Connie

[Guest guest]

Hi Connie,

Sounds like your husband and mine are identical twin brothers. :

We are so lucky to have such great guys. I'm a white knuckle back seat

driver, who sits in the front!

Love to you,

Debbie P.

[Guest guest]

Hi Agnes,

I think your best bet is to stay with your regular dose of Minocin. You will drive yourself crazy if you try to adjust the dose of your Minocin to your symptoms. Many people go with the 100mg MWF or 100mg twice a day on MWF, although there are others who take it daily. You'll get there......don't forget this is a three steps forward, and one or two steps back routine. Good for you in getting your rheumay to even prescribe the Mino.......your improvements will show her that it does work!

take care,

Connie

Original Message:

<<<Thanks for the encouraging words. I do need them now that I do have pain, itching and most of all fatigue. I wonder if I should increase the mino or just wait it out. My rheumy is not an expert on it, she prescribed mino becouse I asked for it, but that's it.I am glad your story got into the book, gradually the message gets out that antibiotics work. I was so happy to see it in the Mayo Clinic's home page also, that is a very famous clinic.Hugs, Agnes >>>>

[Guest guest]

Connie

It sounds like you have a handful over there.

I am concerned about the teens and mine is only 6.

your redneck comment was so funny. Bradley also makes inappropriate

comments with respect to people and their nationality and heritage, etc.,

And nothing I say seems to convince him that there are good people and bad

people and their race / color / etc have nothing to do with that. He thinks

it is perfectly normal to point out people's color - it is his " Point of

Fact " theory he has created. If it is a point of fact - they know it, he

knows it, what is your problem if I announce it??? He has embarrased me on

more than one occasion. I have actually covered his mouth and smiled,

apologized and walked away (with my hand still on his mouth) arghh!! He is

getting much better but the word " puberty " puts a fear in my. LOL!!!!!!

Anyway, with the comment about whether or not you love him, my son will

constantly tell me " Mommy, I love you. " if he is being corrected. If I

correct his sister, he does the same thing. I'm not talking 1 or 2 times,

he will say it like 14 or 15 times. It must be some kind of reassurance

thing. Maybe with your son too???!? Just a thought. I don't know. My

mother thinks Bradley is very controlling. He is. Part of it is his

Aspergers, part is his OCD and part of it is just his personality. But he

is also very loving and kind and thoughtful (to a fault sometimes). He was

upset on vacation in Florida because they were letting people sit on the

crocodile's back and get their picture taken. It's mouth was taped with duct

tape and he kept on and on about how would they like it if somebody taped

their mouth and sat on their back. How mean it was. How would they like it.

he wanted to knock the people off. They were selfish. He had a point but I

still had to tell him to relax. anyway - what was the topic again ?? LOL!!!

sometimes I just ramble. sorry!! Hang in there - you are right. I wouldn't

buy his gas either.

Dawn

I don't know about you guys, but my son is 16yrs and were in the dayssss

that don't seem to work much...I may sound terrible but I'm in the days

where my son will say " If I didn't know better I would think you don't like

or love me. " My comment at those times are " don't ask I'm hard pressed right

now " , I don't know how much more I can stand the mouth and comments...I know

his meds. aren't strong enough (he's gone from 2.75mgs. a day of respirdal

to 75mgs. tid of topamax, along with effexor 37.5mgs. tid....the respirdal

is now .25mgs. tid...I realize some of this is teens, but the disrespectful

mouth and tone...his comments are if I don't get respect then I don't give

it....give me a break he knows the difference....we ground him from driving

often, but it only lasts so long...we provide a truck for him to drive (it's

a beater truck, but he learns to work on it), we pay the insurance on it

about 900 a yr., but for some reason he thinks we are suppose to provide the

gas also for him

to run around...EXCUSE MEEEEEEEEEEEE...get a better job..he does a paper

route once a wk. 26.00....if he used a better attitude, with better respect,

and did more chores besides picking up his room we might give him some gas

money....he's an absolute pig everywere in the house. ...you always know

where he's been......IT'S JUST GETTING TO BE MORE THEN I CAN HANDLE, and

with school starting in a couple weeks his stress level and axienty level

(which means anger) goes up....I can't handle anymore stresssssssssss...to

listen to his comments about people he doesn't like (or is not comfortable

with)....he sounds like a far right wing asian redneck...he's korean

(adopted), and he thinks he sounds great...though he is wise enough now at

school to keep his comments tempered down.

Sorry for the long winded story....usually I'm just a lurker, but there are

times I just have to vent ....sorry.

Connie T.

[Guest guest]

In a message dated 10/8/03 8:44:03 AM Eastern Daylight Time, kneeleee@...

writes:

> All I did was respond to a post where someone had read a website describing

>

> AS and NT people as cats vs. dogs. She said she doesn't know what is okay

> to

> " fix " and what is something she should learn to accept. I responded that

> websites like that are, IMO, stupid and ignorant. I said she should try to

> help

> him learn appropriate behaviors because otherwise he will have trouble

> getting

> along in the world when she isn't there to help him.

>

I agree with that. Lord knows, I've butted heads with a particular person

over their POV on that stuff, and the " parents being the problem because they

don't 'accept' their child " because they want to help him/her. (read: change)

ROFLMAO

Connie

[Guest guest]

In a message dated 10/8/03 8:44:03 AM Eastern Daylight Time, kneeleee@...

writes:

> And HEY, why have you been hiding? Is school really going that well for

> now? I'm so so glad! Royce is doing fine at high school, that I know

> of.

> As usual, they do not hesitate to tell me how great he's doing and then a

> week

> or two later, I get calls saying he is about to flunk classes. It really

> gets old fast. He is a smart enough kid but if it isn't explained so he

> understands it, he just sits there lost. I spent last night explaining to

> him how to

> simplify algebraic equations. Apparently, they assumed everyone already

> knew

> how to do that and went to the next step but he never got it and so he's

> been

> failing ever since they got to that point. It took me about 5 minutes and 4

>

> problems to explain it and he's got it. Next I am going to teach him how to

>

> work with fractions.

>

> He has a study hall with a tutor to do just this plus a regular study hall

> to

> do whatever else but apparently, that's not enough. I just get the idea

> that

> nobody is paying attention to him.

>

Geez, he is doing AWESOME. Of course, he is depressed because interims came

out last week and he only got 5 As and 2 Bs. Therefore, he's a loser and a

failure and he will NEVER get into Harvard. (??!!!??!?!)

He is getting a LOT of attention. Actually, he is less in the mainstream

classes this year (though he is in SOME) and in a few selfcontained classes. He

gets MORE assistance and has shown remarkable improvement. Actually, a lot of it

is his own commitment to wanting to go to Med School. (counting a few pennies

here-- sigh)

At least you COULD help Royce with his Algebra. would be dead in the

water if he needed MY help.

Anyway, I AM still among the living. It's just been real tough for me. The

seemingly total ignoring of my resume by several hundred employers will do that

to you. Then I get slammed for being a welfare leech, over a few food stamps.

You know, if I " really WANTED to work " I'd find SOMETHING, ANYTHING. I should

have more pride, stop sitting on my behind, quit AOL and use THAT money for

food, sell my belongings, ANYTHING but take a handout.....

@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@

Connie

[Guest guest]

In a message dated 10/8/2003 9:32:40 AM Eastern Standard Time,

Dawahooz@... writes:

Geez, he is doing AWESOME. Of course, he is depressed because interims came

out last week and he only got 5 As and 2 Bs. Therefore, he's a loser and a

failure and he will NEVER get into Harvard. (??!!!??!?!)

Oh wow!!! That is fantastic!!! He is really doing great. I wish he would

not think he's a failure for those grades! Ask him if Ohio State would do?

lol.

<<Anyway, I AM still among the living. It's just been real tough for me. The

seemingly total ignoring of my resume by several hundred employers will do

that

to you. Then I get slammed for being a welfare leech, over a few food stamps.

You know, if I " really WANTED to work " I'd find SOMETHING, ANYTHING. I should

have more pride, stop sitting on my behind, quit AOL and use THAT money for

food, sell my belongings, ANYTHING but take a handout.....

>>

Well, you should ignore people who don't get it. I don't think people can

understand unless they've been there themselves sometimes. When the economy

isn't going so well, people want to blame someone. Ohio is not doing that well

lately so it's probably really hard to find something here.

As for AOL, how could anyone suggest getting rid of it? lol. It's the only

piece of sanity out of the day! <GG>

Roxanna ö¿ö

Autism happens...

[Guest guest]

In a message dated 10/8/03 1:00:38 PM Eastern Daylight Time, kneeleee@...

writes:

> I honestly do not like those websites that compare my kids to aliens

> and even if it is written by someone with AS, it doesn't make a

> difference to me. I still dislike the entire idea. There are some

> people that think anything written by a person with AS has to be

> regarded as wonderful. I have never agreed with that theory.

>

Nor have I. The very idea that simply because somebody has Austism, that

they are always " right " ? I would never tell anyone ASD or NT that they don't

have a right to THEIR feelings. Of course they do. But to just make the kind of

blanket statements that they are right because it's THEM and not us, well,

that's just downright ludicrous.

IMO, that ranks right up there with people who just always say, " Oh, well, he

has Autism, so you have to understand and ignore it " . No way! Understand?

Yes. But ASD kids can and SHOULD be given every opportunity to be as much

like everyone else as they can. I fully expect MY children to obey certain

standards. WIthin THEIR limits, but also within general society's limits.

I'm going to get a little indelicate here. I know of some parents whose

child masturbates as one of their stims. And they see it as part of who their

child is, and thus off limits to anyone else's opinion. One can hardly accept

that

in public as appropriate behavior. Not to mention getting into legal

ramifications. He or she CAN be taught alternatives, and be taught that if one

needs

to do that, it is to be done in PRIVATE.

I know of ASD kids who consistantly steal others belongings. And one parent

SAYS she checks the DD's bookbag daily, but still manages to have to make the

old trip to school to fetch the offending item, or retrieve HER personal

belongings that she needs for work. And shrugs it off as " part of who her child

is " .

(sigh) I don't mean to offend anyone. And I of all people totally understand

how difficult this is. If you only KNEW how much flack I get for my kids

being late all the time. And we've tried EVERYTHING to get them up in the

morning. But there's a big difference between " celebrating " your child and their

special nuances, and making excuses and giving up BECAUSE they have Autism, and

they can't get over it.

Uh-oh-- I gotta go. I feel a rant coming on. And I just HATE to be

controversial....

Connie

[Guest guest]

Ugh...now I feel even worse. I was pretty certain I started this. Now

I know for sure. I am terribly sorry. I never meant to cause a

debate. I have been going through an extremely difficult time. I only

wished to get both suggestions and support. Now I wish I had simply

dealt with my confusing thoughts on my own. I'm actually back on

track. I always get extremely indecisive before a big change. Anyways

I am sorry.

a

> All I did was respond to a post where someone had read a website

describing

> AS and NT people as cats vs. dogs. She said she doesn't know what

is okay to

> " fix " and what is something she should learn to accept. I

responded that

> websites like that are, IMO, stupid and ignorant. I said she

should try to help

> him learn appropriate behaviors because otherwise he will have

trouble getting

> along in the world when she isn't there to help him.

>

> The rest went downhill from there. But it was suggested by two

posters that

> I see a therapist. I really think my POV is very practical and

simple and I

> don't know why, if we are supposed to accept people who think

differently, my

> different POV isn't acceptable without calling me crazy. I wrote

a whole post

> trying to explain what I meant but nobody read that one, I guess.

However,

> Anne was kind enough to tell me her son's SAT scores. So at least

we got some

> useful information out of all of this.

>

> And HEY, why have you been hiding? Is school really going that

well for

> now? I'm so so glad! Royce is doing fine at high school,

that I know of.

> As usual, they do not hesitate to tell me how great he's doing and

then a week

> or two later, I get calls saying he is about to flunk classes. It

really

> gets old fast. He is a smart enough kid but if it isn't explained

so he

> understands it, he just sits there lost. I spent last night

explaining to him how to

> simplify algebraic equations. Apparently, they assumed everyone

already knew

> how to do that and went to the next step but he never got it and so

he's been

> failing ever since they got to that point. It took me about 5

minutes and 4

> problems to explain it and he's got it. Next I am going to teach

him how to

> work with fractions.

>

> He has a study hall with a tutor to do just this plus a regular

study hall to

> do whatever else but apparently, that's not enough. I just get the

idea that

> nobody is paying attention to him.

>

> Roxanna ö¿ö

> Autism happens...

>

>

>

[Guest guest]

In a message dated 10/8/2003 12:18:21 PM Eastern Standard Time,

lbohn@... writes:

If you've identified math as a target subject, the tutor should really go

over the day's

material and ask Royce to " show me how to simplify this equation that uses

fractions "

(or whatever they're doing that day), rather than counting on him to ask

questions on

where he's needing help. He probably can't articulate it.

Liz

Yes I agree. That's why I'm frustrated. I say this stuff and it's as if

they don't believe me at first. He " looks " NORMAL. lol. And of course, the

math that he can do, he can do really well. He's faster than a calculator, or

so

they tell me. As soon as the problem goes to two step - he's lost without

directions. I'm definitely going to be discussing this with the tutor...again.

Roxanna ö¿ö

Autism happens...

[Guest guest]

If you've identified math as a target subject, the tutor should really go over

the day's

material and ask Royce to " show me how to simplify this equation that uses

fractions "

(or whatever they're doing that day), rather than counting on him to ask

questions on

where he's needing help. He probably can't articulate it.

Liz

kneeleee@... wrote:

> In a message dated 10/7/2003 10:41:08 PM Eastern Standard Time,

> Dawahooz@... writes:

> Somehow, I just KNEW when I saw the post about God giving special children to

> us, it was going to cause a nuclear meltdown. I passed it up for just that

> reason.

>

> Listen, ladies! We ALL handle things in different ways. The most important

> thing is #1 that our kids KNOW they are loved and accepted. #2 That we all

> recognize that we can only do what we can do.

>

> Aha! You do exist!

>

> All I did was respond to a post where someone had read a website describing

> AS and NT people as cats vs. dogs. She said she doesn't know what is okay to

> " fix " and what is something she should learn to accept. I responded that

> websites like that are, IMO, stupid and ignorant. I said she should try to

help

> him learn appropriate behaviors because otherwise he will have trouble getting

> along in the world when she isn't there to help him.

>

> The rest went downhill from there. But it was suggested by two posters that

> I see a therapist. I really think my POV is very practical and simple and I

> don't know why, if we are supposed to accept people who think differently, my

> different POV isn't acceptable without calling me crazy. I wrote a whole

post

> trying to explain what I meant but nobody read that one, I guess. However,

> Anne was kind enough to tell me her son's SAT scores. So at least we got some

> useful information out of all of this.

>

> And HEY, why have you been hiding? Is school really going that well for

> now? I'm so so glad! Royce is doing fine at high school, that I know

of.

> As usual, they do not hesitate to tell me how great he's doing and then a week

> or two later, I get calls saying he is about to flunk classes. It really

> gets old fast. He is a smart enough kid but if it isn't explained so he

> understands it, he just sits there lost. I spent last night explaining to him

how to

> simplify algebraic equations. Apparently, they assumed everyone already knew

> how to do that and went to the next step but he never got it and so he's been

> failing ever since they got to that point. It took me about 5 minutes and 4

> problems to explain it and he's got it. Next I am going to teach him how to

> work with fractions.

>

> He has a study hall with a tutor to do just this plus a regular study hall to

> do whatever else but apparently, that's not enough. I just get the idea that

> nobody is paying attention to him.

>

> Roxanna ö¿ö

> Autism happens...

>

>

[Guest guest]

a,

Oh no! Do not start feeling bad as this is NOT your fault at all! I

purposely didn't put your name in my post because I do not blame

you. You had a very good post and you got several different

responses, which is the usual way we do things here! I am sure the

problem was not you at all.

I honestly do not like those websites that compare my kids to aliens

and even if it is written by someone with AS, it doesn't make a

difference to me. I still dislike the entire idea. There are some

people that think anything written by a person with AS has to be

regarded as wonderful. I have never agreed with that theory.

As Connie posted, this subject is not discussed only on this list at

all. It happens in lots of places. I used to post on a message

board on AOL (Connie remembers) and ended up having an argument over

whether we should provide therapy to kids with AS or not. I said we

should and said my 6 yo was doing ABA. The other person (and her

long list of supporters) argued and flamed me because they couldn't

believe one didn't just accept their child " as is " and not try

to " change them. " Having AS was a wonderful thing to them so why

mess with it?

I think that really goes along with your thoughts - what should we

just accept about our kids and what should we work on changing?

The kicker for me is that we " change " our NT kids all the time -

correct them, teach them, educate them, expect them to behave...why

would we expect less from kids with AS? Certainly, we have to make

allowances for the disability and to teach things differently, but

to just not try to teach people with AS? No way!

At any rate, it's an interesting discussion/debate. We could have

discussed it if we could have stayed on the topic and not made it

personal. I don't think we could that. But it does not mean your

post/your thoughts were bad at all. Also, Kathy and I had a

disagreement in the past so I suppose this was just an add-on to that

and not about you.

Roxanna

> Ugh...now I feel even worse. I was pretty certain I started this.

Now

> I know for sure. I am terribly sorry. I never meant to cause a

> debate. I have been going through an extremely difficult time. I

only

> wished to get both suggestions and support. Now I wish I had simply

> dealt with my confusing thoughts on my own. I'm actually back on

> track. I always get extremely indecisive before a big change.

Anyways

> I am sorry.

>

> a

[Guest guest]

This is the first time I've heard this. Is it common? Of course I

know alot of NT people who are night owls too. Anyways my youngest is

like this. And I've tried every suggestion given. Well the reasonable

ones anyways. PLEASE lie to me and tell me it gets better w/ age!

He's 3. And I switched him from morning prek to afternoon prek. I

took ALOT of flak. What am I going to do later since I'm accomodating

him now...yada yada. My answer is that I have this year, and two more

full school years before I have to worry about mornings so there!

Seriously though I do think about it. It worries me a little. a

And we've tried EVERYTHING to get them up in the

morning.

[Guest guest]

<<<<<<< Of course I

know alot of NT people who are night owls too. >>>

me! me !!

one of the recurrent themes yo heard in our house when iw as growing up was :

" turn off teh lights alrady !! go to sleep !!! it is 3am !!! "

F

[Guest guest]

That is one of my pet peeves in life - to be told he has to learn now

because he'll have to know how to in 5 years down the road. I

remember when Royce was starting school and having trouble staying at

school all day plus splitting his day between two programs (K for

half a day/ sped for half a day.) I was lectured on how, when he got

to jr. high school, he'd have to switch classes all day long so he

might as well learn how to do it now. ACK! I told them we would

worry about jr. high when the time came. lol, he was only in

kindergarten!! Don't let them make you feel bad!

Roxanna

PLEASE lie to me and tell me it gets better w/ age!

> He's 3. And I switched him from morning prek to afternoon prek. I

> took ALOT of flak. What am I going to do later since I'm

accomodating

> him now...yada yada. My answer is that I have this year, and two

more

> full school years before I have to worry about mornings so there!

> Seriously though I do think about it. It worries me a little. a

>

> And we've tried EVERYTHING to get them up in the

> morning.

[Guest guest]

Connie,

Would you agree that people with this chemistry become

addicted to psychotropic drugs (tranquilizers, SSRI's,

etc.) and therefore, need more and more, and become

very sick on them? I am thinking that this chemistry

is not just with food... Sorry this is kind of OT.

Juli

--- cbrown2008 <cbrown2008@...> wrote:

> > Is evoking " mu " really an addiction or is it an

> unrecognized, quite

> > natural survival process for those today that

> genetically survived

> > from that ice age?

> >

> > Wanita

>

> Well in my own personal mental model, which I've

> constructed from all

> food and mood research and reading, my personal

> history, and my service

> work in an addiction community, I'd have to say it's

> both. So many of

> the genetic groups that have addiction histories

> also come from climate

> extremes where food is not constantly available. The

> thrifty gene and

> all that. Our famous Northern Europe Irish, Scots,

> Russians, and the

> desert-dwelling Pima Indians. The idea being, we

> are really really

> good at using endorphins (and other neurochemicals,

> like dopamine and

> serotonin) to cover the pain of times of no food.

>

> The addiction part comes in just because bodies that

> are wired like

> this, respond in a drug-like way to ingesting

> fractionated manufactured

> fats and sugars in isolation from whole food. Like a

> beignet for

> breakfast on an empty stomach, LOL.

> We get a bigger " hit " , which further re-regulates

> the receptors, then

> thanks to the mechanism of increased tolerance, you

> need a bigger

> amount to get the same hit. Just like white powder

> drugs.

>

> If you look at the criteria for addiction

> established since the 50s,

> and compare the behavior check-off with people's

> behavior who can't

> stop with the junk food, it meets the criteria.

>

> What makes it hard for people who are not born this

> way, and thus don't

> experience the " schwing " of a drug-like hit from

> food, to understand, I

> think also comes from the old " germ versus favorable

> medium "

> controversy between Pasteur and Bechamp. People

> coming from a germ and

> disease mindset think that a substance like fat must

> work the same in

> all people or something, and if it isn't bad for

> everyone then it isn't

> the substance at all and we should look for some

> other culprit.

>

> But in addiction, it's the substance, plus the

> " favorable medium " of a

> person who is born with a certain chemistry and then

> raised in the US

> on drug-like food (like me) that combines to set up

> the conditions for

> addiction.

>

> Sorry you asked, huh, this was a fun question.

>

> Connie

>

>

>

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

> Connie,

>

> Would you agree that people with this chemistry become

> addicted to psychotropic drugs (tranquilizers, SSRI's,

> etc.) and therefore, need more and more, and become

> very sick on them? I am thinking that this chemistry

> is not just with food... Sorry this is kind of OT.

> Juli

yes, it can be a problem. All the addictions work the same way in

terms of changing brain chemistry and the spiral of increased

tolerance. One time in a seminar we came up with over 20 - I had no

idea. Some of them I never did. There's food, gambling, alcohol,

caffeine, each of the street drugs, all the legal drugs, shopping,

excessive exercise, sex.

What's really interesting is if you address the underlying cause -

the imbalance - all the addictions can quiet down. Conversely, if

you just stop using one, but don't address the imbalance, you get

people bouncing from one addiction to another forever. Brains really

hate withdrawal and seek homostasis.

SSRIs are really interesting. The brain regulates around em. That's

why some people have to keep changing their SSRI when the previous

one " quits working " .

Connie

[Guest guest]

Welcome, Connie!

Sounds like the new rheumatologist should become a bad memory. Don't go back

to him.

How did the neurologist and your first rheumatologist make your RA

diagnosis?

I'm assuming you are taking methotrexate orally. You could ask to be

switched to injections. Some people tolerate it better that way. It's also

more effective by injection.

Are you taking folic acid, too?

It might take some time to get your diagnoses sorted out and to find the

right medications to help - hang in there.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Digest Number 5000

> Greetings. My name's Connie. I've been following you guys for a few

> months now. I'm learning a lot about RA and what a nice group you are. I

> always imagined my first post would be on a positive note, but I need to

> get some opinions about the direction I'm going in the RA treatment. I

> usually have a positive attitude, but today has turned out to be

> confounding. I've been seeing a Rheumy who is very conservative, since

> last winter. He calls this a difficult diagnosis, probably RA, treated as

> RA. Previously, my Neourosurgeon had diagnosed RA, thus the referral to a

> Rheumy. We've done Celebrex, Plaquinel, Sulfasalozine, Metholtrexate. My

> condition continues to worsen. I can not work now. I'm a middle school

> art teacher. I haven't even been able to start school this fall. .It's a

> physically demanding job, especially with the fatigue and bad

> hands/wrists/elbows/shoulders/hips. I feel like I've been very patient.

> Most information I've found says that one should seek agressive

> treatment. I'm really interested in trying one of the newer drugs. The

> Rheumy wants to continue with the Celebrex, Plaquinel, Metholtrexate for 6

> more weeks (I've already been on Meth. for 8 weeks and am nauseous, with

> mouth sores and bleeding gums) I don't want to take the Meth. any more.

> So I saw a new Rheumy today. He thinks its not RA. He thinks the

> hip/lower back pain, and the hand/arm/shoulder pain are unrelated. He

> said everyone has fatigue. He thinks I have sleep apnea (though I have no

> problems sleeping) and I probably clench my fists at night. He wants me

> to stop all meds (scares the poop out of me! I can barely tolerate the

> pain as it is) and instead, take a valium/sleeping meds. Even though I

> wish it wasn't true, I think the RA diagnosis is right, especially since I

> have 2 other autoimmune diseases (has anyone heard of the triplet

> autoimmune diseases- Hoshimoto's, Colitis, RA?). I'm in a quandry. I'd

> appreciate any opinions or thoughts. I'm wandering

> aimlessly......Thanks

[Guest guest]

In your field, have you seen people actually improve

on taking the tryptophan capsules? I wonder if the

stuff really works. Juli

--- cbrown2008 <cbrown2008@...> wrote:

>

> > Connie

> >

> > Have you read Lights Out! Sleep Sugar & Survival

> by T.S. Wiley? She

> > says on page 100 that depressed people do not have

> low serotonin.

> They

> > have low dopamine and that dopamine controls

> protein craving.

> >

> > Wanita

>

> Yes, I love " Lights Out. " I think she's right about

> the dopamine,

> wouldn't you know they're interrelated. " Mastering

> Leptin " talks

> about all these too with respect to craving. On

> serotonin, let's

> just say that what she's saying does not jibe with

> my lived

> experience. Or how SSRIs work. Although -- low

> serotonin craves

> carbs more than protein. And as I recall, she

> didn't get into beta-

> endorphin and food at all? that's a big mother of

> cravings too.

>

> We are certainly at the very beginning of even

> noticing connections

> about food and mood, much less converging on an

> agreed-upon model of

> how it works. There was a news story just a couple

> of days ago where

> a researcher was all thrilled that plain old sugar

> measurably

> affects cortisol. sometimes I wonder - what on

> earth are they

> reading that this would be a surprise? or don't

> they know regular

> people who self-medicate that way?

>

> Connie

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

> In your field, have you seen people actually improve

> on taking the tryptophan capsules? I wonder if the

> stuff really works. Juli

Nope. What I have seen is that the causes are much more multi-

variate than a simple tryptophan deficiency, so trying to make it

work with a pill like that is like trying to stick a fridge magnet

to a tree. You can keep trying but...

on the other hand - I have never seen it get fixed until a person

gets adequate protein including the amino acid tryptophan.

Sometimes people grossed out by protein (vegans are an example) will

try to use the very rock-bottom protein levels to square it with

belief systems that say we need very little protein - and then they

have cravings and immune system problems until the end of time.

I have sympathy though - when you compare what you see in yourself

with some science theory, and it doesn't match, how do you know

whether the problem is the theory or how you're putting it into

practice.

Connie

>

> --- cbrown2008 <cbrown2008@y...> wrote:

>

> >

> > > Connie

> > >

> > > Have you read Lights Out! Sleep Sugar & Survival

> > by T.S. Wiley? She

> > > says on page 100 that depressed people do not have

> > low serotonin.

> > They

> > > have low dopamine and that dopamine controls

> > protein craving.

> > >

> > > Wanita

> >

> > Yes, I love " Lights Out. " I think she's right about

> > the dopamine,

> > wouldn't you know they're interrelated. " Mastering

> > Leptin " talks

> > about all these too with respect to craving. On

> > serotonin, let's

> > just say that what she's saying does not jibe with

> > my lived

> > experience. Or how SSRIs work. Although -- low

> > serotonin craves

> > carbs more than protein. And as I recall, she

> > didn't get into beta-

> > endorphin and food at all? that's a big mother of

> > cravings too.

> >

> > We are certainly at the very beginning of even

> > noticing connections

> > about food and mood, much less converging on an

> > agreed-upon model of

> > how it works. There was a news story just a couple

> > of days ago where

> > a researcher was all thrilled that plain old sugar

> > measurably

> > affects cortisol. sometimes I wonder - what on

> > earth are they

> > reading that this would be a surprise? or don't

> > they know regular

> > people who self-medicate that way?

> >

> > Connie

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

[Guest guest]

Tryptophan definitely works, as does 5HTP. Ultimately, it is best to

see the entire neurotransmitter / hormone profile, if you have access

to thos elabs, and if the WAP approaches are proving ineffective or

too slow.

SCott Einhorn

>

> >

> > > Connie

> > >

> > > Have you read Lights Out! Sleep Sugar & Survival

> > by T.S. Wiley? She

> > > says on page 100 that depressed people do not have

> > low serotonin.

> > They

> > > have low dopamine and that dopamine controls

> > protein craving.

> > >

> > > Wanita

> >

> > Yes, I love " Lights Out. " I think she's right about

> > the dopamine,

> > wouldn't you know they're interrelated. " Mastering

> > Leptin " talks

> > about all these too with respect to craving. On

> > serotonin, let's

> > just say that what she's saying does not jibe with

> > my lived

> > experience. Or how SSRIs work. Although -- low

> > serotonin craves

> > carbs more than protein. And as I recall, she

> > didn't get into beta-

> > endorphin and food at all? that's a big mother of

> > cravings too.

> >

> > We are certainly at the very beginning of even

> > noticing connections

> > about food and mood, much less converging on an

> > agreed-upon model of

> > how it works. There was a news story just a couple

> > of days ago where

> > a researcher was all thrilled that plain old sugar

> > measurably

> > affects cortisol. sometimes I wonder - what on

> > earth are they

> > reading that this would be a surprise? or don't

> > they know regular

> > people who self-medicate that way?

> >

> > Connie

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

[Guest guest]

Hi

you are getting too mystical on me! Buhner does this I am just a

beginner who thought my heart needed more supporting and liked the

color of hawthorn.

It seems to help me tolerate the other herbs, I am going to scale up

Andro now so that is the real test!

Its interesting how you feel B's herbs work togeather.

BTW I am into combining christanity and shamanism. A heady mix!

Sunny thoughts,

wallace

-- In , " Connie " <conniekillbug@...>

wrote:

>

>

> >

> What have you noticed, since starting the Hawthorn?

> I am not sure I've ever asked my heart precisely what it wants, but

I

> do make decisions based on intuition, which ties in to my faith, as

I

> think intuition is from God.

> Strangely, since the onset of illness, I have felt led to really

care

> for my adrenal glands...it's like they are screaming for more

> attention than all of my other organs combined! Interesting, eh?

> So do you feel you get precise answers when you ask your heart what

it

> wants?

> Connie

>

>

[Guest guest]

> > >

> > What have you noticed, since starting the Hawthorn?

> > I am not sure I've ever asked my heart precisely what it wants, but

> I

> > do make decisions based on intuition, which ties in to my faith, as

> I

> > think intuition is from God.

> > Strangely, since the onset of illness, I have felt led to really

> care

> > for my adrenal glands...it's like they are screaming for more

> > attention than all of my other organs combined! Interesting, eh?

> > So do you feel you get precise answers when you ask your heart what

> it

> > wants?

> > Connie

> >

> >

>

[Guest guest]

In a message dated 2/18/07 8:19:16 PM, wpswallace@... writes:

> << I am just a beginner who thought my heart needed more supporting and

> liked the

> color of hawthorn. >>

>

Wallace, this sounds like as good a reason to me as any other :-) Actually,

come to think of it, I have read where colors of plants can correspond to

their healing properties. What color (or colors) is hawthorne?

>

> << It seems to help me tolerate the other herbs, I am going to scale up

> Andro now so that is the real test! >>

>

Good luck with the Andro!

>

> << BTW I am into combining christanity and shamanism. A heady mix! >>

>

And probably a " hearty " mix as well!

Continued healing to you, Wallace~

Ann

[Guest guest]

>

Hi Wallace, I've received some mails from you on this group, but I

have been having difficulty with my account, so maybe I'm not

receiving all of them. I don't know. if you put my name in the title

as you've been doing maybe we can figure out whether there's a problem...

Thanks, Connie

> I have sent you a couple of emails but I dont think you are getting

> them.

>

> Buhner talks about the incredible experience of walking in a truly wild

> forest, which man has not altered. Health permitting one day I hope to

> travel to the amazon to experience that first hand.

>

> Slowly I am reading your blog, watch out these blogs are coming out as

> books!!!

>

> Wallace

>