Re: Digest Number 5039 info on blood work

[Guest guest]

Hi everyone This is Doreen again,

I wanted to ask anyone if they have had similar situations when you first got

tested for the ra and fibro .When I got the first tests about three years ago it

was high but the ra dr said no I didnt' have it and thought maybe it was some

fibro but nothing worthi worring about then. Since then I have had three

testings done each time is higher and higher last one was 1030 on the ra factor.

THe ra dr said he is trying to rule it out but that there is a new blood test to

find out for sure if you have ra or will have problems in the future. So I will

find out Thursday.

What has other's experienced in the trials of the begining diagnosis?

Doreen

[Guest guest]

Doreen,

I know my GP let my high sed rate got unchecked for over two years. I self

referred to a rheummy who dx'd me based on exam. Later blood work showed

negative RF factor and ANA. So I am one of those people that the blood work

shows NO antibodies for RA, or Lupus.

I was told by more than one rheummy as well as the info I have read that

there is NO definative test for RA. The dx is made based on exam, symptoms,

labs, xrays and for some response to meds.

If there is a new blood test that can tell you for sure if you have RA or

any autoimmune disease I would love to know what it is so I can talk to my r

heummy about it. The rheummy I am currently seeing is big into research....so

I

will also ask him if he has heard of anything.

I am curious is a rheummy telling you this and ignorring your blood work or

is this a GP that is doing this?

Toni

In a message dated 11/27/2005 5:39:57 A.M. Central Standard Time,

writes:

Date: Sat, 26 Nov 2005 19:00:42 -0800 (PST)

From: Doreen <crochet4jesus@...>

Subject: Re: Digest Number 5039 info on blood work

Hi everyone This is Doreen again,

I wanted to ask anyone if they have had similar situations when you first

got tested for the ra and fibro .When I got the first tests about three years

ago it was high but the ra dr said no I didnt' have it and thought maybe it

was some fibro but nothing worthi worring about then. Since then I have had

three testings done each time is higher and higher last one was 1030 on the ra

factor. THe ra dr said he is trying to rule it out but that there is a new

blood test to find out for sure if you have ra or will have problems in the

future. So I will find out Thursday.

What has other's experienced in the trials of the begining diagnosis?

Doreen

[Guest guest]

Toni and Doreen,

The physician is most likely referring to the anti-CCP (anticyclic

citrullinated peptide) antibody test.

American College of Rheumatology

2003

" The Use of Anti-cyclic Citrullinated Peptide (anti-CCP) Antibodies in RA " :

http://www.rheumatology.org/publications/hotline/1003anticcp.asp?aud=mem

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: Digest Number 5039 info on blood work

>

> Hi everyone This is Doreen again,

> I wanted to ask anyone if they have had similar situations when you first

> got tested for the ra and fibro .When I got the first tests about three

> years

> ago it was high but the ra dr said no I didnt' have it and thought maybe

> it

> was some fibro but nothing worthi worring about then. Since then I have

> had

> three testings done each time is higher and higher last one was 1030 on

> the ra

> factor. THe ra dr said he is trying to rule it out but that there is a

> new

> blood test to find out for sure if you have ra or will have problems in

> the

> future. So I will find out Thursday.

>

> What has other's experienced in the trials of the begining diagnosis?

> Doreen