Ehlers Danlos syndrome + DS

[Guest guest]

A couple jn Atlanta are desperate to speak with another parent with a child w

the dual diagnosis DS and EDS. There are none others in their whole state. There

was, but the young woman passed away from complications of EDS. A plea was

posted at DS-ALF yahoo group list. Pls email me off list and I will fwd you

details /connect you, but I do not feel comfortable sharing their details

publicly.

ModeratorMom

139 1030 6022

[Guest guest]

EDS?

A couple jn Atlanta are desperate to speak with another parent with a child w the dual diagnosis DS and EDS. There are none others in their whole state. There was, but the young woman passed away from complications of EDS. A plea was posted at DS-ALF yahoo group list. Pls email me off list and I will fwd you details /connect you, but I do not feel comfortable sharing their details publicly.

ModeratorMom

139 1030 6022

[Guest guest]

 Ehlers Danlos syndromehttp://www.ednf.org/index.php?option=com_content & task=view & id=1347 & Itemid=88888968

 

EDS?

 

A couple jn Atlanta are desperate to speak with another parent with a child w the dual diagnosis DS and EDS. There are none others in their whole state. There was, but the young woman passed away from complications of EDS. A plea was posted at DS-ALF yahoo group list. Pls email me off list and I will fwd you details /connect you, but I do not feel comfortable sharing their details publicly.

ModeratorMom

139 1030 6022