Guest guest Posted December 5, 2005 Report Share Posted December 5, 2005 Welcome, Debbie! Sorry that you have so many serious problems and are having trouble finding answers and relief. Could you tell us more about your " nodes " ? How big are they? What are their specific locations? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] ra fibro/ lupus > hi... Been going thru all the stuff for about 22 yrs now. lost doctors > here and there and i guess nothing really followed me except the drs > saying i had some very rare and intersting things that had happened to > me... they say im different and they cant quite get a hold of a > diagnosis Ive had pseudo tumor cerebri. minus the steroid usage.. ive > had severe cortisol production.. thyroid total shutdown.. doc said my > body was fighting itself with some kind of immune attack... i also > ended up with asthma and yrs later ive now had 12 surgeries for various > body things... my doc always laughed at me and said your allergic to > your self.. ha ha... welll he was right but he was not funny,.. im > still dealing with all the tests... finally found a rheumy 2 yrs ago... > tests finally showed my problems but he opened a new practice.. doesnt > tk. my ins. took me yrs to find him and hes gone... the steroid shots > finally got me to do things again... now im lost again... question.... > Does anyone here keep getting the painful nodes on there tendons???? > My arms and legs are on fire next to the nodes they really hurt... > havnt experienced this in a while... im on plaquenil and arthrotic and > about 6 other drugs thanks .... debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2005 Report Share Posted December 5, 2005 hi. The nodes i get are near my elbows and my knees and sometimes near the ankles.They are about the size of a marble and they form on the tendons or ligaments right before the bone.They last about a week then the just disappear..But we know how different some of our symptoms are.. Thanks for writing back Debbie --------------------------------- DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
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