Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Dearest Marie - Please, sweet heart, find a local support group or a counselor--someone who can help you in a very active, present way. If nothing else, speak to your regular doctor/rheumy and see if she or he has a recommendation. Once, when I went through a very deep depression, I finally reached out for help. Antidepressants and counseling help me find a more balanced place from which I could deal with everything. At a certain point, I was able to stop the antidepressant and move on. This, of course, won't take the situation away; but, if you can settle and balance a little. .. .clear the clouds in your mind a bit. . .you may very well start seeing some light and some solutions. God *is* with you, Marie. Sometimes, when the situation is dire, we don't see God's presence, protection and love until after we've gone through the storm. Then, looking back, we can see all the ways God was right there. Praying for you - Prakasha On Oct 25, 2005, at 7:41 AM, snowespi wrote: > Good=morning to all! PLease forgive me for what I am about to write. I > am in a very bad way. I can only imagine what my neighbors must think > if they can hear here. I live in condos and we are connected. I can't > keep living like this. I don't know what to do. I feel like I am being > tortured my daughter. For being ill. For having whatever the hell i > have. Auto-immune crap. I am so sick and tired of being sick and > tired. > I am tired of the hooops I have to jump throug to get good help from > what is now a business. ANd they call themselves doctors. It make me > sick. If I am not crazy.... I sure will be soon. The way I feel I > feel > like I am losing it and am going to go insane. I am not normal. My > behavior this morning is not mnornal. To wake up and within half and > hour be screaming and crying. Like a breakdown or something> is that > normal???? I need help and I don't know what to do. I am on > prednisone > and I think that does not effect me very well but what the heck am I > supposed to do when I have to take it or I can't walk. The inflamation > is so bad. I am just SO TIRED!!!! > If there is a God where is he? Marie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Dearest Marie - Please, sweet heart, find a local support group or a counselor--someone who can help you in a very active, present way. If nothing else, speak to your regular doctor/rheumy and see if she or he has a recommendation. Once, when I went through a very deep depression, I finally reached out for help. Antidepressants and counseling help me find a more balanced place from which I could deal with everything. At a certain point, I was able to stop the antidepressant and move on. This, of course, won't take the situation away; but, if you can settle and balance a little. .. .clear the clouds in your mind a bit. . .you may very well start seeing some light and some solutions. God *is* with you, Marie. Sometimes, when the situation is dire, we don't see God's presence, protection and love until after we've gone through the storm. Then, looking back, we can see all the ways God was right there. Praying for you - Prakasha On Oct 25, 2005, at 7:41 AM, snowespi wrote: > Good=morning to all! PLease forgive me for what I am about to write. I > am in a very bad way. I can only imagine what my neighbors must think > if they can hear here. I live in condos and we are connected. I can't > keep living like this. I don't know what to do. I feel like I am being > tortured my daughter. For being ill. For having whatever the hell i > have. Auto-immune crap. I am so sick and tired of being sick and > tired. > I am tired of the hooops I have to jump throug to get good help from > what is now a business. ANd they call themselves doctors. It make me > sick. If I am not crazy.... I sure will be soon. The way I feel I > feel > like I am losing it and am going to go insane. I am not normal. My > behavior this morning is not mnornal. To wake up and within half and > hour be screaming and crying. Like a breakdown or something> is that > normal???? I need help and I don't know what to do. I am on > prednisone > and I think that does not effect me very well but what the heck am I > supposed to do when I have to take it or I can't walk. The inflamation > is so bad. I am just SO TIRED!!!! > If there is a God where is he? Marie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2010 Report Share Posted April 7, 2010 Dear Beth, I regret that I only just got to this post from you. I know that others have said this already, but I need you to know how deeply I appreciate that richly descriptive and deeply moving narrative regarding your late mother. It's clear that you had a very special and wonderful relationship with her. You must miss her terribly. Thank you so much, Beth, for sharing with all of us this affecting sketch of an extraordinary woman and a terrific mom (and friend and ally and advocate, if I am reading your post correctly). I can see where you may have gotten some of your own feisty-fighter attitude! Thanks, > > Anyone (and by 'anyone', I'm mostly referring to some physicians, P.T.'s, etc.) who does not believe that chronic pain (as opposed to acute pain) and depression walk hand-in-hand, has never had to live with chronic pain. I have been calling my Pain Mgmt. doc " my hero " and " my life-changer " for over 9 yrs. now, often in my Feisty posts. I refer to him in those terms because he has worked long and hard researching Flatback Syndrome (Sagital imbalance, Failed Back Syndrome,etc). I was his first Flatback patient and as a Family Practitioner, it was an area he was not totally familiar with. He is a credentialed Pain Mgmt. physician but (sadly) does not " advertise " as such...for reasons that are pretty understandable to those of us who have been labeled as " doctor shoppers " and " drug seekers " by far too many ignorant health care " professionals " . > > My doc's research into the world of Ortho, Scoliosis, Flatback Syndrome, etc. is on-going and thorough. Over the past 9+ yrs as my physician, he has continued to re-work my Pain Mgmt. regime as new info becomes available. My narcotic meds and Neurontin dosages have pretty much remained steady; but as new info becomes available regarding the use of anti-depressants in conjunction with pain meds for chronic pain patients, he has prescribed several anti-depressants in various dosages for me. > > Each time he adds or removes a medication from my daily regime I go back to keeping a daily Pain Diary which, to a QUALIFIED Pain Mgmt doc, is a part of the gold standard of care. Then at my next follow-up appt. we review the diary together...HONEST, STRAIGHT-FORWARD COMMUNICATION between doctor, patient and family is an ESSENTIAL component of QUALITY Pain Mgmt. I am so blessed to have found such an amazing physician...and I tell him that as often as I can. He has worked countless hours to help me have the quality of life that I desired. After too many years of trying to find a QUALIFIED Pain Mgmt doc who didn't just hand out rxs like candy, with no regard to what I WANTED and WHAT I NEEDED, I found my medical angel... > > Depression, at some level, always has and always will accompany chronic pain. It's not enough to only tell your loved ones or your best friend that you're depressed. In order to fully battle chronic pain you must tell your physicians ALL the " feelings " you are experiencing, not just the level of pain you're having. Anti-depressants can help boost the effectiveness of your narcotic meds� as well as boost your emotional health. Don't be afraid or ashamed to talk to your health care providers about your emotional health!! Depression plays a HUGE role in the treatment of chronic pain...don't let anyone tell you otherwise! TALK about it...FACE it...and TACKLE it head on!! You'll be so glad you did! > > Today is the one year anniversary of my beloved Mom's passing...and it's Easter Sunday. If you don't think I'm not dealing with a spike in my depression today, you're not reading between the lines. She was my first line of defense when, as a scared 16 y/o, was told I needed surgery for Scoliosis. She has always been in my corner when it came to battling this retched monster. When I was lying in bed for 6 mos in my lovely Riser body cast that went from my neck to my knees, she was the one who sat by my side as I laid on a bed pan...she was the one who figured out how to slide me sideways in my hospital bed at home so that she could wash my hair...she was the one who figured out that a disposable baby diaper (which were JUST hitting the grocery stores in 1970!!) worked better as a sanitary pad for young girls in my predicament. Inserting a tampon into her 16y/o daughter was not an option for us, as she herself had never used one! Her biggest fear with > tampons... " What if it gets lost 'up there', Sweetie? " , she would say to me!! And we'd both laugh...she could ALWAYS get me to laugh through my tears. When I gave birth to her 1st Grandchild, my son...her beloved Grandson Danny-boy, she " felt " every stabbing pain I felt in my back. When I was searching for a doc in 1995 who could figure out why I was suddenly experience back pain again and " falling forward " she went to countless appt. with me. When I found my current surgeon and Pain Mgmt docs she wept with joy with me. She was a Warrior-mother...a kind soul...one of the greatest blessings in my life. She understood depression on a personal level and help me fight through mine every day of my life. And while she surely wouldn't want me to be depressed at her passing, I am. But she would also say, " Sweetie, if you can help others to get the excellent care and empathetic doctors like you've been blessed with, then you just keep those fingers of yours > rolling over those computer keys! " > > So, in her memory, I wish for all of my Feisty friends to find the quality of life that you desire...to be blessed with excellent, empathetic, qualified care. > > All the best, > Beth > Quote Link to comment Share on other sites More sharing options...
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