Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Hello Joyce! Everything...a day at a time. You will be amazed, truly amazed. And you may come to find that your daughter isn't behind at all...simply different. And differences are truly wonderful. We (my family) learn something new and something extraordinary everyday from our 16 year old . She actually can and will put things in perspective for me. I am a military 'brat' and I had always found a real closeness to other military folks, I hope your husband's next tour will perhaps be on a base. Here you are, here...so you are certainly walking in the right direction. I wish you and your daughter and your husband and your family many good things...and trust me, many good things will come your way. Acceptance is the key (for me). Be well Joyce, be well. Fabio In a message dated 8/12/2006 9:54:26 A.M. Eastern Standard Time, unusualangel2001@... writes: My name is Joyce. I read stories on autism speaks and I tear up. My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. Gut...I'm doing alot better with it now after talking to some people but its still hard. Autism never entered my head. I knew she was behind but thought shed catch up.She has a very limited Vocabulary that includes " go, see'dadda, yay, and hey " . I took her the day before her 2nd birthday on August 1st of this year to get birthday pictures. the photographer told me she thought I should check into autism. I read alot online that day when I got home and knew that was her condition. but after seeing a nuerologist yesterday and hearing it come out of her mouth I couldnt help but cry. she is on the mid level spectrum. I'm not in denial anymore but its still hard. I look forward to talking to others dealing with the same situation, We live in Auburn Hills, MI. and from what I'm hearing theres ALOT of resources here. I'm concerned though. My husband is in the Military so we move. We are up to move again January of this coming year but they havnt said where we'll go as of yet. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 This is beautiful and you have touched me and I am grateful to you and I am grateful that I too feel the very same. And I always did and I always will. Acceptance brings such gifts. My is truly a gift and as I said earlier, teaches me so much, and everyday in so many ways. Yes, this is beautiful and it touches me. Thank you so much. In a message dated 8/12/2006 4:35:38 P.M. Eastern Standard Time, kassihatestwistin@... writes: Congratulations, Joyce. You have been given the opportunity for a lifetime of alternative viewpoints, of beauty you never knew existed, of a world so full of wonder that it's sometimes impossible to speak. Take everything AutismWeeps, er, Speaks says and throw it out. They only present the bad in autism. They have no one on the spectrum on their board & don't think talking about having a plan for killing one's child is wrong. They're not a good source of information, just a group looking for money. (I hate autism speaks with a passion, as the mother of a little girl watched it and killed the child a few days later. Her name (child) was McCarron, and she should have had her 4th birthday 3 weeks or so ago). Seek out people who accept their childrens' autism. Who accept their autism. Who see the gifts, not the deficits. We all grow and develop, autistic people just do it differently. But remember, your daughter is the same precious child she was the day, hour, minute, second before you heard the word " autism " . NEVER forget that. Kassiane autistic adult __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around _http://mail.http://ma_ (http://mail.yahoo.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Joyce, I emailed you on the autism Michigan site. Abby sees Dr. Gupta as well. She is very good and she listens well. She has been a huge advocate for Abby-we see her for epilepsy. She is willing to listen and is willing to take a lot of time. Dr. Gupta knows that I research everything and she appreciates that about me. Abby has had reactions to medications that Dr. Gupta has never had any other child react that same way. But rather then saying " that cant possibly be from the medication " she listens and will discontinue the med. Please feel free to email me privately if you want. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Missy, Kassi is a real gem, I am forever grateful for her friendship. She is always the first person that I talk to when I have a concern about Abby. We have had many late night chats. She is a wonderful young woman with much to offer and has a heart of gold. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 joyce while you place of living moves about thsi list does not and so hope you will find good friends here that can go woth you everywhere you travel too. Welcome to the list and yes the begin is hard and a shock of the " what ifs " thinking but as time goes so does the understand of her and you both grow and develop . I to be sondra adult with autism and live in Ohio. i to be of married person and have of 4 childrens all dx with Aspergers syndrome/ I tohave of 2 dogs sadie and Libby and one cat named of sassy pooh. I to be of author and speaker on autism and have makedmuch progress over the last 5-6 years in life. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Congratulations, Joyce. You have been given the opportunity for a lifetime of alternative viewpoints, of beauty you never knew existed, of a world so full of wonder that it's sometimes impossible to speak. Take everything AutismWeeps, er, Speaks says and throw it out. They only present the bad in autism. They have no one on the spectrum on their board & don't think talking about having a plan for killing one's child is wrong. They're not a good source of information, just a group looking for money. (I hate autism speaks with a passion, as the mother of a little girl watched it and killed the child a few days later. Her name (child) was McCarron, and she should have had her 4th birthday 3 weeks or so ago). Seek out people who accept their childrens' autism. Who accept their autism. Who see the gifts, not the deficits. We all grow and develop, autistic people just do it differently. But remember, your daughter is the same precious child she was the day, hour, minute, second before you heard the word " autism " . NEVER forget that. Kassiane autistic adult __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Joyce, It's ok to cry and getting a dx at 2 and she still has some vocab these are good things. Stay strong lean on us and as I've always said start saving her life. It's a matter of getting her out of the world of autism and into our world. You sound like a strong and smart mother and she is lucky to have a mom like you! God Bless you > My name is Joyce. I read stories on autism speaks and I tear up. > My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. > Gupta...I'm doing alot better with it now after talking to some > people but its still hard. Autism never entered my head. I knew she > was behind but thought shed catch up.She has a very limited > Vocabulary that includes " go, see'dadda, yay, and hey " . I took her > the day before her 2nd birthday on August 1st of this year to get > birthday pictures. the photographer told me she thought I should > check into autism. I read alot online that day when I got home and > knew that was her condition. but after seeing a nuerologist > yesterday and hearing it come out of her mouth I couldnt help but > cry. she is on the mid level spectrum. I'm not in denial anymore > but its still hard. I look forward to talking to others dealing > with the same situation, We live in Auburn Hills, MI. and from what > I'm hearing theres ALOT of resources here. I'm concerned though. My > husband is in the Military so we move. We are up to move again > January of this coming year but they havnt said where we'll go as > of yet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Joyce, So now the question is your insurance coverage and early intervention programs through the schools. Marisa is 7 and a half has an opinion about everything, she enjoys us and her sisters and other relatives. Just when I think we may have seen all the major changes more happen. Know that we have all gone through it and we are here to support. One of the hardest things was always walking the fine line of autism and typical behavior. I remember the first time she really wanted a toy-Telly Tubbies we went to TOys R Us with her sisters, their choice, normally Marisa never cared if she got a toy. Walking up and down the isles and she never pointed to anything. Then one day she pointed to the tubbies so we walked over there-then we gave her 1 and she smiled so we gave another one and so forth. SHe was happy, when it was time to leave I put them back-bascily to test the situation-she cried!!! I was so happy because when I gave them to her she stopped. Needless to say she has all 4!! THere are many paths to follow and you have to follow your gut. If you ever need to talk feel free to email privately and I'll give you my phone number-I'm in Royal Oak. > My name is Joyce. I read stories on autism speaks and I tear up. > My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. > Gupta...I'm doing alot better with it now after talking to some > people but its still hard. Autism never entered my head. I knew she > was behind but thought shed catch up.She has a very limited > Vocabulary that includes " go, see'dadda, yay, and hey " . I took her > the day before her 2nd birthday on August 1st of this year to get > birthday pictures. the photographer told me she thought I should > check into autism. I read alot online that day when I got home and > knew that was her condition. but after seeing a nuerologist > yesterday and hearing it come out of her mouth I couldn't help but > cry. she is on the mid level spectrum. I'm not in denial anymore > but its still hard. I look forward to talking to others dealing > with the same situation, We live in Auburn Hills, MI. and from what > I'm hearing theres ALOT of resources here. I'm concerned though. My > husband is in the Military so we move. We are up to move again > January of this coming year but they havnt said where we'll go as > of yet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Sorry to Jump in but, Kassi what you wrote is sooooo beautiful. It made me cry. I am going to go hug my daughter right now. I told my husband today that she has already taught us so much about life and will teach us more then anybody else. Missy Re: my daughter Congratulations, Joyce. You have been given the opportunity for a lifetime of alternative viewpoints, of beauty you never knew existed, of a world so full of wonder that it's sometimes impossible to speak. Take everything AutismWeeps, er, Speaks says and throw it out. They only present the bad in autism. They have no one on the spectrum on their board & don't think talking about having a plan for killing one's child is wrong. They're not a good source of information, just a group looking for money. (I hate autism speaks with a passion, as the mother of a little girl watched it and killed the child a few days later. Her name (child) was McCarron, and she should have had her 4th birthday 3 weeks or so ago). Seek out people who accept their childrens' autism. Who accept their autism. Who see the gifts, not the deficits. We all grow and develop, autistic people just do it differently. But remember, your daughter is the same precious child she was the day, hour, minute, second before you heard the word " autism " . NEVER forget that. Kassiane autistic adult __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 I agree about what you have said about Autism. My daughter has given us a totally different perspective on life. SHe sees things that we just pain skip over...like the beauty of nature and the wind, and God, and many things. She has shown us the simplicity of love and the joy in the strangests places. She takes great wonder in the simple things like a leaf blowing through the wind. She sees things different that's all. She is so beautiful to us and I really can't imagine life without her. All though there have been times I wish that things were more " normal " in the family...but now days I don't think there is such a thing whether you have autism or not. I don't agree about Autism Speaks. This organization has been a great help to us and has advocated greatly for the autistic society. In fact, they are behind the " Combating Autism Act " which we hope will be passed in the House of Representatives soon. It has already been passed in the Congress. The way I see it, if a woman killed her child because of something a web site said, the woman is at fault and obviously had unhealthy thought patterns. I am not aware of them presenting thoughts about killing their child. Even if they are saying that, that's their opinion and I don't have to adopt it as my own opinion. We have never sent them one dollar either...so I'm not sure about them always asking for money. If anything, they are pretty realistic about some things, and every person has a different opinion about autism as it is. Autism is a different world, it is beautiful and it is ugly, it is full of wonder and it is full of heartache and disappointments, it is full of surpirses and it can be very mundane or predictable. But as I said, this is my opinion. I try to take and use the good out of what I can find from anybody who is trying to help...help me accept the diagnosis and world I have entered, help me see what's out there as far as therapies etc..., help me in supportive roles, and whatever things I am looking for. I don't have to support every opinion they have. You'd be surprised where you might find just the help you need. But I think that acceptance is the best thing ever. I went through that stage of trying to change my daughter and it wasn't until I accepted that she was autistic, that was who she was, and then I began to help her cope, and learn how to be a person who can be independent and contribute to her surrounding community. It is my goal as a parent to help her learn how to live in this world and be able to find her purpose in life and fulfill it (whatever that might be). She needs to know that she has a purpose and can be a strong contributing person to the community around her. It is looking at ther possiblities, not her disabilities. F Kassi wrote: Congratulations, Joyce. You have been given the opportunity for a lifetime of alternative viewpoints, of beauty you never knew existed, of a world so full of wonder that it's sometimes impossible to speak. Take everything AutismWeeps, er, Speaks says and throw it out. They only present the bad in autism. They have no one on the spectrum on their board & don't think talking about having a plan for killing one's child is wrong. They're not a good source of information, just a group looking for money. (I hate autism speaks with a passion, as the mother of a little girl watched it and killed the child a few days later. Her name (child) was McCarron, and she should have had her 4th birthday 3 weeks or so ago). Seek out people who accept their childrens' autism. Who accept their autism. Who see the gifts, not the deficits. We all grow and develop, autistic people just do it differently. But remember, your daughter is the same precious child she was the day, hour, minute, second before you heard the word " autism " . NEVER forget that. Kassiane autistic adult __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Joyce, My name is . I have autism, either HFA or Asperger's.they can't make up their mind. It is not all bad. Read some of Sondras works because she is good at talking from our side. There is help and support. I will be happy to help you in anyway I can. Welcome to the most caring autism support group around. Re: my daughter Joyce, It's ok to cry and getting a dx at 2 and she still has some vocab these are good things. Stay strong lean on us and as I've always said start saving her life. It's a matter of getting her out of the world of autism and into our world. You sound like a strong and smart mother and she is lucky to have a mom like you! God Bless you > My name is Joyce. I read stories on autism speaks and I tear up. > My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. > Gupta...I'm doing alot better with it now after talking to some > people but its still hard. Autism never entered my head. I knew she > was behind but thought shed catch up.She has a very limited > Vocabulary that includes " go, see'dadda, yay, and hey " . I took her > the day before her 2nd birthday on August 1st of this year to get > birthday pictures. the photographer told me she thought I should > check into autism. I read alot online that day when I got home and > knew that was her condition. but after seeing a nuerologist > yesterday and hearing it come out of her mouth I couldnt help but > cry. she is on the mid level spectrum. I'm not in denial anymore > but its still hard. I look forward to talking to others dealing > with the same situation, We live in Auburn Hills, MI. and from what > I'm hearing theres ALOT of resources here. I'm concerned though. My > husband is in the Military so we move. We are up to move again > January of this coming year but they havnt said where we'll go as > of yet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 Joyce, welcome. Your reaction of crying is perfectly normal. Don't feel bad for grieving, it is a process you and your family and friends must go through. My advice to any newly-dxed family is the following: 1) Know Jesus, 'cause you'll need Him like never before 2) Find a *good* DAN! doc and make an appointment 3) find a STEP-style workshop in your area (www.tnstep.org is my state's website, they can help you find resources in your area) 4) read something by Temple Grandin or another adult female with autism. You made the statement that you kept hoping your daughter would catch up. She still can. Autism has biological issues and when those are addressed it enables her to focus, learn, and enjoy life. Getting good teachers who respect your daughter's value and feelings (not necessarily the most trained) will allow her world to open to learning. Once the fear lessens, you'll find your daughter to be the incredible, interesting, smart little thing you've always known she is. It's scary when our kids are sick. DAN! has come a long way to help. There's a group I'd recommend, ABMD yahoo group (autism bio medical discussion) with tons of resources from other parents. There's also lots of great ways to teach kids with autism, with PECS (picture exchange communication system), RDI (Relational Development Intervention), Floortime (similar but diff to/from RDI), and ABA (applied behavior analysis). Your daughter will show you which methods work best for her, my daughter gets stuff from all methods. My suggestion is to stay with the message boards. Since you're in the military and moving, you'll be able to hook up with people who live where you could be moving. It saves a lot of time to go to the parents who've been there/done that so you won't waste time with practitioners who aren't good. There are people who say they are autism specialists, but they aren't any good. I don't see anyone without first talking with other families, lol, I've learned the hard way. HTH, don't be afraid to ask or say anything, we're all hear for this life ride together! Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2006 Report Share Posted August 12, 2006 - The moving thing will be hard on you all. More adjustments. It's hard to say that you have settled into autism already. It took me months. Even though I seemed accepting of the diagnosis months would go by and the tears would come again. How come no one told us. Why didn't we get her checked eariler. All these guilt things kept comming to mind. My daughter was diagnosised at 25months. How come the peditrician didn't send her for testing at her 2 year check up. It was only because of my call into the peditrician that he sent her. It was only because the daycare kept telling me things that I didn't think was important that I called the doctor. Fate. I accept it now as I have it twice. My daughter and my son. My daughter is now 7 (moderate autism)and my son 3 (mild autism, ADHD). My daughter seems to be at a pretty good place. My son however is going to kill me I'm sure of it. Tell us about your daughter some of the thing you love about her and some things you'd rather do without...:/. My daughter has hair sensitivites, she is verbal but limited. They are working on Facilatated communication and community safety for the new year. My son....we'll this summer has been really horrible for behaviors. He's starting to have seizures and he is so hard to control his negative behaviors. He won't listen, and isn't potty trained yet. It took 2 years for my daughter to train. I sigh as I hope it won't take so long with him. He is so sentive to details that it drives me crazy. Why is the garbage can on the ground, why are some of the lights out. Is the garbage full yet, there is no more newspapers in machine....stuff like that. He's much more verbal than my daughter. He asks the same questions over and over. Sometimes 6-8 times in a 20 minute trip. Ok here's 2 nice thing to tell. My daughter just advance in her Karate to white belt with yellow stripe and my son has like 3 girl friends---he's a charmer. -- In Autism_in_Girls , " Joyce Lazzara " wrote: > > My name is Joyce. I read stories on autism speaks and I tear up. > My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. Gupta...I'm doing alot better with it now after talking to some people but its still hard. Autism never entered my head. I knew she was behind but thought shed catch up.She has a very limited Vocabulary that includes " go, see'dadda, yay, and hey " . I took her the day before her 2nd birthday on August 1st of this year to get birthday pictures. the photographer told me she thought I should check into autism. I read alot online that day when I got home and knew that was her condition. but after seeing a nuerologist yesterday and hearing it come out of her mouth I couldnt help but cry. she is on the mid level spectrum. I'm not in denial anymore but its still hard. I look forward to talking to others dealing with the same situation, We live in Auburn Hills, MI. and from what I'm hearing theres ALOT of resources here. I'm concerned though. My husband is in the Military so we move. We are up to move again January of this coming year but they havnt said where we'll go as of yet. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Yes Im not looking forward to the Moving, But my husband said he could possibly get Compationate Reassignment to a base that has more resourses and programs. Im dealing with her diagnosis well, but I know I'll have emotions for awhile. I read ALOT and have read and read since finding out, and right when I suspected as well. It has opened alot of things up...now instead of thinking " shes just being emotional " when she throws herself down and cried for seemingly no reason, yesterday I was able to figure out she didnt like the dress she was wearing. As soon as I took it off she was fine...I then let her pick out what SHE wanted to wear. Shes such a sweet and beautiful girl. She is very affectionate. She will just run to me and give me hugs and eximo kisses. It took her 22 months to say Mama but those were the most beautiful words to hear. She loves those Peek a blocks by Fisher price...so her friends mommy gave her a whole bunch...she entertained her self all night with them. Shes very self content, and always plays good by herself. She also loves story time. If she is having a meltdown and I dunno why I geet a book and sit her in my lap and she stops. Shes Amazing in every form of the word. She has an almost 5 month old Sister and Just recently when gianna is in her bouncer and starts to cry Marrissa will go over and start bouncing her, or if shes in her swing she will push it so it swings more....before this she would never even attempt interaction with her baby sister except maybe putting her toys in her baby sisters lap so she knew where they were...lol To Love is not enough, you have to give of your self as well. >From: deester_s <no_reply > >Reply-To: Autism_in_Girls >To: Autism_in_Girls >Subject: Re: my daughter >Date: Sun, 13 Aug 2006 01:54:27 -0000 > >- >The moving thing will be hard on you all. More adjustments. > >It's hard to say that you have settled into autism already. It took >me months. Even though I seemed accepting of the diagnosis months >would go by and the tears would come again. How come no one told >us. Why didn't we get her checked eariler. All these guilt things >kept comming to mind. > >My daughter was diagnosised at 25months. How come the peditrician >didn't send her for testing at her 2 year check up. It was only >because of my call into the peditrician that he sent her. It was >only because the daycare kept telling me things that I didn't think >was important that I called the doctor. > >Fate. I accept it now as I have it twice. My daughter and my son. >My daughter is now 7 (moderate autism)and my son 3 (mild autism, >ADHD). > >My daughter seems to be at a pretty good place. My son however is >going to kill me I'm sure of it. > >Tell us about your daughter some of the thing you love about her and >some things you'd rather do without...:/. > >My daughter has hair sensitivites, she is verbal but limited. They >are working on Facilatated communication and community safety for the >new year. > >My son....we'll this summer has been really horrible for behaviors. >He's starting to have seizures and he is so hard to control his >negative behaviors. He won't listen, and isn't potty trained yet. >It took 2 years for my daughter to train. I sigh as I hope it won't >take so long with him. > >He is so sentive to details that it drives me crazy. Why is the >garbage can on the ground, why are some of the lights out. Is the >garbage full yet, there is no more newspapers in machine....stuff >like that. He's much more verbal than my daughter. He asks the same >questions over and over. Sometimes 6-8 times in a 20 minute trip. > >Ok here's 2 nice thing to tell. My daughter just advance in her >Karate to white belt with yellow stripe and my son has like 3 girl >friends---he's a charmer. > > > > > > > >-- In Autism_in_Girls , " Joyce Lazzara " > wrote: > > > > My name is Joyce. I read stories on autism speaks and I tear up. > > My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. >Gupta...I'm doing alot better with it now after talking to some >people but its still hard. Autism never entered my head. I knew she >was behind but thought shed catch up.She has a very limited >Vocabulary that includes " go, see'dadda, yay, and hey " . I took her >the day before her 2nd birthday on August 1st of this year to get >birthday pictures. the photographer told me she thought I should >check into autism. I read alot online that day when I got home and >knew that was her condition. but after seeing a nuerologist yesterday >and hearing it come out of her mouth I couldnt help but cry. she is >on the mid level spectrum. I'm not in denial anymore but its still >hard. I look forward to talking to others dealing with the same >situation, We live in Auburn Hills, MI. and from what I'm hearing >theres ALOT of resources here. I'm concerned though. My husband is in >the Military so we move. We are up to move again January of this >coming year but they havnt said where we'll go as of yet. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Joyce, THe daughter I had after Marisa is the best thing we did. I think it has helped Marisa in a big way having sisters you get in her face and demand she plays with them. THe talking the baby did helped Marisa with her langauge as well ..http://www.comopedspeech.com/ http://www.varietyfarconservatory.org/homepage.html http://www.drdemio.com/index.html http://www.oakland.k12.mi.us/ http://www.autismwebsite.com/ari-lists/us/_Kabisch_%20D.O..html http://www.everydaymiracles.org/ http://www.judsoncenter.org/services/autism.html http://mygreatkid.com:80/mpc/docs/Site/Therapies.html > http://www.generationrescue.org/angels.php?state=MI some web sites that are helpfull > Yes Im not looking forward to the Moving, But my husband said he could > possibly get Compationate Reassignment to a base that has more > resourses and > programs. > Im dealing with her diagnosis well, but I know I'll have emotions for > awhile. I read ALOT and have read and read since finding out, and > right when > I suspected as well. > > It has opened alot of things up...now instead of thinking " shes > just being > emotional " when she throws herself down and cried for seemingly no > reason, > yesterday I was able to figure out she didnt like the dress she was > wearing. > As soon as I took it off she was fine...I then let her pick out > what SHE > wanted to wear. > Shes such a sweet and beautiful girl. She is very affectionate. She > will > just run to me and give me hugs and eximo kisses. > It took her 22 months to say Mama but those were the most beautiful > words to > hear. > She loves those Peek a blocks by Fisher price...so her friends > mommy gave > her a whole bunch...she entertained her self all night with them. > Shes very > self content, and always plays good by herself. > She also loves story time. If she is having a meltdown and I dunno > why I > geet a book and sit her in my lap and she stops. Shes Amazing in > every form > of the word. > She has an almost 5 month old Sister and Just recently when gianna > is in her > bouncer and starts to cry Marrissa will go over and start bouncing > her, or > if shes in her swing she will push it so it swings more....before > this she > would never even attempt interaction with her baby sister except maybe > putting her toys in her baby sisters lap so she knew where they > were...lol > http://www.generationrescue.org/angels.php?state=MI > To Love is not enough, you have to give of your self as well. > > >From: deester_s <no_reply > > >Reply-To: Autism_in_Girls > >To: Autism_in_Girls > >Subject: Re: my daughter > >Date: Sun, 13 Aug 2006 01:54:27 -0000 > > > >- > >The moving thing will be hard on you all. More adjustments. > > > >It's hard to say that you have settled into autism already. It took > >me months. Even though I seemed accepting of the diagnosis months > >would go by and the tears would come again. How come no one told > >us. Why didn't we get her checked eariler. All these guilt things > >kept comming to mind. > > > >My daughter was diagnosised at 25months. How come the peditrician > >didn't send her for testing at her 2 year check up. It was only > >because of my call into the peditrician that he sent her. It was > >only because the daycare kept telling me things that I didn't think > >was important that I called the doctor. > > > >Fate. I accept it now as I have it twice. My daughter and my son. > >My daughter is now 7 (moderate autism)and my son 3 (mild autism, > >ADHD). > > > >My daughter seems to be at a pretty good place. My son however is > >going to kill me I'm sure of it. > > > >Tell us about your daughter some of the thing you love about her and > >some things you'd rather do without...:/. > > > >My daughter has hair sensitivites, she is verbal but limited. They > >are working on Facilatated communication and community safety for the > >new year. > > > >My son....we'll this summer has been really horrible for behaviors. > >He's starting to have seizures and he is so hard to control his > >negative behaviors. He won't listen, and isn't potty trained yet. > >It took 2 years for my daughter to train. I sigh as I hope it won't > >take so long with him. > > > >He is so sentive to details that it drives me crazy. Why is the > >garbage can on the ground, why are some of the lights out. Is the > >garbage full yet, there is no more newspapers in machine....stuff > >like that. He's much more verbal than my daughter. He asks the same > >questions over and over. Sometimes 6-8 times in a 20 minute trip. > > > >Ok here's 2 nice thing to tell. My daughter just advance in her > >Karate to white belt with yellow stripe and my son has like 3 girl > >friends---he's a charmer. > > > > > > > > > > > > > > > >-- In Autism_in_Girls , " Joyce Lazzara " > > wrote: > > > > > > My name is Joyce. I read stories on autism speaks and I tear up. > > > My 2 yr old daughter was diagnosed with autism 2 days ago by Dr. > >Gupta...I'm doing alot better with it now after talking to some > >people but its still hard. Autism never entered my head. I knew she > >was behind but thought shed catch up.She has a very limited > >Vocabulary that includes " go, see'dadda, yay, and hey " . I took her > >the day before her 2nd birthday on August 1st of this year to get > >birthday pictures. the photographer told me she thought I should > >check into autism. I read alot online that day when I got home and > >knew that was her condition. but after seeing a nuerologist yesterday > >and hearing it come out of her mouth I couldnt help but cry. she is > >on the mid level spectrum. I'm not in denial anymore but its still > >hard. I look forward to talking to others dealing with the same > >situation, We live in Auburn Hills, MI. and from what I'm hearing > >theres ALOT of resources here. I'm concerned though. My husband is in > >the Military so we move. We are up to move again January of this > >coming year but they havnt said where we'll go as of yet. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Ah, I opened my email inbox to a treasure trove of Autism_in_Girls pearls today. You are all magnificent. I've no words of wisdom to add today, just adding my little voice to the chorus. Welcome, Joyce....things will get better. All lives are full of ups and downs, and life with Autism may have different ones but not necessarily worse or even better. Let yourself feel your feelings, and sit with them, because to deny or suppers means you'll be dealing with it all eventually anyway. But keep perspective. For all those " Autism Speaks " 13 minute videos out there, there are stories of wonder and discovery and joy and growth and acceptance too. This list is a great place to find the latter. Your child will, as a very wise therapist told me when my kiddo was diagnosed at age 2.5, " surprise and delight you....and make you proud. " I humbly submit that I am 10 times kinder and wiser and stronger and clearer than I was before my daughter graced my life. She is an angel, came bearing gifts, keeps givin 'em out. Toilet training, for she who mentioned this: it took us three years to become pee-trained. Didn't lose the potty until age six, and poop control was another few years away. My girl sill doesn't wipe well--we keep working on it. It is hard. When she has her period ( like the past few days), it's really messy and often smelly. Depends panties work well for nighttime. except they seem to irritate her inner thighs. Dark clothes during the day, a maroon towel and blanket underneath her when she sleeps. And it's always a relief when it's gone. I have faith this will get better over time. Take care, all. Melinda Quote Link to comment Share on other sites More sharing options...
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