Re: labs don't tell

[Guest guest]

Doctors who look to labs and then tell us how we're supposed to feel drive me

crazy. My labs are always normal, and I am in agony. Especially today. I

have a spot on my lower back that feels like I'm being shot with a nailgun and

it moves into my bladder and elsewhere. Then there's another spot on my left

shoulder that shoots down my arm. I ran out of Norco and there's no hope for

more. I have taken every other drug I could possibly take and I still hurt and

hurt and hurt. It just won't go away. The surprising thing is not that you

have crying spells--the surprising thing is that your whole life isn't a crying

spell if you feel like this. I am having a very bad week. Forgive me,

everyone for being unsupportive lately. I know many of you have had

significant difficulties this week and I love you all. I'm just so tired of

hurting for no apparent reason.

LYNN--are you reading this? You said STAY GOLD. Did you get it from S.E.

Hinton's " The Outsiders " ??? I read that book every year from high school on

for about ten years and still read it every now and then. Also, " That was Then

This is Now " . I'm trying to stay gold, but I'm not having much luck lately.

The animal pictures did bring a smile to my face, though. Thank you. I wish

I was covered with kittens like that one guy.

laura

cnberte <bertelson@...> wrote: Hi All,

Well, I had my 2nd rheumy appt yesterday. I was a little surprised

by the little amount of time that was spent with me. My rheumy's

Fellow made me feel that based on my lab results I should be feeling

better. (if anybody thinks I should feel better ITS ME) I went into

some sort of crying episode after my visit which started before I

left the office and continued in the nice chairs out in the hall for

about an hour. I mean really, we wait a long time to see them and

then get

such a small amount of time. I think my bill should be commensurate

with that small amount. I have been getting more and more depressed

over last few weeks which I brought up with the Fellow and he let me

know that he was NOT treating my depression. Well, ok then. I didn't

have depression before I got RA. So there! I could tell they were on

a time crunch and they have answered these question a lot but not for

me and this is the first time I have had RA. I am figuring out which

dr I am supposed to ask for what med. I will ask my GP to check to

see if my antidepressants need adjusting or what is going on with

me. On a positive note all of my labs are normal now and my rheumy

IS fabulous. She was sorry about the appt yesterday, when I called

back today to discuss it and later when her nurse called, I burst

into tears again. My pain is still very significant and I am not

sleeping that well. She has prescribed another round of prednisolone

to see if that helps to help decipher if the pain is related to the

RA or maybe fibromyalgia in addition to it. I have to admit it has

made me feel a little better and for that I am grateful.

I know that medical professionals are busy, with less reimbursements

and the crush of more and more uninsured and underinsured as I work

at the county hospital. They have to see more and more patients to

keep up with the malpractice premiums. I hope I don't make my

patients feel that way and if I do I hope that I will learn another

lesson here (Ra has

been a great educator! LOL) I think I may be a little too far in the

other direction. The tests, the labs, the meds, etc. Grant us all

patience, I don't mind waiting but do want your undivided attention

when it is MY turn. Thanks for letting me vent.

Cassy

[Guest guest]

Best book I ever read as a teen.

Labs dont show everything. I had horrible stomach pain a few years back and

every one told me there was nothing wrong. Finally got referred to a surgeon

who did exploratory surgery. Turns out, I had a cyst that had burst and

caused an infection in my stomach and they wound up having to remove my

appendix. We know our bodies. If your doctor doesnt understand- find a new

doctor. You shouldnt have to live in pain.

Jill

On 12/2/05, Bauman <ilovecats83160@...> wrote:

>

> Doctors who look to labs and then tell us how we're supposed to feel

> drive me crazy. My labs are always normal, and I am in agony. Especially

> today. I have a spot on my lower back that feels like I'm being shot with

> a nailgun and it moves into my bladder and elsewhere. Then there's another

> spot on my left shoulder that shoots down my arm. I ran out of Norco and

> there's no hope for more. I have taken every other drug I could possibly

> take and I still hurt and hurt and hurt. It just won't go away. The

> surprising thing is not that you have crying spells--the surprising thing

> is that your whole life isn't a crying spell if you feel like this. I am

> having a very bad week. Forgive me, everyone for being unsupportive

> lately. I know many of you have had significant difficulties this week and

> I love you all. I'm just so tired of hurting for no apparent reason.

>

> LYNN--are you reading this? You said STAY GOLD. Did you get it from

> S.E. Hinton's " The Outsiders " ??? I read that book every year from high

> school on for about ten years and still read it every now and then. Also,

> " That was Then This is Now " . I'm trying to stay gold, but I'm not having

> much luck lately. The animal pictures did bring a smile to my face,

> though. Thank you. I wish I was covered with kittens like that one guy.

>

> laura