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My dd's worst symptom is intrusive thoughts. Initially Zoloft worked for my

daughter until a horrible exacerbation this fall when it no longer seemed to

make any difference. We then switched to Celexa which took the edge off a

bit. It was 6 weeks after we started that that we discovered it was PANDAS

and began treating with antibiotics, so its hard to know if over time it

continued to help more or not. Starting the antibiotics clearly made a big

difference though. Good luck.

From:

[mailto: ] On Behalf Of Beth Henry

Sent: Friday, February 12, 2010 9:21 AM

To:

Subject: medicine

Does anyone out there have an opinion on what antidepressant or ssri has

worked the best for their child that has the worry, confessing, bad thought

type PANDAS or regular? OCD. No tics to speak of at all other than the um,

um, um. We are on 2000 Augmentin now, an an advil twice a day. I know some

types of the meds work better for some types of the OCD.

Beth

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>Hi Beth,

My daughter has that type of OCD-non PANDAS, though. SHe was on the lowest dose

of Lexapro and it took the edge off, but what really helped was ERP therapy. The

doc at the time said she seems to think that most young people do well on

Lexapro, but I think I've read that some in this group have had problems with

it. I think it has to be decided on an individual basis.

Terry

> Does anyone out there have an opinion on what antidepressant or ssri has

> worked the best for their child that has the worry, confessing, bad thought

> type PANDAS or regular? OCD. No tics to speak of at all other than the um,

> um, um. We are on 2000 Augmentin now, an an advil twice a day. I know some

> types of the meds work better for some types of the OCD.

>

>

>

> Beth

>

>

>

>

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Beth,

My almost 9 year old son has OCD - the worry-confession-

bad thought type. He is taking Zoloft 25mg every morning.

It has worked wonders for him! Before the Zoloft, he was

having intrusive thoughts about every 10 minutes and now

it has been 6 weeks since he started the medication and

he reports only 1 or 2 intrusive thoughts a day. This is

a huge improvement!

He also has ADHD and he just started taking Focalin for his

ADHD and in just a few days on this medication, his teachers

noticed an improved difference in his concentration level at

school.

I hope this helped.

Tammie in TX

**********************************************

>

> Does anyone out there have an opinion on what antidepressant or ssri has

> worked the best for their child that has the worry, confessing, bad thought

> type PANDAS or regular? OCD. No tics to speak of at all other than the um,

> um, um. We are on 2000 Augmentin now, an an advil twice a day. I know some

> types of the meds work better for some types of the OCD.

>

>

>

> Beth

>

>

>

>

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******************

he was having intrusive thoughts about every 10 minutes and now

it has been 6 weeks since he started the medication and

he reports only 1 or 2 intrusive thoughts a day. This is

a huge improvement!

******************

That is awesome, Tammie. So glad he is getting some relief.

BJ

>

> Beth,

> My almost 9 year old son has OCD - the worry-confession-

> bad thought type. He is taking Zoloft 25mg every morning.

> It has worked wonders for him! Before the Zoloft, he was

> having intrusive thoughts about every 10 minutes and now

> it has been 6 weeks since he started the medication and

> he reports only 1 or 2 intrusive thoughts a day. This is

> a huge improvement!

> He also has ADHD and he just started taking Focalin for his

> ADHD and in just a few days on this medication, his teachers

> noticed an improved difference in his concentration level at

> school.

>

> I hope this helped.

>

> Tammie in TX

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Hi Beth, I don't think with OCD meds that any work better for one " type " of OCD

than another. Each med just affects a person differently, as I know you've read

often here. Now I'm gonna say something that is sorta opposite, LOL. A doctor

I was asking about SSRIs for OCD told me that he had found Celexa worked well

for those with Aspergers/autism (which has). So at that time, that's

why I opted for trying the Celexa first; I was looking at the SSRIs that come in

liquid form and so chose Celexa. It did work really well for .

>

> Does anyone out there have an opinion on what antidepressant or ssri has

> worked the best for their child that has the worry, confessing, bad thought

> type PANDAS or regular? OCD. No tics to speak of at all other than the um,

> um, um. We are on 2000 Augmentin now, an an advil twice a day. I know some

> types of the meds work better for some types of the OCD.

>

>

>

> Beth

>

>

>

>

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Hi

Thank you for getting back to me. I am so depressed tonight. I really

thought they were going good for a good while. We had seen so much

improvement on the antibiotics. But it seems to be going downhill. On one

hand there is great improvement. She will go in to her bedroom, the

bathroom, etc. alone, which she wouldn't do for months. On the other hand

we have now started with what I guess what they are calling the bad thought

OCD. The worry loop is not like it was in the beginning, but has come back

more, but now she keeps telling that she can't get the bad words out of her

mind, the cuss words. She was looking to me pleading tonight, thinking I

could do something I'm sure. She is very upset over it. Tonight I am just

overwhelmed. Jerry is having another major surgery on the 22nd and will not

be able to do hardly anything alone for a couple of months. Her thoughts

are now starting to cause problems at school. I had hoped that with the

antibiotics I might be able to get to summer, but I know now I probably

won't. I don't know where to turn tonight. I feel so lost.

Beth

From:

[mailto: ] On Behalf Of Chris

Sent: Friday, February 12, 2010 5:12 PM

To:

Subject: Re: medicine

Hi Beth, I don't think with OCD meds that any work better for one " type " of

OCD than another. Each med just affects a person differently, as I know

you've read often here. Now I'm gonna say something that is sorta opposite,

LOL. A doctor I was asking about SSRIs for OCD told me that he had found

Celexa worked well for those with Aspergers/autism (which has). So

at that time, that's why I opted for trying the Celexa first; I was looking

at the SSRIs that come in liquid form and so chose Celexa. It did work

really well for .

>

> Does anyone out there have an opinion on what antidepressant or ssri has

> worked the best for their child that has the worry, confessing, bad

thought

> type PANDAS or regular? OCD. No tics to speak of at all other than the um,

> um, um. We are on 2000 Augmentin now, an an advil twice a day. I know some

> types of the meds work better for some types of the OCD.

>

>

>

> Beth

>

>

>

>

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Share on other sites

Tammy,

Thank you for your help. I am so depressed tonight. I really thought they

were going good for a good while. We had seen so much improvement on the

antibiotics. But it seems to be going downhill. On one hand there is great

improvement. She will go in to her bedroom, the bathroom, etc. alone, which

she wouldn't do for months. On the other hand we have now started with what

I guess what they are calling the bad thought OCD. The worry loop is not

like it was in the beginning, but has come back more, but now she keeps

telling that she can't get the bad words out of her mind, the cuss words.

She was looking to me pleading tonight, thinking I could do something I'm

sure. She is very upset over it. This if from a 9 yr. old girl that

wouldn't have said darn! The bad word thoughts are something new that just

started in the last few days. Tonight I am just overwhelmed. Jerry is

having another major surgery on the 22nd and will not be able to do hardly

anything alone or for himself for a couple of months. Her thoughts are now

starting to cause problems at school. I had hoped that with the antibiotics

I might be able to get to summer, but I know now I probably won't. I don't

know where to turn tonight. I feel so lost.

Beth in Houston

From:

[mailto: ] On Behalf Of svdbyhislove

Sent: Friday, February 12, 2010 4:56 PM

To:

Subject: Re: medicine

******************

he was having intrusive thoughts about every 10 minutes and now

it has been 6 weeks since he started the medication and

he reports only 1 or 2 intrusive thoughts a day. This is

a huge improvement!

******************

That is awesome, Tammie. So glad he is getting some relief.

BJ

>

> Beth,

> My almost 9 year old son has OCD - the worry-confession-

> bad thought type. He is taking Zoloft 25mg every morning.

> It has worked wonders for him! Before the Zoloft, he was

> having intrusive thoughts about every 10 minutes and now

> it has been 6 weeks since he started the medication and

> he reports only 1 or 2 intrusive thoughts a day. This is

> a huge improvement!

> He also has ADHD and he just started taking Focalin for his

> ADHD and in just a few days on this medication, his teachers

> noticed an improved difference in his concentration level at

> school.

>

> I hope this helped.

>

> Tammie in TX

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01:35:00

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I've read the same as that medication is individual. That makes it so

hard to find the right one sometimes. We were lucky, like and ,

with using Celexa first and having good results with it. We chose it because we

had read it was the easiest to come off of, and I also have a nephew who had

taken it successfully for his OCD. Often if one family member has good results

with a particular SSRI, another will too. Might be different info now since

there are many new SSRIs, but that was the case at the time.

Our son is on Celexa for the second time. His OCD and GAD, were both so out of

control that he was down on the sofa, completely non-functioning. It was hard

to even get food down him, he was so stressed and overwhelmed. The meds took

some time to work, but he improved little by little, while we worked on finding

the right dosage. It is rough to go through that. I'm so sorry you are right

now, Beth. (((((hugs to you)))))

It's the worst when they are suffering so much and can't turn it off. Is there

anything that she likes so much that it can sort of distract her? Movies,

games, computer, books you can read out loud to her, etc? Sometimes our son

could sort of tune it out if he was able to distract his mind. We even played

board games for hours on end because it would distract him when it was his turn,

but as soon as it was my turn, he would groan because the thoughts would some

back that fast. Still, if it even helped a little, we would do it.

Our son's OCD would morph like that too. He would be having obsessive thoughts

about one thing, then it would switch to another. It's so frustrating when it

does that. That is common with OCD.

Is Jerry your husband? I can imagine the stress of the upcoming surgery could

be contributing right now for your daughter too. We've also dealt with

stressful health situations. They pretty much always make things worse.

I found that sometimes I would paste on a happy face (not easy), trying to

lighten the mood for our son, trying to find some humor in something. .

anything, doing my best acting, trying to smile through the ache in my heart and

the tears in my eyes, and it would sometimes help us both.

I hope tomorrow is a better day for you. I was always relieved when our son

would go to sleep. I knew he was finally having some relief. I would sometimes

break down and cry then, knowing it was safe to let it out, releasing some of

the stress and heartache OCD causes for all involved.

Try to not lose hope, Beth. It is not uncommon for OCD to wax and wane. It

will get better. It might take time, but you will get there. Those dark waxing

times are tough though. Deep breathing and praying always seemed to help me

through them.

Hugs,

BJ

> >

> > Does anyone out there have an opinion on what antidepressant or ssri has

> > worked the best for their child that has the worry, confessing, bad

> thought

> > type PANDAS or regular? OCD. No tics to speak of at all other than the um,

> > um, um. We are on 2000 Augmentin now, an an advil twice a day. I know some

> > types of the meds work better for some types of the OCD.

> >

> >

> >

> > Beth

> >

> >

> >

> >

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