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--- In , Kathe Sabetzadeh <lv2ryd@y...>

wrote:

>

>

> Hi:

>

> Colburn was very crippled from RA in his hands -

> check his more recent movies and you will see this.

> Also, Renoir had severe crippling RA and continued to

> paint, sometimes using his mouth to hold the brush,

> and also made himself a contraption that would roll

> the paintings up as he drew so that he could make

> large paintings. Other artists with RA were

> s, Klee, Grandma Moses and Henri de

> Toulouse-Lautrec--who continued to live and work while

> suffering from RA or other diseases that affect bones

> and joints.

>

> Kathe in CA

>

>

I think was on larry king live and I saw his how bad his hands

were. I know a lot of people continue on with their lives after

getting the condition. I am just curious to know how many people

find their nitch, so to speak after getting the condition because a

lot of us were in school, starting a families or even younger than

that before getting the condition.

Another thing I have to remember and I think ia a lesson for everyone

is that what works for one doesn't necessarily work for the other,

I'm afraid and I really wish that was not the case. I have to

remember that when I hear of others' succeeding on something I didn't

like Enbrel. That way I can keep pushing on and forward to find the

right therapy for me (and I would love to see the focus on remission

but more research needs to be done). Otherwise, I would feel there

is no hope. I guess the key point is to keep searching for the

correct therapy and praying for a remission. 'as long as there is

life, there is hope'

Thanks for your reply.

peace and healing,

Ebony

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On my diabetes mailing lists, we often say YMMV (Your mileage may

vary.) It is just as true for RA as it is for diabetes. I think the

important thing is not to give up hope; just keep pestering your rheumy

until he gets it right. Sue

On Friday, October 28, 2005, at 10:31 AM, stillbreathing29 wrote:

>

> Another thing I have to remember and I think ia a lesson for everyone

> is that what works for one doesn't necessarily work for the other,

> I'm afraid and I really wish that was not the case.

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  • 8 months later...
Guest guest

That was me.... " it's not fair, I shouldn't hurt this bad when I'm only 31! "

Of course, then I think about my mom, who got dx'd when she was

15...maybe 31 isn't so bad after all.

Shanna

sicsica hassan wrote:

>

> Hey guys,

>

> Before i had RA i was watching TV show about people problems, one old

> man (more than 70 years) was complaining about how pavements in our

> country are very high for him to climb up or down on it. Of course i

> laughed for hours with my friends.

>

> After my RA i have days where i really really sit down on the pavement

> crying and refusing to complete my walk cuz pavements are really to

> high for me (lol). You should see me it was hilarious cuz i only said

> one thing while crying, i was saying " IM ONLY 26, IM ONLY 26 " lol

>

> But i thought if i take my medication it wont go that bad????? will it

> go that bad again guys?????????

>

> Anyway even if it went bad we have a lot in our lifes to do, i still

> have plans and dreams, so all of u keep the hard work and have fun

> specially if ur pavements are well done.

>

> Marwa

>

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Marwa, you have a right to be scared, being alone in a new country with

a new job. That would be enough, without adding in the RA. You must be

a very brave person to attempt changing countries, so I'm sure you'll

do fine with everything. I took Arava for a while, and it worked very

well to control my pain and inflammation, but I had to stop it because

of a low white blood cell count that was caused by methotrexate and

made worse by the Arava. So I'm hoping you will become " Marwa the RA

Slayer. "

No, I don't have a problem with pavements here in the United States;

they don't make them too high. Plus the Enbrel is controlling my RA so

well that I wouldn't have a problem even if they were too high.

My name IS Sue, but I'm called Sue. But you're welcome to give me

a nickname if you like, LOL.

Sue

On Thursday, June 29, 2006, at 03:25 AM, sicsica hassan wrote:

> Dear ,

>

> I think we are all lucky some how, having RA is not the end of

> the world, i try to not think about it now, maybe im scared cuz im

> alone in new country and new job and new disease but i decided to

> consider my self a new person too, i also give my self a nickname " THE

> CHOSEN " i was hoping to go for " Marwa the RA slayer " but i didnt slay

> the disease yet.

>

> Im on Arava, Plaquenil, Trental, Bioprobolis and Xanax but i

> didnt find another rhuematologist here in Dubai yet. I wish u all the

> luck in ur treatment and all the fun too " DO u have this pavements

> problem in ur country? " sorry just kidding.

>

> P.S. I didnt give you any Nicknames yet, do u prefer something?

>

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