Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 not sure what happened either suzi,, but I agree,, if you can try the supplements fine, but if not, the IV must be the only way to go,, I wonder if one did this kind of tx in preparation for standard tx if it would help improve the outcomes? Subject: Dr Berkson--ContinuedTo: Hepatitis_C_Central Date: Saturday, January 10, 2009, 5:03 PM The second half of my post disappeared into cyberspace. There are 12 recliners in the treatment room and patients chat about why they are there and what has happened to them. Many were given only a year or so to live and are still around several years later. Some are just ok: some feel great. He treats all types of immune system disorders and some cancers. Many he treats have been through regular channels and told they are going to die or be permanently disabled and there is nothing left to do. My feeling is that the IV's work and the change depends on how sick one is. My labs were good going in (after 10 months on his recommended supplements) ALT--36 AST--47 Platelets--278 So I did not experience much change. I am on low dose naltrexone for my rheumatoid arthritis, but just started, so can't comment on that yet. Only one other Hep C person was there. He was a non-responder and has been there several times and is feeling good. My personal feeling is that if your numbers are low, you might want to try the supplements he suggests and see how it goes. If your numbers are high and you want to try alternative treatment or have been a non-responder, then the IV's might really help. ANY treatment is a personal choice. Again, I have had Hep c 43+ years, am 74, and this is my first treatment experience of any kind. The nurses tell me that some on transplant list heal sufficiently and do not require transplant and some go on to transplant. My other suggestions are--Whatever you decide--go to your doctor regularly--get your labs regularly--This disease is very sneaky and can change directions-- DO NOT DRINK ALCOHOL--Watch your diet and eat well (I will post Dr Berkson diet) Exercise. There are new treatments coming up for Hep C that may not be as debilitating as those today. Do NOT panic because you have Hep C, especially if you are in the first stages. It is normally not an aggressive disease. Consider ALL options before doing ANY treatment and get all the info you can. Read the online book Choices on www.hepcchallenge. org. They have just published a new edition. If anyone wants to post me personally, feel free to do that. Cheers and health to all, SuziQ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Hi Jackie, I am not sure what would happen in terms of conventional treatment BUT from what I have read they go in opposite directions. Interferon breaks down your immune system and ALA builds your immune system. The other question is--if your liver is healing or in very good shape, why would one want to go through a year of treatment that has so many difficult (and sometimes long lasting) side effects ??? My doctors (I've had several)have felt that my particular Hep C is very slow moving and said that I would die of something else and felt that there is no reason for conventional treatment and its side effects. I DO keep a check on it to see that it doesn't change and start progressing quickly. Recently, I've had 2 CT scans for my kidney stones and they both show my liver in good condition. I will send off list Jo Bean's letter. She had been given less than a year to live (six yearsago), so she had a different situation from mine. I came for insurance for my liver, but probably will not come again. It is expensive and my liver is fine. I WILL continue the supps and if for some reason I cannot take the supps, I would return for IV's. I am on my way home today so need to get busy NOW. Hugs, Suzi Q > > > > Subject: Dr Berkson--Continued > To: Hepatitis_C_Central > Date: Saturday, January 10, 2009, 5:03 PM > > > > > > > > > > > > > The second half of my post disappeared into cyberspace. > > There are 12 recliners in the treatment room and patients chat about why they are there and what has happened to them. Many were given only a year or so to live and are still around several years later. Some are just ok: some feel great. He treats all types of immune system disorders and some cancers. Many he treats have been through regular channels and told they are going to die or be permanently disabled and there is nothing left to do. My feeling is that the IV's work and the change depends on how sick one is. > My labs were good going in (after 10 months on his recommended supplements) > ALT--36 AST--47 Platelets--278 So I did not experience much change. I am on low dose naltrexone for my rheumatoid arthritis, but just started, so can't comment on that yet. Only one other Hep C person was there. He was a non-responder and has been there several times and is feeling good. > > My personal feeling is that if your numbers are low, you might want to try the supplements he suggests and see how it goes. If your numbers are high and you want to try alternative treatment or have been a non-responder, then the IV's might really help. ANY treatment is a personal choice. Again, I have had Hep c 43+ years, am 74, and this is my first treatment experience of any kind. The nurses tell me that some on transplant list heal sufficiently and do not require transplant and some go on to transplant. > > My other suggestions are--Whatever you decide--go to your doctor regularly--get your labs regularly--This disease is very sneaky and can change directions-- DO NOT DRINK ALCOHOL--Watch your diet and eat well (I will post Dr Berkson diet) Exercise. There are new treatments coming up for Hep C that may not be as debilitating as those today. Do NOT panic because you have Hep C, especially if you are in the first stages. It is normally not an aggressive disease. Consider ALL options before doing ANY treatment and get all the info you can. Read the online book Choices on www.hepcchallenge. org. They have just published a new edition. > > If anyone wants to post me personally, feel free to do that. > > Cheers and health to all, SuziQ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Yes, Interferon boosts the immune system, and the Riba kills the virus. I am doing treatment and take anti rejection meds, and I have to take more anti rejection meds to suppress my immune system so that the interferon doesn't cause me to go into rejection. Penny > > > > > > From: Suzi Q <ancientkron@ ...> > > Subject: [Hepatitis_C_ Central] Dr Berkson--Continued > > To: Hepatitis_C_ Central@yahoogro ups.com > > Date: Saturday, January 10, 2009, 5:03 PM > > > > > > > > > > > > > > > > > > > > > > > > > > The second half of my post disappeared into cyberspace. > > > > There are 12 recliners in the treatment room and patients chat > about why they are there and what has happened to them. Many were > given only a year or so to live and are still around several years > later. Some are just ok: some feel great. He treats all types of > immune system disorders and some cancers. Many he treats have been > through regular channels and told they are going to die or be > permanently disabled and there is nothing left to do. My feeling is > that the IV's work and the change depends on how sick one is. > > My labs were good going in (after 10 months on his recommended > supplements) > > ALT--36 AST--47 Platelets--278 So I did not experience much > change. I am on low dose naltrexone for my rheumatoid arthritis, but > just started, so can't comment on that yet. Only one other Hep C > person was there. He was a non-responder and has been there several > times and is feeling good. > > > > My personal feeling is that if your numbers are low, you might want > to try the supplements he suggests and see how it goes. If your > numbers are high and you want to try alternative treatment or have > been a non-responder, then the IV's might really help. ANY treatment > is a personal choice. Again, I have had Hep c 43+ years, am 74, and > this is my first treatment experience of any kind. The nurses tell > me that some on transplant list heal sufficiently and do not require > transplant and some go on to transplant. > > > > My other suggestions are--Whatever you decide--go to your doctor > regularly--get your labs regularly--This disease is very sneaky and > can change directions-- DO NOT DRINK ALCOHOL--Watch your diet and eat > well (I will post Dr Berkson diet) Exercise. There are new > treatments coming up for Hep C that may not be as debilitating as > those today. Do NOT panic because you have Hep C, especially if you > are in the first stages. It is normally not an aggressive disease. > Consider ALL options before doing ANY treatment and get all the info > you can. Read the online book Choices on www.hepcchallenge . org. > They have just published a new edition. > > > > If anyone wants to post me personally, feel free to do that. > > > > Cheers and health to all, SuziQ > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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