Re: Returning member/ Need help!!! Breast pain

[Guest guest]

Hi Sherry,

I hope you will reconsider giving your daughter Tylenol, since

acetaminophen depletes vital glutathione from the body in a matter of

minutes and is one of the worst possible things to give children such

as ours, who already have drastically reduced glutathione levels.

Consider one of the otc anti-inflammatory meds such as Motrin IB,

which is both safer and has a greater affect on painful breast

tissue. Another thing you can try is to rub a quarter sized amount

of tincture of iodine (from the drug store) onto each breast. This

can work wonders in a very short period of time. Do this until the

brown spot persists overnight or for one month. Hope she feels some

relief soon!

> Hi I'm Sherry and was on this list for quite awhile in past years.

> My dtr is 17 and has both Down Syndrome and Autism. I have read the

> archives looking for an answer to our current problem and need to

> continue to read all that you have posted re:BC pills and periods.

> After years of fighting it we started her on Seasonale this month 21

> days ago and she is having the same symptoms as she did

> before....severe cramping, pain, severe aggression, screaming etc. I

> keep being told that we won''t be seeing any improvement till at

> least 3 months but my dh and I just now decided we've had enough.

> This is too dangerous. She had some sort of weird shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past couple of days her

> breasts (very tiny) are driving her crazy. She keeps trying to rip

> them off her chest, smashing them and yelling, then twisting and

> pulling. Tylenol has helped; Tonight I brought out the tylenol with

> codeine as she is in terrible pain. I don't feel anything

> there...it's as if her breasts are just starting to grow now and I

> know that was troublesome for me when I was little but this is just

> horrible!

>

> Have any of your daughters experienced this? And what have you done

> about it? She is very lowverbal and functioning and all of her

> terrible aggressive behaviors have returned with a vengeance every

> time she is due to get her period which happens every 23-27 days.

> She zones out and her IQ must drop 30 points for a week or more then

> she snaps back once she gets her period. This is why we finally

> decided to give the BC pills a try. But after today I've had it. I

> just gave her one tonight and I wish I hadn't. The poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with that...I just want

> her to stop hurting and hurting herself. Her little nipples are red

> and raw and I feel so helpless. Thank you for letting me share my

> woes without a proper introduction. If anyone has any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

Hi Sherry,

I hope you will reconsider giving your daughter Tylenol, since

acetaminophen depletes vital glutathione from the body in a matter of

minutes and is one of the worst possible things to give children such

as ours, who already have drastically reduced glutathione levels.

Consider one of the otc anti-inflammatory meds such as Motrin IB,

which is both safer and has a greater affect on painful breast

tissue. Another thing you can try is to rub a quarter sized amount

of tincture of iodine (from the drug store) onto each breast. This

can work wonders in a very short period of time. Do this until the

brown spot persists overnight or for one month. Hope she feels some

relief soon!

> Hi I'm Sherry and was on this list for quite awhile in past years.

> My dtr is 17 and has both Down Syndrome and Autism. I have read the

> archives looking for an answer to our current problem and need to

> continue to read all that you have posted re:BC pills and periods.

> After years of fighting it we started her on Seasonale this month 21

> days ago and she is having the same symptoms as she did

> before....severe cramping, pain, severe aggression, screaming etc. I

> keep being told that we won''t be seeing any improvement till at

> least 3 months but my dh and I just now decided we've had enough.

> This is too dangerous. She had some sort of weird shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past couple of days her

> breasts (very tiny) are driving her crazy. She keeps trying to rip

> them off her chest, smashing them and yelling, then twisting and

> pulling. Tylenol has helped; Tonight I brought out the tylenol with

> codeine as she is in terrible pain. I don't feel anything

> there...it's as if her breasts are just starting to grow now and I

> know that was troublesome for me when I was little but this is just

> horrible!

>

> Have any of your daughters experienced this? And what have you done

> about it? She is very lowverbal and functioning and all of her

> terrible aggressive behaviors have returned with a vengeance every

> time she is due to get her period which happens every 23-27 days.

> She zones out and her IQ must drop 30 points for a week or more then

> she snaps back once she gets her period. This is why we finally

> decided to give the BC pills a try. But after today I've had it. I

> just gave her one tonight and I wish I hadn't. The poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with that...I just want

> her to stop hurting and hurting herself. Her little nipples are red

> and raw and I feel so helpless. Thank you for letting me share my

> woes without a proper introduction. If anyone has any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

I used to get really horrendous breast pain (I also at

one point had actual breasts, like 32C. I'm 5'4 " and

have 8 percent body fat, it all collected THERE!). I

didn't get the cognitive problems, just the real

witchies. And the pain. And seizures.

So, with my doctor's approval after a bone density

test (I've got EVERY risk factor for bad bones except

being old and being a smoker, but my MOM smoked so it

was like smoking for 20 years) I stopped my periods

with depo-provera shots.

The upside: NO PERIOD for going on 2 years. This means

no bleeding, no mess, no breast pain, no seizures

associated with my period (just a zillion other

seizures, and Im not a candidate for surgury), and I

went down a cup size! woohoo! Feature not bug since Im

a gymnast when Im not shopping for seizure helmets

(med switches are my friend...)

The downside: If I'd had headaches or depression from

it I'd have been stuck with them. And there's the

whole shot thing. I HATE needles but I hate periods

more.

So that's something to discuss with her doctor, it

could be that ESTROGEN doesn't get along with your

daughter, not that MENSTRUATING itself doesnt.

Hope I helped,

Kassiane

autistic spectrum, no one can decide exactly where.

Last doctor decided PDDNOS

--- gldcst2 wrote:

> Hi I'm Sherry and was on this list for quite awhile

> in past years.

> My dtr is 17 and has both Down Syndrome and Autism.

> I have read the

> archives looking for an answer to our current

> problem and need to

> continue to read all that you have posted re:BC

> pills and periods.

> After years of fighting it we started her on

> Seasonale this month 21

> days ago and she is having the same symptoms as she

> did

> before....severe cramping, pain, severe aggression,

> screaming etc. I

> keep being told that we won''t be seeing any

> improvement till at

> least 3 months but my dh and I just now decided

> we've had enough.

> This is too dangerous. She had some sort of weird

> shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past

> couple of days her

> breasts (very tiny) are driving her crazy. She keeps

> trying to rip

> them off her chest, smashing them and yelling, then

> twisting and

> pulling. Tylenol has helped; Tonight I brought out

> the tylenol with

> codeine as she is in terrible pain. I don't feel

> anything

> there...it's as if her breasts are just starting to

> grow now and I

> know that was troublesome for me when I was little

> but this is just

> horrible!

>

> Have any of your daughters experienced this? And

> what have you done

> about it? She is very lowverbal and functioning and

> all of her

> terrible aggressive behaviors have returned with a

> vengeance every

> time she is due to get her period which happens

> every 23-27 days.

> She zones out and her IQ must drop 30 points for a

> week or more then

> she snaps back once she gets her period. This is why

> we finally

> decided to give the BC pills a try. But after today

> I've had it. I

> just gave her one tonight and I wish I hadn't. The

> poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but

> has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with

> that...I just want

> her to stop hurting and hurting herself. Her little

> nipples are red

> and raw and I feel so helpless. Thank you for

> letting me share my

> woes without a proper introduction. If anyone has

> any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

>

__________________________________________________

[Guest guest]

I used to get really horrendous breast pain (I also at

one point had actual breasts, like 32C. I'm 5'4 " and

have 8 percent body fat, it all collected THERE!). I

didn't get the cognitive problems, just the real

witchies. And the pain. And seizures.

So, with my doctor's approval after a bone density

test (I've got EVERY risk factor for bad bones except

being old and being a smoker, but my MOM smoked so it

was like smoking for 20 years) I stopped my periods

with depo-provera shots.

The upside: NO PERIOD for going on 2 years. This means

no bleeding, no mess, no breast pain, no seizures

associated with my period (just a zillion other

seizures, and Im not a candidate for surgury), and I

went down a cup size! woohoo! Feature not bug since Im

a gymnast when Im not shopping for seizure helmets

(med switches are my friend...)

The downside: If I'd had headaches or depression from

it I'd have been stuck with them. And there's the

whole shot thing. I HATE needles but I hate periods

more.

So that's something to discuss with her doctor, it

could be that ESTROGEN doesn't get along with your

daughter, not that MENSTRUATING itself doesnt.

Hope I helped,

Kassiane

autistic spectrum, no one can decide exactly where.

Last doctor decided PDDNOS

--- gldcst2 wrote:

> Hi I'm Sherry and was on this list for quite awhile

> in past years.

> My dtr is 17 and has both Down Syndrome and Autism.

> I have read the

> archives looking for an answer to our current

> problem and need to

> continue to read all that you have posted re:BC

> pills and periods.

> After years of fighting it we started her on

> Seasonale this month 21

> days ago and she is having the same symptoms as she

> did

> before....severe cramping, pain, severe aggression,

> screaming etc. I

> keep being told that we won''t be seeing any

> improvement till at

> least 3 months but my dh and I just now decided

> we've had enough.

> This is too dangerous. She had some sort of weird

> shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past

> couple of days her

> breasts (very tiny) are driving her crazy. She keeps

> trying to rip

> them off her chest, smashing them and yelling, then

> twisting and

> pulling. Tylenol has helped; Tonight I brought out

> the tylenol with

> codeine as she is in terrible pain. I don't feel

> anything

> there...it's as if her breasts are just starting to

> grow now and I

> know that was troublesome for me when I was little

> but this is just

> horrible!

>

> Have any of your daughters experienced this? And

> what have you done

> about it? She is very lowverbal and functioning and

> all of her

> terrible aggressive behaviors have returned with a

> vengeance every

> time she is due to get her period which happens

> every 23-27 days.

> She zones out and her IQ must drop 30 points for a

> week or more then

> she snaps back once she gets her period. This is why

> we finally

> decided to give the BC pills a try. But after today

> I've had it. I

> just gave her one tonight and I wish I hadn't. The

> poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but

> has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with

> that...I just want

> her to stop hurting and hurting herself. Her little

> nipples are red

> and raw and I feel so helpless. Thank you for

> letting me share my

> woes without a proper introduction. If anyone has

> any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

>

__________________________________________________

[Guest guest]

I have no input, only to say I'm thinking of you & your girl and hoping she

finds relief.

I also wondered about the depo shot, to alleviate periods. I did try it to

(for other reasons) and ended up bleeding 3 weeks a month, I was one of the

very few it totally backfired on.

Anyway, sending you love & hope through the 'net.

Doreen

Returning member/ Need help!!! Breast pain

Hi I'm Sherry and was on this list for quite awhile in past years.

My dtr is 17 and has both Down Syndrome and Autism. I have read the

archives looking for an answer to our current problem and need to

continue to read all that you have posted re:BC pills and periods.

After years of fighting it we started her on Seasonale this month 21

days ago and she is having the same symptoms as she did

before....severe cramping, pain, severe aggression, screaming etc. I

keep being told that we won''t be seeing any improvement till at

least 3 months but my dh and I just now decided we've had enough.

This is too dangerous. She had some sort of weird shivering spell

this AM.

Anyway even before the pill but moreso these past couple of days her

breasts (very tiny) are driving her crazy. She keeps trying to rip

them off her chest, smashing them and yelling, then twisting and

pulling. Tylenol has helped; Tonight I brought out the tylenol with

codeine as she is in terrible pain. I don't feel anything

there...it's as if her breasts are just starting to grow now and I

know that was troublesome for me when I was little but this is just

horrible!

Have any of your daughters experienced this? And what have you done

about it? She is very lowverbal and functioning and all of her

terrible aggressive behaviors have returned with a vengeance every

time she is due to get her period which happens every 23-27 days.

She zones out and her IQ must drop 30 points for a week or more then

she snaps back once she gets her period. This is why we finally

decided to give the BC pills a try. But after today I've had it. I

just gave her one tonight and I wish I hadn't. The poor little kid

is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

period for 7 years.

The mess is a pain in the butt but I'll deal with that...I just want

her to stop hurting and hurting herself. Her little nipples are red

and raw and I feel so helpless. Thank you for letting me share my

woes without a proper introduction. If anyone has any thoughts for

us please respond. Thank you so much.

Sherry in Florida

[Guest guest]

I have no input, only to say I'm thinking of you & your girl and hoping she

finds relief.

I also wondered about the depo shot, to alleviate periods. I did try it to

(for other reasons) and ended up bleeding 3 weeks a month, I was one of the

very few it totally backfired on.

Anyway, sending you love & hope through the 'net.

Doreen

Returning member/ Need help!!! Breast pain

Hi I'm Sherry and was on this list for quite awhile in past years.

My dtr is 17 and has both Down Syndrome and Autism. I have read the

archives looking for an answer to our current problem and need to

continue to read all that you have posted re:BC pills and periods.

After years of fighting it we started her on Seasonale this month 21

days ago and she is having the same symptoms as she did

before....severe cramping, pain, severe aggression, screaming etc. I

keep being told that we won''t be seeing any improvement till at

least 3 months but my dh and I just now decided we've had enough.

This is too dangerous. She had some sort of weird shivering spell

this AM.

Anyway even before the pill but moreso these past couple of days her

breasts (very tiny) are driving her crazy. She keeps trying to rip

them off her chest, smashing them and yelling, then twisting and

pulling. Tylenol has helped; Tonight I brought out the tylenol with

codeine as she is in terrible pain. I don't feel anything

there...it's as if her breasts are just starting to grow now and I

know that was troublesome for me when I was little but this is just

horrible!

Have any of your daughters experienced this? And what have you done

about it? She is very lowverbal and functioning and all of her

terrible aggressive behaviors have returned with a vengeance every

time she is due to get her period which happens every 23-27 days.

She zones out and her IQ must drop 30 points for a week or more then

she snaps back once she gets her period. This is why we finally

decided to give the BC pills a try. But after today I've had it. I

just gave her one tonight and I wish I hadn't. The poor little kid

is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

period for 7 years.

The mess is a pain in the butt but I'll deal with that...I just want

her to stop hurting and hurting herself. Her little nipples are red

and raw and I feel so helpless. Thank you for letting me share my

woes without a proper introduction. If anyone has any thoughts for

us please respond. Thank you so much.

Sherry in Florida

[Guest guest]

Hello Sherry,

I am so glad you decided to post! I have 5 children. My 18 year old,

Bi-polar/type 1 diabetic went on this drug 2 months ago to prevent

severe PMS prior and post of her periods. She has bled on 5 days each of

the last 2 months. Granted that she has one more month, I am not

impressed. We do have her on the generic of Seasonal which is

" Quasense " . I do not know if that makes a difference but I am not

impressed. We have an appointment coming up with her endocrinologist and

this will be changed. She was on a generic monthly birth control for

years and never had a problem with bleeding on the pill. I agree with

you, something is terribly wrong and I definitely would call the doctor

and get her off of that.

Let us know what you decide and the outcome. Glad you decided to post.

Shanna

>

> Hi I'm Sherry and was on this list for quite awhile in past years.

> My dtr is 17 and has both Down Syndrome and Autism. I have read the

> archives looking for an answer to our current problem and need to

> continue to read all that you have posted re:BC pills and periods.

> After years of fighting it we started her on Seasonale this month 21

> days ago and she is having the same symptoms as she did

> before....severe cramping, pain, severe aggression, screaming etc. I

> keep being told that we won''t be seeing any improvement till at

> least 3 months but my dh and I just now decided we've had enough.

> This is too dangerous. She had some sort of weird shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past couple of days her

> breasts (very tiny) are driving her crazy. She keeps trying to rip

> them off her chest, smashing them and yelling, then twisting and

> pulling. Tylenol has helped; Tonight I brought out the tylenol with

> codeine as she is in terrible pain. I don't feel anything

> there...it's as if her breasts are just starting to grow now and I

> know that was troublesome for me when I was little but this is just

> horrible!

>

> Have any of your daughters experienced this? And what have you done

> about it? She is very lowverbal and functioning and all of her

> terrible aggressive behaviors have returned with a vengeance every

> time she is due to get her period which happens every 23-27 days.

> She zones out and her IQ must drop 30 points for a week or more then

> she snaps back once she gets her period. This is why we finally

> decided to give the BC pills a try. But after today I've had it. I

> just gave her one tonight and I wish I hadn't. The poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with that...I just want

> her to stop hurting and hurting herself. Her little nipples are red

> and raw and I feel so helpless. Thank you for letting me share my

> woes without a proper introduction. If anyone has any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

[Guest guest]

Hello Sherry,

I am so glad you decided to post! I have 5 children. My 18 year old,

Bi-polar/type 1 diabetic went on this drug 2 months ago to prevent

severe PMS prior and post of her periods. She has bled on 5 days each of

the last 2 months. Granted that she has one more month, I am not

impressed. We do have her on the generic of Seasonal which is

" Quasense " . I do not know if that makes a difference but I am not

impressed. We have an appointment coming up with her endocrinologist and

this will be changed. She was on a generic monthly birth control for

years and never had a problem with bleeding on the pill. I agree with

you, something is terribly wrong and I definitely would call the doctor

and get her off of that.

Let us know what you decide and the outcome. Glad you decided to post.

Shanna

>

> Hi I'm Sherry and was on this list for quite awhile in past years.

> My dtr is 17 and has both Down Syndrome and Autism. I have read the

> archives looking for an answer to our current problem and need to

> continue to read all that you have posted re:BC pills and periods.

> After years of fighting it we started her on Seasonale this month 21

> days ago and she is having the same symptoms as she did

> before....severe cramping, pain, severe aggression, screaming etc. I

> keep being told that we won''t be seeing any improvement till at

> least 3 months but my dh and I just now decided we've had enough.

> This is too dangerous. She had some sort of weird shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past couple of days her

> breasts (very tiny) are driving her crazy. She keeps trying to rip

> them off her chest, smashing them and yelling, then twisting and

> pulling. Tylenol has helped; Tonight I brought out the tylenol with

> codeine as she is in terrible pain. I don't feel anything

> there...it's as if her breasts are just starting to grow now and I

> know that was troublesome for me when I was little but this is just

> horrible!

>

> Have any of your daughters experienced this? And what have you done

> about it? She is very lowverbal and functioning and all of her

> terrible aggressive behaviors have returned with a vengeance every

> time she is due to get her period which happens every 23-27 days.

> She zones out and her IQ must drop 30 points for a week or more then

> she snaps back once she gets her period. This is why we finally

> decided to give the BC pills a try. But after today I've had it. I

> just gave her one tonight and I wish I hadn't. The poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with that...I just want

> her to stop hurting and hurting herself. Her little nipples are red

> and raw and I feel so helpless. Thank you for letting me share my

> woes without a proper introduction. If anyone has any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

[Guest guest]

My Gyno suggested Depo for my 14 year old...(she is 16 now) and I refused. Some

of the side effects..and the fact that when her periods are regular..which they

are NOT...she is NATURALLY more aggressive and her moods are way off...

I don't have her on anything.....and she is much better....but the periods

themselves have a lot to do with it...her behavior.

She was tested for her irregularity..but no abnormalities showed up...but I'm

suspected she has PCOS...because she is starting to get a light beard on her

neck...even though NO cysts were found on her ovaries.......

Good Luck...

Returning member/ Need help!!! Breast pain

Hi I'm Sherry and was on this list for quite awhile in past years.

My dtr is 17 and has both Down Syndrome and Autism. I have read the

archives looking for an answer to our current problem and need to

continue to read all that you have posted re:BC pills and periods.

After years of fighting it we started her on Seasonale this month 21

days ago and she is having the same symptoms as she did

before....severe cramping, pain, severe aggression, screaming etc. I

keep being told that we won''t be seeing any improvement till at

least 3 months but my dh and I just now decided we've had enough.

This is too dangerous. She had some sort of weird shivering spell

this AM.

Anyway even before the pill but moreso these past couple of days her

breasts (very tiny) are driving her crazy. She keeps trying to rip

them off her chest, smashing them and yelling, then twisting and

pulling. Tylenol has helped; Tonight I brought out the tylenol with

codeine as she is in terrible pain. I don't feel anything

there...it's as if her breasts are just starting to grow now and I

know that was troublesome for me when I was little but this is just

horrible!

Have any of your daughters experienced this? And what have you done

about it? She is very lowverbal and functioning and all of her

terrible aggressive behaviors have returned with a vengeance every

time she is due to get her period which happens every 23-27 days.

She zones out and her IQ must drop 30 points for a week or more then

she snaps back once she gets her period. This is why we finally

decided to give the BC pills a try. But after today I've had it. I

just gave her one tonight and I wish I hadn't. The poor little kid

is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

period for 7 years.

The mess is a pain in the butt but I'll deal with that...I just want

her to stop hurting and hurting herself. Her little nipples are red

and raw and I feel so helpless. Thank you for letting me share my

woes without a proper introduction. If anyone has any thoughts for

us please respond. Thank you so much.

Sherry in Florida

[Guest guest]

My Gyno suggested Depo for my 14 year old...(she is 16 now) and I refused. Some

of the side effects..and the fact that when her periods are regular..which they

are NOT...she is NATURALLY more aggressive and her moods are way off...

I don't have her on anything.....and she is much better....but the periods

themselves have a lot to do with it...her behavior.

She was tested for her irregularity..but no abnormalities showed up...but I'm

suspected she has PCOS...because she is starting to get a light beard on her

neck...even though NO cysts were found on her ovaries.......

Good Luck...

Returning member/ Need help!!! Breast pain

Hi I'm Sherry and was on this list for quite awhile in past years.

My dtr is 17 and has both Down Syndrome and Autism. I have read the

archives looking for an answer to our current problem and need to

continue to read all that you have posted re:BC pills and periods.

After years of fighting it we started her on Seasonale this month 21

days ago and she is having the same symptoms as she did

before....severe cramping, pain, severe aggression, screaming etc. I

keep being told that we won''t be seeing any improvement till at

least 3 months but my dh and I just now decided we've had enough.

This is too dangerous. She had some sort of weird shivering spell

this AM.

Anyway even before the pill but moreso these past couple of days her

breasts (very tiny) are driving her crazy. She keeps trying to rip

them off her chest, smashing them and yelling, then twisting and

pulling. Tylenol has helped; Tonight I brought out the tylenol with

codeine as she is in terrible pain. I don't feel anything

there...it's as if her breasts are just starting to grow now and I

know that was troublesome for me when I was little but this is just

horrible!

Have any of your daughters experienced this? And what have you done

about it? She is very lowverbal and functioning and all of her

terrible aggressive behaviors have returned with a vengeance every

time she is due to get her period which happens every 23-27 days.

She zones out and her IQ must drop 30 points for a week or more then

she snaps back once she gets her period. This is why we finally

decided to give the BC pills a try. But after today I've had it. I

just gave her one tonight and I wish I hadn't. The poor little kid

is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

period for 7 years.

The mess is a pain in the butt but I'll deal with that...I just want

her to stop hurting and hurting herself. Her little nipples are red

and raw and I feel so helpless. Thank you for letting me share my

woes without a proper introduction. If anyone has any thoughts for

us please respond. Thank you so much.

Sherry in Florida

[Guest guest]

Hi,

Have you tried Vitex agnus castus?

It is a herb that is regulating period problems. It helped me a lot

when I had chronic cystitis on my breasts, it was so painful, I wanted

to have them removed, but with the tincture (it has to be taken in a

drink of water or juice) it was getting better. Another thing is maybe

her progesterone levels are too low, and for this, the gyn could

prescribe a salve that has to be applied on the breast during the 10

and 27 th day of the cycle.

It helps with pain, also, and helps with water retention, too.

my 2 cents, nana.

[Guest guest]

Hi,

Have you tried Vitex agnus castus?

It is a herb that is regulating period problems. It helped me a lot

when I had chronic cystitis on my breasts, it was so painful, I wanted

to have them removed, but with the tincture (it has to be taken in a

drink of water or juice) it was getting better. Another thing is maybe

her progesterone levels are too low, and for this, the gyn could

prescribe a salve that has to be applied on the breast during the 10

and 27 th day of the cycle.

It helps with pain, also, and helps with water retention, too.

my 2 cents, nana.

[Guest guest]

,

Hi, it's Diane. Just curious. What would you plan to give for her

cycles if you wanted to put her on the pill? I know she's waaaay to little

and all, but I so value your judgement and tend to follow your advice that

I'm curious what you would do for your own child. Of course, this is a

personal question and you certainly don't have to answer.

Diane ('s Mom)

Re: Returning member/ Need help!!! Breast

pain

Hi Sherry,

I hope you will reconsider giving your daughter Tylenol, since

acetaminophen depletes vital glutathione from the body in a matter of

minutes and is one of the worst possible things to give children such

as ours, who already have drastically reduced glutathione levels.

Consider one of the otc anti-inflammatory meds such as Motrin IB,

which is both safer and has a greater affect on painful breast

tissue. Another thing you can try is to rub a quarter sized amount

of tincture of iodine (from the drug store) onto each breast. This

can work wonders in a very short period of time. Do this until the

brown spot persists overnight or for one month. Hope she feels some

relief soon!

> Hi I'm Sherry and was on this list for quite awhile in past years.

> My dtr is 17 and has both Down Syndrome and Autism. I have read the

> archives looking for an answer to our current problem and need to

> continue to read all that you have posted re:BC pills and periods.

> After years of fighting it we started her on Seasonale this month 21

> days ago and she is having the same symptoms as she did

> before....severe cramping, pain, severe aggression, screaming etc. I

> keep being told that we won''t be seeing any improvement till at

> least 3 months but my dh and I just now decided we've had enough.

> This is too dangerous. She had some sort of weird shivering spell

> this AM.

>

> Anyway even before the pill but moreso these past couple of days her

> breasts (very tiny) are driving her crazy. She keeps trying to rip

> them off her chest, smashing them and yelling, then twisting and

> pulling. Tylenol has helped; Tonight I brought out the tylenol with

> codeine as she is in terrible pain. I don't feel anything

> there...it's as if her breasts are just starting to grow now and I

> know that was troublesome for me when I was little but this is just

> horrible!

>

> Have any of your daughters experienced this? And what have you done

> about it? She is very lowverbal and functioning and all of her

> terrible aggressive behaviors have returned with a vengeance every

> time she is due to get her period which happens every 23-27 days.

> She zones out and her IQ must drop 30 points for a week or more then

> she snaps back once she gets her period. This is why we finally

> decided to give the BC pills a try. But after today I've had it. I

> just gave her one tonight and I wish I hadn't. The poor little kid

> is only about 90 lb and 4'6 " - looks like a 10 yo but has had her

> period for 7 years.

>

> The mess is a pain in the butt but I'll deal with that...I just want

> her to stop hurting and hurting herself. Her little nipples are red

> and raw and I feel so helpless. Thank you for letting me share my

> woes without a proper introduction. If anyone has any thoughts for

> us please respond. Thank you so much.

> Sherry in Florida

>

>

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe

>

[Guest guest]

Hi Diane,

You're right that I haven't really made any definite decisions about

that yet -- Lord knows I've got enough to worry about as it is! --

since there are many options and variables to consider when the times

comes. BUT... going on the premise, as you suggested, that if I

were going to give her some form of contraceptive pill, I would most

likely choose one of the lower dose tri-cyclic pills, such as Ortho

Tri-cyclen Lo. and I are very much alike and I suspect that,

like me, she will have an early cycle. After much experimentation, I

did very well on the tri-cyclic pills, as long as I took them with

food and at the same time each day. I had no side effects whatsoever

taking them this way. Hopefully, I won't have to deal with this for a

few more years! One thing that I already do and will continue to do

is give maca root, which helps through every cycle of life, pre-

pubescence through menopause. I take it myself and it makes a world

of difference.

> ,

>

> Hi, it's Diane. Just curious. What would you plan to give

> for her

> cycles if you wanted to put her on the pill? I know she's waaaay

> to little

> and all, but I so value your judgement and tend to follow your

> advice that

> I'm curious what you would do for your own child. Of course, this

> is a

> personal question and you certainly don't have to answer.

>

> Diane ('s Mom)

[Guest guest]

Thank you everyone for all your sympathy and suggestions. I came right in to

read my email this AM and was pleased to find so many responses.

,

<<I hope you will reconsider giving your daughter Tylenol, since

acetaminophen depletes vital glutathione from the body in a matter of

minutes and is one of the worst possible things to give children such

as ours, who already have drastically reduced glutathione levels.

Consider one of the otc anti-inflammatory meds such as Motrin IB,

which is both safer and has a greater affect on painful breast

tissue.>>

I appreciate your wise advice; glutathione depletion is also an issue with Down

Syndrome and we go round and round on DS lists about tylenol also. Unfortunately

also has severe GI problems (I think she's got the worst of both worlds)

and tylenol is the only thing her stomach can tolerate right now.

<<Another thing you can try is to rub a quarter sized amount

of tincture of iodine (from the drug store) onto each breast.>>

Can you elaborate on the thinking behind the iodine treatment? is also

hypothyroid and is on synthroid ( can't take armour) so she has been advised

against any additional iodine. I know we use the iodine swab to test for thyroid

deficiency but what is the thinking in this case?

More later....she's crying again and i need to go be helpless mommy sigh

Sherry

[Guest guest]

For years when I ovulated I was in horrible breast pain. It was just

like early pregnancy for me. I did it up until I had my first child.

Now once in a blue moon my breasts will hurt, other than that I don't

experience it any more. I don't recall whether or not any sort of

birth control pill helped or not.

HTH,

Debi

[Guest guest]

Sherry,

It sounds as if your daughter is having an extremely negative

reaction to the estrogen in her pills. Under normal conditions, free

iodine is in high concentration in the ovaries and breast tissue,

acting as a protective buffer to estrogen. Iodine-deficient breasts

show changes in RNA/DNA ratios, estrogen receptor proteins, and

cytosol iodine levels. Adequate tissue iodine helps guide estrogen

into friendly pathways that support proper function of female sex

hormones. We use a safe iodine supplement called Iosol.

http://www.lef.org/newshop/items/item16422.html

Also, does she take selenium? When both iodine and selenium

deficiency are present, this exacerbates the estrogen problems. Can

you perhaps add some brazil nuts to her diet? This is one of the

better ways to get adequate selenium in a natural form.

> Can you elaborate on the thinking behind the iodine treatment?

> is also hypothyroid and is on synthroid ( can't take armour)

> so she has been advised against any additional iodine. I know we

> use the iodine swab to test for thyroid deficiency but what is the

> thinking in this case?