Re: ANY advise would be SO appreciated!!! NEW HERE :-) PANDAS

[Guest guest]

This does sound very classic for PANDAS. Your clues are sudden onset -

normally, OCD does not just arrive out of the blue. The other clue is the

severity of her OCD when it arrived.

PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorder Associated with

Step. I second the suggestions for the websites you need to go to - if you want

to email me, I'll send you a ton of connections that you can use to educate

yourself & your doctor.

The first line of treatment for PANDAS is antibiotic treatment, whether or not

there is an active strep infection. Do you have a good PANDAS doctor?

All my best - in NC

>

> Hi, my name is . My daughter was DX with OCD and severe anxiety.

> I already have spent the past 2 years learning all about my son's DX of

Autism, when he was 2. I am soooooo tired. My oldest of 3, my easy kiddo, had

an onset of worries, confessions, then within a month, bad thoughts. This

started over the summer, when she was down in Southern California with her

cousins. She called me, confessing that she lied to me about something so

silly, a year or 2 earlier. That happened about 3-5 times that week. Within

weeks, she was approaching me everyday, telling me she had a bad thought. They

were mostly about me, which devastated me. I am a great, loving mom, and she

would say things like, " You look pretty mommy! " Then a minute later, tell me

she had a thought that I was ugly. Those kinds of thoughts started happening a

dozen times a day. I had her in the Pediatrician's office, then to the

Neurologists, then to a Psychologist, within a matter of weeks. Her school work

went from B's to D's and F's. It was just not her. I have had teachers tell me

for the prior 2 years, that she had focus issues, and may have ADD. I never

started meds, although her Ped said I could. I didn't want to, unless she

couldn't make it without them.

> Her Neurologist has her on 20mg Prozac, and 2.5 mg of Abilify. The bad

thoughts about me are gone, but she asks questions every 5 minutes, about things

she knows the answers to, and then apologizes. She tells me she loves me and

wants a hug 2-4 times an hour. Sweet, but not normal. She has a " Deer in the

headlights " look, when you ask her something, and her answers to almost

everything, end with " I think "

> The thoughts came out of nowhere. Just went on a trip, and within 5 days, she

was a wreck.

> I keep seeing PANDAS mentioned, but have no idea about it. I thought is was

when kids ate non edible things, like paint and dirt. Obviously I am wrong?!.

> She has had some light sexual thoughts, which worry me, she has had thoughts

about me dieing if she counts backwards from 10, and told me that when I die,

she wants to also, that she wouldn't want to live without me.

> Any opinions/advise, book suggestions?

> I have spent every spare minute and dollar on my son's Autism, I just need a

little help, from those with experience. I went into my son's disorder blindly,

and would like some guidance here.

> Thank you SOOOOOOOOOOO much!

>

> ~

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