Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Louise...I am so sorry to hear you are not feeling well. That's the problem with this darn disease, it creeps up and scares you when you're not expecting. Hang in there Honey!! I'm back on the prednisone too and am MAD and disappointed....But we have to take it to feel well. Hugs, Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Gosh , If I were to dance naked, there would be a lot more juggling than just my lemons..... Happy thoughts to you and all.... Beth G Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Atta Girl Louise!!!! Get all that crap out of your system. I feel so much better when I just take a deep breath and yell I hurt all over, I am cranky and I can't take a nap because I am in too much pain!!! Sometimes and the boys hide. It's good for them...I feel so bad when Cody just wants to keep hugging me and I have to say, hun, stop it hurts. But you take some deep breaths and know that even if we can't fix i t, we get it and it to quote Marty...It Stinks. If you can, go smell a cut lemon for a bit...it helps me sometimes...or is that the vodka it was soaking in...hmmm anyway! g.ot f.m. Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Thanks , That made me feel so much better than my sister-in-law,The Church Lady (SNL) who " wonders if " SATAN could be the influence in my life today? " i think I will try the lemon thing, sounds promising, lol, thanks with love, Louise. Lavallee wrote: >Atta Girl Louise!!!! > >Get all that crap out of your system. I feel so much better when I >just take a deep breath and yell I hurt all over, I am cranky and I >can't take a nap because I am in too much pain!!! Sometimes and >the boys hide. It's good for them...I feel so bad when Cody just wants >to keep hugging me and I have to say, hun, stop it hurts. > >But you take some deep breaths and know that even if we can't fix i t, >we get it and it to quote Marty...It Stinks. > >If you can, go smell a cut lemon for a bit...it helps me sometimes...or >is that the vodka it was soaking in...hmmm > >anyway! > > g.ot f.m. >Massachusetts > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 -Well now there was that recent study documenting the high incidence of autoimmune diseases in Satanic Cults... Gheeesh!!!! Off to dance naked and juggle lemons... g.otf.m. Masha chushetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Sorry to hear your doing horrible Louise,hope you feel better soon.I never did have the rash on my face but it sure turned awful red with the fevers,I did however have it everywhere else from neck down .Its turned really cold this week here acully we have had it really good with warm temperatures for this time of year but today its minus 20 celcius.Sucks that your back on the prednisone,but i sure hope it eases some of the pain. d.Canada Hurting a lot > Hello Stilligans, > Sometime in the last 5 weeks or so one of our men here was complaining > about pain in the shoulder and neck and a light went on in my foggy > head...ah this is Stills coming on again. I have had one illness after > another since late Oct, thought I was getting well and woke one morning > with horrible pain, stiffness, swelling and heat in my neck and > shoulder. I thought I had slept wrong on them but it got worse, I got > the face rash, the fever, and it still took that email to help me > realize it is Stills Disease mucking up my life again. For the first > time ever I got the lacy rash on both my legs, I look like a henna > painted lady from the middle east [i always wanted to try that but not > this way.] You all know the routine, I am on prednisone again and after > working for two years to lose about 110 pounds I have gained 9 in five > days. Today I have raging, angry emotions mostly about prendisone and > this darn SD. I feel so mean I could eat raw meat today! Greg escaped > to the library and other unknown safe places about two hours ago. I am > sure he won't be back till dinner and the sweet guy will bring some sort > of bakery goods or chocolate to " sooth the savage beast " ...which will > throw me into depression after I eat it up in a nano-second. I can't > find any position, lying, sitting or standing that I don't hurt a lot. > Oh heck, I am feeling self pity bad today... > > I hope there are lots of Stilligans out there with more Christmas spirit > than I have! Louise. > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended > to replace the services of a trained health professional or to be a > substitute for medical advice of physicians and/or other health care > professionals. The International Still's Disease Foundation is not engaged > in rendering medical or professional medical services. You should consult > your physician on specific medical questions, particularly in matters > requiring diagnosis or medical attention. The International Still's > Disease Foundation makes no representations or warranties with respect to > any treatment, action, application, medication or preparation by any > person following the information offered or provided within this support > form. > > ion by any person following the information offered or provided within > this support form. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 It sure helps to have such fine and understanding Stilligans on those bad days, thanks, Louise. mncnotenuftime@... wrote: >Louise...I am so sorry to hear you are not feeling well. That's the problem >with this darn disease, it creeps up and scares you when you're not >expecting. Hang in there Honey!! I'm back on the prednisone too and am MAD and >disappointed....But we have to take it to feel well. > >Hugs, > Carey > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 , that is pretty chilly up there, hope you have some nice warm quilts and a good fire place. It was so good to see you again at the convention, we just did not get near enough time to visit. Your Mom is sure a sweet lady! Louise. Docken wrote: >Sorry to hear your doing horrible Louise,hope you feel better soon.I never >did have the rash on my face but it sure turned awful red with the fevers,I >did however have it everywhere else from neck down .Its turned really cold >this week here acully we have had it really good with warm temperatures for >this time of year but today its minus 20 celcius.Sucks that your back on the >prednisone,but i sure hope it eases some of the pain. d.Canada > Hurting a lot > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi Louise What a stinker! All that work to lose the weight as well. Don't despair. This too will pass. It just doesn't feel like it at the moment! I can really sympathise with how you feel - it really drags on sometimes and I can be a real bear when I'm at the end of my tether. Can you think of another way to treat yourself, other than chocolate? I'll admit to being the first to reach for the comfort food when I'm fed up, but a good film and a glass of red works pretty well too. Much love C2 (UK) > Hello Stilligans, > Sometime in the last 5 weeks or so one of our men here was complaining > about pain in the shoulder and neck and a light went on in my foggy > head...ah this is Stills coming on again. I have had one illness > after > another since late Oct, thought I was getting well and woke one > morning > with horrible pain, stiffness, swelling and heat in my neck and > shoulder. I thought I had slept wrong on them but it got worse, I got > the face rash, the fever, and it still took that email to help me > realize it is Stills Disease mucking up my life again. For the first > time ever I got the lacy rash on both my legs, I look like a henna > painted lady from the middle east [i always wanted to try that but not > this way.] You all know the routine, I am on prednisone again and > after > working for two years to lose about 110 pounds I have gained 9 in five > days. Today I have raging, angry emotions mostly about prendisone and > this darn SD. I feel so mean I could eat raw meat today! Greg > escaped > to the library and other unknown safe places about two hours ago. I am > sure he won't be back till dinner and the sweet guy will bring some > sort > of bakery goods or chocolate to " sooth the savage beast " ...which will > throw me into depression after I eat it up in a nano-second. I can't > find any position, lying, sitting or standing that I don't hurt a lot. > Oh heck, I am feeling self pity bad today... > > I hope there are lots of Stilligans out there with more Christmas > spirit > than I have! Louise. > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not > intended to replace the services of a trained health professional > or to be a substitute for medical advice of physicians and/or other > health care professionals. The International Still's Disease > Foundation is not engaged in rendering medical or professional > medical services. You should consult your physician on specific > medical questions, particularly in matters requiring diagnosis or > medical attention. The International Still's Disease Foundation > makes no representations or warranties with respect to any > treatment, action, application, medication or preparation by any > person following the information offered or provided within this > support form. > > ion by any person following the information offered or provided > within this support form. > > > > > > Quote Link to comment Share on other sites More sharing options...
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