Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Welcome, , and good luck with the MTX. Many people in the group have had good results with it. Are you taking folic acid, too? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] new to methotrexate > Hi, I've been following posts on here for a while but this is my > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > only NSAIDS (It took 5 different ones before I found Celebrex > worked. Then fpr the past three years I was on PLaquenil and did OK. > Some flare ups here and there but a week of prednisone would calm it > down. A few months ago I started having pain all day every day in > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > week of steroids but did not want me to stay on them long term. Two > days later the pain was back and just kept getting worse and worse. > I called him twice within this week and he said to come in that day > because he knows I'm usually not a complainer. When I saw him > yesterday he said the RA is progressing and he wants me to start > methotrexate but it would take at least 6 weeks to notice any > effect. I begged (and got) prednisone for the meantime because I > couldn't function. I work in a Hospital and was looking worse than > half of my patients! My question is, What are the things I can > expect with methotrexate? He gave me the obligatory speech but I > was hoping for some people's first hand experinces. I took the first > dose today, 10 mg. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 , Make sure you take Folic while on the mtx. I am not on mtx right now, but I always take mine on the weekend, that way I can recover from the side effects. I had problems with my stomach, fatique, and hair loss. I have went off it for awhile, because my liver enzymes are high. You should have lab work quite frequently when on this med. Good luck, Tawny > > Hi, I've been following posts on here for a while but this is my > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > only NSAIDS (It took 5 different ones before I found Celebrex > worked. Then fpr the past three years I was on PLaquenil and did OK. > Some flare ups here and there but a week of prednisone would calm it > down. A few months ago I started having pain all day every day in > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > week of steroids but did not want me to stay on them long term. Two > days later the pain was back and just kept getting worse and worse. > I called him twice within this week and he said to come in that day > because he knows I'm usually not a complainer. When I saw him > yesterday he said the RA is progressing and he wants me to start > methotrexate but it would take at least 6 weeks to notice any > effect. I begged (and got) prednisone for the meantime because I > couldn't function. I work in a Hospital and was looking worse than > half of my patients! My question is, What are the things I can > expect with methotrexate? He gave me the obligatory speech but I > was hoping for some people's first hand experinces. I took the first > dose today, 10 mg. > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Tawny, This is Carol I don't post too often but I'm here . I was supposed to start mtx a couple months ago and had to postpone it due to an unexpected surgery - I had a intestine and bowel obstruction. Evidentially scar tissue from a couple old surgeries grew in and around " stuff " in my stomach and resulted in extreme and sudden pain. Anyway, due to my RA healing was impaired and therefore I had to delay starting mtx. Now the RA is really kicking in even though I've continued the prednisone and placqunil. My question is and forgive me for being so vain... the one thing I keep hearing that concerns me probably the most is the hair loss. How severe is it? I'm sure everyone is different. I have relatively thick hair. I've experienced hair loss with the other medications I take but it subsides. Also my hair thinned out and if I lifted up my hair by my temples I had bald spots, broken off hair. Is that what I can expect from mtx or is it more severe? Does the hair hair loss stop after a while? I have an appointment tomorrow morning with my rhuemy. I have a lot of swelling in both hands, fingers, feet and neck. I know she is going to tell me to start the mtx immediately. I feel I should wait till Friday after reading what all of you say. I keep taking vicadine for pain. It does take the edge off! Thanks! Carol On Dec 11, 2005, at 11:00 AM, tdianaok wrote: > , > Make sure you take Folic while on the mtx. I am not on mtx right > now, but I always take mine on the weekend, that way I can recover > from the side effects. I had problems with my stomach, fatique, and > hair loss. I have went off it for awhile, because my liver enzymes > are high. You should have lab work quite frequently when on this med. > Good luck, Tawny > > > > > > > > > Hi, I've been following posts on here for a while but this is my > > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > > only NSAIDS (It took 5 different ones before I found Celebrex > > worked. Then fpr the past three years I was on PLaquenil and did > OK. > > Some flare ups here and there but a week of prednisone would calm > it > > down. A few months ago I started having pain all day every day in > > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > > week of steroids but did not want me to stay on them long term. Two > > days later the pain was back and just kept getting worse and worse. > > I called him twice within this week and he said to come in that day > > because he knows I'm usually not a complainer. When I saw him > > yesterday he said the RA is progressing and he wants me to start > > methotrexate but it would take at least 6 weeks to notice any > > effect. I begged (and got) prednisone for the meantime because I > > couldn't function. I work in a Hospital and was looking worse than > > half of my patients! My question is, What are the things I can > > expect with methotrexate? He gave me the obligatory speech but I > > was hoping for some people's first hand experinces. I took the > first > > dose today, 10 mg. > > > > Thanks > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 My experience with MTX did have some hair loss. I am no longer on the mtx as it was not helping much.I did notice a good amount of hair loss, mostly when I wash my hair, it would come out, not in clumps but enough to be a concern. I do not have thick hair to begin with so I was upset about it. hubby said my hair looked a bit thin but not too bad. I got some Nioxin(sp) from my local hairdresser. It was a bit expensive but is said to help with hair loss. My hair did look thicker but I dont know if it made enough of a difference . I am not on MTX anymore just prednisone until my blood work comes back ok then I will be starting avara. I am still losing some hair so go figure. I hope the mtx helps you. take care sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Hi Carol, There are many side effects with mtx, and hair loss is one. I still have my hair, but it has thinned out. Thank God, I had very thick hair in the beginning, or I think I would be bald. I have heard after awhile, some of the side effects go away, including hair loss. Not for me, I have had the hair loss all along. Sometimes, it is worse at times. My hair is in really bad shape, due to the meds, but not much I can do about that. My hair stylist tries to sell me all sorts of different products whenever I visit. If you do have to take the mtx, make sure you take the folic acid. Sometimes, we have to do things we don't really won't to do. If the mtx helps, sometimes we have to look over the results it can cause. I do know how you feel though. Hugs, Tawny > > > , > > Make sure you take Folic while on the mtx. I am not on mtx right > > now, but I always take mine on the weekend, that way I can recover > > from the side effects. I had problems with my stomach, fatique, and > > hair loss. I have went off it for awhile, because my liver enzymes > > are high. You should have lab work quite frequently when on this med. > > Good luck, Tawny > > > > > > > > > > --- In , " sasupbin " <sasupbin@o...> wrote: > > > > > > Hi, I've been following posts on here for a while but this is my > > > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > > > only NSAIDS (It took 5 different ones before I found Celebrex > > > worked. Then fpr the past three years I was on PLaquenil and did > > OK. > > > Some flare ups here and there but a week of prednisone would calm > > it > > > down. A few months ago I started having pain all day every day in > > > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > > > week of steroids but did not want me to stay on them long term. Two > > > days later the pain was back and just kept getting worse and worse. > > > I called him twice within this week and he said to come in that day > > > because he knows I'm usually not a complainer. When I saw him > > > yesterday he said the RA is progressing and he wants me to start > > > methotrexate but it would take at least 6 weeks to notice any > > > effect. I begged (and got) prednisone for the meantime because I > > > couldn't function. I work in a Hospital and was looking worse than > > > half of my patients! My question is, What are the things I can > > > expect with methotrexate? He gave me the obligatory speech but I > > > was hoping for some people's first hand experinces. I took the > > first > > > dose today, 10 mg. > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Carol I can't answer your question about MTX, and hair loss. But thought I would chip in and tell you, that I do know, that when you have chemo, the counslers adivice you to watch the type of hair products you use, to keep hair loss to a minimum. When on chemo, any hair product you should be alochol free. There are some natural lines of shampoo, and conditioner and hair spray. If your can't find something at your local Walmart, try a beauty salon. Also wash hair gently, pat do not rub dry. These tips really worked for my friend who had cancer. His hair got thiner, but never fell in patches or anything. They say MTX is like a chemo drug, so I thought I would share what I Know. in WI Carol Zwald <zwaldski@...> wrote: Tawny, This is Carol I don't post too often but I'm here . I was supposed to start mtx a couple months ago and had to postpone it due to an unexpected surgery - I had a intestine and bowel obstruction. Evidentially scar tissue from a couple old surgeries grew in and around " stuff " in my stomach and resulted in extreme and sudden pain. Anyway, due to my RA healing was impaired and therefore I had to delay starting mtx. Now the RA is really kicking in even though I've continued the prednisone and placqunil. My question is and forgive me for being so vain... the one thing I keep hearing that concerns me probably the most is the hair loss. How severe is it? I'm sure everyone is different. I have relatively thick hair. I've experienced hair loss with the other medications I take but it subsides. Also my hair thinned out and if I lifted up my hair by my temples I had bald spots, broken off hair. Is that what I can expect from mtx or is it more severe? Does the hair hair loss stop after a while? I have an appointment tomorrow morning with my rhuemy. I have a lot of swelling in both hands, fingers, feet and neck. I know she is going to tell me to start the mtx immediately. I feel I should wait till Friday after reading what all of you say. I keep taking vicadine for pain. It does take the edge off! Thanks! Carol On Dec 11, 2005, at 11:00 AM, tdianaok wrote: > , > Make sure you take Folic while on the mtx. I am not on mtx right > now, but I always take mine on the weekend, that way I can recover > from the side effects. I had problems with my stomach, fatique, and > hair loss. I have went off it for awhile, because my liver enzymes > are high. You should have lab work quite frequently when on this med. > Good luck, Tawny > > > > > > > > > Hi, I've been following posts on here for a while but this is my > > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > > only NSAIDS (It took 5 different ones before I found Celebrex > > worked. Then fpr the past three years I was on PLaquenil and did > OK. > > Some flare ups here and there but a week of prednisone would calm > it > > down. A few months ago I started having pain all day every day in > > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > > week of steroids but did not want me to stay on them long term. Two > > days later the pain was back and just kept getting worse and worse. > > I called him twice within this week and he said to come in that day > > because he knows I'm usually not a complainer. When I saw him > > yesterday he said the RA is progressing and he wants me to start > > methotrexate but it would take at least 6 weeks to notice any > > effect. I begged (and got) prednisone for the meantime because I > > couldn't function. I work in a Hospital and was looking worse than > > half of my patients! My question is, What are the things I can > > expect with methotrexate? He gave me the obligatory speech but I > > was hoping for some people's first hand experinces. I took the > first > > dose today, 10 mg. > > > > Thanks > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Thanks to all who answered . So far I haven't felt sick from the mthx and yes I'm taking folic acid. > > > , > > Make sure you take Folic while on the mtx. I am not on mtx right > > now, but I always take mine on the weekend, that way I can recover > > from the side effects. I had problems with my stomach, fatique, and > > hair loss. I have went off it for awhile, because my liver enzymes > > are high. You should have lab work quite frequently when on this med. > > Good luck, Tawny > > > > > > > > > > --- In , " sasupbin " <sasupbin@o...> wrote: > > > > > > Hi, I've been following posts on here for a while but this is my > > > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > > > only NSAIDS (It took 5 different ones before I found Celebrex > > > worked. Then fpr the past three years I was on PLaquenil and did > > OK. > > > Some flare ups here and there but a week of prednisone would calm > > it > > > down. A few months ago I started having pain all day every day in > > > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > > > week of steroids but did not want me to stay on them long term. Two > > > days later the pain was back and just kept getting worse and worse. > > > I called him twice within this week and he said to come in that day > > > because he knows I'm usually not a complainer. When I saw him > > > yesterday he said the RA is progressing and he wants me to start > > > methotrexate but it would take at least 6 weeks to notice any > > > effect. I begged (and got) prednisone for the meantime because I > > > couldn't function. I work in a Hospital and was looking worse than > > > half of my patients! My question is, What are the things I can > > > expect with methotrexate? He gave me the obligatory speech but I > > > was hoping for some people's first hand experinces. I took the > > first > > > dose today, 10 mg. > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 and Tawny Thanks so much to both of you ladies........ wow.. One more vanity question... is this hair loss noticeable? I mean do we look like chemo patients? I know I need this and just when I think I'm prepared I tear up...... yuk! I'm trying to deal with fatigue now and keep cleaning houses while waiting for disability with doctors reminding me that I have a mild case. Maybe in their text book it's mild. I wish they had enough compassion to really look at their patients. I'm going to be ok... one of the surgeons who participated in my recent stomach surgery (scar looks like I did it myself!) it's right up the middle. Anyway the surgeon said " well at your age I don't think you're going to wear a bikini " ...... so I guess looking like a chemo patient is no big deal either........ I know I sound pathetic........ I do apologize...... there are many many people who are worse.. that's how I can kick my own rear. Again thanks for the hugs.......... there is more compassion shared here by people who can't even see each other or hear each other!! I'll wipe my tears and blow my nose now.... Carol, On Dec 11, 2005, at 3:20 PM, susan smith wrote: > Carol >   I can't answer your question about MTX, and hair loss. But thought > I would chip in and tell you, that I do know, that when you have > chemo, the counslers adivice you to watch the type of hair products > you use, to keep hair loss to a minimum. >  When on chemo, any hair product you should be alochol free. There > are some natural lines of shampoo, and conditioner and hair spray. If > your can't find something at your local Walmart, try a beauty salon. > Also wash hair gently, pat do not rub dry. These tips really worked > for my friend who had cancer. His hair got thiner, but never fell in > patches or anything. They say MTX is like a chemo drug, so I thought I > would share what I Know. in WI > > Carol Zwald <zwaldski@...> wrote: >  Tawny, > This is Carol I don't post too often but I'm here . I was supposed > to start mtx a couple months ago and had to postpone it due to an > unexpected surgery - I had a intestine and bowel obstruction. > Evidentially scar tissue from a couple old surgeries grew in and > around > " stuff " in my stomach and resulted in extreme and sudden pain. > Anyway, due to my RA healing was impaired and therefore I had to delay > starting mtx. Now the RA is really kicking in even though I've > continued the prednisone and placqunil. My question is and forgive me > for being so vain... the one thing I keep hearing that concerns me > probably the most is the hair loss. How severe is it? I'm sure > everyone is different. I have relatively thick hair. I've > experienced > hair loss with the other medications I take but it subsides. Also my > hair thinned out and if I lifted up my hair by my temples I had bald > spots, broken off hair. Is that what I can expect from mtx or is it > more severe? Does the hair hair loss stop after a while? I have an > appointment tomorrow morning with my rhuemy. I have a lot of swelling > in both hands, fingers, feet and neck. I know she is going to tell me > to start the mtx immediately. I feel I should wait till Friday after > reading what all of you say. I keep taking vicadine for pain. It > does > take the edge off! > > Thanks! > Carol > > On Dec 11, 2005, at 11:00 AM, tdianaok wrote: > > > , > > Make sure you take Folic while on the mtx. I am not on mtx right > > now, but I always take mine on the weekend, that way I can recover > > from the side effects. I had problems with my stomach, fatique, and > > hair loss. I have went off it for awhile, because my liver > enzymes > > are high. You should have lab work quite frequently when on this > med. > > Good luck, Tawny > > > > > > > > > > > > > > > > Hi, I've been following posts on here for a while but this is > my > > > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I > took > > > only NSAIDS (It took 5 different ones before I found Celebrex > > > worked. Then fpr the past three years I was on PLaquenil and did > > OK. > > > Some flare ups here and there but a week of prednisone would calm > > it > > > down. A few months ago I started having pain all day every day > in > > > my knees,wrists and fingers, My rheumatologist gave me the > ususal 1 > > > week of steroids but did not want me to stay on them long term. > Two > > > days later the pain was back and just kept getting worse and > worse. > > > I called him twice within this week and he said to come in that > day > > > because he knows I'm usually not a complainer. When I saw him > > > yesterday he said the RA is progressing and he wants me to start > > > methotrexate but it would take at least 6 weeks to notice any > > > effect. I begged (and got) prednisone for the meantime because > I > > > couldn't function. I work in a Hospital and was looking worse > than > > > half of my patients! My question is, What are the things I can > > > expect with methotrexate? He gave me the obligatory speech but > I > > > was hoping for some people's first hand experinces. I took the > > first > > > dose today, 10 mg. > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 June Thanks. I will be taking 4 per week (2.5)....... It's just that I do try to be strong and don't like to talk a lot about the RA to other people because as we all know they can't relate. But if one is showing signs of chemo people ask questions or stare. This disease and meds makes us irritable and depressed.......... paid, money issues blah blah blah........... oh yeah and we can't even have a glass wine!!!! hahahahaha I'm going to check out the hair products for something natural. It's very difficult. I used to exercise a lot. Lift weights and now I haven't been to do that even walking fatigues me...... I just keep telling myself this too will pass..... Hugs to you too... Carol On Dec 11, 2005, at 4:28 PM, June Dixon wrote: > Carol, I have been taking Mtx (3 per week) for 5 mos and have not > experienced any hair loss as yet. I don't think everyone has hair > loss since I have 3 friends that have been on it for a few years and > no hair loss. My sister, in the beginning had some but it stopped and > her hair is very thick. I, too, was concerned about losing my hair so > guess I am vain as well. LOL > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 I Have never taken MTX.. But I really don't think the hair loss is that severe. I just wanted to tell you what you can do to help prevent it. I really did not intend to freak you out. Beleive me if anyone on this site, has had a severe reaction to MTX they will talk to you about it. Everyone here is very good about sharing tips, and giving advice. In return we all have someone to whine too who really understands what we are talking about. and won't say " How about some cheese with that wine? " Well maybe that is just a Wisconsion expression.. But is nice to have so many caring people to talk to. Try the links at the bottom of this email, they good places to go for information. Carol Zwald <zwaldski@...> wrote: and Tawny Thanks so much to both of you ladies........ wow.. One more vanity question... is this hair loss noticeable? I mean do we look like chemo patients? I know I need this and just when I think I'm prepared I tear up...... yuk! I'm trying to deal with fatigue now and keep cleaning houses while waiting for disability with doctors reminding me that I have a mild case. Maybe in their text book it's mild. I wish they had enough compassion to really look at their patients. I'm going to be ok... one of the surgeons who participated in my recent stomach surgery (scar looks like I did it myself!) it's right up the middle. Anyway the surgeon said " well at your age I don't think you're going to wear a bikini " ...... so I guess looking like a chemo patient is no big deal either........ I know I sound pathetic........ I do apologize...... there are many many people who are worse.. that's how I can kick my own rear. Again thanks for the hugs.......... there is more compassion shared here by people who can't even see each other or hear each other!! I'll wipe my tears and blow my nose now.... Carol, On Dec 11, 2005, at 3:20 PM, susan smith wrote: > Carol >   I can't answer your question about MTX, and hair loss. But thought > I would chip in and tell you, that I do know, that when you have > chemo, the counslers adivice you to watch the type of hair products > you use, to keep hair loss to a minimum. >  When on chemo, any hair product you should be alochol free. There > are some natural lines of shampoo, and conditioner and hair spray. If > your can't find something at your local Walmart, try a beauty salon. > Also wash hair gently, pat do not rub dry. These tips really worked > for my friend who had cancer. His hair got thiner, but never fell in > patches or anything. They say MTX is like a chemo drug, so I thought I > would share what I Know. in WI > > Carol Zwald <zwaldski@...> wrote: >  Tawny, > This is Carol I don't post too often but I'm here . I was supposed > to start mtx a couple months ago and had to postpone it due to an > unexpected surgery - I had a intestine and bowel obstruction. > Evidentially scar tissue from a couple old surgeries grew in and > around > " stuff " in my stomach and resulted in extreme and sudden pain. > Anyway, due to my RA healing was impaired and therefore I had to delay > starting mtx. Now the RA is really kicking in even though I've > continued the prednisone and placqunil. My question is and forgive me > for being so vain... the one thing I keep hearing that concerns me > probably the most is the hair loss. How severe is it? I'm sure > everyone is different. I have relatively thick hair. I've > experienced > hair loss with the other medications I take but it subsides. Also my > hair thinned out and if I lifted up my hair by my temples I had bald > spots, broken off hair. Is that what I can expect from mtx or is it > more severe? Does the hair hair loss stop after a while? I have an > appointment tomorrow morning with my rhuemy. I have a lot of swelling > in both hands, fingers, feet and neck. I know she is going to tell me > to start the mtx immediately. I feel I should wait till Friday after > reading what all of you say. I keep taking vicadine for pain. It > does > take the edge off! > > Thanks! > Carol > > On Dec 11, 2005, at 11:00 AM, tdianaok wrote: > > > , > > Make sure you take Folic while on the mtx. I am not on mtx right > > now, but I always take mine on the weekend, that way I can recover > > from the side effects. I had problems with my stomach, fatique, and > > hair loss. I have went off it for awhile, because my liver > enzymes > > are high. You should have lab work quite frequently when on this > med. > > Good luck, Tawny > > > > > > > > > > > > > > > > Hi, I've been following posts on here for a while but this is > my > > > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I > took > > > only NSAIDS (It took 5 different ones before I found Celebrex > > > worked. Then fpr the past three years I was on PLaquenil and did > > OK. > > > Some flare ups here and there but a week of prednisone would calm > > it > > > down. A few months ago I started having pain all day every day > in > > > my knees,wrists and fingers, My rheumatologist gave me the > ususal 1 > > > week of steroids but did not want me to stay on them long term. > Two > > > days later the pain was back and just kept getting worse and > worse. > > > I called him twice within this week and he said to come in that > day > > > because he knows I'm usually not a complainer. When I saw him > > > yesterday he said the RA is progressing and he wants me to start > > > methotrexate but it would take at least 6 weeks to notice any > > > effect. I begged (and got) prednisone for the meantime because > I > > > couldn't function. I work in a Hospital and was looking worse > than > > > half of my patients! My question is, What are the things I can > > > expect with methotrexate? He gave me the obligatory speech but > I > > > was hoping for some people's first hand experinces. I took the > > first > > > dose today, 10 mg. > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 You didn't freak me out. I apologize for giving that impression. I appreciate your input and advise. And yes I'll have some cheese with my wine. haha Carol On Dec 11, 2005, at 6:34 PM, susan smith wrote: > I Have never taken MTX.. >  But I really don't think the hair loss is that severe. I just > wanted to tell you what you can do to help prevent it. I really did > not intend to freak you out. >  Beleive me if anyone on this site, has had a severe reaction to > MTX they will talk to you about it. Everyone here is very good about > sharing tips, and giving advice. In return we all have someone to > whine too who really understands what we are talking about. and won't > say " How about some cheese with that wine? " >  Well maybe that is just a Wisconsion expression.. But is nice to > have so many caring people to talk to. Try the links at the bottom of > this email, they good places to go for information. >  > > Carol Zwald <zwaldski@...> wrote: >  and Tawny > > Thanks so much to both of you ladies........ wow.. > One more vanity question... is this hair loss noticeable? I mean do > we look like chemo patients? I know I need this and just when I think > I'm prepared I tear up...... yuk! I'm trying to deal with fatigue now > and keep cleaning houses while waiting for disability with doctors > reminding me that I have a mild case. Maybe in their text book it's > mild. I wish they had enough compassion to really look at their > patients. I'm going to be ok... one of the surgeons who participated > in my recent stomach surgery (scar looks like I did it myself!) it's > right up the middle. Anyway the surgeon said " well at your age I > don't > think you're going to wear a bikini " ...... so I guess looking like a > chemo patient is no big deal either........ I know I sound > pathetic........ I do apologize...... there are many many people who > are worse.. that's how I can kick my own rear. > Again thanks for the hugs.......... there is more compassion shared > here by people who can't even see each other or hear each other!! > I'll wipe my tears and blow my nose now.... > > Carol, > > On Dec 11, 2005, at 3:20 PM, susan smith wrote: > > > Carol > > Â  I can't answer your question about MTX, and hair loss. But > thought > > I would chip in and tell you, that I do know, that when you have > > chemo, the counslers adivice you to watch the type of hair products > > you use, to keep hair loss to a minimum. > > Â When on chemo, any hair product you should be alochol free. > There > > are some natural lines of shampoo, and conditioner and hair spray. > If > > your can't find something at your local Walmart, try a beauty salon. > > Also wash hair gently, pat do not rub dry. These tips really worked > > for my friend who had cancer. His hair got thiner, but never fell in > > patches or anything. They say MTX is like a chemo drug, so I > thought I > > would share what I Know. in WI > > > > Carol Zwald <zwaldski@...> wrote: > > Â Tawny, > > This is Carol I don't post too often but I'm here . I was > supposed > > to start mtx a couple months ago and had to postpone it due to an > > unexpected surgery - I had a intestine and bowel obstruction. > > Evidentially scar tissue from a couple old surgeries grew in and > > around > > " stuff " in my stomach and resulted in extreme and sudden pain. > > Anyway, due to my RA healing was impaired and therefore I had to > delay > > starting mtx. Now the RA is really kicking in even though I've > > continued the prednisone and placqunil. My question is and > forgive me > > for being so vain... the one thing I keep hearing that concerns me > > probably the most is the hair loss. How severe is it? I'm sure > > everyone is different. I have relatively thick hair. I've > > experienced > > hair loss with the other medications I take but it subsides. > Also my > > hair thinned out and if I lifted up my hair by my temples I had > bald > > spots, broken off hair. Is that what I can expect from mtx or is > it > > more severe? Does the hair hair loss stop after a while? I > have an > > appointment tomorrow morning with my rhuemy. I have a lot of > swelling > > in both hands, fingers, feet and neck. I know she is going to > tell me > > to start the mtx immediately. I feel I should wait till Friday > after > > reading what all of you say. I keep taking vicadine for pain. > It > > does > > take the edge off! > > > > Thanks! > > Carol > > > > On Dec 11, 2005, at 11:00 AM, tdianaok wrote: > > > > > , > > > Make sure you take Folic while on the mtx. I am not on mtx > right > > > now, but I always take mine on the weekend, that way I can > recover > > > from the side effects. I had problems with my stomach, > fatique, and > > > hair loss. I have went off it for awhile, because my liver > > enzymes > > > are high. You should have lab work quite frequently when > on this > > med. > > > Good luck, Tawny > > > > > > > > > > > > > > > > > > > > > > > Hi, I've been following posts on here for a while but > this is > > my > > > > first post. I'm 39 and was dx with RA 5 yrs ago. > Initially I > > took > > > > only NSAIDS (It took 5 different ones before I found Celebrex > > > > worked. Then fpr the past three years I was on PLaquenil and > did > > > OK. > > > > Some flare ups here and there but a week of prednisone would > calm > > > it > > > > down. A few months ago I started having pain all day > every day > > in > > > > my knees,wrists and fingers, My rheumatologist gave me the > > ususal 1 > > > > week of steroids but did not want me to stay on them long > term. > > Two > > > > days later the pain was back and just kept getting worse and > > worse. > > > > I called him twice within this week and he said to come in > that > > day > > > > because he knows I'm usually not a complainer. When I saw him > > > > yesterday he said the RA is progressing and he wants me to > start > > > > methotrexate but it would take at least 6 weeks to notice any > > > > effect. I begged (and got) prednisone for the meantime > because > > I > > > > couldn't function. I work in a Hospital and was looking worse > > than > > > > half of my patients! My question is, What are the things I > can > > > > expect with methotrexate? He gave me the obligatory > speech but > > I > > > > was hoping for some people's first hand experinces. I took > the > > > first > > > > dose today, 10 mg. > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 I am not officially diagnosed yet until I can get to a doctor the middle of January. We are in the process of moving. I am pretty sure I have either Lupus or RA. My RA factor was real high. Anyway I am only taking Motrin at the moment but am losing my hair terribly. Is this just a side affect of Lupus or RA? I am only 36 and too young to go bald. slmcc93@... wrote: My experience with MTX did have some hair loss. I am no longer on the mtx as it was not helping much.I did notice a good amount of hair loss, mostly when I wash my hair, it would come out, not in clumps but enough to be a concern. I do not have thick hair to begin with so I was upset about it. hubby said my hair looked a bit thin but not too bad. I got some Nioxin(sp) from my local hairdresser. It was a bit expensive but is said to help with hair loss. My hair did look thicker but I dont know if it made enough of a difference . I am not on MTX anymore just prednisone until my blood work comes back ok then I will be starting avara. I am still losing some hair so go figure. I hope the mtx helps you. take care sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Sandie Much thanks to you too...... we shall see ....... I'll keep y'all posted. carol On Dec 11, 2005, at 6:56 PM, slmcc93@... wrote: > My experience with MTX did have some hair loss. I am no longer on the > mtx as > it was not helping much.I did notice a good amount of hair loss, > mostly when I > wash my hair, it would come out, not in clumps but enough to be a > concern. I > do not have thick hair to begin with so I was upset about it. hubby > said my > hair looked a bit thin but not too bad. I got some Nioxin(sp) from my > local > hairdresser. It was a bit expensive but is said to help with hair > loss. My hair > did look thicker but I dont know if it made enough of a difference . > I am not on > MTX anymore just prednisone until my blood work comes back ok then I > will be > starting avara. I am still losing some hair so go figure. I hope the > mtx helps > you. > take care > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 I also have had thyroid cancer and experienced some hair before I had surgery to remove my thyroid. There are many reasons for hair loss. Sometimes medications are the culprit. You are probably safe and wise to wait and see what your doctor says. Carol On Dec 11, 2005, at 7:45 PM, kt m wrote: > I am not officially diagnosed yet until I can get to a doctor the > middle of January. We are in the process of moving. I am pretty sure > I have either Lupus or RA. My RA factor was real high. Anyway I am > only taking Motrin at the moment but am losing my hair terribly. Is > this just a side affect of Lupus or RA? I am only 36 and too young to > go bald. >   >  > > slmcc93@... wrote: >  My experience with MTX did have some hair loss. I am no longer on > the mtx as > it was not helping much.I did notice a good amount of hair loss, > mostly when I > wash my hair, it would come out, not in clumps but enough to be a > concern. I > do not have thick hair to begin with so I was upset about it. hubby > said my > hair looked a bit thin but not too bad. I got some Nioxin(sp) from my > local > hairdresser. It was a bit expensive but is said to help with hair > loss. My hair > did look thicker but I dont know if it made enough of a difference . > I am not on > MTX anymore just prednisone until my blood work comes back ok then I > will be > starting avara. I am still losing some hair so go figure. I hope the > mtx helps > you. > take care > sandie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Hi , I found methotrexate to be great except for severe fatigue so much so I have recently left work,, I am on Mtx, celebrex and Arava Good luck I hope it works well for you sasupbin <sasupbin@...> wrote: Hi, I've been following posts on here for a while but this is my first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took only NSAIDS (It took 5 different ones before I found Celebrex worked. Then fpr the past three years I was on PLaquenil and did OK. Some flare ups here and there but a week of prednisone would calm it down. A few months ago I started having pain all day every day in my knees,wrists and fingers, My rheumatologist gave me the ususal 1 week of steroids but did not want me to stay on them long term. Two days later the pain was back and just kept getting worse and worse. I called him twice within this week and he said to come in that day because he knows I'm usually not a complainer. When I saw him yesterday he said the RA is progressing and he wants me to start methotrexate but it would take at least 6 weeks to notice any effect. I begged (and got) prednisone for the meantime because I couldn't function. I work in a Hospital and was looking worse than half of my patients! My question is, What are the things I can expect with methotrexate? He gave me the obligatory speech but I was hoping for some people's first hand experinces. I took the first dose today, 10 mg. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Here's a site you may find informative. http://www.nlm.nih.gov/medlineplus/druginfo/uspdi/202356.html Yan [ ] new to methotrexate > Hi, I've been following posts on here for a while but this is my > first post. I'm 39 and was dx with RA 5 yrs ago. Initially I took > only NSAIDS (It took 5 different ones before I found Celebrex > worked. Then fpr the past three years I was on PLaquenil and did OK. > Some flare ups here and there but a week of prednisone would calm it > down. A few months ago I started having pain all day every day in > my knees,wrists and fingers, My rheumatologist gave me the ususal 1 > week of steroids but did not want me to stay on them long term. Two > days later the pain was back and just kept getting worse and worse. > I called him twice within this week and he said to come in that day > because he knows I'm usually not a complainer. When I saw him > yesterday he said the RA is progressing and he wants me to start > methotrexate but it would take at least 6 weeks to notice any > effect. I begged (and got) prednisone for the meantime because I > couldn't function. I work in a Hospital and was looking worse than > half of my patients! My question is, What are the things I can > expect with methotrexate? He gave me the obligatory speech but I > was hoping for some people's first hand experinces. I took the first > dose today, 10 mg. > > Thanks > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 No glass of wine? I must have missed that instruction LOL. I may give up some things, but not my glass of wine. Hugs June ----- Original Message ----- From: Carol Zwald Thanks. I will be taking 4 per week (2.5)....... It's just that I do try to be strong and don't like to talk a lot about the RA to other people because as we all know they can't relate. But if one is showing signs of chemo people ask questions or stare. This disease and meds makes us irritable and depressed.......... paid, money issues blah blah blah........... oh yeah and we can't even have a glass wine!!!! hahahahaha I'm going to check out the hair products for something natural. It's very difficult. I used to exercise a lot. Lift weights and now I haven't been to do that even walking fatigues me...... I just keep telling myself this too will pass..... Hugs to you too... Carol On Dec 11, 2005, at 4:28 PM, June Dixon wrote: > Carol, I have been taking Mtx (3 per week) for 5 mos and have not > experienced any hair loss as yet. I don't think everyone has hair > loss since I have 3 friends that have been on it for a few years and > no hair loss. My sister, in the beginning had some but it stopped and > her hair is very thick. I, too, was concerned about losing my hair so > guess I am vain as well. LOL > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Thanks June for the chuckle..... guess that's what the milk thistle and folic acid are for... to fortify the liver. I really enjoy a " good " glass of wine..... hey I'm from California Carol On Dec 12, 2005, at 4:52 AM, June Dixon wrote: > No glass of wine? I must have missed that instruction LOL. I may give > up some things, but not my glass of wine. > > Hugs > June >  ----- Original Message ----- >  From: Carol Zwald > >  Thanks. I will be taking 4 per week (2.5)....... It's just that I > do >  try to be strong and don't like to talk a lot about the RA to other >  people because as we all know they can't relate. But if one is > showing >  signs of chemo people ask questions or stare. This disease and meds >  makes us irritable and depressed.......... paid, money issues blah > blah >  blah........... oh yeah and we can't even have a glass wine!!!!  >  hahahahaha  I'm going to check out the hair products for something >  natural. It's very difficult. I used to exercise a lot. Lift > weights >  and now I haven't been to do that even walking fatigues me...... I > just >  keep telling myself this too will pass..... > >  Hugs to you too... >  Carol > >  On Dec 11, 2005, at 4:28 PM, June Dixon wrote: > >  > Carol, I have been taking Mtx (3 per week) for 5 mos and have not >  > experienced any hair loss as yet. I don't think everyone has hair >  > loss since I have 3 friends that have been on it for a few years > and >  > no hair loss. My sister, in the beginning had some but it > stopped and >  > her hair is very thick. I, too, was concerned about losing my > hair so >  > guess I am vain as well. LOL >  > >  > Hugs >  > June >  > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 In a message dated 5/27/2008 9:25:55 A.M. Central Daylight Time, l8deblu@... writes: I just started on Methotrexate and have experienced some mild nausea and a headache every day since taking my first dose on Saturday. I am curious if those side effects will pass the longer I am taking it or what other people's experience with this drug is. Also, how long until you started noticing some relief from it? I heard it could be a couple of months. , I am anxious to hear the other replies. I just took my 4th dose. After the first week, I sent a letter to my rheumatologist requesting a medical leave of absence. I take it on Monday and work Thursday and Friday. The first Thursday, I felt awful and really shouldn't have been at work. He called and said that the side-effects shouldn't last that long and that I should cut back from 6 pills to 4. Yesterday was the first time I tried 4 pills. I woke up this morning, with the familiar headache and slight nausea, muscle aches, etc. I'm going out of town tomorrow and really hope the stuff doesn't last as long this week. I also keep hoping my body will get used to it and I won't have the flu feeling. At the same time, I am cutting back on Prednisone and am feeling better with 15 mg than I did with 25. I was having a lot of rapid heart beat and shortness of breath. Ideally, I should have cut back on the Prednisone by the time the Mtx starts working. So far, the awful pain has not come back. I have an occasional pain, but that's probably from osteo. dd **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 , My hubby has been on mtx for several years. The nausea does go away, and since you have only mild nausea I would say in a month or so. My hubby could not eat for days after. So you are doing very well. Congrats! NEW E-MAIL ADDY sweetprairie1@... May your troubles be less, your blessings be more and nothing but happiness come through your door! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 > > , how many mtx are you taking? mary in pa I'm taking 4 a week. And knock on wood, the naseau hasn't been around today, nor the headache, so maybe it will only last the first couple of days! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 hi im interested in the side effects of mtx! somtimes im not really SURE what MEDS do what to me cuz im on sooo many. it makes me SICK! good luck & godbless,melyndagamez 5/27/08 12:20a.m.central Re: [ ] New to Methotrexate Hi , I have similar side effect to Methotrexate that you do and for me they've never gone away. It also took a few months for it to start kicking in for me. HTH, Lori http://home.comcast.net/~queenstitcher/ http://stitchingqueen.multiply.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Hi mary is that all you take is the methotrexate still? Jolene In a message dated 5/28/2008 8:19:54 A.M. Eastern Daylight Time, McNacks@... writes: , I also take 4 but I've never had any reaction to it (except thinning of my hair) although 4 has been my top amount so far. It started working for me pretty quickly from what I can remember, that was 8 years ago. Good Luck with it! mary in pa [ ] Re: New to Methotrexate > > , how many mtx are you taking? mary in pa I'm taking 4 a week. And knock on wood, the naseau hasn't been around today, nor the headache, so maybe it will only last the first couple of days! [Non-text portions of this message have been removed] **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 ok just wondered who was on something else besides the methotrexate. thanks Jolene in NY In a message dated 5/28/2008 8:32:40 A.M. Eastern Daylight Time, McNacks@... writes: no, I've been on remicade since last July but I really don't think that that's doing anything, I see the dr in 2 weeks, I'll see what he says then. mary in pa [ ] Re: New to Methotrexate > > , how many mtx are you taking? mary in pa I'm taking 4 a week. And knock on wood, the naseau hasn't been around today, nor the headache, so maybe it will only last the first couple of days! [Non-text portions of this message have been removed] ************************<WBR>**Get trade secrets for amazing burgers. Wat Tyler Florence " on AOL Food. (_http://food.http://food.<Whttp://fohttp:// & ??<WBR>NCID=aolfo?<WBR>NCI_ (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) ) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 > > I just started on Methotrexate and have experienced some mild nausea > and a headache every day since taking my first dose on Saturday. I am > curious if those side effects will pass the longer I am taking it or > what other people's experience with this drug is. Also, how long until > you started noticing some relief from it? I heard it could be a couple > of months. > > Thanks in advance, > > Quote Link to comment Share on other sites More sharing options...
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