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We have some practitioners, like Lee Cowden who does this, and he is 100% all the time.

Yes unfortunately, the last shall be the first, and first last in our kids?

More revelations will come to bare in the next few months..

Please let me know privately who your physician is, as we can send him some further info and put him on our data base and invites out for conferences etc? He can get on our mailing list at www.liafoundation.org

Am I hitting a nerve on this list, or am I endlessly preaching and getting on peoples nerves, tell me? I don't want to sound like a broken record and always off topic. HOWEVER, I do feel that this infection is around HHV6 kids? So, thusly, why I am here..

I will be working with Rosner to write a book on this very subject. I would invite all on the list

to at least rule in or out this infection, and move on from there, it won't hurt to do so. And, when you do so, make sure that you are testing the ENTIRE family if possible. We are finding WHOLE families have this, and I am afraid if one person has it in the family, the others do too. This revelation came to me slowly and obstanitately because I didn't want to hear the ONE MORE THING scenario, causes autism. Unfortunately, as the science collects both personally and educationally and by the best in the business, I am afraid, it is connected, as well as other infections. This is a multiple infection illness, not unlike those who have AIDS. It may be that each feed each others virulence. Even the toxins...

There is such a wide variety of presentations of this illness, it would be hard for the average parent to think borrelia lyme? REMEMBER, a test is a test. It is not a clinical diagnosis. There are a lot of kids with this thing, who have such a poor immune system, that they are not mounting a response. If the physicians are astute enough, they can recognize the symptoms and just treat it to see what happens. Like Valtrex and Mb12, it will have times of, I don't know, should I continue? It's not easy to get rid of. Try every strategy known.

I am personally knowing now, that my kids will get on that recovery wagon, and I know, had I not, they would have gotten worse.

Recent talks with my friend DR Bill Walsh are very frightening folks. People who get up and espouse that autism is not degenerative DON’T have it right! IT IS! If your child is not treated for these infections, if you let them at the devices of oxidative stress with no nutrients going in to their body and actually being absorbed, the brain atrophies. You don't want this. A last year MRI image of my son, was horrible. His entire cerebellum is atrophying. This is not only an autism presentation, this is a LYME presentation. Have abstracts on that, not pretty. This was written in the article I wrote for the Townsend letter in April 2007 (Google it). Later, this year, we did NEUROSPECTS. We continue to see this problem, however, there is some changes. We do have the classic hyperperfusion inflammation brains. It not only found a lyme like presentations, it also showed a toxic one. So, I have to unravel that mess, and find out what we are constantly exposed to, my guess now is mold and pesticides. All of this matters in our kids. Whether we think lyme is a last ditch idea or not, the science will come up and slap us all in the face when we least expect it. What you will begin to understand is the vehicle of transmission and why mothers and fathers are equally sick, and siblings.

Kathy

lyme disease

Well, I took the advice and spoke with my DAN about the possibility of LYME in our family as we all struggle(varying degrees) with metals, yeast, inflammation etc.He, if any of you believe in this, muscle tested and it came out very strong. This along with the symptoms leads him to believe we should test further. Does anyone have experience treating lyme. When I did the research, our son's profile really shouts it out(borrelia infection) but I did not have enough info prior to asking for advice on this site.thanks so much, it would have been the last thing I would have thought of. This may, potentially, help our entire family.Louise

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lyme disease

Well, I took the advice and spoke with my DAN about the possibility of LYME in our family as we all struggle(varying degrees) with metals, yeast, inflammation etc.He, if any of you believe in this, muscle tested and it came out very strong. This along with the symptoms leads him to believe we should test further. Does anyone have experience treating lyme. When I did the research, our son's profile really shouts it out(borrelia infection) but I did not have enough info prior to asking for advice on this site.thanks so much, it would have been the last thing I would have thought of. This may, potentially, help our entire family.Louise

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This is so interesting, my son too does better on antibiotics from

what we remember, it's been awhile, he also has hhv6. My little one

is two and much more advanced than his brother but has some

stimming, tantrums.

Is lyme contagious, I really feel like an idiot here, but I will

have to research more about it? Sad that the DAN docs are not

dealing with this.

>

>

> lyme disease

>

>

> Well, I took the advice and spoke with my DAN about the

possibility of LYME in our

> family as we all struggle(varying degrees) with metals, yeast,

inflammation etc.

> He, if any of you believe in this, muscle tested and it came

out very strong. This along

> with the symptoms leads him to believe we should test further.

Does anyone have

> experience treating lyme. When I did the research, our son's

profile really shouts it

> out(borrelia infection) but I did not have enough info prior

to asking for advice on this

> site.

>

> thanks so much, it would have been the last thing I would have

thought of. This may,

> potentially, help our entire family.

>

> Louise

>

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There is a lot of questions here. Perhaps you can do what a great many already have done, and that is, just call me LOL...? BUT FIRST READ WHAT I TYPED, TO BRING UP TO SPEED and GO TO URL's, that way we can get this going. This is why a book is so necessary at this point, because people are thirsty for real honest information.

I won't bite?

MEANWHILE

RECOMMENDED READING

www.liafoundatino.org go to HOW TO TEST

www.ilads.org - WHY TESTS ARE NOT JIVING

www.igenex.com -

GOOGLE, DR RAY JONES INTERPRETATION OF TESTS.

REMEMBER, the test the CDC put out, were only meant for SURVEILLENACE not a clinical diagnosis.

Tell me all the normal tests your son had, and by what company or lab? Again, do we rely even on those? Do we see the child is suffering in some vain or another and has some physical symptoms?

Controversey abounds. ONE, when they put the lymerix vaccine out, they had to find a way to include everyone to have the shot. So what they did, is they narrowed the bandwidth of the proteins that ARE specific to lyme, to non specific. This stuck. The guidelines STUCK, because frankly, do they care? THe ones that reacted so badly to the vaccine, actually GOT NEUROLOGICAL/ARTHRITIC PRESENTATIONS pretty badly from it, thusly, THEY HAD LYME IN THE FIRST PLACE, but got another whamy? Isn't that great? Kind of reminds me of our current vaccine schedule for our kids..are they going to ignore our kids too? Which ones can, which ones can't?

The best test is IGENEX, because it is a two tiered test WB PCR test. This is considered the GOLD STANDARD-there are others they employ and are quite viable some mor esentive than others. The other tests will be only viable if you have non specific strains, VERY RARE or a RECENT BITE. For our kids, they have DISSEMINATED LONG and ENTRENCHED INFECTIONS. They won't be picked up on our routine labs. Even IGENEX is having a hard time getting our kids positive. BUT MANY ARE. So the take home message is, if you have the clinical symptoms, live in endemic areas, are sick yourself and have a child like this, then I would wonder STRONGLY if you don't have it along with MULITPLE CO INFECTIONS (mycoplasma, HHV6, etc etc)? I have not been wrong 100% of the time with this assumption.

Most of the time an unintentional doctor will say, gee, I don't know what this means? Typically you must find what they call a LYME LITERATE DOCTOR. This means they have attended several conferences put out by ILADS (www.ilads.org ) and are versed on how to detect lyme, EVEN WITHOUT A TEST. But, with the correct test, and with the knowledge of clinical plus diagnostic, then they can assume, treat, see die offs and herxes and pretty much know you have this damn thing. I would not waste my breath and time with someone who doesn't know what they are doing. IT makes a world of difference, just like we parents seek out DAN. Hopefully however, DAN is starting to pick up on this big time, that is our purpose for doing our foundation, to marry both worlds together.

I can read my own lab, but I can't treat myself (only if I do naturals). If I have certain specific outer protein bands of lyme, I have lyme. If I have other bands that are positve, you can go individually on line and read what that band means. For instance I was reading today that a 31 kda, means you had finally made the antibody to a past infection that almost takes a year to produce. WE have found 93kda quite prevelant in our kids, which indicates a long term infection, often congenital. Some have seen 66kda, which is thought to be the bioweaponized version of lyme. Others have seen the outer surface proteins of lyme, which means they have lyme big tme. If you have a +- or equviacal, you can pretty much assume you are TRYING to make an antibody, and the presence of lyme is there, but you really don';t know if it left the building or not. MUCH of the time, when a person has equivocals, a trial of antibiotics makes this become positive. Driving the succors out to serum is the point here, they are burrowers, they like to live in blood vessel walls, get cysts like and repopulate themselves, burrow in brain tissue where there is hardly a good immune surveillance, burrow into bone marrow, etc, sinews, even into our very cells etc.

Here is some immune notable paramaters of lyme - ones I have seen in autism lyme families-

1. HIGH SED RATE

2. ABNORMAL HIGH/LOW CHOLESTEROL along with ABNORMAL HIGH BLOOD PRESSURE, or LOW

3. LOW CD57

4. LOW CD4/8

5. IRON DISORDERS

6. INTRINSIC FACTOR PROBLEMS

7. CONNECTIVE TISSUE PROBLEMS (ALSO IN FAMILY)

8. HYPERGAMMAGLOBULENMIA

9. LOW IgG SUBCLASSES (especially IgG 4)

10. LOW MAGNESIUM and ZINC

11. HIGH COPPER

12. MANY VIRAL/BAC CO INFECTIONS (high HHV6, EBV, CMV, PARVO, STREP, etc)

13. MERCURY POISONED

14. FAMILY HISTORY OF THROMBAPHILIA/C REACTIVE PROTEIN PROBLEMS (heart attacks, strokes)

15. WHEN BABY, POOR MUSCLE TONE

16. FAIULRE TO THRIVE, LARGE HEAD

17. MULITPLE BOUTS OF EAR INFCTIONS

18. UPCHUCK/H PYRLORI

19. MOTHER WAS SICK DURING PREGNANCY

20. ATAXIA

21. HYPERACUSIS

22. EITHER ALWAYS SICK, or NEVER SICK (stuck TH1 and TH2)

23. Food and Environmental Allergies

24. Ringing in Ears, Vertigo, Balance PRoblems

25. Aggressive moments, panic attacks, sereal feelings like your looking at your body and your not in it?

26. Not SLEEPING WELL including at times outbursts at night, sleepwalking, batting at inanmite objects you think are there..

27. DYSLEXIA (in family)

28. IRRITIBILTIY

29. SQUINTING IN SUN/Doesn't like HEAT

30. GETS EASILY OVERSTIMULATED, LOOSE CHAIN OF THOUGHT, DIRECTIONS, BODY IN SPACE

31. MYELIN ANTIBODIES

32. BRAIN ANTIBODIES

33. POOR BLOOD FLOW IN BRAIN (hypoperfusion)

34. ATROPHY of CEREBELLUM

35. CRANIAL NERVE INVOLVEMENT, not only palsy, but BELLS PALSY OF THE GUT (see GOOGLE BELLS PALSY OF THE GUT by SHERR)

36. TURN ON A DIME EMOTIONAL MAKEUP

37. POOR EYE CONTACT

38. WANTING TO BE ALONE

39. SHOOTING PAINS IN HANDS, FEET, NECK, CRICKED NECK, SORE JOINTS, SWOLLEN JOINTS

40. MOTHER HAS FIBRO, CFIDS, HASHIMOTOS THYROIDITIS, history of Rhuamatic FEVERS, BATTLES STREP a lot, MS, ALS, PARKINSONS, CYCLICAL HEADACHES, BAD PMS, OBESITY, ANOREXIA, OCD

41. STAT-1 deficiency, C4B anulle, C3A deficiency, HLA-DR4/HLA-DR2/HLA-B27

42. Have autoimmunity to almost all brain chemicals

43. Have THYROID ISSUES, LOW and HIGH

44. Have self treaters in the family tree, aka ALCOHOLISM, DRUG ABUSE

Most of the natural treatments are on our website. My big thing is to ask parents BUY THE DARN DVD's. It would be like you were there. All of the people there had either mainsteeam or alternaitves. ORDER THE ENTIRE CONFERENCE. I know, it’s a lot of money...but it's worth it..

Also get on our lyme-autism list at www.lyme-autism It is a public list, you can wander through it and get up to speed that way too.

Excuse my mispells, I have a new laptop and am not orienting to the keyboard yet, and I am too tired to go back and check...

..

lyme disease

Well, I took the advice and spoke with my DAN about the possibility of LYME in our family as we all struggle(varying degrees) with metals, yeast, inflammation etc.He, if any of you believe in this, muscle tested and it came out very strong. This along with the symptoms leads him to believe we should test further. Does anyone have experience treating lyme. When I did the research, our son's profile really shouts it out(borrelia infection) but I did not have enough info prior to asking for advice on this site.thanks so much, it would have been the last thing I would have thought of. This may, potentially, help our entire family.Louise

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sorry, one URL won't work, LOL, again, typing on this new board suckswww.liafoundation.org

THERE

Kathy

lyme disease

Well, I took the advice and spoke with my DAN about the possibility of LYME in our family as we all struggle(varying degrees) with metals, yeast, inflammation etc.He, if any of you believe in this, muscle tested and it came out very strong. This along with the symptoms leads him to believe we should test further. Does anyone have experience treating lyme. When I did the research, our son's profile really shouts it out(borrelia infection) but I did not have enough info prior to asking for advice on this site.thanks so much, it would have been the last thing I would have thought of. This may, potentially, help our entire family.Louise

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LAURA

TAKE HOME MESSAGE

GET THE TICK BITE OF OF YOUR HEADS (albeit, someone got bitten)

LYME CAN BE ACQUIRED FROM

PLACENTAL TRANSFER

BREAST MILK

SEMEN

VAGINAL SECRETIONS

MILK SUPPLY (COWS INFCTED WITH LYME UNPASTUERIZED)

MEAT SUPPLY (AGAIN COWS INFCTED, SEE MEDLINE)

BLOOD SUPPLY (NOT SCREENED, this is why I am afraid of IViG and all that)

Some THINK that MYCOPLASMA is AIRBORNE!

TICKS, not the only one that suck our blood

CHIGGERS, LICE, BED BUGS, MOSQUITOS, CAN carry TBD's.

CAT FLEAS SOURCE OF BARTONELLA!

Kathy YIKES!

lyme disease> > > Well, I took the advice and spoke with my DAN about the possibility of LYME in our > family as we all struggle(varying degrees) with metals, yeast, inflammation etc.> He, if any of you believe in this, muscle tested and it came out very strong. This along > with the symptoms leads him to believe we should test further. Does anyone have > experience treating lyme. When I did the research, our son's profile really shouts it > out(borrelia infection) but I did not have enough info prior to asking for advice on this > site.> > thanks so much, it would have been the last thing I would have thought of. This may, > potentially, help our entire family.> > Louise>

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Kathy,

Got it! I am reading up on it alot now, he does have some

symptoms. I will request a test from the lab you mentioned. I want

my son better and will look further into this. Thanks for putting

it out there, DAN dr's. need to deal with this, I've been going a

year now.

Thanks,

> >

> >

> > lyme disease

> >

> >

> > Well, I took the advice and spoke with my DAN about the

> possibility of LYME in our

> > family as we all struggle(varying degrees) with metals, yeast,

> inflammation etc.

> > He, if any of you believe in this, muscle tested and it came

> out very strong. This along

> > with the symptoms leads him to believe we should test further.

> Does anyone have

> > experience treating lyme. When I did the research, our son's

> profile really shouts it

> > out(borrelia infection) but I did not have enough info prior

> to asking for advice on this

> > site.

> >

> > thanks so much, it would have been the last thing I would have

> thought of. This may,

> > potentially, help our entire family.

> >

> > Louise

> >

>

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> BLOOD SUPPLY (NOT SCREENED, this is why I am afraid of IViG and all

> that)

This is the main reason why our Dr. doesn't like IVIG. He says the

risk of getting other illnesses are much higher and he prefers IMIG.

Now, I haven't done that much research on it as we aren't too that

point but I would think IM would still have the same risks??? Know

anything about it?

cheryl

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Years ago, when I went to an infectious guru, he said he had to call back all of his patients in the month previous that they had an undetected MYCOPLASMA/PRION CKD disease in the lot. NO THANKS!

Tell me more about the IMIG? What are the ingredients?

As a threat to the blood supply, the lyme associations thought of a wicked thing? Go give blood knowing your positive, notify them at the end of the day, and tell them, they are not screening for this PROPERLY. WATCH PANIC ENSUE. Maybe then, something will happen.

Note to self, NEVER receive blood in Connecticut or just about surroudning areas if you have a car accident or something. Donated blood is possibly a rich source of this infection.

Kathy

Re: Re: lyme disease

> BLOOD SUPPLY (NOT SCREENED, this is why I am afraid of IViG and all > that)This is the main reason why our Dr. doesn't like IVIG. He says the risk of getting other illnesses are much higher and he prefers IMIG. Now, I haven't done that much research on it as we aren't too that point but I would think IM would still have the same risks??? Know anything about it?cheryl

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Honestly, I don't know what the ingredients are but I would guess it's similar to IVIG since it's still immunoglobulins just intramuscular instead of intravenous.CherylYears ago, when I went to an infectious guru, he said he had to call back all of his patients in the month previous that they had an undetected MYCOPLASMA/PRION CKD disease in the lot.  NO THANKS! Tell me more about the IMIG?  What are the ingredients? As a threat to the blood supply, the lyme associations thought of a wicked thing?  Go give blood knowing your positive, notify them at the end of the day, and tell them, they are not screening for this PROPERLY.  WATCH PANIC ENSUE.  Maybe then, something will happen. Note to self, NEVER receive blood in Connecticut or just about surroudning areas if you have a car accident or something.  Donated blood is possibly a rich source of this infection.  Kathy Re: Re: lyme disease> BLOOD SUPPLY (NOT SCREENED, this is why I am afraid of IViG and all > that)This is the main reason why our Dr. doesn't like IVIG. He says the risk of getting other illnesses are much higher and he prefers IMIG. Now, I haven't done that much research on it as we aren't too that point but I would think IM would still have the same risks??? Know anything about it?cheryl

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How are HHV6 and Lyme disease connected?JAMES BLANCO wrote: We have some practitioners, like Lee Cowden who does this, and he is 100% all the time. Yes unfortunately, the last shall be the first, and first last in our kids? More revelations will come to bare in the next few months.. Please let me know privately who

your physician is, as we can send him some further info and put him on our data base and invites out for conferences etc? He can get on our mailing list at www.liafoundation.org Am I hitting a nerve on this list, or am I endlessly preaching and getting on peoples nerves, tell me? I don't want to sound like a broken record and always off topic. HOWEVER, I do feel that this infection is around HHV6 kids? So, thusly, why I am here.. I will be working with Rosner to write a book on this very subject. I would invite all on the list to at least rule in or out this infection, and move on from there, it won't hurt to do so. And, when you do so, make sure that you are testing the ENTIRE family if possible. We are finding WHOLE families have this, and I am afraid

if one person has it in the family, the others do too. This revelation came to me slowly and obstanitately because I didn't want to hear the ONE MORE THING scenario, causes autism. Unfortunately, as the science collects both personally and educationally and by the best in the business, I am afraid, it is connected, as well as other infections. This is a multiple infection illness, not unlike those who have AIDS. It may be that each feed each others virulence. Even the toxins... There is such a wide variety of presentations of this illness, it would be hard for the average parent to think borrelia lyme? REMEMBER, a test is a test. It is not a clinical diagnosis. There are a lot of kids with this thing, who have such a poor immune system, that they are not mounting a response. If the physicians are astute enough, they can recognize the symptoms and just treat it to see what

happens. Like Valtrex and Mb12, it will have times of, I don't know, should I continue? It's not easy to get rid of. Try every strategy known. I am personally knowing now, that my kids will get on that recovery wagon, and I know, had I not, they would have gotten worse. Recent talks with my friend DR Bill Walsh are very frightening folks. People who get up and espouse that autism is not degenerative DON’T have it right! IT IS! If your child is not treated for these infections, if you let them at the devices of oxidative stress with no nutrients going in to their body and actually being absorbed, the brain atrophies. You don't want this. A last year MRI image of my son, was horrible. His entire cerebellum is atrophying. This is not only an autism presentation, this is a LYME presentation. Have abstracts on that, not pretty. This was written in the article I wrote for the

Townsend letter in April 2007 (Google it). Later, this year, we did NEUROSPECTS. We continue to see this problem, however, there is some changes. We do have the classic hyperperfusion inflammation brains. It not only found a lyme like presentations, it also showed a toxic one. So, I have to unravel that mess, and find out what we are constantly exposed to, my guess now is mold and pesticides. All of this matters in our kids. Whether we think lyme is a last ditch idea or not, the science will come up and slap us all in the face when we least expect it. What you will begin to understand is the vehicle of transmission and why mothers and fathers are equally sick, and siblings. Kathy lyme disease Well, I took the advice and spoke with my DAN about the possibility of LYME in our family as we all struggle(varying degrees) with metals, yeast, inflammation etc.He, if any of you believe in this, muscle tested and it came out very strong. This along with the symptoms leads him to believe we should test further. Does anyone have experience treating lyme. When I did the research, our son's profile really shouts it out(borrelia infection) but I did not have enough info prior to asking for advice

on this site.thanks so much, it would have been the last thing I would have thought of. This may, potentially, help our entire family.Louise

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  • 2 weeks later...

Kathy,

(1) When I'm focussing on other ideas I shamelessly skip your

clearly authored and titled posts / threads. So don't be shy.

(2) When I'm looking for borellia and other opportunistic

pathogens that get into immune disrupted people, I know at least one

place to look, so don't be shy again.

(3) Other times: it's just looking through the threads in

order, and the Lyme idea gets one more kick into the long term memory

arena. Thanks.

Just back from driving to Montreal - only to find the country been hit

by Hurricane & Tornado Kathy all in the last 10 days.

JAMES BLANCO wrote:

We have some practitioners, like Lee Cowden who does this, and

he is 100% all the time.

Yes unfortunately, the last shall be the first, and first last

in our kids?

More revelations...

Am I hitting a nerve on this list, or am I endlessly

preaching and getting on peoples nerves, tell me? I don't want to

sound like a broken record and always off topic. HOWEVER, I do feel

that this infection is around HHV6 kids? So, thusly, why I am here....

..

A last year MRI image of my son, was horrible. His entire

cerebellum is atrophying. This is not only an autism presentation,

this is a LYME presentation. Have abstracts on that, not pretty. This

was written in the article I wrote for the Townsend letter in April

2007 (Google it). Later, this year, we did NEUROSPECTS. We continue to

see this problem, however, there is some changes. We do have the

classic hyperperfusion inflammation brains. It not only found a lyme

like presentations, it also showed a toxic one. So, I have to unravel

that mess, and find out what we are constantly exposed to, my guess now

is mold and pesticides. All of this matters in our kids. Whether we

think lyme is a last ditch idea or not, the science will come up and

slap us all in the face when we least expect it. What you will begin

to understand is the vehicle of transmission and why mothers and

fathers are equally sick, and siblings.

Kathy

-----

Original Message -----

From:

sonsboyssamj

To:

mb12 valtrex

Sent:

Tuesday, September 25, 2007 9:17 AM

Subject:

lyme disease

Well, I took the advice and spoke with my DAN about the

possibility of LYME in our

family ...

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oops, sorry

I did it again?

I know I irritate the HELL out of people in this issue.

Especially on a list focused on the VIRAL issue in autism.

I don't downplay it, one bit, as I know that a

lyme infected person MOST LIKELY has HHV6

and other viral and bacterial infections as well.

Unfortunately, I know this is connected to some

kids with the tough nut to crack cases, and heck

I will say it, even the easy cases. I am

amongst those tough nuts, who will not let this

go, when I have mothers crying on the phone

with me who have kids with autism AS WELL AS

ENTIRE FAMILIES WITH THIS, who are in

deep and utter pain, banging their heads, scratching

their eyes out, headaches, can't swallow and numerous

other things, that are MORE THAN AUTISM. IS THIS

the part of autism that is INFECTIOUS? With

the other factors on board, the viruses, the fungi

the toxins, it is a no brainer to think this way.

We have to wonder why OUR children

did not react well to their vaccine series

in terms of IMMUNOSUPRRESION by and via

a NEUROTOXIN on board, 24 7, and or

if they never got vaccinated, they had

infections in utero that have contributed!

Actual damage by lyme pathogens

mimic many of the brain changes found already in autism

research!

This is why the book I am writing with ROSNER

is so very important, I can only duplicate myself

so many times?

If it weren't for AIDS, this would

be our topics amongst the medical professionals.

No wonder, like AIDS, it is being downplayed..

It would explain all the emerging autoimmune

illnesses in our day...or at least in part..

I tend to be a tornado, because I simply

am tired of the misinformation on this disease. It's time

to bring this full square on to the autism community.

It's that one more thing, I know, but that one

more thing may be...THE ONE thing

that may get a kid out of this mess!

I finally see, that if I had known this

from the start instead of spinning wheels, I would have not have this life

of kids/myself who are deeply infected by this very capable sneaky, hideous pathogen.

www.liafoundation.org

lyme disease

Well, I took the advice and spoke with my DAN about the possibility of LYME in our family ...

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