We went to the neurologist today

[Guest guest]

Today was the day to go to the neurologist. Yet another effort to get SOMETHING

or SOMEONE to help our son. I mentioned PANDAS (as he seems to meet all of the

criteria) and brought supporting documentation, list of tests, etc. The doc

informed me that PANDAS is not a REAL diagnosis or condition, and if I want to

help my son I'd be better off forgetting about it. *sigh*

After a VERY long visit he prescribed Pimizid (sp?) which is a dopamine blocker

and is supposed to help supress the tics and OCD symptoms. We'll see.

In the meantime - yesterday afternoon I acted on information provided by the

wonderful people in this forum and contacted Dr. K. in Chicago asking about

PANDAS. He (the doctor himself) actually emailed me back! He said our

pediatrician (who previously also said PANDAS is not possible) was WRONG and

that he'd be happy to see us and test for it.

So...now we just have to get an appointment and arrange a day to get down

there...

Just wanted to update everyone...