Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 > > Hi all. After getting one of those terrible computer viruses I've been > without a computer for several weeks. During that time I have thought > of a million questions I wanted to ask but couldn't!! Anyway, during > my absence I started taking Plaquenil. At first I said I wasn't going > to take anything but when the first cold spell hit, I knew I couldn't > make it and continue with any kind of life. I expected to be put on > MTX but the doc started me on Plaquenil. What's the difference in > Plaquenil and the other drugs you hear about? Right before I started > taking it my hair started breaking off in chunks, and now 5 weeks into > the medicine, it has started falling out! Eyelashes and all! Is this > normal? I've also had to start taking something for nausea because I > was throwing up all the time! Is all this normal? > Thanks guys. I'm so glad to be back on line! > >Hi.... I take Plaquenil... Its one of the drugs they decide to give because of the low side effect risk.... Any type of autoimmune disfunction can cause hair loss... What have you been diagnosed with? I would talk to your dr about all of this.. it may may not be the med... but it can be... Maybe your body cant take the plaquenil. ive just been given a dbl dose . so ill see how it goes with me .. i cant take prednisone for the same reason... take care debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Hi Debbie. I have been diagnosed with RA, FMS and osteo arthritis. I go back to the doc next week and will talk to her. It's impossible to get in touch with her in between appts. I have seen her since the breakage and she said she felt like it was the stress that the autoimmune stuff was putting on my body. It's also turning stark white, from auburn! Other than that I have a headache off and on and the severe nausea and vomiting off and on. AT least I don't hurt as bad and can walk! It is an improvement! Keep in touch and let me know how your med increase goes! Good Luck. > > --- In , " eandsspivey " <ereese@c...> wrote: > > > > Hi all. After getting one of those terrible computer viruses I've > been > > without a computer for several weeks. During that time I have > thought > > of a million questions I wanted to ask but couldn't!! Anyway, > during > > my absence I started taking Plaquenil. At first I said I wasn't > going > > to take anything but when the first cold spell hit, I knew I > couldn't > > make it and continue with any kind of life. I expected to be put > on > > MTX but the doc started me on Plaquenil. What's the difference in > > Plaquenil and the other drugs you hear about? Right before I > started > > taking it my hair started breaking off in chunks, and now 5 weeks > into > > the medicine, it has started falling out! Eyelashes and all! Is > this > > normal? I've also had to start taking something for nausea because > I > > was throwing up all the time! Is all this normal? > > Thanks guys. I'm so glad to be back on line! > > > >Hi.... I take Plaquenil... Its one of the drugs they decide to > give because of the low side effect risk.... Any type of autoimmune > disfunction can cause hair loss... What have you been diagnosed with? > I would talk to your dr about all of this.. it may may not be the > med... but it can be... Maybe your body cant take the plaquenil. ive > just been given a dbl dose . so ill see how it goes with me .. i cant > take prednisone for the same reason... take care debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Hi Karin, I have a son age 16 (in April) who has CVID. He too, has missed a lot of school this year. We have only met one other teenager who has the same diagnosis. I would love for Tim to meet others. Are you going to the IDF retreat in June? It is being held in Virginia. We may try to go although it is a 9 hour drive for us. Please write me (you can email offgroup if you wish). Best regards, Pam Tim age 16 CVID, food allergies, ITP, syndrome AJ, 22 allergies,food allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Hi Karin, I have a son age 16 (in April) who has CVID. He too, has missed a lot of school this year. We have only met one other teenager who has the same diagnosis. I would love for Tim to meet others. Are you going to the IDF retreat in June? It is being held in Virginia. We may try to go although it is a 9 hour drive for us. Please write me (you can email offgroup if you wish). Best regards, Pam Tim age 16 CVID, food allergies, ITP, syndrome AJ, 22 allergies,food allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 >Hi, thanks for the reply. We too would also like to meet anyone in our area that has what has. it is so fustrating for him. We would love to go to the conference but unfortuately we also have a 17 yr old daughter who has been recently diagnosed Bi-polar. This make it really diffucult to go anywhere because we never know what she may do. She is also very heavily into drugs. Please email off list at anytime would love to chat. Thanks, Karin > Hi Karin, > > I have a son age 16 (in April) who has CVID. He too, has missed a lot of > school this year. We have only met one other teenager who has the same > diagnosis. I would love for Tim to meet others. Are you going to the IDF retreat > in June? It is being held in Virginia. We may try to go although it is a 9 > hour drive for us. > > Please write me (you can email offgroup if you wish). Best regards, Pam > > Tim age 16 CVID, food allergies, ITP, syndrome > AJ, 22 allergies,food allergies > > > Quote Link to comment Share on other sites More sharing options...
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