Re: This might be relavent this fall when all the clinics start...

[Guest guest]

> If one of 166 kids were going blind or being

> kidnapped, we would have National Guard troops in

> the streets and it would be the number one public

> emergency. Imagine if kids were disappearing off the

> streets. To some of these parents, this is what it

> feels like. All we see is complacency and silence.

> -- Kirby

>

1. The level is constant. All the groups say so, that

it's across the age span.

2. We aren't kidnapped. We're just different.

Kirby and his worshippers don't WANT to understand

that.

3. They want to cure us. I say that we are the cure.

Since when are your children a DISEASE? (from Xmen3.

edited a tiny).

Seriously. This list gets contraversial enough without

intentionally quoting one of the most offensive

figures in the mercury militia. And I don't see

complacent silence, I see videos where they

intentionally make children have meltdowns, I see PSAs

that are utterly rediculous and insulting, not more

than a week goes by without the Wrongs, er, s

being in some publication.

It is autistic voices that are being silenced. The

" autism stole my baby " people are coming through loud

and clear, and thanks to the hysteria I can't even go

to gymnastics within my effing state.

Kassiane

....based on pattern, this reaction should have been expected

__________________________________________________

[Guest guest]

Kassi,

Not to put you on the spot.but I would like to know your opinion on this

question; If you were approached by a groups of obviously loving but

bewildered, tired and confused parents who wanted to know how to reach and

help their children with autism survive in a non-autism friendly world, what

would you say? What would you suggest? How would you comfort them?

Let us say, for the sake of this question, that these parents love their

children and do not see them as a burden but cannot help them learn how to

exist in the NT world.

Nadine

Re: This might be relavent this fall when all the

clinics start...

> If one of 166 kids were going blind or being

> kidnapped, we would have National Guard troops in

> the streets and it would be the number one public

> emergency. Imagine if kids were disappearing off the

> streets. To some of these parents, this is what it

> feels like. All we see is complacency and silence.

> -- Kirby

>

1. The level is constant. All the groups say so, that

it's across the age span.

2. We aren't kidnapped. We're just different.

Kirby and his worshippers don't WANT to understand

that.

3. They want to cure us. I say that we are the cure.

Since when are your children a DISEASE? (from Xmen3.

edited a tiny).

Seriously. This list gets contraversial enough without

intentionally quoting one of the most offensive

figures in the mercury militia. And I don't see

complacent silence, I see videos where they

intentionally make children have meltdowns, I see PSAs

that are utterly rediculous and insulting, not more

than a week goes by without the Wrongs, er, s

being in some publication.

It is autistic voices that are being silenced. The

" autism stole my baby " people are coming through loud

and clear, and thanks to the hysteria I can't even go

to gymnastics within my effing state.

Kassiane

....based on pattern, this reaction should have been expected

__________________________________________________

[Guest guest]

I personally know two people that regressed into autism at a late

age - one at age 8 after her MMR and another at I believe 10 after

getting an amalgam filling. What would you say to them? Do you

really believe they were born that way? I used to be extremely

skeptical about vaccines but meeting the first one and having known

the second since he was a toddler, I had to take a second look. Then

when I finally pulled out the medical records for each of my kids, I

could not believe I was so blind. Child #1 went to the doctor for

symptoms that was later diagnosed as rheumatoid arthritis a week

after his MMR at age 3. It took a long time to figure out what was

wrong since he also lost the ability to speak. Years later I found

out he is also aspergers too. Child #3 I had written down concerns

about his lost speech and odd behaviours a month after his MMR. Six

months later he was diagnosed with autism. Child #4 I had taken to

the doctor a couple weeks after his DPT for his constant crying and

not sleeping. He was eventually diagnosed with celiac disease (which

is genetic however requires some sort of trauma to trigger). All 3

kids had in their records an auto-immune condition weeks after their

combination shots. This is cause enough for me to consider the

possiblity. You may not agree but there is enough circumstantial

evidence out there to warranty the belief it may at least be a

contributing factor.

I have all the symptoms of aspergers though have chosen not to seek a

diagnosis. I do not consider aspergers who I am but what I have been

afflicted with. It is not much different than dyslexia. It makes

life harder and can affect almost every area of life but there are

some pluses as well which I believe are primarily due to the brain

compensating just like it rewires when there is some sort of brain

damage. I treat myself no different than my kids. If there is

anything I can do that will reduce the difficulties in life caused by

autism, I will do it. I have already made dietary changes that has

helped me think clearer, feel more comfortable socially and not lose

my temper. If autism is who I am, diet should not have an affect.

My autistic son is affected by diet so severely, his school has hired

an aide for the sole purpose of making sure he doesn't get the wrong

foods. None of us think of our child as a disease any more than one

thinks of their diabetic child as a disease.

>

> > If one of 166 kids were going blind or being

> > kidnapped, we would have National Guard troops in

> > the streets and it would be the number one public

> > emergency. Imagine if kids were disappearing off the

> > streets. To some of these parents, this is what it

> > feels like. All we see is complacency and silence.

> > -- Kirby

> >

>

> 1. The level is constant. All the groups say so, that

> it's across the age span.

>

> 2. We aren't kidnapped. We're just different.

> Kirby and his worshippers don't WANT to understand

> that.

>

> 3. They want to cure us. I say that we are the cure.

> Since when are your children a DISEASE? (from Xmen3.

> edited a tiny).

>

> Seriously. This list gets contraversial enough without

> intentionally quoting one of the most offensive

> figures in the mercury militia. And I don't see

> complacent silence, I see videos where they

> intentionally make children have meltdowns, I see PSAs

> that are utterly rediculous and insulting, not more

> than a week goes by without the Wrongs, er, s

> being in some publication.

>

> It is autistic voices that are being silenced. The

> " autism stole my baby " people are coming through loud

> and clear, and thanks to the hysteria I can't even go

> to gymnastics within my effing state.

>

> Kassiane

> ...based on pattern, this reaction should have been expected

>

> __________________________________________________

>

[Guest guest]

Kassi, sorry if you are offended. Yeah, my daughter was kidnapped,

her language was distroyed. Her health was distroyed. Once again, I

apologize if that offends you, but I don't apologise for standing up

for my child's health. You are also mistaken on many facts, if you'd

like to discuss it I will, otherwise I won't.

Debi

>

> > If one of 166 kids were going blind or being

> > kidnapped, we would have National Guard troops in

> > the streets and it would be the number one public

> > emergency. Imagine if kids were disappearing off the

> > streets. To some of these parents, this is what it

> > feels like. All we see is complacency and silence.

> > -- Kirby

> >

>

> 1. The level is constant. All the groups say so, that

> it's across the age span.

>

> 2. We aren't kidnapped. We're just different.

> Kirby and his worshippers don't WANT to understand

> that.

>

> 3. They want to cure us. I say that we are the cure.

> Since when are your children a DISEASE? (from Xmen3.

> edited a tiny).

>

> Seriously. This list gets contraversial enough without

> intentionally quoting one of the most offensive

> figures in the mercury militia. And I don't see

> complacent silence, I see videos where they

> intentionally make children have meltdowns, I see PSAs

> that are utterly rediculous and insulting, not more

> than a week goes by without the Wrongs, er, s

> being in some publication.

>

> It is autistic voices that are being silenced. The

> " autism stole my baby " people are coming through loud

> and clear, and thanks to the hysteria I can't even go

> to gymnastics within my effing state.

>

> Kassiane

> ...based on pattern, this reaction should have been expected

>

> __________________________________________________

>

[Guest guest]

Kassi why cant you go to the gymnastics in you state? Sondra

[Guest guest]

I'd suggest respite for the tiredness, I'd suggest OT

and speech. I'd tell them that their child is the same

child they loved from the moment they knew about

him/her, and that their child loves them back, even if

s/he can't say so.

I would also suggest teaching self advocacy, offer

ideas for new ways to communicate, and give them my

number so they could call ANY TIME (and I hate the

phone, but to help a child...). If standard teaching

methods weren't helping the child learn, I'd think

about other ways to try teaching the same skill.

And as they worked through every thing, I would tell

them frequently that parents who work with and love

their autistic children, or any children, are my

personal heros. 100000 fold so more if they do so

without resenting the kid.

And that's the quick off the top of my head answer.

I've been approached by such parents one at a time,

never en masse, and unfortunately never had much

chance to follow up since it was conferences and

emails that were exchanged got lost.

Kassiane

--- wrote:

> Kassi,

>

> Not to put you on the spot.but I would like to know

> your opinion on this

> question; If you were approached by a groups of

> obviously loving but

> bewildered, tired and confused parents who wanted to

> know how to reach and

> help their children with autism survive in a

> non-autism friendly world, what

> would you say? What would you suggest? How would

> you comfort them?

>

>

>

> Let us say, for the sake of this question, that

> these parents love their

> children and do not see them as a burden but cannot

> help them learn how to

> exist in the NT world.

>

>

>

> Nadine

>

>

>

> Re: This might be

> relavent this fall when all the

> clinics start...

>

>

>

> > If one of 166 kids were going blind or being

> > kidnapped, we would have National Guard troops in

> > the streets and it would be the number one public

> > emergency. Imagine if kids were disappearing off

> the

> > streets. To some of these parents, this is what it

> > feels like. All we see is complacency and silence.

> > -- Kirby

> >

>

> 1. The level is constant. All the groups say so,

> that

> it's across the age span.

>

> 2. We aren't kidnapped. We're just different.

> Kirby and his worshippers don't WANT to understand

> that.

>

> 3. They want to cure us. I say that we are the cure.

> Since when are your children a DISEASE? (from Xmen3.

> edited a tiny).

>

> Seriously. This list gets contraversial enough

> without

> intentionally quoting one of the most offensive

> figures in the mercury militia. And I don't see

> complacent silence, I see videos where they

> intentionally make children have meltdowns, I see

> PSAs

> that are utterly rediculous and insulting, not more

> than a week goes by without the Wrongs, er, s

> being in some publication.

>

> It is autistic voices that are being silenced. The

> " autism stole my baby " people are coming through

> loud

> and clear, and thanks to the hysteria I can't even

> go

> to gymnastics within my effing state.

>

> Kassiane

> ...based on pattern, this reaction should have been

> expected

>

> __________________________________________________

>

[Guest guest]

Kassi, I appreciate your work, your words, Kassi. You do a wonderful

job standing up for our kids! Do you realize, though, that we parents

have a lot of common ground with you? Sometimes, we come from

different frameworks, where you're defining autism as who you are, and

we're defining autism as who our children shouldn't be. Our children

shouldn't be sick, allergic to everything, unable to speak or

interact, shouldn't be poor sleepers, shouldn't be on sensory overload

most of the time etc etc etc. We often mean the same thing, but

interpret words and phrases from entirely different frameworks. We're

defining AUTISM as HEALTH/BIOMEDICAL issues and you're defining it as

SELF, SOUL, SPIRIT.

I feel like my daughter was kidnapped, too, stolen slowly away from

us. When your child is kidnapped, your instinct is to rescue them

from the rashes and sleepless nights, and loss of language and

interaction, and to punish the kidnappers. Yes, I believe strongly

that vaccines play a role in the childnapping, and I stand among the

parents like Debi who don't apologize for standing up for my child's

health, and for practice in helping her interact with others, so she

can self-advocate (and maybe be an advocate for others WITH YOU, too--

that would make me so proud) one of these days.

Not all of us who believe mercury and vaccines damaged our children go

along with everything other organizations put out. A lot of us are

dismayed over that Autism Speaks film, too.

We DO have a LOT of common ground.

PennY

>

> Kassi, sorry if you are offended. Yeah, my daughter was kidnapped,

> her language was distroyed. Her health was distroyed. Once again, I

> apologize if that offends you, but I don't apologise for standing up

> for my child's health. You are also mistaken on many facts, if you'd

> like to discuss it I will, otherwise I won't.

>

>

> Debi

[Guest guest]

--- cubicmonica wrote:

> I personally know two people that regressed into

> autism at a late

> age - one at age 8 after her MMR and another at I

> believe 10 after

> getting an amalgam filling. What would you say to

> them? Do you believe they were born that way?

Um. Actually. Yeah I kinda do. A filling isn't

anywhere near enough to be clinically toxic, and while

RARELY, yes RARELY vaccine reactions do happen, it'd

be a different kind of encephalopathy, not autism.

There's always that childhood disintegrative disorder

thing laying around. And I know of ONE case of Rett

where the regression was around 7-10. Somewhere in

that range.

MMR doesn't even have mercury, so the 2 cases aren't

remotely alike in the suspected toxin way.

And yes, I DO think we overvaccinate (we all grew up

just fine without flu shots) but that has to do more

with the development of autoimmune problems from bored

immune systems that never have to fight anything off

(ditto for the war on all germs. Its the .01% that

kills ya). And I DID have a vaccine reaction, so I

know they are real. I also know my mother was pretty

stupid for taking me in when I had a fever, I was 11.

Had a seizure. Haven't stopped having them yet, But

better epileptic than dead.

Kassiane

__________________________________________________

[Guest guest]

Your child took a different turn on the developmental

tragectory. Is she still present? I hope so. As for

health, IIRC you were looking into a lot of genetic

things (urea cycle, mitochondrial, etc) possibilities.

And her aluminum, yes, is off the charts. But that

doesn't = autism. It may have stressed the language

part of her brain, but Allie wasn't replaced with

another child.

What I find interesting is that these discussions

aren't, like, existant on Rett boards, where the child

may have developed normally into preschool years and

slowly or suddenly lost almost everything. That this

child is their child is a given.

Kassiane

repeated mini regressions from about age 4 on, latest

one being math skills going down the toilet

--- Debi wrote:

> Kassi, sorry if you are offended. Yeah, my daughter

> was kidnapped,

> her language was distroyed. Her health was

> distroyed. Once again, I

> apologize if that offends you, but I don't apologise

> for standing up

> for my child's health. You are also mistaken on many

> facts, if you'd

> like to discuss it I will, otherwise I won't.

>

>

> Debi

>

>

> >

> > > If one of 166 kids were going blind or being

> > > kidnapped, we would have National Guard troops

> in

> > > the streets and it would be the number one

> public

> > > emergency. Imagine if kids were disappearing off

> the

> > > streets. To some of these parents, this is what

> it

> > > feels like. All we see is complacency and

> silence.

> > > -- Kirby

> > >

> >

> > 1. The level is constant. All the groups say so,

> that

> > it's across the age span.

> >

> > 2. We aren't kidnapped. We're just different.

>

> > Kirby and his worshippers don't WANT to understand

> > that.

> >

> > 3. They want to cure us. I say that we are the

> cure.

> > Since when are your children a DISEASE? (from

> Xmen3.

> > edited a tiny).

> >

> > Seriously. This list gets contraversial enough

> without

> > intentionally quoting one of the most offensive

> > figures in the mercury militia. And I don't see

> > complacent silence, I see videos where they

> > intentionally make children have meltdowns, I see

> PSAs

> > that are utterly rediculous and insulting, not

> more

> > than a week goes by without the Wrongs, er,

> s

> > being in some publication.

> >

> > It is autistic voices that are being silenced. The

> > " autism stole my baby " people are coming through

> loud

> > and clear, and thanks to the hysteria I can't even

> go

> > to gymnastics within my effing state.

> >

> > Kassiane

> > ...based on pattern, this reaction should have

> been expected

> >

> > __________________________________________________

> >

[Guest guest]

Because everyone within a 2 hour drive hears the word

" autism " or sees it on a paper and either hangs up or

says " um. we don't deal with that. It's

against...some...policy " . And it's on my bracelet that

never comes off, and I put it on reg. forms because

yeah, it IS something they need to know about.

It isn't the adrenal failure (potentially deadly with

nothing more than a scary but non injuring fall) or

the seizures that makes them hang up. It's the autism.

And I am sick of having my way of being so thouroughly

demonized. Demonize me for having color changing eyes

that don't line up, or for having a hair trigger

temper, but don't demonize 1.5 million americans of

all ages for being who they are.

Kassiane

--- sondra wrote:

>

>

> Kassi why cant you go to the gymnastics in you

> state? Sondra

>

>

>

>

>

__________________________________________________

[Guest guest]

Yeah, she took a diff developmental path when the hepB flipped out her

nervous system when she was 9 mos old. Is she still present? The new

her is, like the new child after they've experienced cancer or the new

child after developing t1 diabetes. I'm sure that not being able to

express herself has changed her personality the same way my not being

able to walk without pain for the past month has influenced my

personality. I'm sure that being sick all the time has influenced her

emotions and feelings. I don't know what " IIRC " means.

I never said Allie isn't my child, what I said is that her language

and health was robbed from her. But the bottom line is I don't have to

prove to you what happened to my baby because i know what happened to

my baby. I know what my daughter battles every day because I live it

and suffer it with her. I know when she sat out back with us the other

day and said twice, " Mom, dad, don't ever let anything bad happen to

me " then was unable to express herself again for days that she's

suffering. Yeah, she was robbed and so was I.

Allie never had a chance to regress in toddlerhood, she was injured

before then. She was pulling up at 8 mos, didn't walk til 18 mos. She

ate fruit and cereal every morning until the shot, then looked at

bananas and dry heaved. Hasn't had a banana since. She was saying

" tata " for ticklebug, " baba " for breast or bottle and " dada " for her

daddy. Afther that shot, nothing, not even a babble until 17 mos. She

wouldn't take my breast after the shot. Sorta hard to progress into

preschool when you child is vaccine injured at 9 mos.

BTW, the MMR issue isn't because of it having mercury, it's because of

the viral load issue and because of prior mercury burden. I can

explain it more if you want to listen.

BTW, one metal amalgam wouldn't be much to anyone, unless you happen

to be someone unable to excrete the mercury you breathe from your

mouth, sort of like a tiny amount of wheat to someone with celiac.

Debi

>

> Your child took a different turn on the developmental

> tragectory. Is she still present? I hope so. As for

> health, IIRC you were looking into a lot of genetic

> things (urea cycle, mitochondrial, etc) possibilities.

> And her aluminum, yes, is off the charts. But that

> doesn't = autism. It may have stressed the language

> part of her brain, but Allie wasn't replaced with

> another child.

>

> What I find interesting is that these discussions

> aren't, like, existant on Rett boards, where the child

> may have developed normally into preschool years and

> slowly or suddenly lost almost everything. That this

> child is their child is a given.

>

> Kassiane

> repeated mini regressions from about age 4 on, latest

> one being math skills going down the toilet

>

[Guest guest]

But you wouldn't suggest removing allergenic foods, supplements for

deficiencies, chelation for metal toxicity or anti-viral for viral

infection or antifungal for gut yeast inflammation? These are real,

scientifically-documented issues in people with autism and it's very

serious to ignore treatment. I know one little guy who screamed so

much he had to go on homebound, the gastro finally refused to see him

anymore saying he couldn't find anything. One DAN! doc took a look at

his labs and said his gut was " eat up " with yeast. A few yeast

treatments later the kid was happy, learning, developing,... oh yeah,

barely had any behaviors associated with autism. Evidently his pain

was causing him to flap, scream, headbang, etc.

If I might suggest, you seem so focused on your own feelings of

inadequacy you are not capable of comprehending the issue. The issue

here is that kids are getting sicker. It's a sickness called autism.

The kids' soul or psychi isn't the sickness, it's their bodies. You're

about 15 years younger than me. When I was a kid I knew hundreds of

kids. And yes, I knew what autism was because I had a cousin with

autism who is now about 23 years old. He was dxed when I was about 13.

So my teen years were spent acutely aware of anything autism. I knew

absolutely no one else with autism. I knew lots of people with mental

retardation. Maybe some of them might have had autism, but *NONE* of

them behaved in any way that I would have associated with autism.

Now there are kids with autism everywhere and I live in the same

place. The families getting autism are mostly from around here, so

there's no migration toward little old Knoxville. And I still know a

few kids with mental retardation. Perhaps a few of the very mild

autism cases might have otherwise been called MR, but there is an

explosion of autism. The sped director of my district, who butts heads

with mine regularly, agrees with me that there is definitely a rise,

he's been sped director for 15 years. He's said the same thing, maybe

a small shift from MR to autism, but definitely a huge increase.

And, kids are sicker today. Again, you don't know because you're only

early 20's. When I was a kid I knew out of a school of 600 kids only 2

who had asthma, and only 1 with allergies. Now I'm not saying there

weren't more, but I knew at least 300 of the kids, and that was it

that I knew. Now you'd be lucky to find half those kids allergy free.

You'd be lucky to find a fraction of those 300 not prescribed

inhalers. Kids today are sick in a way that my generation never was.

I'm not saying it's all vaccines, because I've not researched the

allergy/asthma that much. but I do know this, if we don't do

something, we will lose an entire generation. Something is making our

kids sick and I'm not overexaggerating. You don't have genetic

outbreaks, something is triggering the explosion.

And, btw, I do not " worship " Kirby and I do resent you using

such inflammatory words every time you disagree with me. I have

respect for his journalism because he doesn't take sides, he's only

seeking the truth of the matter. If you've never heard him speak, I

recommend it. He still refuses to believe without a doubt that mercury

is causal for autism, only that the government has behaved recklessly.

He uses fact to back up his claim, and most agree with him after

weighing all sides. He won a journalism award for his writing. I have

met Kirby and had lunch with Kirby. I like him. I worship

Jesus.

If you don't know how to discuss something maturely, fine, I'd be

happy to share with you socially acceptable ways to debate/disagree.

All you have to do is say so, but to continually attack me every time

I show concern for kids being made ill is offensive to me. I don't use

attack words toward you, I only state I disagree and why. I don't have

to prove to you my love for my daughter, I only have to prove it to

her. That you continually hint that any mother here who is trying to

heal their daughter's body doesn't have love is offensive to every

mother here. If you doubt our love for our daughters, perhaps you

should stop attacking us all the time and start trying to understand

us. We try to understand you.

Debi

>

> I'd suggest respite for the tiredness, I'd suggest OT

> and speech. I'd tell them that their child is the same

> child they loved from the moment they knew about

> him/her, and that their child loves them back, even if

> s/he can't say so.

>

> I would also suggest teaching self advocacy, offer

> ideas for new ways to communicate, and give them my

> number so they could call ANY TIME (and I hate the

> phone, but to help a child...). If standard teaching

> methods weren't helping the child learn, I'd think

> about other ways to try teaching the same skill.

>

> And as they worked through every thing, I would tell

> them frequently that parents who work with and love

> their autistic children, or any children, are my

> personal heros. 100000 fold so more if they do so

> without resenting the kid.

>

> And that's the quick off the top of my head answer.

> I've been approached by such parents one at a time,

> never en masse, and unfortunately never had much

> chance to follow up since it was conferences and

> emails that were exchanged got lost.

>

> Kassiane

[Guest guest]

Kassi maybe you to need to be to go in person maybe they have a set

of beliefs of what autism is and assumes that defines everyone with

it. If you to go they might be to see of you differnetly and then

sell of you self by haveing a good packet ready of you ideas to offer

them.

Sondra

In Autism_in_Girls , Kassi

wrote:

>

> Because everyone within a 2 hour drive hears the word

> " autism " or sees it on a paper and either hangs up or

> says " um. we don't deal with that. It's

> against...some...policy " . And it's on my bracelet that

> never comes off, and I put it on reg. forms because

> yeah, it IS something they need to know about.

>

> It isn't the adrenal failure (potentially deadly with

> nothing more than a scary but non injuring fall) or

> the seizures that makes them hang up. It's the autism.

> And I am sick of having my way of being so thouroughly

> demonized. Demonize me for having color changing eyes

> that don't line up, or for having a hair trigger

> temper, but don't demonize 1.5 million americans of

> all ages for being who they are.

>

> Kassiane

>

> --- sondra wrote:

>

> >

> >

> > Kassi why cant you go to the gymnastics in you

> > state? Sondra

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Debi , I to understand both views and was felt to be odd from very

young but most of the regression happened after 1st birthday to me. I

to have colitis, multiple allergies, asthma cronic pains ears of

pressure, not sleep and all these things you shared and would trade

of all that in any day to feel of good and yes GREATLY does it impact

my daily presentaions and outcomes. I to be to as I to age and have

more issues get more easily agitated and frustrated. the more aware I

to be of what cant do when I to want to be to do them is of causing

me an inner unblanced feeling emotionally off and on. it is like

watching young girls do string games and building what is called

jacobs ladder with such sequenced movements and I to see them and I

to try and no matter how hard i to think I to did is exactly right it

always comes out wrong, to me that is how I to feel more often than

not about my autism . Yet I to ahve ability too I to see of the world

in ways many do not and yet have of ability to hear the world in odd

melody too. the things I to be happy about in me is those things ,

the wya i to think and feel of things within me even if cant always

find the words to use to express or explain it it is of a strong part

that often brings of me a calm inside too.

Yet like Kassi for self I to get frsutrated because I to not feel

there is of a cure... I to be to feel as though it brings false hopes

to many families of a true cure... But I to feel biomedically we can

get some of the out of sync things repaired and make the presentaions

of us less chaos within.

Such as tomorrow begin of extenisive allergy testing and my medical

doctor is fearful of what all they will find. I to be down to only 2

antibiotics now that will be of able to take for a short time before

allergic to them as well. But the things that keep malfunctionong

often leave me with infections. I to currently have of buldge ear

drums again , sinus infection again, yeast infection and not sleeping

all adding to my tears and overwhelm and silence in the day times. I

to took a short nap this day in pure exhaustion and then woke

agitated because wanted to sleep longer but had to be responsible to

get of my missy from school. so while autism negative things

biomedically create such havoc i to still have to push self even

thorugh all that to care for the childrens of me and it is of too

hard to be to do that and cope well. the tummy of me hurts this

night , have of heart burn now almost daly so almost every food I to

eat anymore causes me to react too.

had to go to chiropractor again because of the pains and due to low

tones the spine of me is often shifting and my need to tilt my head

to see well in certain angles is causes degenrative disc disease in

the neck because of the stress on the joints and such there from the

constant tilts and poor muscles. I to tired to remember to pull up

the shouilders and pull them back when walking but now causing stress

on the hips and lower back from trying to compensate and do right

caused more issues, low tone is not of fun it causes much long term

pains later int he life of me. because of this tilting of me one leg

is of slightly longer than the other which causes again more stress.

the allergies cause of severe migraines and pressure. the hives I to

get frequently is of because my immune system is of in constant state

of over reacting.

My medial doctor to say due my body fightind so hard daily to attack

the things I to be allergic too it is causeing medical issues all

over the body of me as well as my high anxiety . do I to like this

daily in the life of me no. But it has been of a part of me from uch

of life and it was shared i to be of a very sicly little girl even

when small. the mother even reports when small often had unexplained

rashes and things so was probably reacting even in the first few

weeks of life.

Sondra

In Autism_in_Girls , " Debi " wrote:

>

> Yeah, she took a diff developmental path when the hepB flipped out

her

> nervous system when she was 9 mos old. Is she still present? The new

> her is, like the new child after they've experienced cancer or the

new

> child after developing t1 diabetes. I'm sure that not being able to

> express herself has changed her personality the same way my not

being

> able to walk without pain for the past month has influenced my

> personality. I'm sure that being sick all the time has influenced

her

> emotions and feelings. I don't know what " IIRC " means.

>

> I never said Allie isn't my child, what I said is that her language

> and health was robbed from her. But the bottom line is I don't have

to

> prove to you what happened to my baby because i know what happened

to

> my baby. I know what my daughter battles every day because I live it

> and suffer it with her. I know when she sat out back with us the

other

> day and said twice, " Mom, dad, don't ever let anything bad happen to

> me " then was unable to express herself again for days that she's

> suffering. Yeah, she was robbed and so was I.

>

> Allie never had a chance to regress in toddlerhood, she was injured

> before then. She was pulling up at 8 mos, didn't walk til 18 mos.

She

> ate fruit and cereal every morning until the shot, then looked at

> bananas and dry heaved. Hasn't had a banana since. She was saying

> " tata " for ticklebug, " baba " for breast or bottle and " dada " for her

> daddy. Afther that shot, nothing, not even a babble until 17 mos.

She

> wouldn't take my breast after the shot. Sorta hard to progress into

> preschool when you child is vaccine injured at 9 mos.

>

> BTW, the MMR issue isn't because of it having mercury, it's because

of

> the viral load issue and because of prior mercury burden. I can

> explain it more if you want to listen.

>

> BTW, one metal amalgam wouldn't be much to anyone, unless you happen

> to be someone unable to excrete the mercury you breathe from your

> mouth, sort of like a tiny amount of wheat to someone with celiac.

>

> Debi

>

>

>

> >

> > Your child took a different turn on the developmental

> > tragectory. Is she still present? I hope so. As for

> > health, IIRC you were looking into a lot of genetic

> > things (urea cycle, mitochondrial, etc) possibilities.

> > And her aluminum, yes, is off the charts. But that

> > doesn't = autism. It may have stressed the language

> > part of her brain, but Allie wasn't replaced with

> > another child.

> >

> > What I find interesting is that these discussions

> > aren't, like, existant on Rett boards, where the child

> > may have developed normally into preschool years and

> > slowly or suddenly lost almost everything. That this

> > child is their child is a given.

> >

> > Kassiane

> > repeated mini regressions from about age 4 on, latest

> > one being math skills going down the toilet

> >

>

[Guest guest]

Sondra, I hope they can find your allergies. Have you ever tried

Singulair? I take it and has helped me greatly. I also noticed when I

started it that I stopped having bowel troubles. I've since read that

there is something to kids with autism who have bowel difficulties

getting better in their bowels when they take Singulair. It has

something to do with the immune system in the intestines. I also

stopped having chronic respiratory infections.

HTH,

Debi

[Guest guest]

I am fully aware that there is no mercury in the MMR and never has.

The measles portion has been found to be the problem. I do not

believe vaccines are THE cause of autism. It is much more complex

than that. I believe autism is caused by a combination of a poor

immune system, poor ability to remove metals naturally (which is

where genetics could come in), a compromised digestive system and a

whole slew of environmental assaults. I think for many kids,

vaccines are the proverbial " straw that broke the camel's back " .

I had my autistic son tested for heavy metals. To my surprise, his

level of mercury was fairly low but he had so much antimony, the lab

thought it was an autopsy. After searching for the source, I found

that he had mildew in his Graco Pack N Play which was emitting it as

a gas. That in addition to the toxins passed en eutero, his no yet

diagnosed celiac disease and vaccines, his poor body was overloaded.

>

> > I personally know two people that regressed into

> > autism at a late

> > age - one at age 8 after her MMR and another at I

> > believe 10 after

> > getting an amalgam filling. What would you say to

> > them? Do you believe they were born that way?

>

>

> Um. Actually. Yeah I kinda do. A filling isn't

> anywhere near enough to be clinically toxic, and while

> RARELY, yes RARELY vaccine reactions do happen, it'd

> be a different kind of encephalopathy, not autism.

> There's always that childhood disintegrative disorder

> thing laying around. And I know of ONE case of Rett

> where the regression was around 7-10. Somewhere in

> that range.

>

> MMR doesn't even have mercury, so the 2 cases aren't

> remotely alike in the suspected toxin way.

>

> And yes, I DO think we overvaccinate (we all grew up

> just fine without flu shots) but that has to do more

> with the development of autoimmune problems from bored

> immune systems that never have to fight anything off

> (ditto for the war on all germs. Its the .01% that

> kills ya). And I DID have a vaccine reaction, so I

> know they are real. I also know my mother was pretty

> stupid for taking me in when I had a fever, I was 11.

> Had a seizure. Haven't stopped having them yet, But

> better epileptic than dead.

>

> Kassiane

>

> __________________________________________________

>

[Guest guest]

Debi yes sadly they also found to add to the list that i to be severly

allergic to my beloved pets both the dogs and my cat. this saddens me

greatly but he to say my allergies are severe enough he suggest the

getting rid of all of the pets and he to say it might be of a year or

so before my immune sytems begins to go back into right fashions

because i to be over reacted so long with long time exposures to them

that this has really stressed of my immune for a long time.

He to put me on singulair this day and he to be to telled me will need

shots. he to say I to be to ahve many sensitivites to foods but nothing

showed as actual alleries so while the medical doctor highly suspected

allergy to eggs i to not be allergic to them. so this is of good as

love eggs. he to did of pricks to the back and injections into the arms

to see. the pricks on back did not react to dogs but the injection one

did much rapidly and big. I to be ever so sad this day as I to love my

pets much so it is like my speical childrens to me and now told have to

get rid of them to sustain back helathy body. I to once had of severe

allergy to dust and mold but that is one that is mild now to maybe gone

as it didnot react this time.

I to also be struggleing because they had to write to my body with a

pencil things so have of lines and words on me and need to get them off

as it upset me to have marks on me.

I to be of looking for a much spcial and good home for my sassy pooh.

she is fixed and ahd of her shots. she is medium fur length and is of

goodd cat. she has never been allowed outside. she is of 3 years old.

and is of much beautiful cat . Everyone to says this that sees of her.

Sondra

In Autism_in_Girls , " Debi " wrote:

>

> Sondra, I hope they can find your allergies. Have you ever tried

> Singulair? I take it and has helped me greatly. I also noticed when I

> started it that I stopped having bowel troubles. I've since read that

> there is something to kids with autism who have bowel difficulties

> getting better in their bowels when they take Singulair. It has

> something to do with the immune system in the intestines. I also

> stopped having chronic respiratory infections.

>

> HTH,

> Debi

>

[Guest guest]

I'm so sorry about your pets. I know it would break my heart to have

to give away all our critters. I hope you can find good homes.

It took the Singulair about a month before it was fully working, so

don't give up if it doesn't immediately help anything, seems the

longer it's in the better it works.

Debi

[Guest guest]

yes i to be to love of them and have of tears come each time I to look

at them so now trying to avoid them and not be to be near them . Libby

is outside of barking dog words saying let me back in please. And I to

be ignoring of her. Sasy my cat threw her bowl off the counter that is

her counter alone saying I to not like that flavor of food I to wanted

salmon today.... and all the little things I to love about her makes me

sad to know will not be to ahve of her to have her little words to me

anymore this makes of me so very sad as they were of my only and truest

best friends in life.

Sondra

[Guest guest]

Sondra, I'm allergic to cats. I just left small group Bible study

at the home of a family with a cat (I've been home about an hour).

They give their cat drops in its food that keep it from causing

allergies, because one of its owners is severely allergic. Would

you like me to find out what the name of the drops is?

Penny

> >

> > Sondra, I hope they can find your allergies. Have you ever tried

> > Singulair? I take it and has helped me greatly. I also noticed

when I

> > started it that I stopped having bowel troubles. I've since read

that

> > there is something to kids with autism who have bowel

difficulties

> > getting better in their bowels when they take Singulair. It has

> > something to do with the immune system in the intestines. I also

> > stopped having chronic respiratory infections.

> >

> > HTH,

> > Debi

> >

>

[Guest guest]

Penny, Could you let me know the name of the drops too. I too grew up with

animals but am now highly allergic. I bought a Devon rex kitten for for

xmas last year and even though it was non shedding I couldn't breathe and had to

send it back to the breeder. I felt so bad loved the kitten. My mom has

three cats and I can't visit her so if there was something that she could give

them that would be wonderful. Also if it would allow me to have a cat I would be

so happy.

Thanks so much

Missy

Re: This might be relavent this fall when all the

clinics start...

Sondra, I'm allergic to cats. I just left small group Bible study

at the home of a family with a cat (I've been home about an hour).

They give their cat drops in its food that keep it from causing

allergies, because one of its owners is severely allergic. Would

you like me to find out what the name of the drops is?

Penny

> >

> > Sondra, I hope they can find your allergies. Have you ever tried

> > Singulair? I take it and has helped me greatly. I also noticed

when I

> > started it that I stopped having bowel troubles. I've since read

that

> > there is something to kids with autism who have bowel

difficulties

> > getting better in their bowels when they take Singulair. It has

> > something to do with the immune system in the intestines. I also

> > stopped having chronic respiratory infections.

> >

> > HTH,

> > Debi

> >

>

------------------------------------------------------------------------------

Internal Virus Database is out-of-date.

Checked by AVG Free Edition.

Version: 7.1.405 / Virus Database: 268.11.3/423 - Release Date: 8/18/2006

[Guest guest]

--- Debi wrote:

> But you wouldn't suggest removing allergenic foods,

> supplements for

> deficiencies, chelation for metal toxicity or

> anti-viral for viral

> infection or antifungal for gut yeast inflammation?

> These are real,

> scientifically-documented issues in people with

> autism and it's very

> serious to ignore treatment. I know one little guy

> who screamed so

> much he had to go on homebound, the gastro finally

> refused to see him

> anymore saying he couldn't find anything. One DAN!

> doc took a look at

> his labs and said his gut was " eat up " with yeast. A

> few yeast

> treatments later the kid was happy, learning,

> developing,... oh yeah,

> barely had any behaviors associated with autism.

> Evidently his pain

> was causing him to flap, scream, headbang, etc.

All THESE reccomendations are based on child-specific

things. I've suggested dietary interventions before.

I've suggested tests before. But I WAS ASKED A GENERAL

QUESTION>

> If I might suggest, you seem so focused on your own

> feelings of

> inadequacy you are not capable of comprehending the

> issue.

I'm plenty adequete. I have spent my whole life in a

world that told me that who I am is WRONG and I have

spent my whole life giving that same world the finger

for their intolerance.

>The issue

> here is that kids are getting sicker. It's a

> sickness called autism.

> The kids' soul or psychi isn't the sickness, it's

> their bodies.

Then talk about treating the body. The part that's

sick. Not the part that is part of who a person IS.

As you know, I have celiac, seizures, and adrenal

failure. Or maybe you didn't. 2 of the 3 run with

autism a LOT. But they don't define who I am, unless I

accidentally eat gluten before a plane ride in which

case they define me as " that woman who won't get out

of the bathroom " . But that isn't constant. Same for

the seizures, they're paroxymal. And the adrenal

failure, now that it's treated there's nothing left to

show it exists. All these things are apart from

autism, at times have made me 'seem' " more autistic " ,

but they aren't what makes AUTISM, which is at my

core.

> You're

> about 15 years younger than me. When I was a kid I

> knew hundreds of

> kids. And yes, I knew what autism was because I had

> a cousin with

> autism who is now about 23 years old. He was dxed

> when I was about 13.

> So my teen years were spent acutely aware of

> anything autism. I knew

> absolutely no one else with autism. I knew lots of

> people with mental

> retardation. Maybe some of them might have had

> autism, but *NONE* of

> them behaved in any way that I would have associated

> with autism.

And your experience here differs from mine. I've got

no idea how old you are nor am I going to ask, about

15yrs is good enough for me. I went to school with

(and I'm talking grade school) at least one girl in my

grade with Asperger's (wasn't called that then, but

when she was 18 she got diagnosed). At least 5 more

people I knew in high school were spectrum. I know a

lot of people my age and older on the spectrum. They

didn't sprout fully grown.

> And, kids are sicker today. Again, you don't know

> because you're only

> early 20's. When I was a kid I knew out of a school

> of 600 kids only 2

> who had asthma, and only 1 with allergies. Now I'm

> not saying there

> weren't more, but I knew at least 300 of the kids,

> and that was it

> that I knew. Now you'd be lucky to find half those

> kids allergy free.

> You'd be lucky to find a fraction of those 300 not

> prescribed

> inhalers. Kids today are sick in a way that my

> generation never was.

> I'm not saying it's all vaccines, because I've not

> researched the

> allergy/asthma that much. but I do know this, if we

> don't do

> something, we will lose an entire generation.

> Something is making our

> kids sick and I'm not overexaggerating. You don't

> have genetic

> outbreaks, something is triggering the explosion.

The autoimmune/general illness thing I don't disagree

with you on in the least. I think it's in part

triggered by the war on germs (everything! everything!

everything! is sanitized, AND overvaccination).

Autism, I think the presentation may be changing but

not the amount so much.

> And, btw, I do not " worship " Kirby and I do

> resent you using

> such inflammatory words every time you disagree with

> me. I have

> respect for his journalism because he doesn't take

> sides, he's only

> seeking the truth of the matter. If you've never

> heard him speak, I

> recommend it. He still refuses to believe without a

> doubt that mercury

> is causal for autism, only that the government has

> behaved recklessly.

> He uses fact to back up his claim, and most agree

> with him after

> weighing all sides. He won a journalism award for

> his writing. I have

> met Kirby and had lunch with Kirby. I

> like him. I worship

> Jesus.

I'm glad you worship Jesus and not Kirby. Seriously.

Because your faith has brought you great things. As

for the kirby-worshipper comment, I apologize.

> If you don't know how to discuss something maturely,

> fine, I'd be

> happy to share with you socially acceptable ways to

> debate/disagree.

> All you have to do is say so, but to continually

> attack me every time

> I show concern for kids being made ill is offensive

> to me. I don't use

> attack words toward you, I only state I disagree and

> why. I don't have

> to prove to you my love for my daughter, I only have

> to prove it to

> her. That you continually hint that any mother here

> who is trying to

> heal their daughter's body doesn't have love is

> offensive to every

> mother here. If you doubt our love for our

> daughters, perhaps you

> should stop attacking us all the time and start

> trying to understand

> us. We try to understand you.

I've spent almost 24 years trying to understand NTs.

I'm TIRED. I am tired of having everything I say spun

in the worst possible way. I am TIRED of having people

say how awful it is that people like me exist. I am

TIRED of having to meet people 99% of the way. And I

am tired of saying things the nice way only to not get

heard, when people know what I mean when I say it with

a lot less effort, or at least get closer.

almost 24 years of having to operate on a 4th language

(written english first, spoken english 2nd, french

both ways 3rd, and through the NT-palatabilitizer

4th). It's a mental exhaustion comparable to the

physical exhaustion I had when I was all of 85 pounds

and dropping from uncontrolled adrenal failure. It's

on par with the exhaustion of parents of difficult

(for what ever reason) children. I am WIPED.

Kassiane

__________________________________________________

[Guest guest]

Kassianne,

I really think the problem is no matter what we say, you are

determined to believe that we think autism IS the person versus a

condition the person HAS. When we are talking about autism, we are

talking about the condition that makes our kids sick and makes them

want to escape from the world, not who they are. We all love our

kids. Autistic or not, I believe their personality would be the same

but autism hides it from truly being known. We are trying to peel

away the layers to uncover the child that has always been there. I

think the problem is as one gets older and has experienced negative

experiences in life, those layers because a shield from being known

and almost a security blanket. I feel the negative experiences you

have had from uncaring and uninformed people that you have had, you

are projecting on us as if we are the same.

I wonder ... do you consider dyslexia a definition of who a person is

too or a disability? As one with dyslexia (in addition to

aspergers), it causes me to think differently. Is it wrong when I

make reversals or is it wrong that my teachers corrected me for it.

Is it wrong that I cannot for the life of me repeat a conversation

but can only remember the meaning behind it or is that just simply

who I am? I am an accountant. The fact that I am dyslexic both

contributes to my job and makes it harder. When I am looking for a

particular figure, I can scan really good and find it in no time. It

is like I memorize what I am looking for and am able to block out

everything else to where only that item can be seen. This is truly a

gift. When I worked for a bank doing reconciliation, they had to lay

off 2 empoloyees because I was able to do so much work they didn't

need as big a staff. On the flip side, I cannot remember a number.

If my boss were to ask me what our monthly expense for landscaping

is, even though I have entered and paid that bill monthly for 4

years, I have no clue if it is $400 or $4000. Not only can I not

remember the number but I can't even remember the ball-park. I know

where to find it but just cannot remember it. So, is dyslexia a gift

or a curse? Is dyslexia who I am or what I have been afflicted

with? Is it really that different from autism/aspergers?

You mentioned you have celiac disease. Did you know that celiac

researchers believe that there is a subset of autistic people in

which the undiagnosed celiac has caused the autism? My pediatrician

told me that after she attented a celiac conference for doctors.

When my son was first diagnosed, she believed that autism is

something someone is born with. She initially was very condescending

to me when I told her about food issues and deficiencies as being

related to autism. The more research she has read, the more she has

had to admit she was wrong and that autism is truly a physical

condition that affects brain development.

Maybe the reason you have a hard time is because of the wording

people use without really realizing what it implies. When I talk

about my boys, I have a tendency to say my son is autistic or my

other son is aspergers. I realize I really should change that

wording to my son has autism to be literally correct. This is not

much different than when I say my mom is diabetic or my middle son is

celiac. Neither of those conditions really describe them as a person

but our language is full of illogical uses.

I too believe that autism has been around for a long time. I heard

one speaker on autism before when asked what does a high-functioning

adult on the spectrum look like, he responded go to a computer

convention or a trekkie convention. At first I felt that was a bit

insensitive but the more I thought about it, the more I realized he

was right. The problem however is that the kids that are regressing

into autism these days are much lower functioning than when you and I

were kids. Before when we were kids, we were just looked at as odd

or difficult kids. The difference was not great enough for one to

take note that something was really wrong and it was much easier to

write off our differences as simply a different personality. Now,

many kids like my autistic son are so severe, there is no mistake

something is seriously wrong. When he was diagnosed he avoided all

people including me, cried all day long and would basically spend his

day sitting in the corner hitting himself and smearing his feces.

That low functioning did exist 20 years ago but was rare.

As for your comment on Kirby, I don't know how much you know

about him but do you realize many parents, doctors and autism

researchers have believed vaccines play a role in autism years before

Kirby wrote his book? I have never read his book because I was

already convinced 3 years before he wrote it. Do you know that

Kirby initially set out to write an article about those wacko parents

that want to blame autism on someone else only to find that the

evidence could be in their favor?

I am not writing this post with the intention of having a debate but

I really, honestly want you to rethink your view of what autism is.

I think if you can let it go and separate yourself from it, you will

be empowered to overcome more and more issues related to it and let

the beautiful personality you have truly shine forth even more.

[Guest guest]

This is a good idea. Whenever I start a new job, I don't say anything

about my dyslexia until after they have had time to be impressed with

my work. Then when I tell them, their first thought is not " oh no, did

I hire the wrong person " but " how can we make things a bit easier to

minimize my difficulties " . For example, I do project accounting for a

residential builder. They bought 4 lots of land in a particular city

and they were going to refer to them as Seasons North, South, East and

West properties. I told them because of my dylexia, those labels are

difficult for me so they opted to instead call them by Seasons 1, 2, 3

& 4 in the order they were going to be built. It was a minor

accomodation they made because of my disability but has made my job

immensely easier. Because they already know the quality of my work,

they were happy to do it. Had they known prior to hiring me that they

would have to accomodate for my disability, they would have only

focused on that without considering there would be benefits.

>

> That's a good idea. I think I'm going to make a packet

> for the new places I'm trying (2 hour drive, ugh. but

> I have an actual written prescription for at least 4

> hrs/week in the gym). and I am going to give it to

> them AFTER my first class, not before. I'm a good

> gymnast, or recovering towards being a good gymnast,

> but they see the big bad A word and the first thing

> that follows that is either " Rainman " or " epidemic "

> which leads to " contagious " even though autism isn't

> contagious. Either prospect freaks them out.

>

> Kassiane