Re: has anyone heard of this? - Sandie

[Guest guest]

Kathe,

Thank you for your kind words. I am hopeful with the prednisone even though I

really do not want to take it. I will be seeing my new pcp on the 17th and

getting the referral for the new rheumy. I have heard good things about him but

no matter- he is the last one in the book. I just want someone to help me.

Just because I " dont fit the profile " and it is a bit hard to figure out stuff

for me doesnt mean I dont deserve help. I have lost all confidence in doctors

at this point. I am almost 34 years old and life looks so bleak. I really do

try to be positive and hopeful but at times it is so hard. Today I was diagnosed

with plurisy. This is my 4th bout with it over the last 3 1/2 years. again I

am just disgusted.

Hope you are feeling well.

Thanks again Sandie

[Guest guest]

Kathe,

Thank you for your kind words. I am hopeful with the prednisone even though I

really do not want to take it. I will be seeing my new pcp on the 17th and

getting the referral for the new rheumy. I have heard good things about him but

no matter- he is the last one in the book. I just want someone to help me.

Just because I " dont fit the profile " and it is a bit hard to figure out stuff

for me doesnt mean I dont deserve help. I have lost all confidence in doctors

at this point. I am almost 34 years old and life looks so bleak. I really do

try to be positive and hopeful but at times it is so hard. Today I was diagnosed

with plurisy. This is my 4th bout with it over the last 3 1/2 years. again I

am just disgusted.

Hope you are feeling well.

Thanks again Sandie

[Guest guest]

Hi Sandie:

Well, that seems a bit extreme to stop all medications

cold turkey, but at least he is giving you Prednisone.

I have been in a severe flare for about a week now

and finally cried uncle, called my rheumy, and asked

for Prednisone for a couple of weeks until the Enbrel

kicks in. I started taking it 10 mg. a day yesterday

and can already feel a difference. There is still

pain, but a bit less, and I am hopefull that each day

that goes by will give me more relief. That stuff is

remarkable in that it works so fast for me, but it

does make me a bit wacky lol. I'm glad that you will

be going to a new rheumy, hopefully it won't take you

too long to get in and he will be better than the jerk

you have now. " Don't let it ruin your night " ?? They

just don't get it do they? Well, we do! Hope that you

have better days soon -

Kathe in CA

--- slmcc93@... wrote:

> Well, Today I went back to my rheumy. I told him the

> MTX doesn't seem to be

> working anymore as I have more pain in my hands and

> feet and basically all

> over. I told him when the pain hits my toes and

> fingers it is hot and throbbing

> and actually hits with such intensity that it turns

> my stomach. What did he say

> - nothing. He then told me to forget going to the

> oncologist and took me off

> all my meds. No more plaquenil, mtx and folic acid.

> He said we " will do an

> experiment with prednisone. " I will be taking the

> prednisone for 3 weeks 20 mg a

> day for two weeks and then tapering off slowly. if

> that works to help me with

> the pain he will put me on a mtx typ drug again. if

> that doesnt work he is

> done with me. He said i " fall in the gray zone. my

> blood work doesnt show the RA

> per say so there is nothing else he can do for me. "

> He suggested a pain

> management doc or my pcp to prescribe pain meds for

> me but that is it. He does say I

> have psoriatic arthritis.

> I am completely disgusted. I am in constant pain-

> and he doesnt seem to care.

> My worry is that I DO have RA and if left untreated

> I will have a host of

> problems later in life and he of course will be long

> gone. as far as I am

> concerned I am done with this doctor(and i use that

> term loosely) I will however take

> the prednisone for the next 3 weeks and see him but

> that is it. I have his

> appointment on the 15th and my new pcp on the 17th.

> Things coundt have worked

> out better there. so I will then take my records and

> get a referral for the last

> rheumy in my insurance plan. Help everyone has

> anyone had this type of thing

> happen to them and if yes what have you done? any

> and all advice is greatly

> appreciated. I am at the end of my rope at 34years

> old. I cant take it anymore.

> i jsut want to not have pain. The only good thing

> this guy did was give me a

> script for the lortab and 2 refills. but ven there I

> am just tired of the pain

> meds as they dont even give much relief.

> sorry to complain so much i am just so tired. then

> dear hubby said " you

> shouldnt let it ruin your night " UGH!!!!!!! I will

> not even get into that!

>

> hugs to all

> sandie

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe in CA

__________________________________

FareChase: Search multiple travel sites in one click.

http://farechase.

[Guest guest]

Hi Sandie:

Well, that seems a bit extreme to stop all medications

cold turkey, but at least he is giving you Prednisone.

I have been in a severe flare for about a week now

and finally cried uncle, called my rheumy, and asked

for Prednisone for a couple of weeks until the Enbrel

kicks in. I started taking it 10 mg. a day yesterday

and can already feel a difference. There is still

pain, but a bit less, and I am hopefull that each day

that goes by will give me more relief. That stuff is

remarkable in that it works so fast for me, but it

does make me a bit wacky lol. I'm glad that you will

be going to a new rheumy, hopefully it won't take you

too long to get in and he will be better than the jerk

you have now. " Don't let it ruin your night " ?? They

just don't get it do they? Well, we do! Hope that you

have better days soon -

Kathe in CA

--- slmcc93@... wrote:

> Well, Today I went back to my rheumy. I told him the

> MTX doesn't seem to be

> working anymore as I have more pain in my hands and

> feet and basically all

> over. I told him when the pain hits my toes and

> fingers it is hot and throbbing

> and actually hits with such intensity that it turns

> my stomach. What did he say

> - nothing. He then told me to forget going to the

> oncologist and took me off

> all my meds. No more plaquenil, mtx and folic acid.

> He said we " will do an

> experiment with prednisone. " I will be taking the

> prednisone for 3 weeks 20 mg a

> day for two weeks and then tapering off slowly. if

> that works to help me with

> the pain he will put me on a mtx typ drug again. if

> that doesnt work he is

> done with me. He said i " fall in the gray zone. my

> blood work doesnt show the RA

> per say so there is nothing else he can do for me. "

> He suggested a pain

> management doc or my pcp to prescribe pain meds for

> me but that is it. He does say I

> have psoriatic arthritis.

> I am completely disgusted. I am in constant pain-

> and he doesnt seem to care.

> My worry is that I DO have RA and if left untreated

> I will have a host of

> problems later in life and he of course will be long

> gone. as far as I am

> concerned I am done with this doctor(and i use that

> term loosely) I will however take

> the prednisone for the next 3 weeks and see him but

> that is it. I have his

> appointment on the 15th and my new pcp on the 17th.

> Things coundt have worked

> out better there. so I will then take my records and

> get a referral for the last

> rheumy in my insurance plan. Help everyone has

> anyone had this type of thing

> happen to them and if yes what have you done? any

> and all advice is greatly

> appreciated. I am at the end of my rope at 34years

> old. I cant take it anymore.

> i jsut want to not have pain. The only good thing

> this guy did was give me a

> script for the lortab and 2 refills. but ven there I

> am just tired of the pain

> meds as they dont even give much relief.

> sorry to complain so much i am just so tired. then

> dear hubby said " you

> shouldnt let it ruin your night " UGH!!!!!!! I will

> not even get into that!

>

> hugs to all

> sandie

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe in CA

__________________________________

FareChase: Search multiple travel sites in one click.

http://farechase.