Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Hi , Whit was evaluated at our Regional Center, and since you " cannot be so friendly & have Autism " they dxed her " mild mmr with autistic traits due to possible childhood abuse. Rule out sexual abuse. " Which we did rule out after a year of therapy & testing. Like I didn't have enough to worry about just with the autism. But most therapists will tell you that some form of MR is involved in the autism dx. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Hi - My daughter had one 3 year evaluation where moderate to severe MR was added. Different psychiatrist and different psychologist leave us with different DX. You echo me! When I heard this I didn't believe it but would have had no problem with it. I simply and not so simply knew it to be untrue. Another echo, I believe (d) my to also have exceptional intelligence. We as parents know our children, we are always trying to learn more to understand more. There have been times when I need to have my feelings validated. Sometimes I simply and not so simply need that. And I have received that validation from one who knows and who cares and who really understands. Not someone who will simply tell me what I want to hear. Because as you said, and as I had said I would be fine with it. What I am not 'fine' with is the very incorrect and often jumped on/too dx. Thank you for sharing . In a message dated 7/25/2006 6:12:27 P.M. Eastern Standard Time, cathybuckley@... writes: Hi Everyone, Does anyone have the diagnosis of mental retardation as well as autism? 's re-evaluation was just done (every three years) and the psychiatrist for our county regional center has now added moderate to severe MR to her diagnosis. is quite impaired, but she is AUTISTIC. How do they make the distinction? If I really believed this to be true, I wouldn't have a problem with it, but I honestly think they got it dead wrong. In fact, I believe to have exceptional intelligence. Am I just a defensive parent in denial? Any thoughts or experiences in this area? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 I don't believe they can accurately test most autistic kids. Either they'll learn the test, or they can't comprehend the test, or they're wondering why the hell this crazy woman wants them to put beads on a peg. And there's lots of praxis problems too. That's my take. Kassiane --- cathylynn2 wrote: > Hi Everyone, > > Does anyone have the diagnosis of mental retardation > as well as > autism? 's re-evaluation was just done (every > three years) and > the psychiatrist for our county regional center has > now added > moderate to severe MR to her diagnosis. is > quite impaired, but > she is AUTISTIC. How do they make the distinction? > If I really > believed this to be true, I wouldn't have a problem > with it, but I > honestly think they got it dead wrong. In fact, I > believe to > have exceptional intelligence. Am I just a defensive > parent in > denial? Any thoughts or experiences in this area? > > Thanks, > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 I agree, Kassi. Thanks. > I don't believe they can accurately test most autistic > kids. Either they'll learn the test, or they can't > comprehend the test, or they're wondering why the hell > this crazy woman wants them to put beads on a peg. And > there's lots of praxis problems too. > > That's my take. > > Kassiane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Thanks very much, Robin. Honestly, this guy who made the determination is living in the " Dark Ages " where autism is concerned. He would probably agree with electric shock therapy, the way he thinks. The fact that most therapists will include MR in the autism diagnosis only confirms my suspicions. Just because won't respond to his ridiculous questions, and would prefer to ignore him and hum Vivaldi concertos and drop marbles in front of her face doesn't mean she's mentally retarded. What it probably means is she finds his questions boring. Oh well... At least knows that I " get " her. > Hi , Whit was evaluated at our Regional Center, and since you > " cannot > be so friendly & have Autism " they dxed her " mild mmr with autistic > traits due > to possible childhood abuse. Rule out sexual abuse. " Which we did > rule out > after a year of therapy & testing. Like I didn't have enough to > worry about > just with the autism. But most therapists will tell you that some > form of MR is > involved in the autism dx. > Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Hi , It's actually helping a lot to hear others echoing my own sentiments. Thank you :-) > > Hi - My daughter had one 3 year evaluation where moderate to > severe MR > was added. Different psychiatrist and different psychologist > leave us with > different DX. You echo me! When I heard this I didn't believe it > but would > have had no problem with it. I simply and not so simply knew it > to be > untrue. Another echo, I believe (d) my to also have > exceptional > intelligence. We as parents know our children, we are always > trying to learn more to > understand more. There have been times when I need to have my > feelings > validated. Sometimes I simply and not so simply need that. And I > have received > that validation from one who knows and who cares and who really > understands. Not > someone who will simply tell me what I want to hear. Because as > you said, > and as I had said I would be fine with it. What I am not 'fine' > with is the > very incorrect and often jumped on/too dx. Thank you for sharing > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 my testing of past always placed of me low normal but the last one done a few years back just be to palced me to the average range but still not high. Dr. Amigo to say of me that my intellect is more than likily more higher than the testing tells of me. He is of going to do some current updated testing to be to give me more informations to the over all presentaion of strengths and weaknesses to me. He to did of one for adults to me resently called the brief for EF testing. I to be of interested in seeing the results. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 , what inventory did he use? There was a big story a year or so ago about how kids with autism are getting MR dx because they are often using the incorrect testing. Many times they'll use a verbal test when kids with autism require non-verbal tests, etc. I've said it before and will say again, a MR dx is only because of a number on an IQ test. It's rediculous to think a standardized test can measure one's intelligence. I remember Allie's last test, which is usually borderline MR, they will say over and over, 'We knew she knew this but since she didn't answer the correct way we had to count it wrong. " The issue in this situation is that they were measuring her performance, not her intelligence. Those are two different things and therefore the test should have been ruled invalid. Debi, who is willing to be money that is very intelligent and probably fed up with idiots like this doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Debi, Honestly, I don't think he used any formal inventory. He just observed her at school and in her therapy sessions. He's just a pompous jerk who has his head up his ass (pardon my language) about autism. He believes it's purely psychological and any of the physiological stuff is just a co-morbid coincidence. Whatever. Anyway, I guess when it comes down to it, this is just a label and does not change her services or anything like that. I just don't like anyone selling short. > , what inventory did he use? There was a big story a year or so > ago about how kids with autism are getting MR dx because they are > often using the incorrect testing. Many times they'll use a verbal > test when kids with autism require non-verbal tests, etc. > > I've said it before and will say again, a MR dx is only because of a > number on an IQ test. It's rediculous to think a standardized test can > measure one's intelligence. I remember Allie's last test, which is > usually borderline MR, they will say over and over, 'We knew she knew > this but since she didn't answer the correct way we had to count it > wrong. " The issue in this situation is that they were measuring her > performance, not her intelligence. Those are two different things and > therefore the test should have been ruled invalid. > > Debi, who is willing to be money that is very intelligent and > probably fed up with idiots like this doc > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 I have known some kids that really were MR and autistic, but they are definitely in the minority. I think several posters have already mentoned the difficulty in testing accurately, so I just want to agree with them. Yes, some kids ARE both, just like they can be autistic and CP, or Down's, or blind, or any other combination of disabilities. But the parents of those kids usually know, or at least aren't totally surprised, when they get the MR label...they've seen it coming. If you don't agree, it's probably wrong. Amnesty > > Hi Everyone, > > Does anyone have the diagnosis of mental retardation as well as > autism? 's re-evaluation was just done (every three years) and > the psychiatrist for our county regional center has now added > moderate to severe MR to her diagnosis. is quite impaired, but > she is AUTISTIC. How do they make the distinction? If I really > believed this to be true, I wouldn't have a problem with it, but I > honestly think they got it dead wrong. In fact, I believe to > have exceptional intelligence. Am I just a defensive parent in > denial? Any thoughts or experiences in this area? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 He sounds like a real winner. I'd say use the dx to get all the services you can, if you feel they're iggying her abilities because of the dx, you can always get an independent dx to overrule. I don't know if this is my state only, but we can write a formal letter and request it be placed in the permanent record showing our disagreement with the testing or lack thereof. Debi > > > , what inventory did he use? There was a big story a year or so > > ago about how kids with autism are getting MR dx because they are > > often using the incorrect testing. Many times they'll use a verbal > > test when kids with autism require non-verbal tests, etc. > > > > I've said it before and will say again, a MR dx is only because of a > > number on an IQ test. It's rediculous to think a standardized test can > > measure one's intelligence. I remember Allie's last test, which is > > usually borderline MR, they will say over and over, 'We knew she knew > > this but since she didn't answer the correct way we had to count it > > wrong. " The issue in this situation is that they were measuring her > > performance, not her intelligence. Those are two different things and > > therefore the test should have been ruled invalid. > > > > Debi, who is willing to be money that is very intelligent and > > probably fed up with idiots like this doc > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 I've already got the letter written. I'm pretty sure he is the only one who agrees with this dx. I just want it to go on record. > He sounds like a real winner. I'd say use the dx to get all the > services you can, if you feel they're iggying her abilities because of > the dx, you can always get an independent dx to overrule. I don't know > if this is my state only, but we can write a formal letter and request > it be placed in the permanent record showing our disagreement with the > testing or lack thereof. > > Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2006 Report Share Posted July 27, 2006 There you go! Alrighty then! Again you mirror/echo my thoughts. In a message dated 7/25/2006 10:59:35 P.M. Eastern Standard Time, cathybuckley@... writes: Debi, Honestly, I don't think he used any formal inventory. He just observed her at school and in her therapy sessions. He's just a pompous jerk who has his head up his ass (pardon my language) about autism. He believes it's purely psychological and any of the physiological stuff is just a co-morbid coincidence. Whatever. Anyway, I guess when it comes down to it, this is just a label and does not change her services or anything like that. I just don't like anyone selling short. > , what inventory did he use? There was a big story a year or so > ago about how kids with autism are getting MR dx because they are > often using the incorrect testing. Many times they'll use a verbal > test when kids with autism require non-verbal tests, etc. > > I've said it before and will say again, a MR dx is only because of a > number on an IQ test. It's rediculous to think a standardized test can > measure one's intelligence. I remember Allie's last test, which is > usually borderline MR, they will say over and over, 'We knew she knew > this but since she didn't answer the correct way we had to count it > wrong. " The issue in this situation is that they were measuring her > performance, not her intelligence. Those are two different things and > therefore the test should have been ruled invalid. > > Debi, who is willing to be money that is very intelligent and > probably fed up with idiots like this doc > Quote Link to comment Share on other sites More sharing options...
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