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Hello,  You are not alone, these personality traits are common with those

            that have OCD.   My son who is 25 has OCD and

definitely has all

           the traits you described.  The cause and effect is not

just personality but

           a processing disorganized in the brain that I had learned

in a class several

            years ago.   There are 7 or 8 stages the brain must

follow to show adequate

          processing skills.  When one of these stages is interrupted

than it is like a

          domino effect and disturbs the remainder of the stages to

complete the thought

          I also have siblings who do not have OCD but are very

egocentric and

          their world is all about themselves, selfish, they come

first, manipulative

          and their focus is so restrictive even if it effects other

siblings feelings.

          When I find my notes from the class I attended I will email

the name of the

          stages as well as the name of the program. 

Subject: Personality Traits

To:

Date: Friday, March 5, 2010, 6:21 AM

 

Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and can't

seem to handle basic responsibilities of life, like understanding how to plan

her day to leave adequate time to prepare for the day. She's also very selfish

and thinks the world revolves around her. Very egocentric, could care less about

anyone else's issues, but wants everyone else to cater to her. One issue she has

a real problem with is understanding cause-and-effect. For example, even though

she treats us like crap, easily

sparked, and may do something that warrants severe punishment, she still

doesn't understand why we take away privileges as punishment. This is not

restricted to her teen years, as she seems to have missed the boat since about

10. Her therapist said it's most likely a maturity issue, and sometimes the

brain catches up by late teens, early 20's, but it may never come around. Now,

throw OCD in the mix, and it's totally whacked! But I'm wondering if these type

traits are common or is it unique to our kid?

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Yes.  Yes to all of it- yes to everything -

stubborn- check

can't/won't handle simple resp.- check

procrastinates--check

immature-check

egocentric/narcisisstic- check

fails to see future consequence- check

 

add socially inedpt

 

M

Subject: Personality Traits

To:

Date: Friday, March 5, 2010, 7:21 AM

 

Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and can't

seem to handle basic responsibilities of life, like understanding how to plan

her day to leave adequate time to prepare for the day. She's also very selfish

and thinks the world revolves around her. Very egocentric, could care less about

anyone else's issues, but wants everyone else to cater to her. One issue she has

a real problem with is understanding cause-and-effect. For example, even though

she treats us like crap, easily

sparked, and may do something that warrants severe punishment, she still

doesn't understand why we take away privileges as punishment. This is not

restricted to her teen years, as she seems to have missed the boat since about

10. Her therapist said it's most likely a maturity issue, and sometimes the

brain catches up by late teens, early 20's, but it may never come around. Now,

throw OCD in the mix, and it's totally whacked! But I'm wondering if these type

traits are common or is it unique to our kid?

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Dear -

 

That would be great I'd love to see what's going on in scientific/mediccal

terms- maybe some brain retraining can help- I know they do that at Chapel Hill

NC-

M

From: fundudefundad <fd_mooreyahoo (DOT) com>

Subject: Personality Traits

To: @ yahoogroups. com

Date: Friday, March 5, 2010, 6:21 AM

 

Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and can't

seem to handle basic responsibilities of life, like understanding how to plan

her day to leave adequate time to prepare for the day. She's also very selfish

and thinks the world revolves around her. Very egocentric, could care less about

anyone else's issues, but wants everyone else to cater to her. One issue she has

a real problem with is understanding cause-and-effect. For example, even though

she treats us like crap, easily

sparked, and may do something that warrants severe punishment, she still doesn't

understand why we take away privileges as punishment. This is not restricted to

her teen years, as she seems to have missed the boat since about 10. Her

therapist said it's most likely a maturity issue, and sometimes the brain

catches up by late teens, early 20's, but it may never come around. Now, throw

OCD in the mix, and it's totally whacked! But I'm wondering if these type traits

are common or is it unique to our kid?

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This is a tough one for me to answer--maybe because I also have OCD. I don't

know if these are " personality traits " or results from a very difficult disorder

that our kids struggle with. I know from experience that having OCD makes

things that really don't matter seem to matter very much. This can cause a

person, particularly a person who doesn't know what to do about it, to act in

ways that are negative and not easily understood. I know that when my own two

girls act in ways that are negative and frustrating that it is almost always

because they are having trouble with their OCD. Does this mean they are selfish

and egocentric? Is person selfish when they are sick with an illness? Or is it

just a temporary " slip " in behavior due to not feeling well? What if our kids

" don't feel well " and haven't for a very long time? I am a thoughtful person

and very responsible. Even as a teen, when my OCD was untreated and extremely

difficult to deal with, I was an " A " student, babysat constantly, cleaned my

family's home weekly, worked nights at a local H & R Block and participated in

school plays. I was the person who everyone now says was " always nice to

everyone. " I had my moments but those moments weren't who I was or am. When my

kids are struggling, I know that it is their OCD and not them; that my real

child is in there and frustrated and tired from dealing with the OCD. It is

hard to not act selfish and angry when your mind is telling you lies about what

is good and what is bad; what is safe and what is not. OCD is so tiring and so

frustrating--many times our kids are desperate to get away from it and can't.

It's no wonder they try to control things and act selfish. I do like to think

it is just a side effect and not who they truly are. Just my take on things.

Kelley in NV

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With a child with special needs, we find it very complex to be a parent. We all

just want to love & respect our children and have it returned in kind. It is

just awful when it is not. I know you are already doing a lot as a parent, and

just seeking support for her on the OCD side is wonderful parenting. Is she

doing ERP therapy?

I do wonder if there might be another issue here as well. I notice that you

reflect upon how different she is other kids. I was wondering if something like

ADHD or even a high functioning Aspergers might be something to evaluate her

for. I think it is much harder to catch in a teen, because she likely has very

complex compensation tools at this point. But special needs challenges can

often manifest in a child seeming lazy, unmotivated, unable to organize

themselves, or unable to relate to others, show sympathy, or understand

consequences or cause & effect. There are wonderful programs to help teach

these skills, and to improve their ability to relate. Perhaps this is

personality, but I'd encourage you to continue to explore the cause of many of

these disfunctions.

I would also say that all of this may be OCD related. We certainly see similar

issues, even at age 8, when in an exacerbation. ERP therapy, with a really good

therapist, helped us to identify what OCD was doing to her, and what behaviors

we were then seeing. In many cases, due to mental rituals or compulsions, we

were punishing behaviors that were truely due to OCD.

Our daughter has PANDAS, but when it comes, we are incredibly disfunctional & I

cannot believe how many areas of her life it effects. I hear this same comment

from other parents of children with other types of OCD. When she is healthy,

she is a charming smart funny little kid. When she gets PANDAS, the

similarities between her challenges & those of our best friends son who has

Aspergers - are astonishingly similar & we find ourselves using many of the same

services. Because we get to see " both kids " often in the same year, it is easy

for us to keep track of what is personality and what is illness.

Anyway, hope this is helpful and sparks some hope in finding help for your

daughter. All my best - in NC

>

> Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and

can't seem to handle basic responsibilities of life, like understanding how to

plan her day to leave adequate time to prepare for the day. She's also very

selfish and thinks the world revolves around her. Very egocentric, could care

less about anyone else's issues, but wants everyone else to cater to her. One

issue she has a real problem with is understanding cause-and-effect. For

example, even though she treats us like crap, easily sparked, and may do

something that warrants severe punishment, she still doesn't understand why we

take away privileges as punishment. This is not restricted to her teen years,

as she seems to have missed the boat since about 10. Her therapist said it's

most likely a maturity issue, and sometimes the brain catches up by late teens,

early 20's, but it may never come around. Now, throw OCD in the mix, and it's

totally whacked! But I'm wondering if these type traits are common or is it

unique to our kid?

>

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If you are in the piedmont area of NC (UNC reference) then you may find PCAAD in

Durham (associated with Duke) very helpful. They do ERP for children & are

wonderful at helping both parent & child.

in NC

>

> From: fundudefundad <fd_mooreyahoo (DOT) com>

> Subject: Personality Traits

> To: @ yahoogroups. com

> Date: Friday, March 5, 2010, 6:21 AM

>

>  

>

> Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and can't

seem to handle basic responsibilities of life, like understanding how to plan

her day to leave adequate time to prepare for the day. She's also very selfish

and thinks the world revolves around her. Very egocentric, could care less about

anyone else's issues, but wants everyone else to cater to her. One issue she has

a real problem with is understanding cause-and-effect. For example, even though

she treats us like crap, easily

> sparked, and may do something that warrants severe punishment, she still

doesn't understand why we take away privileges as punishment. This is not

restricted to her teen years, as she seems to have missed the boat since about

10. Her therapist said it's most likely a maturity issue, and sometimes the

brain catches up by late teens, early 20's, but it may never come around. Now,

throw OCD in the mix, and it's totally whacked! But I'm wondering if these type

traits are common or is it unique to our kid?

>

>

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Thanks BJ - our therapists must have gone to the same school! I know I've

mentioned this before too base on our therapists reco - set limits, and stick to

your guns. And no, as you've said, it won't be easy. In fact, it's the harder

route. Does she get it? Hell no! But that doesn't mean we shouldn't impose

the limits or let her get away with irresponsible, disrespectful, obnoxious

behavior, or be allowed to have what she wants simply because she doesn't

understand it. Hopefully it will pay dividends in the future. I seriously

doubt we'll ever get a thank you. In fact, she'll probably be in counseling

when she's an adult, blaming all her issues on her mom ;-) Well who cares, as

long as I'm not to blame! ;-)

It is interesting to see that others have the same or very similar personality

traits, and I like the comment that emotional or personality disorders interfere

with the normal maturity of the brain. We can only hope the brain catches up at

some point!

> >

> > Just curious to see if kids or adults have similar personality traits.

Aside from the OCD issues our daughter is very complex. Stubborn as a jackass,

won't listen to anyone other than herself, but yet can't seem to handle the

simplest responsibilities. She's been blowing off school (11th grade) or is

late because she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and

can't seem to handle basic responsibilities of life, like understanding how to

plan her day to leave adequate time to prepare for the day. She's also very

selfish and thinks the world revolves around her. Very egocentric, could care

less about anyone else's issues, but wants everyone else to cater to her. One

issue she has a real problem with is understanding cause-and-effect. For

example, even though she treats us like crap, easily sparked, and may do

something that warrants severe punishment, she still doesn't understand why we

take away privileges as punishment. This is not restricted to her teen years,

as she seems to have missed the boat since about 10. Her therapist said it's

most likely a maturity issue, and sometimes the brain catches up by late teens,

early 20's, but it may never come around. Now, throw OCD in the mix, and it's

totally whacked! But I'm wondering if these type traits are common or is it

unique to our kid?

> >

>

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Yes , I too am very interested in the reference you mention!

FD

>

> From: fundudefundad <fd_mooreyahoo (DOT) com>

> Subject: Personality Traits

> To: @ yahoogroups. com

> Date: Friday, March 5, 2010, 6:21 AM

>

>  

>

> Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and can't

seem to handle basic responsibilities of life, like understanding how to plan

her day to leave adequate time to prepare for the day. She's also very selfish

and thinks the world revolves around her. Very egocentric, could care less about

anyone else's issues, but wants everyone else to cater to her. One issue she has

a real problem with is understanding cause-and-effect. For example, even though

she treats us like crap, easily

> sparked, and may do something that warrants severe punishment, she still

doesn't understand why we take away privileges as punishment. This is not

restricted to her teen years, as she seems to have missed the boat since about

10. Her therapist said it's most likely a maturity issue, and sometimes the

brain catches up by late teens, early 20's, but it may never come around. Now,

throw OCD in the mix, and it's totally whacked! But I'm wondering if these type

traits are common or is it unique to our kid?

>

>

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Hi,

I have two with ocd, and my youngest is only 8, so he doesn't do that, but my 13

yr old does!! You described her perfectly!!!!!!

Hugs

Judy

________________________________

To:

Sent: Fri, March 5, 2010 7:21:48 AM

Subject: Personality Traits

 

Just curious to see if kids or adults have similar personality traits. Aside

from the OCD issues our daughter is very complex. Stubborn as a jackass, won't

listen to anyone other than herself, but yet can't seem to handle the simplest

responsibilities. She's been blowing off school (11th grade) or is late because

she's too lazy to get up in the morning, not always because of OCD

(procrastinates about homework, then stays up until 2:00 a.m., and wants

sympathy because she was up so late) . She's very immature for her age and can't

seem to handle basic responsibilities of life, like understanding how to plan

her day to leave adequate time to prepare for the day. She's also very selfish

and thinks the world revolves around her. Very egocentric, could care less about

anyone else's issues, but wants everyone else to cater to her. One issue she has

a real problem with is understanding cause-and-effect. For example, even though

she treats us like crap, easily

sparked, and may do something that warrants severe punishment, she still

doesn't understand why we take away privileges as punishment. This is not

restricted to her teen years, as she seems to have missed the boat since about

10. Her therapist said it's most likely a maturity issue, and sometimes the

brain catches up by late teens, early 20's, but it may never come around. Now,

throw OCD in the mix, and it's totally whacked! But I'm wondering if these type

traits are common or is it unique to our kid?

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BJ and all,

Just wanted to add my two cents. Procrastination can be a sign of perfectionism

related to OCD. As a high school student, I never started my papers until I had

to because I knew they would expand to occupy the time available; there was

always something to correct, something new to add, so procrastination was a way

to avoid dealing with this. At the time, I did not know that I had OCD, but I

do think this was related in retrospect. Also, not wanting to go to bed can

involve fear of prebedtime rituals or lying awake in bed anxiously. Not wanting

to get up can be a transition issue or fear of facing it all over again in the

upcoming day. Some of the rest of it sounds like typical teen issues, although I

can't say much about that because our oldest is 9.

(mom w/OCD, 9 yo dd w/OCD)

>

> Subject: Re: Personality Traits

> To:

> Date: Friday, March 5, 2010, 2:21 PM

> I've talked to many parents of teens,

> because our son is an only child and I've had nothing to

> compare his behavior to.  Most have the same issues you

> are describing. . Lack of motivation, procrastination, not

> wanting to go to bed or get up in the morning,

> irresponsible, self involved, somewhat of a know-it-all

> attitude (won't listen), etc.  I've also seen it in

> some of our son's friends.  Some are even worse than

> him, and he has OCD!!! 

>

> But, I suspect the OCD could cause her (and our son) to be

> more rigid and stubborn at times, if it is interfering in

> certain situations where OCD is involved. 

>

> I also recall reading (and our son's therapist confirmed

> it) that kids with anxiety disorders tend to mature

> later.  He said it is because the anxiety holds them

> back from experiences that others go through sooner, so

> others work it out earlier than anxiety ridden kids. 

> Made sense. 

>

> The fact that your daughter has been experiencing this

> since she was 10 makes me wonder if she was hitting puberty

> then.  Kids are developing sooner, than from when we

> were kids.  I've read that some suspect the hormones

> that are in our food.  I don't know. . Hard to say, but

> it does seem to appear they are hitting puberty

> sooner.  I don't know if that was part of it for her,

> but it's a thought.

>

> The best advice our son's therapist gave me was to set

> limits, but don't engage when he doesn't agree with

> them.  Is it easy??? No.  But, when I walk away,

> instead of engaging in a war or words (which never resolve

> anything), it's more peaceful. 

>

> BJ

>

>

>

>  

>

>

> >

> > Just curious to see if kids or adults have similar

> personality traits.  Aside from the OCD issues our

> daughter is very complex.  Stubborn as a jackass, won't

> listen to anyone other than herself, but yet can't seem to

> handle the simplest responsibilities.  She's been

> blowing off school (11th grade) or is late because she's too

> lazy to get up in the morning, not always because of OCD

> (procrastinates about homework, then stays up until 2:00

> a.m., and wants sympathy because she was up so late) . 

> She's very immature for her age and can't seem to handle

> basic responsibilities of life, like understanding how to

> plan her day to leave adequate time to prepare for the

> day.  She's also very selfish and thinks the world

> revolves around her.  Very egocentric, could care less

> about anyone else's issues, but wants everyone else to cater

> to her.  One issue she has a real problem with is

> understanding cause-and-effect.  For example, even

> though she treats us like crap, easily sparked, and may do

> something that warrants severe punishment, she still

> doesn't understand why we take away privileges as

> punishment.  This is not restricted to her teen years,

> as she seems to have missed the boat since about 10. 

> Her therapist said it's most likely a maturity issue, and

> sometimes the brain catches up by late teens, early 20's,

> but it may never come around.  Now, throw OCD in the

> mix, and it's totally whacked!  But I'm wondering if

> these type traits are common or is it unique to our kid?

> >

>

>

>

>

> ------------------------------------

>

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Hi - It depends on the types of issues a child has - but I'll elaborate

on some of the things that we did. Pam might also want to weigh in, as she uses

the Yale Parenting program to help develop her daughter's skills - which is

similar, but not the same as what we did. I always find her posts to be

interesting and helpful. I think the testing that may be helpful to identifying

challenges is called executive functioning (maybe someone else can weigh in, as

this was a while ago for testing). However, the specific programs that we

worked through were Occupational Therapy and ERP Therapy.

We started the occupational therapy due to a sensory integration issue that

became very clear during a PANDAS exacerbation. Our daughter gets both extreme

OCD, sensory issues, and some other things that are harder to put a label on.

She often cannot focus, seems not to see things that are right in front of her,

loses some types of vision (midline, etc), handwriting goes to heck, has a very

hard time with sensitivity and overreaction to any kind of discipline, issues

with loud noises, tastes, Bright lights, strobes, distraction from task,

filtering, etc. At OT, they did a complete analysis of her challenges and then

did all kinds of things with her on a weekly basis, and then taught us how to

adapt them at home. We found this by calling our local Autism advocacy office.

They do work with a lot of kids with Autism & other neurological issues. They

did a ton on handwriting, helped her work through some issues with how to deal

with conflict while she was so stressed, helped us with sensory techniques such

as brushing & squashing, taught us about swinging and other calming techniques,

gave us ideas that would likely help with ADD/ADHD issues, etc. We also taught

some of these to her teachers - she got to do any kind of physical work that the

teacher had, had a special bubble seat she could sit on, etc.

We also worked on social skills (which are normally fine, but are an issue

during an exacerbation), using tools like scripting, role playing, scheduling

specific playdates with activities carefully planned, journaling, rating a

situation, etc.

But the biggest help was ERP therapy at PCAAD in Durham NC. I can't say enough

about them. Our daughter had SO many mental compulsions, that they were taking

up most of her day. We had to identify what was happening & what was related to

OCD. She could spend a hour upstairs strugging to open a drawer or put on socks

- either due to sensory or due to OCD issues. It looked like she was not trying

- but with both kinds of challenges, it was impossible for a time, for her to

get ready on her own. I often felt that she regressed by 3-4 years during an

attack, and we would use tools that seemed below her age level - but really

helped the OCD. She has SO much to process everyday, every minute. She was

working so much harder than a normal child needs to, just to do basic functions.

When everything seems life threatening in your mind, when you are " being lied to

by your own brain " , it is very hard not to be rude, rebellious against what you

are being asked to do, even when the request is logical. OCD is illogical at

it's best, and just plain scary at its worst. So we had to fight back minute by

minute - literally.

It was not easy, but it helped her survive some very bad times, and now with the

addition of an antibiotic, she lives a very normal happy life - she is full of

joy. I don't mean to sound like it is too hard - while OCD is always hard, for

mild to moderate OCD, a good therapist can really make a great partnership. And

even for severe OCD, while it takes a while, ERP therapy is a wonderful tool to

unwind the OCD. I don't really know how anyone could tell what is personality

and what is OCD until well into therapy. I would like to add that my daughter,

with PANDAS OCD is a delightful little person, as are both my nephews with

traditional OCD. The phrase we say in our house is that " people with OCD are

some of the nicest people in the world " . I will say that untreated, however, it

is really hard to be nice - we just use that phrase to always keep in mind who

she is beneath the pain and fear, and who we always know she can be. Some days

are harder than ever, but we find it is easier when we keep a clear goal in mind

about what we believe in for her.

For children with other challenges, here is a simple website:

http://www.specialed.us/autism/asper/asper11.html. You can also google

" executive function " and " tools " or " interventions " . Another google term is

" Asberger interventions " . While my daughter does not have Aspergers, the

overlap in symptoms was pretty amazing during an exacerbation.

Hope this is helpful - in NC

>

> ,

> Would you elaborate on the " programs " available to teach skills of

organization, motivation etc. What types of things do they implement to help

kids develop these things. Thanks.

>

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BJ,

I'm not sure how or if you could separate them. I guess if it is teen

procrastination (without anxiety), then he should be able to complete the

project in a normal amount of time whether he starts early or late. I think the

answer may be the same in both cases. Let him deal with the consequences and

find out what he would do differently the next time and how/if he would like

help with it.

Good luck,

>

> Subject: Re: Personality Traits

> To:

> Date: Saturday, March 6, 2010, 1:54 PM

> , having OCD yourself, can you

> shed any light on how I would be able to tell if it's OCD

> procrastination, or teen procrastination?  I supsect he

> is dealing with both.  He's not as forthcoming with

> information as he was when he was young to help me have a

> clue, and it's a fine line sometimes to figure out how to

> respond to it.

>

> Thanks,

> BJ

>

>

>

>

>

>

> > > >

> > > > Just curious to see if kids or adults have

> similar

> > > personality traits.  Aside from the OCD issues

> our

> > > daughter is very complex.  Stubborn as a

> jackass, won't

> > > listen to anyone other than herself, but yet

> can't seem to

> > > handle the simplest responsibilities.  She's

> been

> > > blowing off school (11th grade) or is late

> because she's too

> > > lazy to get up in the morning, not always because

> of OCD

> > > (procrastinates about homework, then stays up

> until 2:00

> > > a.m., and wants sympathy because she was up so

> late) . 

> > > She's very immature for her age and can't seem to

> handle

> > > basic responsibilities of life, like

> understanding how to

> > > plan her day to leave adequate time to prepare

> for the

> > > day.  She's also very selfish and thinks the

> world

> > > revolves around her.  Very egocentric, could

> care less

> > > about anyone else's issues, but wants everyone

> else to cater

> > > to her.  One issue she has a real problem with

> is

> > > understanding cause-and-effect.  For example,

> even

> > > though she treats us like crap, easily sparked,

> and may do

> > >  something that warrants severe punishment,

> she still

> > > doesn't understand why we take away privileges

> as

> > > punishment.  This is not restricted to her teen

> years,

> > > as she seems to have missed the boat since about

> 10. 

> > > Her therapist said it's most likely a maturity

> issue, and

> > > sometimes the brain catches up by late teens,

> early 20's,

> > > but it may never come around.  Now, throw OCD in

> the

> > > mix, and it's totally whacked!  But I'm

> wondering if

> > > these type traits are common or is it unique to

> our kid?

> > > >

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Our list archives feature may be accessed at: 

> http://health.groups.yahoo.com/group//

> > > by scrolling down to the archives calendar . 

> Our links

> > > may be accessed at

http://health.groups.yahoo.com/group//links

> > > .  Our files may be accessed at

> > > http://health.groups.yahoo.com/group//files

> > > .

> > > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ),

Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. (

> > > http://www.massgeneral.org/doctors/doctor.aspx?ID=18068

> > > ). You may ask a question of any of these mental

> health

> > > professionals by inserting the words " Ask

> Dr.(insert name) "

> > > in the subject line of a post to the list.  Our

> list

> > > moderators are Castle, Judy Chabot, BJ

> Closner, and

> > > Barb Nesrallah.  You may contact the moderators

> at -owner

> > > .  Our group and related groups are listed at

http://health.groups.yahoo.com/group/ocdsupportgroups/links

> > > .  IOCDF treatment providers list may be viewed

> at http://www.ocfoundation.info/treatment-providers-list.php

> > > .

> > > NLM-NIH Drug Information Portal may be viewed at

> > >

http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\

l

> > > .  IOCDF recommended reading list may be

> accessed at http://www.ocfoundation.org/Books.aspx

> .  IOCDF

> > > glossary of terms may be accessed at

http://www.ocfoundation.org/glossary.aspx

> > > .  IOCDF membership link may be accessed at

http://www.ocfoundation.net/membership/ . Drugs.com

> > > pill identification wizard may be accessed at

http://www.drugs.com/imprints.php .  Mayo Clinic

> > > Drug and Herb Index may be accessed at

http://www.mayoclinic.com/health/drug-information/DrugHerbIndex

> > > .

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Thank you for your reply. I did rethink OT as a possibility but it gets

harder as they get to be older, 16yrs. of age. He had it when he was 10-12. I'll

need to do a bit more research on OT " s in my area. I also need to investigate

more about executive functioning. Thanks for your time.

Subject: Re: Personality Traits

To:

Date: Friday, March 5, 2010, 4:13 PM

 

Hi - It depends on the types of issues a child has - but I'll

elaborate on some of the things that we did. Pam might also want to weigh in,

as she uses the Yale Parenting program to help develop her daughter's skills -

which is similar, but not the same as what we did. I always find her posts to

be interesting and helpful. I think the testing that may be helpful to

identifying challenges is called executive functioning (maybe someone else can

weigh in, as this was a while ago for testing). However, the specific programs

that we worked through were Occupational Therapy and ERP Therapy.

We started the occupational therapy due to a sensory integration issue that

became very clear during a PANDAS exacerbation. Our daughter gets both extreme

OCD, sensory issues, and some other things that are harder to put a label on.

She often cannot focus, seems not to see things that are right in front of her,

loses some types of vision (midline, etc), handwriting goes to heck, has a very

hard time with sensitivity and overreaction to any kind of discipline, issues

with loud noises, tastes, Bright lights, strobes, distraction from task,

filtering, etc. At OT, they did a complete analysis of her challenges and then

did all kinds of things with her on a weekly basis, and then taught us how to

adapt them at home. We found this by calling our local Autism advocacy office.

They do work with a lot of kids with Autism & other neurological issues. They

did a ton on handwriting, helped her work through some issues with how to deal

with conflict while she

was so stressed, helped us with sensory techniques such as brushing &

squashing, taught us about swinging and other calming techniques, gave us ideas

that would likely help with ADD/ADHD issues, etc. We also taught some of these

to her teachers - she got to do any kind of physical work that the teacher had,

had a special bubble seat she could sit on, etc.

We also worked on social skills (which are normally fine, but are an issue

during an exacerbation) , using tools like scripting, role playing, scheduling

specific playdates with activities carefully planned, journaling, rating a

situation, etc.

But the biggest help was ERP therapy at PCAAD in Durham NC. I can't say enough

about them. Our daughter had SO many mental compulsions, that they were taking

up most of her day. We had to identify what was happening & what was related to

OCD. She could spend a hour upstairs strugging to open a drawer or put on socks

- either due to sensory or due to OCD issues. It looked like she was not trying

- but with both kinds of challenges, it was impossible for a time, for her to

get ready on her own. I often felt that she regressed by 3-4 years during an

attack, and we would use tools that seemed below her age level - but really

helped the OCD. She has SO much to process everyday, every minute. She was

working so much harder than a normal child needs to, just to do basic functions.

When everything seems life threatening in your mind, when you are " being lied to

by your own brain " , it is very hard not to be rude, rebellious against what you

are being

asked to do, even when the request is logical. OCD is illogical at it's best,

and just plain scary at its worst. So we had to fight back minute by minute -

literally.

It was not easy, but it helped her survive some very bad times, and now with the

addition of an antibiotic, she lives a very normal happy life - she is full of

joy. I don't mean to sound like it is too hard - while OCD is always hard, for

mild to moderate OCD, a good therapist can really make a great partnership. And

even for severe OCD, while it takes a while, ERP therapy is a wonderful tool to

unwind the OCD. I don't really know how anyone could tell what is personality

and what is OCD until well into therapy. I would like to add that my daughter,

with PANDAS OCD is a delightful little person, as are both my nephews with

traditional OCD. The phrase we say in our house is that " people with OCD are

some of the nicest people in the world " . I will say that untreated, however, it

is really hard to be nice - we just use that phrase to always keep in mind who

she is beneath the pain and fear, and who we always know she can be. Some days

are harder than

ever, but we find it is easier when we keep a clear goal in mind about what we

believe in for her.

For children with other challenges, here is a simple website:

http://www.speciale d.us/autism/ asper/asper11. html. You can also google

" executive function " and " tools " or " interventions " . Another google term is

" Asberger interventions " . While my daughter does not have Aspergers, the

overlap in symptoms was pretty amazing during an exacerbation.

Hope this is helpful - in NC

>

> ,

> Would you elaborate on the " programs " available to teach skills of

organization, motivation etc. What types of things do they implement to help

kids develop these things. Thanks.

>

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