More about adults

[Guest guest]

Yes, we with adults need to unite. The people with autism get " old " before they

leave school because at a certain point the schools look at your individual as

being close to not being their responsibility. You all have to realize that

teachers really do not know the adult issues. And, no one really does until

they are enveloped with such matters. I will try and share this world with all

of you from time to time so you can talk to your school people about

preparation.

Meanwhile, most of us with adults will continue to battle what faces us. What

we really need is an Adult Autism Medicaid Waiver. I am learning that adults do

much better if they can have individual attention like mine. It can be done if

the state will allow money following the person. I am in contact with DADS now

and trying to give them a vision. They often are much like the teachers in

their knowledge of adults--I am seeing this now. I was able to do what I have

started to do with housing by starting the PPP program and having that and HCS,

as well, long enough to have money for this current living arrangement. It

would not have happened, otherwise.

What makes it hard for all of you to do this is that start up funds are

needed...you know for the kitchen ware, the furniture, and the items needed to

furnish an apartment. Unless, you are well to do then it is hard to do this

start up yourself. But if you are good at asking for items from the community

then you might just get it done. It all takes planning and work. It IS possible

even now with HCS.

I am fortunate that Seth does have HCS but when you start to be an innovator

then the agencies just aren't able to help much because they are into money

making and their business not the " business " you have in mind, the business of

preparing for care of your individual when you are no longer able to be there.

That is where I am coming from.

Just sharing a little with you all.

Martha

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