Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 That is completely understandable! Go with your " Mommy gut instinct " !! You are the expert on your child!! Does your child receive any related services? Kristi Anne wrote: You have a good point. I just think it would be more accurate after the summer, because all the interventions they are using in Pre-K are working and his teacher says he has gotten to the point that on any given day you could walk in and not tell he is different than any other kid, and I think after a summer of being at home, he will show more of the behaviors that he does here that I am concerned about. I think if they do an evaluation now, they are going to come back with what a " normal " kid he is and dismiss him from special services. And then next year when he's in kindergarten and doesn't have a picture schedule, or prewarning of changes, or have the teacher walk next to him when they leave the room, I just have a bad feeling about what's going to happen. Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Only speech, and I think they are going to try to pull him out of it. Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 How old is your son? He is diagnosed with autism, correct? Kristi Anne wrote: Only speech, and I think they are going to try to pull him out of it. Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 He'll be 6 in September, and he was diagnosed by a child psychologist as having PDD-NOS, which the school district does not accept, because their evaluation said that he didn't meet the requirements for an autism spectrum disorder. Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 And yet they are using picture schedules with him? Interesting that he doesn't meet the criteria but they are using the same strategies with him that they would use with a child with Autism. Do you think he is communicating at a 6 year old level? Is he socializing at a 6 year old level? How long ago was he evaluated by the school for Autism? What school district are you in if you don't mind me asking? Kristi Anne wrote: He'll be 6 in September, and he was diagnosed by a child psychologist as having PDD-NOS, which the school district does not accept, because their evaluation said that he didn't meet the requirements for an autism spectrum disorder. Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 I KNOW WHAT YOU ARE SAYING and believe me when I say, it is nothing I haven t thought A MILLION times. The exact strategies that they are using are repeating and explaining instructions to insure understanding " , " visual aids and picture schedule for daily routine " , " prewarning for changes in routine " " social stories for unusual changes " ... And manage behavior by providing frequent eye contact. The day we added those to the ARD, I came home and sat down and thought to myself, Oh my God, what am I dealing with here? And then yesterday when I talked to the guy AT the SPECIAL ED services, and he told me Asperger Syndrome wasn't included in special education, I didn't know whether to laugh or to cry. When I told my husband about it, the exact phrasing I used was, " I am dealing with f-ing idiots. " Only, I didn't say f-ing, I said THE word. And that word doesn't come out of my mouth very often. At least the kids were in bed. I feel like I am beating a dead horse. I even told the guy on the phone, " You know what? It is more frustrating for me to deal with the system than it is for me to deal with my special needs son. " Because we live in such a rural area, I'm not comfortable with naming the district, but it's in region 12, near Waco. I think his speech has come along beautifully. He's a very precocious little talker now, and you are lucky if you can get a word in edgewise. His teacher told me that he will come up to her desk and just start talking to her and she knows he would stand there and talk all day if she let him. And he'll always start with, " I have something to tell you, " and then he'll see something in the room and start with that. I'm not so sure about his socializing. Everything I see, I would say no, but his teacher, whom is just about the only person that I DO trust, says that he is fitting in with the other kids and doing what the others do. But that picking up and mocking behaviors is something Asperger kids do, isn't it? In order to be like everyone else, they just act like everyone else to fit in? He does have the diagnosis of PDD-NOS, but I think Asperger fits him better. He was evaluated (for autism) by the school district in January of 04, and diagnosed by the psychologist in March of 05. I've been fighting them over this since November of 03. But I am just the mother, and what do I know? Apparently, according to the guy at the special ed office, it is perfectly normal for a 5 year old to walk up to a stranger and place his hands on her boobs and start talking to her. And it's perfectly normal for a 5 year old to run off from their parents while sitting down to dinner at a restaurant. And it's perfectly normal for a 5 year old to not make eye contact with you. ~sarcasm off~ Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 I dunno Anne; I would be careful about declining any speech services if they are trying to scrape you off their shoes to begin with. I wish you could come for the 2nd day of 's Law in FW. And yet, you don't really HAVE to have a diagnosis for services?!?!? If it walks like a duck, and quacks like a duck, ... I wish I had a better thought for you. > My son is up for re-evaluation in August, but they want to do it before > the > end of the school year this year. I don't agree. Is there any way to keep > them from doing the re-evaluation before August? > > Anne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 First of all, the person that told you Aspergers doesn't fall under the special ed criteria for Autism is ABSOLUTELY WRONG!!!! As you and I know, Asperger's falls on the Autism Spectrum as does PDD-NOS and therefore his label would be AU (autism). My nephew has PDD-NOS only because he didn't meet all the criteria for Autism but met some of them and his label on his IEP is AU. He is only 4 years old so an IQ test at this point wouldn't be very accurate but he's already reading!! I can tell you his label will be Asperger's when he is old enough to test. The child is a genius! I'm not biased or anything!! hehehhe I am also a special education teacher in the DFW area and teach children with ASD. Asperger's DOES meet the criteria for AU! Also, the difference between an child with Asperger's and a child with Autism is IQ. A child is labeled Asperger's when they have an average to above average IQ. That is really the only difference. Children with Asperger's will often exhibit the same behavioral characteristics of a child with Autism. As you know, no children on the ASD spectrum are going to behave or exhibit behaviors in exactly the same way. However, there will be many similarities! Children with Asperger's can and often do mimic their peers. I have a student that has Asperger's and he often will repeatedly recite movie clips. Right now he is stuck on Spaceballs! He will sing the song " Hello my baby, Hello my darling, Hello my Sweetie Pie " all day long!!! He's a real character! Have you considered contacting Advocacy Inc. in your area to help you with this? Also, since they are going to re-evaluate him, request, in writing, that they do another AU assessment. The reason the school district did not accept your outside diagnosis is because IDEA specifically states that an AU assessment must be conducted by a multi-disciplinary team and that team must determine whether or not the child qualifies as a child with AU. This is the only way they could legally service your child with that specific label. The multi-disciplinary team consists of the educational diagnostician, LSSP, and Speech. A school district can take your outside diagnosis into consideration and possibly use it as part of the evaluation but are required by law to conduct their own multi-disciplinary assessment. I hope this helps you!! I recommend you trying to contact an advocacy agency or someone that knows sped law well to be with you at his next ARD. REMEMBER: DON'T sign ANYTHING until you have thoroughly read and understand what you are signing!! They are required by law to explain anything and everything to you! Don't be afraid to ask questions and take copious notes. Then take all that info back with you and double check it with the law! Kristi Anne wrote: I KNOW WHAT YOU ARE SAYING and believe me when I say, it is nothing I haven t thought A MILLION times. The exact strategies that they are using are repeating and explaining instructions to insure understanding " , " visual aids and picture schedule for daily routine " , " prewarning for changes in routine " " social stories for unusual changes " ... And manage behavior by providing frequent eye contact. The day we added those to the ARD, I came home and sat down and thought to myself, Oh my God, what am I dealing with here? And then yesterday when I talked to the guy AT the SPECIAL ED services, and he told me Asperger Syndrome wasn't included in special education, I didn't know whether to laugh or to cry. When I told my husband about it, the exact phrasing I used was, " I am dealing with f-ing idiots. " Only, I didn't say f-ing, I said THE word. And that word doesn't come out of my mouth very often. At least the kids were in bed. I feel like I am beating a dead horse. I even told the guy on the phone, " You know what? It is more frustrating for me to deal with the system than it is for me to deal with my special needs son. " Because we live in such a rural area, I'm not comfortable with naming the district, but it's in region 12, near Waco. I think his speech has come along beautifully. He's a very precocious little talker now, and you are lucky if you can get a word in edgewise. His teacher told me that he will come up to her desk and just start talking to her and she knows he would stand there and talk all day if she let him. And he'll always start with, " I have something to tell you, " and then he'll see something in the room and start with that. I'm not so sure about his socializing. Everything I see, I would say no, but his teacher, whom is just about the only person that I DO trust, says that he is fitting in with the other kids and doing what the others do. But that picking up and mocking behaviors is something Asperger kids do, isn't it? In order to be like everyone else, they just act like everyone else to fit in? He does have the diagnosis of PDD-NOS, but I think Asperger fits him better. He was evaluated (for autism) by the school district in January of 04, and diagnosed by the psychologist in March of 05. I've been fighting them over this since November of 03. But I am just the mother, and what do I know? Apparently, according to the guy at the special ed office, it is perfectly normal for a 5 year old to walk up to a stranger and place his hands on her boobs and start talking to her. And it's perfectly normal for a 5 year old to run off from their parents while sitting down to dinner at a restaurant. And it's perfectly normal for a 5 year old to not make eye contact with you. ~sarcasm off~ Anne -- Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 I feel your pain and frustration - we've been in your same shoes. We live in Katy and I've had to hire an advocate, do you have access to one where you live? It helped having someone who knew how to use the lingo and be on my side. lisa Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Hmmmmm, well it seems that school define Asperger's differently than the DSM IV. By definition, a child has autism, regardless of the IQ that he eventually develops, when the condition manifest before the age of 3 AND there is a speech delay impairment in communicative ability, impairment in social relatednes (interactions), excessive rigidity in routine (which is usually accompanied by unusual use of objects). Asperger's has NO speech delay--in fact these children talk and have always talked excessively. Words are their lifeline. There have been studies looking at kids with " high functioning " autism and Asperger's and can't really find too much difference between the two. To really tell the difference may be splitting hairs. According to IDEA, if a child has a disability that adversely affects academic performance, then the child qualifies under IDEA and needs an IEP. So the question needs to be, does the child have a disability? Well, the school psychologist seemed to think that he had a disability. Does this disability impair his ability to learn and his academic performance? Then he needs re-evals and IEPs. Also, there is going to be a slaw boot camp in Austin in August. I HIGHLY recommend that you go if you've had to fight them this hard for three years. It sounds like things might be getting to a crisis and you need to nip it before it gets that far. S. Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Yes, school districts define things differently than the DSM IV. Reason being is that school districts cannot " diagnose " and therefore have their own defining criteria! The DSM IV is the medical model and schools don't follow the medical model. You are correct about Asperger's kiddos not having difficulty with talking. They are often VERY verbal, however, not all of them are verbal. However, being verbal and being able to communicate are two very different things. This is where the communication difficulties come in and this is who it falls under ASD. Kristi Singleton wrote: Hmmmmm, well it seems that school define Asperger's differently than the DSM IV. By definition, a child has autism, regardless of the IQ that he eventually develops, when the condition manifest before the age of 3 AND there is a speech delay impairment in communicative ability, impairment in social relatednes (interactions), excessive rigidity in routine (which is usually accompanied by unusual use of objects). Asperger's has NO speech delay--in fact these children talk and have always talked excessively. Words are their lifeline. There have been studies looking at kids with " high functioning " autism and Asperger's and can't really find too much difference between the two. To really tell the difference may be splitting hairs. According to IDEA, if a child has a disability that adversely affects academic performance, then the child qualifies under IDEA and needs an IEP. So the question needs to be, does the child have a disability? Well, the school psychologist seemed to think that he had a disability. Does this disability impair his ability to learn and his academic performance? Then he needs re-evals and IEPs. Also, there is going to be a slaw boot camp in Austin in August. I HIGHLY recommend that you go if you've had to fight them this hard for three years. It sounds like things might be getting to a crisis and you need to nip it before it gets that far. S. Re: Re-evaluation question You have to sign consent for them to re-evaluate him. Don't sign the paperwork if you don't want him assessed prior to August. However, if you wait until August to sign the paperwork, they will be in a time crunch to re-evaluate your son. They are not going to want to be out of compliance timeline wise. Also, if you wait, then he will have a rushed re-evaluation (so they can meet the timeline of an August re-eval) and then you won't have a good picture of where he is functioning. Just a few things to think about! Kristi Anne wrote: My son is up for re-evaluation in August, but they want to do it before the end of the school year this year. I don't agree. Is there any way to keep them from doing the re-evaluation before August? Anne Quote Link to comment Share on other sites More sharing options...
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