RE: looking for developmental ped in San area

[Guest guest]

You really don't need a dev ped. to diagnose your son. A pediatric

Neurologist can do that as well.

looking for developmental ped in San

area

> Is there such a thing as a dev. ped who doesn't specialize in autism??

> Last week I

> had a doctor tell me that she refers to children like my son (who is not

> on the

> spectrum) as Aspie wannabes. (No offense to parents or anyone with

> Aspergers but my

> husband & I don't think it's something to aspire to...grr) So is there a

> developmental ped in the San area who actually sees patients who

> don't have

> autism, or don't aspire to have autism??

>

> BTW this same doctor last week said Austin " lost " thier developmental ped.

> Sorry

> Trina.

>

> Love,

>

> Diane.

> http://babiesonline.com/babies/e/evankyle

>

> __________________________________________________

>

[Guest guest]

--- ginam wrote:

> You really don't need a dev ped. to diagnose your son. A pediatric

> Neurologist can do that as well.

Well he has a diagnosis; hypotonia (possibly CP), hyperflexible joints,

dyspraxia, and

sensory issues. The neurologist we saw totally ignored his neurological issues

and

said PDD-NOS which we don't agree even exists... We had him evaluated at TCART

(they're gone) and we're just looking for someone to do program management and

provide

recomendations for his first IEP coming up...

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

This is not for a diagnosis of autism and it's not for me. This is for a

neighbor who has a child that she is concerned about. Could be PDD could be

ADHD could be anything but she's...interesting. Is the closest DP in

San and did she work in Austin before? Any advice on who to see would

be great. I don't think this parent is ready to go to a ped neurologist that

would be admitting something is wrong.

Re: looking for developmental ped in San

area

You really don't need a dev ped. to diagnose your son. A pediatric

Neurologist can do that as well.

looking for developmental ped in San

area

> Is there such a thing as a dev. ped who doesn't specialize in autism??

> Last week I

> had a doctor tell me that she refers to children like my son (who is not

> on the

> spectrum) as Aspie wannabes. (No offense to parents or anyone with

> Aspergers but my

> husband & I don't think it's something to aspire to...grr) So is there a

> developmental ped in the San area who actually sees patients who

> don't have

> autism, or don't aspire to have autism??

>

> BTW this same doctor last week said Austin " lost " thier developmental ped.

> Sorry

> Trina.

>

> Love,

>

> Diane.

> http://babiesonline.com/babies/e/evankyle

>

> __________________________________________________

>

[Guest guest]

If you go to: www.autism-society.org/chapter252 , on the home page you can

access two resource guides will information on San developmental

pediatricians. FYI-Dr. Fiero is no longer accepting new patients. The resource

guides are listed under documents where they can be downloaded.

I hope this helps,

Shaun Ipock

Diane Vaughn wrote:

--- ginam wrote:

> You really don't need a dev ped. to diagnose your son. A pediatric

> Neurologist can do that as well.

Well he has a diagnosis; hypotonia (possibly CP), hyperflexible joints,

dyspraxia, and

sensory issues. The neurologist we saw totally ignored his neurological issues

and

said PDD-NOS which we don't agree even exists... We had him evaluated at TCART

(they're gone) and we're just looking for someone to do program management and

provide

recomendations for his first IEP coming up...

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

The Village of Hope is a wonderful diagnostic clinic that works with all

disabilities, and they are in the resource guides on our website, under

Documents.

www.autism-society.org/chapter252

Good Luck!

Shaun

Diane Vaughn wrote:

Is there such a thing as a dev. ped who doesn't specialize in autism?? Last

week I

had a doctor tell me that she refers to children like my son (who is not on the

spectrum) as Aspie wannabes. (No offense to parents or anyone with Aspergers but

my

husband & I don't think it's something to aspire to...grr) So is there a

developmental ped in the San area who actually sees patients who don't

have

autism, or don't aspire to have autism??

BTW this same doctor last week said Austin " lost " thier developmental ped.

Sorry

Trina.

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

I have followed some of this and I would suggest either a pediatric neurologist

or, if there are behavioral issues involved perhaps a ped. psych. Now, one of

the posts indicated a potential CP, hyperreflexia, etc. Those are neurological

issues and should be seen only by a neuro, IMHO. If they think the child may

have CP, perhaps MRI of the brain could help differentiate. Hope the best for

your friends' child.

Jeff Cunningham, DC

Sulphur Springs, TX

looking for developmental ped in San

area

> Is there such a thing as a dev. ped who doesn't specialize in autism??

> Last week I

> had a doctor tell me that she refers to children like my son (who is not

> on the

> spectrum) as Aspie wannabes. (No offense to parents or anyone with

> Aspergers but my

> husband & I don't think it's something to aspire to...grr) So is there a

> developmental ped in the San area who actually sees patients who

> don't have

> autism, or don't aspire to have autism??

>

> BTW this same doctor last week said Austin " lost " thier developmental ped.

> Sorry

> Trina.

>

> Love,

>

> Diane.

> http://babiesonline.com/babies/e/evankyle

>

> __________________________________________________

>

[Guest guest]

--- Shaunty Ipock wrote:

> The Village of Hope is a wonderful diagnostic clinic that works with all

> disabilities, and they are in the resource guides on our website, under

Documents.

> www.autism-society.org/chapter252

Thanks Mrs. Shaunty. Is that under the ABC resources? I'm looking all over

(even

searched " developmental ped " and I'm not finding it...

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

--- " Jeff Cunningham, DC " wrote:

> I have followed some of this and I would suggest either a pediatric

neurologist or,

> if there are behavioral issues involved perhaps a ped. psych. Now, one of the

posts

> indicated a potential CP, hyperreflexia, etc. Those are neurological issues

and

> should be seen only by a neuro, IMHO. If they think the child may have CP,

perhaps

> MRI of the brain could help differentiate.

Thanks for your input, Jeff. He's taken a little attitude with his PT and OT

lately

but isn't a behavior problem. Although I'd like to have him evaluated for

anxiety.

His MRI was negative. We did see a neuro, he totally ignored the neurological

issues

(AND the MRI) and told us he has PDD-NOS, which he does not... Grr.

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

--- and Trina Sherman wrote:

> This is not for a diagnosis of autism and it's not for me. This is for a

> neighbor who has a child that she is concerned about. Could be PDD could be

> ADHD could be anything but she's...interesting.

Hi Trina~

I SINCERELY apologize for posting about this same topic today!!

I went to a talk the other night which was supposed to be about raising

special-needs

kids and except for a brief mention of CP and the fact that 95% of mothers with

special needs kids are depressed (but she offered no resources!) turned out to

be

mostly on how to have your child diagnosed with autism. The doctor said Austin

has

recently " lost " their developmental ped, and she's seeing more families from

there. I

personally would not go to this dev. ped, nor would I recommend her, for someone

who

is not looking for a diagnosis of autism. She doesn't believe in PDD-NOS, so

every

child is either HFA, AS, classicly autistic, or " Aspie-wannabe " . Good luck in

your search!

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

Why are you so convinced your child does not have PDD? You mentioned

anxiety, an attitude, speech issues, low muscle tone and my PDD child has

all of these things and a clean MRI. My child does not spin anything. He can

talk but has trouble with pronunciation and speed and expressive language.

He gives hugs, he has good eye contact and he plays with a variety of toys.

I'm just not sure why you're afraid of PDD or even something on the autism

spectrum? Why does it make you angry that a doctor of neurology would think

he may have pervasive developmental delay? Walks like a duck; quacks like a

duck might be a duck. It's a catch all diagnosis true, but it's nothing to

be angry about. The symptoms you mention are common in autism. I can see why

you're here. We can help you, PDD/Autism hasn't been the end of our world

just a different one.

Re: looking for developmental ped in San

area

--- " Jeff Cunningham, DC " wrote:

> I have followed some of this and I would suggest either a pediatric

neurologist or,

> if there are behavioral issues involved perhaps a ped. psych. Now, one of

the posts

> indicated a potential CP, hyperreflexia, etc. Those are neurological

issues and

> should be seen only by a neuro, IMHO. If they think the child may have

CP, perhaps

> MRI of the brain could help differentiate.

Thanks for your input, Jeff. He's taken a little attitude with his PT and

OT lately

but isn't a behavior problem. Although I'd like to have him evaluated for

anxiety.

His MRI was negative. We did see a neuro, he totally ignored the

neurological issues

(AND the MRI) and told us he has PDD-NOS, which he does not... Grr.

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

--- and Trina Sherman wrote:

> Why are you so convinced your child does not have PDD? You mentioned

> anxiety, an attitude, speech issues, low muscle tone and my PDD child has

> all of these things and a clean MRI. My child does not spin anything. He can

> talk but has trouble with pronunciation and speed and expressive language.

> He gives hugs, he has good eye contact and he plays with a variety of toys.

> I'm just not sure why you're afraid of PDD or even something on the autism

> spectrum? Why does it make you angry that a doctor of neurology would think

> he may have pervasive developmental delay? Walks like a duck; quacks like a

> duck might be a duck. It's a catch all diagnosis true, but it's nothing to

> be angry about. The symptoms you mention are common in autism. I can see why

> you're here. We can help you, PDD/Autism hasn't been the end of our world

> just a different one.

Hi Trina~

We had Evan evaluated at TCART in San , and THEY were convinced he isn't

on the

autism spectrum. He doesn't have speech issues (except for normal childhood

stuff, he

can't pronounce /l/ or /r/); his attitude isn't aggressive or anything, he's

generally

cooperative, he's just a 65 pound five-year-old who has discovered he doesn't

HAVE to

do everything we ask him to anymore! His anxiety is related to his sensory

issues, he

has gravitational insecurities, he's defensive of his ears so he's afraid of

other

kids screaming or crying. I'm angry about the neuro we saw because we took Evan

there

at 24 months, he wasn't walking, the doctor totally ignored that and said that

because

he wasn't afraid of him (the doctor) that he had PDD-NOS. What crap! I agree

that I

have more in common with parents of children with autism than any other

disabilities

(except perhaps CP). I've kind of felt like Evan has fallen through the cracks,

though, because he's not a neat little puzzle peice. We had an ortho offer to

dx him

with CP but we *thought* we were getting appropriate therapy so we declined, but

now I

find out that DADS has stuff available that I didn't know about so maybe we'll

pursue

that. I'm really just looking for a developmental ped who can help me

coordinate all

this STUFF!

Thanks for listening.

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________

[Guest guest]

WE HAVE BEN TOLD BY MY 5 YRS SON`S ARD [HE IS IN PPCD ] THAT HE HAS [

MODERATE TO SEVERE AUTISM , AND MR ]...BECAUSE HE IS NOT VERY VERBAL.]

WHAT TO DO NEXT???...GO TO THE DOCTOR [ HE TOLD ME ALL ALONG THAT HE WAS OK.

EVEN WHEN I KEPT ASKING WHY HE WASNT UP TO SPEED ]...OR DO I GO TO LAWYER..

..WHAT ABOUT THIS SSI THING? HOW DO YOU APPLY? THANKS FOR ANY IN PUT...MEG

-- RE: looking for developmental ped in San

area

--- and Trina Sherman wrote:

> Why are you so convinced your child does not have PDD? You mentioned

> anxiety, an attitude, speech issues, low muscle tone and my PDD child has

> all of these things and a clean MRI. My child does not spin anything. He

can

> talk but has trouble with pronunciation and speed and expressive language.

> He gives hugs, he has good eye contact and he plays with a variety of toys

> I'm just not sure why you're afraid of PDD or even something on the autism

> spectrum? Why does it make you angry that a doctor of neurology would

think

> he may have pervasive developmental delay? Walks like a duck; quacks like

a

> duck might be a duck. It's a catch all diagnosis true, but it's nothing to

> be angry about. The symptoms you mention are common in autism. I can see

why

> you're here. We can help you, PDD/Autism hasn't been the end of our world

> just a different one.

Hi Trina~

We had Evan evaluated at TCART in San , and THEY were convinced he

isn't on the

autism spectrum. He doesn't have speech issues (except for normal childhood

stuff, he

can't pronounce /l/ or /r/); his attitude isn't aggressive or anything, he's

generally

cooperative, he's just a 65 pound five-year-old who has discovered he doesn

t HAVE to

do everything we ask him to anymore! His anxiety is related to his sensory

issues, he

has gravitational insecurities, he's defensive of his ears so he's afraid of

other

kids screaming or crying. I'm angry about the neuro we saw because we took

Evan there

at 24 months, he wasn't walking, the doctor totally ignored that and said

that because

he wasn't afraid of him (the doctor) that he had PDD-NOS. What crap! I

agree that I

have more in common with parents of children with autism than any other

disabilities

(except perhaps CP). I've kind of felt like Evan has fallen through the

cracks,

though, because he's not a neat little puzzle peice. We had an ortho offer

to dx him

with CP but we *thought* we were getting appropriate therapy so we declined,

but now I

find out that DADS has stuff available that I didn't know about so maybe we

ll pursue

that. I'm really just looking for a developmental ped who can help me

coordinate all

this STUFF!

Thanks for listening.

Love,

Diane.

http://babiesonline.com/babies/e/evankyle

__________________________________________________