fulltime job...and I fear that many parents of these persons have not learned computer skills. Have any of you thought about that? Many senior citizens have never dared to turn on a computer. I am fortunate to have a younger computer-literate son who taught me. I am here in San to serve and I will not stop until I die. I feel that all of us are here on earth for a purpose and it is broader than serving just one person with autism. I just am angry too that it seems like the issues of adults don't seem important these days. Martha ---------- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.15.4/255 - Release Date: 2/9/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 I can ask for special help through the school until I am blue in the face, but if they don't even accept the private diagnosis (2 of them) and their own evaluation says my son is " normal " with " quirky " behaviors, than I'm just wasting my time. I've had to do everything on my own, except for speech therapy. I've done everything else, by educating myself and being a member of lists like these and asking others what works and what doesn't and trying it with my son. And he's only 5. I have a long way to go. Anne -- Adults with Autism You all can ask for special help through the schools but we with adults have few resources. Quote Link to comment Share on other sites More sharing options...
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